« C'est tout simplement trop accablant et constant » : influences environnementales sur l'anxiete et la depression chez les jeunes personnes autistes

Titre original en anglais : “It is Just Too Overwhelming and Constant”: Environmental Influences on Anxiety and Depression in Autistic Young People

Hampton, S., Mandy, W., Zahir, R., Miller, O., Carter, S., Midouhas, E., Flouri, E., & Cooper, K. (2026). “It is Just Too Overwhelming and Constant”: Environmental Influences on Anxiety and Depression in Autistic Young People. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-026-07463-5

Date de publication: 08/08/2026 Ajout dans AutiHub: 12/08/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
1 / 8 (12,5 %)

Résumé

Resume Objectif Les personnes autistes connaissent des taux eleves d'anxiete et de depression, mais une comprehension fondee sur des preuves de la maniere et des raisons pour lesquelles ces difficultes se developpent initialement fait defaut. En placant les recits des jeunes personnes autistes au centre, cette etude vise a comprendre comment les interactions entre les personnes autistes et leur environnement tout au long de l'enfance et de l'adolescence engendrent l'anxiete et la depression. Methodes Vingt jeunes personnes autistes agees de 10 a 18 ans et 30 parents de jeunes personnes autistes ages de 5 a 18 ans ont realise des entretiens qualitatifs semi-structures sur les experiences d'anxiete et de depression. Resultats L'analyse de cadre a identifie trois themes. Exigences et pressions externes : les participants ont decrit le poids des pressions visant a satisfaire aux normes non autistes dans les environnements scolaires, sociaux et sensoriels. Autonomie et controle : les jeunes personnes etaient en difficulte face a des environnements qui n'etaient pas sous leur controle. Elles beneficiaient d'un equilibre entre structure et autonomie dans les contextes du domicile et de l'ecole. Securite, confiance et previsibilite : la confiance et l'acceptation de la part d'autrui (comme la famille, les pairs, les enseignants et les professionnels), l'acces a des lieux surs (comme le domicile et la nature) et la poursuite de centres d'interet etaient des facteurs protecteurs importants. Conclusion Les jeunes personnes autistes peuvent ressentir une pression pour repondre a des exigences non autistes, ce qui affecte la sante mentale. Des facteurs tels que les attentes scolaires, les styles parentaux, la comprehension de l'autisme par la famille, les enseignants et les pairs, ainsi que des espaces a faible sollicitation sensorielle, peuvent etre des cibles importantes pour l'intervention.

Abstract Purpose Autistic people experience high rates of anxiety and depression, yet an evidence-based understanding of how and why these difficulties first develop is lacking. By centring autistic young people’s accounts, this study aims to understand how interactions between autistic people and their environment throughout childhood and adolescence give rise to anxiety and depression. Methods Twenty autistic young people aged 10–18 and 30 parents of autistic young people aged 5–18 completed semi-structured qualitative interviews about experiences of anxiety and depression. Results Framework Analysis identified three themes. External demands and pressures: Participants described the weight of pressures to meet non-autistic standards within school, social and sensory environments. Autonomy and control: Young people struggled with environments not under their control. They benefited from a balance of structure and autonomy within home and school settings. Safety, trust and predictability: Trust and acceptance from others (such as family, peers, teachers and professionals), access to safe places (such as home and nature), and engaging in interests were important protective factors. Conclusion Autistic young people can feel pressure to meet non-autistic demands, impacting mental health. Factors such as academic expectations, parenting styles, understanding of autism among family, teachers and peers, and low sensory demand spaces may be important targets for intervention.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
50
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
5 / 50 (10,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
7 / 259 (2,7 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 7 / 91 (7,7 %). Auteurices cité·es distinct·es identifié·es comme autistes : 7 / 238 (2,9 %).
Occurrences citées rattachées à la base AutiHub
91 / 259 (35,1 %)
Auteurices cité·es distinct·es rattaché·es : 72 / 238 (30,3 %)
Occurrences rattachées, non identifiées comme autistes
84 / 91 (92,3 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 84 / 259 (32,4 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 65 / 72 (90,3 %).
  1. Jonathan A. Weiss , M. Catherine Cappadocia , Ami Tint , Debra Pepler (2015). Bullying Victimization, Parenting Stress, and Anxiety among Adolescents and Young Adults with Autism Spectrum Disorder . Autism Research, 8(6), 727-737. Wiley.
