Soins primaires pour les adultes sur le spectre de l’autisme

Titre original en anglais : Primary Care for Adults on the Autism Spectrum

Nicolaidis, C., Kripke, C., & Raymaker, D. M. (2014). Primary Care for Adults on the Autism Spectrum. Medical Clinics of North America, 98(5), 1169-1191. https://doi.org/10.1016/j.mcna.2014.06.011

Date de publication: 16/08/2014 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)

Résumé

Le trouble du spectre de l’autisme (TSA) est défini par des différences dans la communication sociale et des schémas restreints et répétitifs de comportements, d’intérêts ou d’activités. Les compétences et les difficultés peuvent changer selon les stimuli environnementaux, les soutiens et les facteurs de stress. La qualité de vie peut être améliorée par le recours à des aménagements, des technologies d’assistance, des thérapies visant à améliorer le fonctionnement adaptatif ou la communication, la formation des aidants, l’acceptation, l’accès et l’inclusion. Cet article porte sur l’identification du TSA chez les adultes, les orientations vers des services, la reconnaissance des affections associées, les stratégies et les aménagements visant à faciliter des services de soins primaires efficaces, ainsi que les questions éthiques liées aux soins des adultes autistes.

Autism spectrum disorder (ASD) is defined by differences in social communication and restricted, repetitive patterns of behavior, interests, or activities. Skills and challenges can change depending on environmental stimuli, supports, and stressors. Quality of life can be improved by the use of accommodations, assistive technologies, therapies to improve adaptive function or communication, caregiver training, acceptance, access, and inclusion. This article focuses on the identification of ASD in adults, referrals for services, the recognition of associated conditions, strategies and accommodations to facilitate effective primary care services, and ethical issues related to caring for autistic adults.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
67
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
3 / 67 (4,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
11 / 316 (3,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 11 / 47 (23,4 %). Auteurices cité·es distinct·es identifié·es comme autistes : 5 / 295 (1,7 %).
Occurrences citées rattachées à la base AutiHub
47 / 316 (14,9 %)
Auteurices cité·es distinct·es rattaché·es : 33 / 295 (11,2 %)
Occurrences rattachées, non identifiées comme autistes
36 / 47 (76,6 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 36 / 316 (11,4 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 28 / 33 (84,8 %).
  1. R M Shavelle , D Strauss (1998). Comparative mortality of persons with autism in California, 1980-1996. J Insur Med, 30(4), 220.
    Type: Article OpenAlex: https://openalex.org/W1106379
    Crossref OpenAlex
  2. Traolach Brugha , Sally McManus , John Bankart , Fiona Scott , Susan Purdon , Jane Smith et al. (2011). Epidemiology of Autism Spectrum Disorders in Adults in the Community in England . Archives of General Psychiatry, 68(5), 459. American Medical Association (AMA).
    Crossref OpenAlex OpenCitations
  3. Fabian Guénolé , Jean-Marc Baleyte (2011). Meta-analysing the effectiveness of melatonin for sleep-disturbed individuals with autism spectrum conditions: should Rett syndrome be included? Developmental Medicine & Child Neurology, 53(11), 1063-1063. Wiley.
    OpenCitations
  4. Robert M. Shavelle , David J. Strauss , Jane Pickett (2001). Causes of Death in Autism . Journal of Autism and Developmental Disorders, 31(6), 569-576. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  5. Kamila Markram , Henry Markram (2010). The Intense World Theory – A Unifying Theory of the Neurobiology of Autism . Frontiers in Human Neuroscience, 4, 224-224. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  6. R. Srikanth , G. Cassidy , C. Joiner , S. Teeluckdharry (2011). Osteoporosis in people with intellectual disabilities: a review and a brief study of risk factors for osteoporosis in a community sample of people with intellectual disabilities . Journal of Intellectual Disability Research, 55(1), 53-62. Wiley.
