A good autistic life: an autistic-led conceptualization of autistic flourishing through autistic women’s-lived experiences
Hedlund, Å., Wester, M. E., Edenvik, P., Ingard, C., Isakson, K., Sabel, L. K., Unéus, D., Lindström, T., Black, M. H., & Bertilsdotter Rosqvist, H. (2025). A good autistic life: an autistic-led conceptualization of autistic flourishing through autistic women’s-lived experiences. Frontiers in Sociology, 10, 1611803-1611803. https://doi.org/10.3389/fsoc.2025.1611803
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Authors
Abstract
Introduction and objective: Interest in developing an understanding of "autistic flourishing" is steadily increasing in research and autistic communities. Flourishing is a multidimensional construct explained somewhat by positive emotion, but mostly by good psychological and social functioning. Autistic people process information and stimuli differently from neurotypical people, so it may be reasonable to assume that their definition of flourishing and the factors that influence it may differ from those of neurotypical people. Exploring flourishing from autistic women's perspectives is essential, as they have been historically overlooked in autism research, despite differing from autistic men in presentation and facing higher mental health risks. Methods: This autistic-led, partly collective, autoethnographic study was conducted within the context of a broader project exploring the concept of autistic flourishing. Here, we employ a two-phased phenomenological approach, drawing on both autistic and neurotypical frames of analyses. In the first phase, autistic women draw on their lived experiences in a collective autoethnography, including both focus groups and collective writing, to shape the concept of flourishing and its indicators. These insights were further developed by neurotypical authors, who compare to neurotypical experiences and conceptualizations of flourishing. Results: Two themes and twelve subthemes were identified. The first theme, "Living with a neurodivergent bodymind," presents how autistic women define and experience flourishing. The second theme, "Strategies for autistic flourishing," highlights actions autistic women take to achieve or maintain flourishing. Discussion and conclusion: Through our autistic-led approach drawing on neurodiverse frames of analysis, our work presents a first initial investigation of autistic flourishing among women. Our findings suggest qualitative differences in autistic derived definitions of flourishing and its indicators compared to those of neurotypicals, emphasizing the importance of developing an autistic-driven understanding of flourishing.
Bibliography cited by this reference
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Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.
-
Tasha M. Oswald , Mary Ann Winter-Messiers , Brandon Gibson , Alexandra M. Schmidt , Cynthia M. Herr , Marjorie Solomon (2016). Sex Differences in Internalizing Problems During Adolescence in Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 46(2), 624-636. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Ahmed (2017). Living a Feminist Life . Living a Feminist Life.Type: OtherCrossref
-
Christine Agenor , Norma Conner , Karen Aroian (2017). Flourishing: An Evolutionary Concept Analysis . Issues in Mental Health Nursing, 38(11), 915-923. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.
-
Vasiliki Kentrou , Lucy A. Livingston , Rachel Grove , Rosa A. Hoekstra , Sander Begeer (2024). Perceived misdiagnosis of psychiatric conditions in autistic adults . eClinicalMedicine, 71, 102586. Elsevier BV.Crossref OpenAlex OpenCitations
-
Becky Francis , Valerie Hey (2009). Talking back to power: snowballs in hell and the imperative of insisting on structural explanations . Gender and Education, 21(2), 225-232. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Javad Alaghband-rad , Arman Hajikarim-Hamedani , Mahtab Motamed (2023). Camouflage and masking behavior in adult autism . Frontiers in Psychiatry, 14, 1108110-1108110. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Laura Foran Lewis , Kailey Stevens (2023). The lived experience of meltdowns for autistic adults . Autism, 27(6), 1817-1825. SAGE Publications.Crossref OpenAlex OpenCitations
-
Michelle Kiep , Annelies A. Spek (2017). Executive functioning in men and women with an autism spectrum disorder . Autism Research, 10(5), 940-948. Wiley.Crossref OpenAlex OpenCitations
-
(2013). Diagnostic and statistical manual of mental disorders . Diagnostic and statistical manual of mental disorders.Type: OtherCrossref
-
Elizabeth Pellicano , Melanie Heyworth *Autistic author. Learn more… (2023). The Foundations of Autistic Flourishing . Current Psychiatry Reports, 25(9), 419-427. Springer Science and Business Media LLC.