    Type: Article DOI: 10.1002/aur.1488 OpenAlex: https://openalex.org/W1832487201
    Crossref OpenAlex
  2. Renzo Abregú-Crespo , Alexandra Garriz-Luis , Miriam Ayora , Nuria Martín-Martínez , Vito Cavone , Miguel Ángel Carrasco et al. (2024). School bullying in children and adolescents with neurodevelopmental and psychiatric conditions: a systematic review and meta-analysis . The Lancet Child & Adolescent Health, 8(2), 122-134. Elsevier BV.
    Crossref OpenAlex
  3. Ann Ozsivadjian , Fiona Knott , Iliana Magiati (2012). Parent and child perspectives on the nature of anxiety in children and young people with autism spectrum disorders: a focus group study . Autism, 16(2), 107-121. SAGE Publications.
    Crossref OpenAlex
  4. Louise Acker , Matthew Knight , Fiona Knott (2018). ‘Are they just gonna reject me?’ Male adolescents with autism making sense of anxiety: An Interpretative Phenomenological Analysis . Research in Autism Spectrum Disorders, 56, 9-20. Elsevier BV.
    Crossref OpenAlex
  5. Stephanie Fung , Yona Lunsky , Jonathan A. Weiss (2015). Depression in Youth With Autism Spectrum Disorder: The Role Of ASD Vulnerabilities and Family–Environmental Stressors . Journal of Mental Health Research in Intellectual Disabilities, 8(3-4), 120-139. Informa UK Limited.
    Crossref OpenAlex
  6. Alyssa M. Alcorn , Sarah McGeown , Will Mandy , Dinah Aitken , Sue Fletcher‐Watson (2024). Learning About Neurodiversity at School: A feasibility study of a new classroom programme for mainstream primary schools . Neurodiversity, 2, 275463302412721. SAGE Publications.
    Crossref OpenAlex
  7. Nicola K Gale , Gemma Heath , Elaine Cameron , Sabina Rashid , Sabi Redwood (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research . BMC Medical Research Methodology, 13(1), 117-117. Springer Science and Business Media LLC.
    Crossref OpenAlex
  8. Jessica May Armitage , Foteini Tseliou , Lucy Riglin , Charlotte Dennison , Olga Eyre , Rhys Bevan Jones et al. (2025). Correction: Validation of the Strengths and Difficulties Questionnaire (SDQ) emotional subscale in assessing depression and anxiety across development . PLOS ONE, 20(1), e0317151. Public Library of Science (PLoS).
    Crossref OpenAlex
  9. ROBERT GOODMAN (2001). Psychometric Properties of the Strengths and Difficulties Questionnaire . Journal of the American Academy of Child & Adolescent Psychiatry, 40(11), 1337-1345. Elsevier BV.
    Crossref OpenAlex
  10. Andreas Becker , Wolfgang Woerner , Marcus Hasselhorn , Tobias Banaschewski , Aribert Rothenberger (2004). Validation of the parent and teacher SDQ in a clinical sample . European Child & Adolescent Psychiatry, 13(S2), II11-6. Springer Science and Business Media LLC.
    Crossref OpenAlex
  11. Robert Goodman (1997). The Strengths and Difficulties Questionnaire: A Research Note . Journal of Child Psychology and Psychiatry, 38(5), 581-586. Wiley.
    Crossref OpenAlex
  12. Janina Brede , Eilidh Cage , Joseph Trott , Lisa Palmer , Anika Smith , Lucy Serpell et al. (2022). “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis . Clinical Psychology Review, 93, 102131. Elsevier BV.
    Crossref OpenAlex
  13. Polly Waite , Lauren Whittington , Cathy Creswell (2014). Parent-Child Interactions and Adolescent Anxiety: A Systematic Review . Psychopathology Review, a1(1), 51-76. SAGE Publications.
    Crossref OpenAlex
  14. Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.
    Crossref OpenAlex
  15. Marilyn J. Essex , Helena C. Kraemer , Jeffrey M. Armstrong , W. Thomas Boyce , H. Hill Goldsmith , Marjorie H. Klein et al. (2006). Exploring Risk Factors for the Emergence of Children's Mental Health Problems . Archives of General Psychiatry, 63(11), 1246. American Medical Association (AMA).
    Crossref OpenAlex
  16. Albert Reijntjes , Jan H. Kamphuis , Peter Prinzie , Michael J. Telch (2010). Peer victimization and internalizing problems in children: A meta-analysis of longitudinal studies . Child Abuse & Neglect, 34(4), 244-252. Elsevier BV.