    Crossref OpenAlex OpenCitations
  7. American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders, fifth edition (DSM-5) .
    Type: Autre
    Crossref
  8. Rosemary B. Hughes , Emily M. Lund , Joy Gabrielli , Laurie E. Powers , Mary Ann Curry (2011). Prevalence of interpersonal violence against community-living adults with disabilities: A literature review. Rehabilitation Psychology, 56(4), 302-319. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0025620 OpenAlex: https://openalex.org/W1994402964
    Crossref OpenAlex OpenCitations
  9. M A Stewart (1995). Effective physician-patient communication and health outcomes: a review. CMAJ, 152(9), 1423.
    Type: Article OpenAlex: https://openalex.org/W1836470756
    Crossref OpenAlex
  10. Nicola Rose , John Rose , Sarah Kent (2012). Staff training in intellectual disability services: a review of the literature and implications for mental health services provided to individuals with intellectual disability . International Journal of Developmental Disabilities, 58(1), 24-39. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  11. Lauren E Hirsch , Tamara Pringsheim (2016). Aripiprazole for autism spectrum disorders (ASD) . Cochrane Database of Systematic Reviews, 2016(6), CD009043-CD009043. Wiley.
    OpenAlex
  12. Christina Nicolaidis (2012). What Can Physicians Learn from the Neurodiversity Movement? AMA Journal of Ethics, 14(6), 503-510. American Medical Association (AMA).
    AutiHub · Centre de documentation Crossref OpenAlex OpenCitations
  13. L. I. IEZZONI (2002). Satisfaction with quality and access to health care among people with disabling conditions . International Journal for Quality in Health Care, 14(5), 369-381. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  14. L. Charlot , S. Abend , P. Ravin , K. Mastis , A. Hunt , C. Deutsch (2011). Non‐psychiatric health problems among psychiatric inpatients with intellectual disabilities . Journal of Intellectual Disability Research, 55(2), 199-209. Wiley.
    Crossref OpenAlex OpenCitations
  15. Kimberley Rogers , Isabel Dziobek , Jason Hassenstab , Oliver T. Wolf , Antonio Convit (2007). Who Cares? Revisiting Empathy in Asperger Syndrome . Journal of Autism and Developmental Disorders, 37(4), 709-715. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  16. Russell Lang , Lynn Kern Koegel , Kristen Ashbaugh , April Regester , Whitney Ence , Whitney Smith (2010). Physical exercise and individuals with autism spectrum disorders: A systematic review . Research in Autism Spectrum Disorders, 4(4), 565-576. Elsevier BV.
    Crossref OpenAlex OpenCitations
  17. Lord (2012). Autism diagnostic observation schedule: ADOS-2 .
    Type: Autre
    Crossref
  18. Johnny L. Matson , Martin N. Ancona , Jonathan Wilkins (2008). Sleep Disturbances in Adults with Autism Spectrum Disorders and Severe Intellectual Impairments . Journal of Mental Health Research in Intellectual Disabilities, 1(3), 129-139. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  19. Annelies A. Spek , Nadia C. van Ham , Ivan Nyklíček (2013). Mindfulness-based therapy in adults with an autism spectrum disorder: A randomized controlled trial . Research in Developmental Disabilities, 34(1), 246-253. Elsevier BV.
    Crossref OpenAlex OpenCitations
  20. Susan W. White , Donald Oswald , Thomas H. Ollendick , Lawrence Scahill (2009). Anxiety in children and adolescents with autism spectrum disorders . Clinical Psychology Review, 29(3), 216-229. Elsevier BV.
    Crossref OpenAlex OpenCitations
  21. Gerda de Kuijper , Hans Mulder , Heleen Evenhuis , Frans Scholte , Frank Visser , Pieter J. Hoekstra (2013). Determinants of physical health parameters in individuals with intellectual disability who use long-term antipsychotics . Research in Developmental Disabilities, 34(9), 2799-2809. Elsevier BV.
    Crossref OpenAlex OpenCitations
  22. Susan Dickerson Mayes , Susan L. Calhoun (2008). WISC-IV and WIAT-II Profiles in Children With High-Functioning Autism . Journal of Autism and Developmental Disorders, 38(3), 428-439. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  23. Mary E. Stewart , Louise Barnard , Joanne Pearson , Reem Hasan , Gregory O’Brien (2006). Presentation of depression in autism and Asperger syndrome . Autism, 10(1), 103-116. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. Russell Lang , Mandy Rispoli , Wendy Machalicek , Pamela J. White , Soyeon Kang , Nigel P. Pierce et al. (2009). Treatment of elopement in individuals with developmental disabilities: A systematic review . Research in Developmental Disabilities, 30(4), 670-681. Elsevier BV.