-
Tyler J. VanderWeele (2017). On the promotion of human flourishing . Proceedings of the National Academy of Sciences, 114(31), 8148-8156. National Academy of Sciences.Crossref OpenAlex OpenCitations
-
Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Elisabeth Hjorth , Anna Nygren (2023). Meeting up in broken word/times: communication, temporality and pace in neuromixed writing . Medical Humanities, 49(3), 407-415. BMJ.
-
Patrick Dwyer *Autistic author. Learn more… , Zachary J. Williams *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… , Susan M. Rivera (2024). A trans-diagnostic investigation of attention, hyper-focus, and monotropism in autism, attention dysregulation hyperactivity development, and the general population . Neurodiversity, 2. SAGE Publications.
-
Virginia Braun , Victoria Clarke (2022). Thematic Analysis: A Practical Guide . QMiP Bulletin, 1(33), 46-50. British Psychological Society.Crossref OpenAlex
-
Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.Type: Book DOI: 10.1093/acprof:oso/9780198237907.001.0001 OpenAlex: https://openalex.org/W4252633962Crossref OpenAlex OpenCitations
-
Agnieszka Rynkiewicz , Małgorzata Janas-Kozik , Agnieszka Słopień (2019). Girls and women with autism . Psychiatria Polska, 53(4), 737-752. Komitet Redakcyjno - Wydawniczy Polskiego Towarzystwa Psychiatrycznego.Crossref OpenAlex OpenCitations
-
Robert Chapman *Autistic author. Learn more… , Havi Carel (2022). Neurodiversity, epistemic injustice, and the good human life . Journal of Social Philosophy, 53(4), 614-631. Wiley.
-
Iris Schneid , Aviad E. Raz (2020). The mask of autism: Social camouflaging and impression management as coping/normalization from the perspectives of autistic adults . Social Science & Medicine, 248, 112826. Elsevier BV.Crossref OpenAlex OpenCitations
-
Rebecca A. Charlton , Timothy Entecott , Evelina Belova , Gabrielle Nwaordu (2021). “It feels like holding back something you need to say”: Autistic and Non-Autistic Adults accounts of sensory experiences and stimming . Research in Autism Spectrum Disorders, 89, 101864. Elsevier BV.Crossref OpenAlex OpenCitations
-
Meng-Chuan Lai , Anouck Amestoy , Somer Bishop , Heather M. Brown *Autistic author. Learn more… , Morénike Giwa Onaiwu *Autistic author. Learn more… , Alycia Halladay et al. (2023). Improving autism identification and support for individuals assigned female at birth: clinical suggestions and research priorities . The Lancet Child & Adolescent Health, 7(12), 897-908. Elsevier BV.
-
Laura Hull , K. V. Petrides , Will Mandy (2020). The Female Autism Phenotype and Camouflaging: a Narrative Review . Review Journal of Autism and Developmental Disorders, 7(4), 306-317. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Brett Heasman , Gemma Williams *Autistic author. Learn more… , Divine Charura , Lorna Hamilton , Damian Milton *Autistic author. Learn more… , Fergus Murray *Autistic author. Learn more… (2024). Towards autistic flow theory: A non‐pathologising conceptual approach . Journal for the Theory of Social Behaviour, 54(4), 469-497. Wiley.
-
Dora M Raymaker *Autistic author. Learn more… , Alan R. Teo , Nicole A. Steckler , Brandy Lentz , Mirah Scharer , Austin Delos Santos et al. (2020). “Having All of Your Internal Resources Exhausted Beyond Measure and Being Left with No Clean-Up Crew”: Defining Autistic Burnout . Autism in Adulthood, 2(2), 132-143. SAGE Publications.
-
Amy Pearson *Autistic author. Learn more… , Kieran Rose *Autistic author. Learn more… (2021). A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice . Autism in Adulthood, 3(1), 52-60. SAGE Publications.