    Crossref OpenAlex
  17. Julia Cook , Laura Hull , Laura Crane , Will Mandy (2021). Camouflaging in autism: A systematic review . Clinical Psychology Review, 89, 102080. Elsevier BV.
    Crossref OpenAlex
  18. Douglas Sjöwall , Linda Roth , Sofia Lindqvist , Lisa B. Thorell (2013). Multiple deficits in ADHD: executive dysfunction, delay aversion, reaction time variability, and emotional deficits . Journal of Child Psychology and Psychiatry, 54(6), 619-627. Wiley.
    Crossref OpenAlex
  19. Kate Cooper , Ailsa Russell , Jiedi Lei , Laura GE Smith (2023). The impact of a positive autism identity and autistic community solidarity on social anxiety and mental health in autistic young people . Autism, 27(3), 848-857. SAGE Publications.
    Crossref OpenAlex
  20. Guilherme V. Polanczyk , Giovanni A. Salum , Luisa S. Sugaya , Arthur Caye , Luis A. Rohde (2015). Annual Research Review: A meta‐analysis of the worldwide prevalence of mental disorders in children and adolescents . Journal of Child Psychology and Psychiatry, 56(3), 345-365. Wiley.
    Crossref OpenAlex
  21. Kate Cooper , Sanjay Kumarendran , Manuela Barona (2024). A systematic review and meta-synthesis on perspectives of autistic young people and their parents on psychological well-being . Clinical Psychology Review, 109, 102411. Elsevier BV.
    Crossref OpenAlex
  22. Diana E. Schendel , Morten Overgaard , Jakob Christensen , Lene Hjort , Meta Jørgensen , Mogens Vestergaard et al. (2016). Association of Psychiatric and Neurologic Comorbidity With Mortality Among Persons With Autism Spectrum Disorder in a Danish Population . JAMA Pediatrics, 170(3), 243. American Medical Association (AMA).
    Crossref OpenAlex
  23. Lily Cresswell , Rebecca Hinch , Eilidh Cage (2019). The experiences of peer relationships amongst autistic adolescents: A systematic review of the qualitative evidence . Research in Autism Spectrum Disorders, 61, 45-60. Elsevier BV.
    Crossref OpenAlex
  24. Grace Holland , Marika Tiggemann (2016). A systematic review of the impact of the use of social networking sites on body image and disordered eating outcomes . Body Image, 17, 100-110. Elsevier BV.
    Crossref OpenAlex
  25. James Findon , Tim Cadman , Catherine S. Stewart , Emma Woodhouse , Hanna Eklund , Hannah Hayward et al. (2016). Screening for co‐occurring conditions in adults with autism spectrum disorder using the strengths and difficulties questionnaire: A pilot study . Autism Research, 9(12), 1353-1363. Wiley.
    Type: Article DOI: 10.1002/aur.1625 OpenAlex: https://openalex.org/W2326542625
    Crossref OpenAlex
  26. Mikle South , Jacqui Rodgers (2017). Sensory, Emotional and Cognitive Contributions to Anxiety in Autism Spectrum Disorders . Frontiers in Human Neuroscience, 11, 20. Frontiers Media SA.
    Crossref OpenAlex
  27. Emma Williams , Kate Gleeson , Bridget E Jones (2019). How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis . Autism, 23(1), 8-28. SAGE Publications.
    Crossref OpenAlex
  28. Ann John , Alexander Charles Glendenning , Amanda Marchant , Paul Montgomery , Anne Stewart , Sophie Wood et al. (2018). Self-Harm, Suicidal Behaviours, and Cyberbullying in Children and Young People: Systematic Review . Journal of Medical Internet Research, 20(4), e129. JMIR Publications Inc..
    Crossref OpenAlex
  29. Clare Harrop , Jessica Amsbary , Sarah Towner-Wright , Brian Reichow , Brian A. Boyd (2019). That’s what I like: The use of circumscribed interests within interventions for individuals with autism spectrum disorder. A systematic review . Research in Autism Spectrum Disorders, 57, 63-86. Elsevier BV.
    Crossref OpenAlex
  30. Shin Ho Park , Yun Ju C Song , Eleni A Demetriou , Karen L Pepper , Alice Norton , Emma E Thomas et al. (2019). Disability, functioning, and quality of life among treatment-seeking young autistic adults and its relation to depression, anxiety, and stress . Autism, 23(7), 1675-1686. SAGE Publications.
    Crossref OpenAlex
  31. Finbar Horgan , Neil Kenny , Paula Flynn (2023). A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools . Autism, 27(2), 526-538. SAGE Publications.