    Crossref OpenAlex OpenCitations
  25. Finale Doshi-Velez , Yaorong Ge , Isaac Kohane (2014). Comorbidity Clusters in Autism Spectrum Disorders: An Electronic Health Record Time-Series Analysis . Pediatrics, 133(1), e54-e63. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  26. Virginia L. Walker , Martha E. Snell (2013). Effects of Augmentative and Alternative Communication on Challenging Behavior: A Meta-Analysis . Augmentative and Alternative Communication, 29(2), 117-131. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  27. Carl V Tyler , Sarah C Schramm , Matthew Karafa , Anne S Tang , Anil K Jain (2011). Chronic Disease Risks in Young Adults With Autism Spectrum Disorder: Forewarned Is Forearmed . American Journal on Intellectual and Developmental Disabilities, 116(5), 371-380. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  28. Robert E. Rada (2013). Treatment Needs and Adverse Events Related to Dental Treatment Under General Anesthesia for Individuals With Autism . Intellectual and Developmental Disabilities, 51(4), 246-252. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  29. Isaac S. Kohane , Andrew McMurry , Griffin Weber , Douglas MacFadden , Leonard Rappaport , Louis Kunkel et al. (2012). The Co-Morbidity Burden of Children and Young Adults with Autism Spectrum Disorders . PLoS ONE, 7(4), e33224. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  30. Gloria L. Krahn , Laura Hammond , Anne Turner (2006). A cascade of disparities: Health and health care access for people with intellectual disabilities . Mental Retardation and Developmental Disabilities Research Reviews, 12(1), 70-82. Wiley.
    Crossref OpenAlex OpenCitations
  31. Sarah K. Harper , Thomas L. Webb , Kelly Rayner (2013). The Effectiveness of Mindfulness-Based Interventions for Supporting People With Intellectual Disabilities . Behavior Modification, 37(3), 431-453. SAGE Publications.
    Crossref OpenAlex OpenCitations
  32. Thompson E. Davis , Julie A. Hess , Brittany N. Moree , Jill C. Fodstad , Tim Dempsey , Whitney S. Jenkins et al. (2011). Anxiety symptoms across the lifespan in people diagnosed with Autistic Disorder . Research in Autism Spectrum Disorders, 5(1), 112-118. Elsevier BV.
    Crossref OpenAlex OpenCitations
  33. SUE WOOLFENDEN , VANESSA SARKOZY , GRETA RIDLEY , MICHAEL COORY , KATRINA WILLIAMS (2012). A systematic review of two outcomes in autism spectrum disorder – epilepsy and mortality . Developmental Medicine & Child Neurology, 54(4), 306-312. Wiley.
    Crossref OpenAlex OpenCitations
  34. E. van de Wouw , H.M. Evenhuis , M.A. Echteld (2012). Prevalence, associated factors and treatment of sleep problems in adults with intellectual disability: A systematic review . Research in Developmental Disabilities, 33(4), 1310-1332. Elsevier BV.
    Crossref OpenAlex OpenCitations
  35. Matthew Siegel , Amy A. Beaulieu (2012). Psychotropic Medications in Children with Autism Spectrum Disorders: A Systematic Review and Synthesis for Evidence-Based Practice . Journal of Autism and Developmental Disorders, 42(8), 1592-1605. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  36. Jessica Hellings , Alicia Cardona , Stephen Schroeder (2010). Long-Term Safety and Adverse Events of Risperidone in Children, Adolescents, and Adults With Pervasive Developmental Disorders . Journal of Mental Health Research in Intellectual Disabilities, 3(3), 132-144. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  37. M. Kerr , M. Scheepers , M. Arvio , J. Beavis , C. Brandt , S Brown et al. (2009). Consensus guidelines into the management of epilepsy in adults with an intellectual disability . Journal of Intellectual Disability Research, 53(8), 687-694. Wiley.