-
Catherine McDermott (2022). Theorising the neurotypical gaze: autistic love and relationships in The Bridge (Bron/Broen 2011–2018) . Medical Humanities, 48(1), 51-62. BMJ.Crossref OpenAlex OpenCitations
-
Jonathan Green , Nicola Shaughnessy (2023). Autistic phenomenology: past, present, and potential future . Frontiers in Psychology, 14, 1287209-1287209. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Karl Lundin Remnélius , Janina Neufeld , Johan Isaksson , Sven Bölte (2026). Does Camouflaging Cause Reduced Quality of Life? A Co-Twin Control Study . Journal of Autism and Developmental Disorders, 56(2), 709-721. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Keren MacLennan , Sinéad O’Brien , Teresa Tavassoli (2022). In Our Own Words: The Complex Sensory Experiences of Autistic Adults . Journal of Autism and Developmental Disorders, 52(7), 3061-3075. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Rachel Grove , Hayley Clapham *Autistic author. Learn more… , Tess Moodie *Autistic author. Learn more… , Sarah Gurrin *Autistic author. Learn more… , Gabrielle Hall *Autistic author. Learn more… (2023). ‘Living in a world that’s not about us’: The impact of everyday life on the health and wellbeing of autistic women and gender diverse people . Women's Health, 19, 17455057231189542-17455057231189542. SAGE Publications.
-
Pety So , André I Wierdsma , Christine van Boeijen , Robert RJM Vermeiren , Niels CL Mulder (2021). Gender differences between adolescents with autism in emergency psychiatry . Autism, 25(8), 2331-2340. SAGE Publications.Crossref OpenAlex OpenCitations
-
David Jackson‐Perry , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… (2024). An Introduction to Research Methods and Ethics in Neurodiversity Studies . In The Palgrave handbook of research methods and ethics in neurodiversity studies (pp. 3-23). Springer Nature Switzerland.
-
Oren Shtayermman , Jason Fletcher (2022). Predictors of Suicide Attempts of Individuals with Autism and Their Siblings . Nursing Research and Practice, 2022, 1-8. Wiley.Crossref OpenAlex OpenCitations
-
Dinah Murray *Autistic author. Learn more… , Damian Milton *Autistic author. Learn more… , Jonathan Green , Jo Bervoets *Autistic author. Learn more… (2023). The Human Spectrum: A Phenomenological Enquiry within Neurodiversity . Psychopathology, 56(3), 220-230. S. Karger AG.
-
Miriam I. Martini , Ralf Kuja-Halkola , Agnieszka Butwicka , Ebba Du Rietz , Brian M. D’Onofrio , Francesca Happé et al. (2022). Sex Differences in Mental Health Problems and Psychiatric Hospitalization in Autistic Young Adults . JAMA Psychiatry, 79(12), 1188. American Medical Association (AMA).Crossref OpenAlex OpenCitations
-
Limburg (2022). Letters to my weird sisters . Letters to my weird sisters.Type: OtherCrossref
-
Em JE Mittertreiner , Elise Ng-Cordell , Alana J. McVey , Connor M. Kerns (2024). Research methods at the intersection of gender diversity and autism: A scoping review . Autism, 28(12), 2953-2969. SAGE Publications.Crossref OpenAlex OpenCitations
-
Natalie Yau , Sonia Anderson , Ian C. Smith (2023). How is psychological wellbeing experienced by autistic women? Challenges and protective factors: A meta-synthesis . Research in Autism Spectrum Disorders, 102, 102101. Elsevier BV.Crossref OpenAlex OpenCitations
-
Samantha M. Ross , Justin A. Haegele , Kristy A. Anderson , Sean Healy (2023). Evidence of item bias in a national flourishing measure for autistic youth . Autism Research, 16(4), 841-854. Wiley.Crossref OpenAlex OpenCitations
-
Murray (2018). ref25Type: OtherCrossref
-
Emma Pritchard-Rowe , Carmen de Lemos , Katie Howard , Jenny Gibson (2024). Diversity in Autistic Play: Autistic Adults' Experiences . Autism in Adulthood, 6(2), 218-228. SAGE Publications.Crossref OpenAlex OpenCitations
-
Amy Pearson *Autistic author. Learn more… , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , Lill Hultman , C. L. Watson , Gemma Williams *Autistic author. Learn more… et al. (2024). Strangers and Friends: Navigating Neurodiverse Research Collaboration . In The Palgrave handbook of research methods and ethics in neurodiversity studies (pp. 103-122). Springer Nature Switzerland.
-
(1948). ref41Type: OtherCrossref