    Crossref OpenAlex
  32. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.
    Crossref OpenAlex
  33. Kate Simpson , Dawn Adams , Elizabeth Wheeley , Deb Keen (2020). Parent Perspectives on the Presentation, Triggers, Impact, and Support of Anxiety in Young Children on the Autism Spectrum . Journal of Child and Family Studies, 29(2), 572-582. Springer Science and Business Media LLC.
    Crossref OpenAlex
  34. Jeffrey J. Wood , Philip C. Kendall , Karen S. Wood , Connor M. Kerns , Michael Seltzer , Brent J. Small et al. (2020). Cognitive Behavioral Treatments for Anxiety in Children With Autism Spectrum Disorder . JAMA Psychiatry, 77(5), 474. American Medical Association (AMA).
    Crossref OpenAlex
  35. Emily Long , Claudia Zucca , Helen Sweeting (2021). School Climate, Peer Relationships, and Adolescent Mental Health: A Social Ecological Perspective . Youth & Society, 53(8), 1400-1415. SAGE Publications.
    Crossref OpenAlex
  36. Will Mandy , Emily Midouhas , Mariko Hosozawa , Noriko Cable , Amanda Sacker , Eirini Flouri (2022). Mental health and social difficulties of late‐diagnosed autistic children, across childhood and adolescence . Journal of Child Psychology and Psychiatry, 63(11), 1405-1414. Wiley.
    Crossref OpenAlex
  37. Emily C Taylor , Lucy A Livingston , Mitchell J Callan , Chris Ashwin , Punit Shah (2021). Autonomic dysfunction in autism: The roles of anxiety, depression, and stress . Autism, 25(3), 744-752. SAGE Publications.
    Crossref OpenAlex
  38. Michelle Menezes , Christina Burroughs , Jessica Pappagianopoulos , Eleonora Sadikova , Emily Fuhrmann , Genevieve Bohac et al. (2024). Feasibility and preliminary efficacy of behavioral activation for treatment of depression in autistic adolescents . Autism, 28(12), 3021-3032. SAGE Publications.
    Crossref OpenAlex
  39. Zameer Mohamed , Ailsa Russell , Melanie Palmer , Emily Simonoff , Matthew J Hollocks (2024). Co-designing behavioural activation for depression for autistic adolescents: A case series . Clinical Child Psychology and Psychiatry, 29(2), 608-623. SAGE Publications.
    Crossref OpenAlex
  40. Shivani Sharma , Abigail Hucker , Terry Matthews , Dominique Grohmann , Keith R. Laws (2021). Cognitive behavioural therapy for anxiety in children and young people on the autism spectrum: a systematic review and meta-analysis . BMC Psychology, 9(1), 151-151. Springer Science and Business Media LLC.
    Crossref OpenAlex
  41. Suzanne Mukherjee , Bryony Beresford (2023). Factors influencing the mental health of autistic children and teenagers: Parents’ observations and experiences . Autism, 27(8), 136236132311589. SAGE Publications.
    Crossref OpenAlex
  42. Jane Ritchie , Liz Spencer (2010). Qualitative data analysis for applied policy research . Dans Analyzing qualitative data (pp. 173-194). Taylor & Francis.
    Type: Chapitre de livre DOI: 10.4324/9780203413081_chapter_9 OpenAlex: https://openalex.org/W4248854933
    Crossref OpenAlex
  43. C Perihan (2019). Perihan, C., Burke, M., Bowman-Perrott, L., et al. (2019). Effects of cognitive behavioral therapy for reducing anxiety in children with high functioning ASD: a systematic review and meta-analysis. Journal Of Autism And Developmental Disorders, 50, 1–15. Journal Of Autism And Developmental Disorders, 50, 1.
    Type: Autre
    Crossref
  44. Sinéad Rhodes , Christopher B. Eaton , Jessica Oldridge , Jacqui Rodgers , Stella Chan , Ereni Skouta et al. (2023). Lived experiences of depression in autistic children and adolescents: A qualitative study on child and parent perspectives . Research in Developmental Disabilities, 138, 104516. Elsevier BV.
    Crossref OpenAlex
  45. Maxie Scheske , Sarah Hampton , Kate Cooper , Reesha Zahir , Emily Midouhas , Eirini Flouri et al. (2026). The Role of Peer Victimisation and Parental Mental Health in Internalising Problems: Examining Bidirectional Relationships Across Childhood and Adolescence in Autistic Youth . Journal of Autism and Developmental Disorders. Springer Science and Business Media LLC.
    Crossref OpenAlex