    Crossref OpenAlex OpenCitations
  38. Elizabeth A. Perkins , Karen A. Berkman (2012). Into the Unknown: Aging with Autism Spectrum Disorders . American Journal on Intellectual and Developmental Disabilities, 117(6), 478-496. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  39. Yoon-Suk Hwang , Patrick Kearney (2013). A systematic review of mindfulness intervention for individuals with developmental disabilities: Long-term practice and long lasting effects . Research in Developmental Disabilities, 34(1), 314-326. Elsevier BV.
    Crossref OpenAlex OpenCitations
  40. Emma W. Viscidi , Elizabeth W. Triche , Matthew F. Pescosolido , Rebecca L. McLean , Robert M. Joseph , Sarah J. Spence et al. (2013). Clinical Characteristics of Children with Autism Spectrum Disorder and Co-Occurring Epilepsy . PLoS ONE, 8(7), e67797. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  41. Dwayne Dove , Zachary Warren , Melissa L. McPheeters , Julie Lounds Taylor , Nila A. Sathe , Jeremy Veenstra‐VanderWeele (2012). Medications for Adolescents and Young Adults With Autism Spectrum Disorders: A Systematic Review . Pediatrics, 130(4), 717-726. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  42. Melanie Chapman , Pam Iddon , Kathy Atkinson , Colin Brodie , Duncan Mitchell , Garry Parvin et al. (2011). The misdiagnosis of epilepsy in people with intellectual disabilities: A systematic review . Seizure, 20(2), 101-106. Elsevier BV.
    Crossref OpenAlex OpenCitations
  43. Timothy Buie , Daniel B. Campbell , George J. Fuchs , Glenn T. Furuta , Joseph Levy , Judy VandeWater et al. (2010). Evaluation, Diagnosis, and Treatment of Gastrointestinal Disorders in Individuals With ASDs: A Consensus Report . Pediatrics, 125(Supplement_1), S1-S18. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  44. William V. Bobo , William O. Cooper , C. Michael Stein , Mark Olfson , David Graham , James Daugherty et al. (2013). Antipsychotics and the Risk of Type 2 Diabetes Mellitus in Children and Youth . JAMA Psychiatry, 70(10), 1067. American Medical Association (AMA).
    Crossref OpenAlex OpenCitations
  45. Robert M. Joseph , Helen Tager‐Flusberg , Catherine Lord (2002). Cognitive profiles and social‐communicative functioning in children with autism spectrum disorder . Journal of Child Psychology and Psychiatry, 43(6), 807-821. Wiley.
    Crossref OpenAlex OpenCitations
  46. Kathleen Humphries , Meg Ann Traci , Tom Seekins (2009). Nutrition and Adults With Intellectual or Developmental Disabilities: Systematic Literature Review Results * . Intellectual and Developmental Disabilities, 47(3), 163-185. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  47. Børge Sivertsen , Maj‐Britt Posserud , Christopher Gillberg , Astri J Lundervold , Mari Hysing (2012). Sleep problems in children with autism spectrum problems: a longitudinal population-based study . Autism, 16(2), 139-150. SAGE Publications.
    Crossref OpenAlex OpenCitations
  48. David Allen , Paul Langthorne , Bruce J. Tonge , Eric Emerson , Peter McGill , Robert Fletcher et al. (2013). Towards the Prevention of Behavioural and Psychiatric Disorders in People with Intellectual Disabilities . Journal of Applied Research in Intellectual Disabilities, 26(6), 501-514. Wiley.
    Crossref OpenAlex OpenCitations
  49. Valeria Frighi , Matthew T. Stephenson , Alireza Morovat , Iain E. Jolley , Marialena Trivella , Christina A. Dudley et al. (2011). Safety of antipsychotics in people with intellectual disability . British Journal of Psychiatry, 199(4), 289-295. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  50. Yona Lunsky , Elizabeth Lin , Rob Balogh , Julie Klein-Geltink , Jennifer Bennie , Andrew S. Wilton et al. (2011). Are adults with developmental disabilities more likely to visit EDs? The American Journal of Emergency Medicine, 29(4), 463-465. Elsevier BV.
