Enhancing the Validity of a Quality of Life Measure for Autistic People

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J. (2017). Enhancing the Validity of a Quality of Life Measure for Autistic People. Journal of Autism and Developmental Disorders, 48(5), 1596-1611. https://doi.org/10.1007/s10803-017-3402-z

Publication date: 29 Nov 2017 Added to AutiHub: 18 Sep 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)

Abstract

Accurate measurement of quality of life (QoL) is important for evaluation of autism services and trials of interventions. We undertook psychometric validation of the World Health Organisation measure-WHOQoL-BREF, examined construct validity of the WHO Disabilities module and developed nine additional autism-specific items (ASQoL) from extensive consultation with the autism community. The sample of 309 autistic people was recruited from the Adult Autism Spectrum Cohort-UK. The WHOQoL-BREF had good psychometric properties, including criterion, convergent, divergent and discriminant validity. The WHO Disabilities module showed adequate construct validity and reliability. The ASQoL items form a unitary factor of QoL, with one global item. Future studies can use the WHO measures alongside the ASQoL items to measure QoL of autistic people.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:01.

Cited references
74
With a DOI
61
Without a DOI, from raw bibliography text
11
4 / 74 (5.4%) cited references include at least one author identified as autistic.
References with data to complete
10 / 74 (13.5%)
References with detected author names
68 / 74 (91.9%)
Without detected author names
6
Without a structured title
9
Without a stable identifier
11
References with raw author names still to review
0
References with external metadata lookup issues
3
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
228
From DOI or external metadata
228
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
53 / 228 (23.2%) names are linked to an author already present in AutiHub. 175 / 228 (76.8%) names are not yet linked.
Names linked to a person identified as autistic
4 / 228 (1.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 4 / 53 (7.5%). Distinct people identified as autistic: 3 / 211 (1.4%).
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