    Crossref OpenAlex OpenCitations
  51. Fletcher (2007). DM-ID: diagnostic manual-intellectual disability: a textbook of diagnosis of mental disorders in persons with intellectual disability .
    Type: Autre
    Crossref
  52. M. A. Polimeni , Amanda L. Richdale , A. J. P. Francis (2005). A survey of sleep problems in autism, Asperger's disorder and typically developing children . Journal of Intellectual Disability Research, 49(4), 260-268. Wiley.
    Crossref OpenAlex OpenCitations
  53. DANIEL A ROSSIGNOL , RICHARD E FRYE (2011). Melatonin in autism spectrum disorders: a systematic review and meta‐analysis . Developmental Medicine & Child Neurology, 53(9), 783-792. Wiley.
    Crossref OpenAlex OpenCitations
  54. T. Hylkema , C. Vlaskamp (2009). Significant improvement in sleep in people with intellectual disabilities living in residential settings by non‐pharmaceutical interventions . Journal of Intellectual Disability Research, 53(8), 695-703. Wiley.
    Crossref OpenAlex OpenCitations
  55. Sally‐Ann Cooper , E. Smiley , A. Jackson , J. Finlayson , L. Allan , D. Mantry et al. (2009). Adults with intellectual disabilities: prevalence, incidence and remission of aggressive behaviour and related factors . Journal of Intellectual Disability Research, 53(3), 217-232. Wiley.
    Crossref OpenAlex OpenCitations
  56. Jill A. Hollway , Michael G. Aman (2011). Pharmacological treatment of sleep disturbance in developmental disabilities: A review of the literature . Research in Developmental Disabilities, 32(3), 939-962. Elsevier BV.
    Crossref OpenAlex OpenCitations
  57. Lisa I. Iezzoni , Bonnie L. O'Day , Mary Killeen , Heather Harker (2004). Communicating about Health Care: Observations from Persons Who Are Deaf or Hard of Hearing . Annals of Internal Medicine, 140(5), 356-362. American College of Physicians.
    Crossref OpenAlex OpenCitations
  58. G. de Kuijper , H. Evenhuis , R. B. Minderaa , P. J. Hoekstra (2014). Effects of controlled discontinuation of long‐term used antipsychotics for behavioural symptoms in individuals with intellectual disability . Journal of Intellectual Disability Research, 58(1), 71-83. Wiley.
    Crossref OpenAlex OpenCitations
  59. Russell Lang , April Regester , Stacy Lauderdale , Kristen Ashbaugh , Anna Haring (2010). Treatment of anxiety in autism spectrum disorders using cognitive behaviour therapy: A systematic review . Developmental Neurorehabilitation, 13(1), 53-63. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  60. Heidi Ching , Tamara Pringsheim (2012). Aripiprazole for autism spectrum disorders (ASD) . Cochrane Database of Systematic Reviews, (5), CD009043-CD009043. John Wiley & Sons, Ltd.
    Crossref OpenAlex OpenCitations
  61. (s. d.). Nicolaidis C, Raymaker D, McDonald K, et al. “Respect the way I need to communicate with you”: healthcare experiences of adults on the autistic spectrum. Paper presented at: Annual Meeting of the Society of General Internal Medicine. Phoenix, May 4–7, 2011.
    Type: Autre
    Crossref
  62. Donna Spencer , Jaclyn Marshall , Brady Post , Mahesh Kulakodlu , Craig Newschaffer , Taylor Dennen et al. (2013). Psychotropic Medication Use and Polypharmacy in Children With Autism Spectrum Disorders . Pediatrics, 132(5), 833-840. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  63. Robert J. Fletcher , E. L. Loschen , Chrissoula Stavrakaki (2017). Diagnostic Manual―Intellectual Disability 2: A Textbook of Diagnosis of Mental Disorders in Persons with Intellectual Disability .
    Type: Livre OpenAlex: https://openalex.org/W2988103300
    OpenAlex
  64. (2017). Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) . The SAGE Encyclopedia of Abnormal and Clinical Psychology. SAGE Publications, Inc..
    OpenAlex