The Human Spectrum: A Phenomenological Enquiry within Neurodiversity

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Murray, D., Milton, D., Green, J., & Bervoets, J. (2022). The Human Spectrum: A Phenomenological Enquiry within Neurodiversity. Psychopathology, 56(3), 220-230. https://doi.org/10.1159/000526213

Publication date: 30 Sep 2022 Added to AutiHub: 4 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
3 / 4 (75.0%)
  1. Dinah Murray *
  2. Damian Milton *
  3. Jonathan Green
  4. Jo Bervoets *

Abstract

INTRODUCTION: Autism has typically been characterized by its external manifestations rather than experienced phenomenology, with consequent impacts on both research and practice. There have recently been increasing calls for more phenomenological enquiry in autism, but little actual work reported. METHOD: A shared participatory phenomenological self-investigation was conducted, by the four authors, of lived experience across the autistic/non-autistic divide. The sample size was chosen as necessary for the feasibility and acceptability to participants of such work in this context. Roles of "researcher" and "interviewee" were purposefully alternated between participants to establish trust and reciprocity. Initial phenomenological reduction or bracketing was applied to the description and recording of each participant's intimate lived experience in a number of key domains across social relationships, the physical environment, development, and in adult life. These experiences were shared within dialogue to open them to investigation and questioning from the others, with alternating interviewer and respondent roles. A third step synthesized these shared observations across individuals into themes of continuity and difference. RESULTS: A number of emergent themes, such as the need for trust and reliability, and the impact of context on regulation of emotion, sociability, and empathy, showed striking commonalities between all participants. Other themes, such as primary sensory experience and social joining, pointed up more clear differences between autism and non-autism in development and the adult world. Themes of interest-focus and attention were marked by both commonalities and difference. CONCLUSIONS: This shared phenomenological method was taken as a first step within a new area of active investigation in autistic phenomenology. It proved successful in eliciting detailed information on self-experience. The results suggested hypotheses for a new understanding of autism within the wider "human" spectrum of experience; for instance, the common basic need for trust and social connection but striking differences in sensory experience. It suggested that some characteristics long thought intrinsic to autism, such as social mis-perception and reduced empathy, may be alternatively understood as state-dependent outcomes contingent on specific contexts and interactions. Implications are suggested for testing in further research, developmental theory, and intervention practice.

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Cited references
27
Total cited references integrated for this publication.
Cited references with an identified autistic author
6 / 27 (22.2%)
Cited author occurrences identified as autistic
13 / 129 (10.1%)
Among occurrences linked to AutiHub author records: 13 / 54 (24.1%). Distinct cited authors identified as autistic: 12 / 120 (10.0%).
Cited author occurrences linked to AutiHub author records
54 / 129 (41.9%)
Distinct linked cited authors: 46 / 120 (38.3%)
Linked cited-author occurrences not identified as autistic
41 / 54 (75.9%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 41 / 129 (31.8%). Distinct linked cited authors not identified as autistic: 34 / 46 (73.9%).
  1. Max van Manen (2007). Phenomenology of Practice . Phenomenology & Practice, 1(1). University of Alberta Libraries.
    Type: Article DOI: 10.29173/pandpr19803 OpenAlex: https://openalex.org/W1480064541
    Crossref OpenAlex OpenCitations
  2. Maria Nilsson , Peter Handest , Lena Nylander , Lennart Pedersen , Jessica Carlsson , Sidse Arnfred (2019). Arguments for a Phenomenologically Informed Clinical Approach to Autism Spectrum Disorder . Psychopathology, 52(3), 153-160. S. Karger AG.
    Type: Article DOI: 10.1159/000500294 OpenAlex: https://openalex.org/W2971637230
    Crossref OpenAlex OpenCitations
  3. Leon Eisenberg (1986). Mindlessness and Brainlessness in Psychiatry . British Journal of Psychiatry, 148(5), 497-508. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjp.148.5.497 OpenAlex: https://openalex.org/W2115605544
    Crossref OpenAlex OpenCitations
  4. Francisco A. Olivares , Esteban Vargas , Claudio Fuentes , David Martínez-Pernía , Andrés Canales-Johnson (2015). Neurophenomenology revisited: second-person methods for the study of human consciousness . Frontiers in Psychology, 6, 673-673. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2015.00673 OpenAlex: https://openalex.org/W1521432141
    Crossref OpenAlex OpenCitations
  5. Till D.A. Grohmann (2017). A Phenomenological Account of Sensorimotor Difficulties in Autism: Intentionality, Movement, and Proprioception . Psychopathology, 50(6), 408-415. S. Karger AG.
    Type: Article DOI: 10.1159/000481949 OpenAlex: https://openalex.org/W2770840303
    Crossref OpenAlex OpenCitations
  6. Hanne De Jaegher (2023). Seeing and inviting participation in autistic interactions . Transcultural Psychiatry, 60(5), 852-865. SAGE Publications.
    Type: Article DOI: 10.1177/13634615211009627 OpenAlex: https://openalex.org/W3204914179
    Crossref OpenAlex OpenCitations
  7. Julia L. Evans (2008). The Emergence of Language: A Dynamical Systems Account . In Blackwell Handbook of Language Development (pp. 128-147). Blackwell Publishing Ltd.
    Type: Book chapter DOI: 10.1002/9780470757833.ch7 OpenAlex: https://openalex.org/W1535080005
    Crossref OpenAlex OpenCitations
  8. Katie Howard , Napoleon Katsos , Jenny Gibson (2019). Using interpretative phenomenological analysis in autism research . Autism, 23(7), 1871-1876. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318823902 OpenAlex: https://openalex.org/W2913614870
    Crossref OpenAlex OpenCitations
  10. Linda Finlay (2014). Engaging Phenomenological Analysis . Qualitative Research in Psychology, 11(2), 121-141. Informa UK Limited.
    Type: Article DOI: 10.1080/14780887.2013.807899 OpenAlex: https://openalex.org/W1784519638
    Crossref OpenAlex OpenCitations
  11. Ezequiel Di Paolo , Hanne De Jaegher (2012). The interactive brain hypothesis . Frontiers in Human Neuroscience, 6, 163-163. Frontiers Media SA.
    Type: Article DOI: 10.3389/fnhum.2012.00163 OpenAlex: https://openalex.org/W2140216883
    Crossref OpenAlex OpenCitations
  12. Connie Kasari , Tanya Paparella , Stephanny Freeman , Laudan B. Jahromi (2008). Language outcome in autism: Randomized comparison of joint attention and play interventions. Journal of Consulting and Clinical Psychology, 76(1), 125-137. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0022-006x.76.1.125 OpenAlex: https://openalex.org/W2007805073
    Crossref OpenAlex OpenCitations
  15. Hanne De Jaegher (2013). Embodiment and sense-making in autism . Frontiers in Integrative Neuroscience, 7, 15. Frontiers Media SA.
    Type: Article DOI: 10.3389/fnint.2013.00015 OpenAlex: https://openalex.org/W2062444032
    Crossref OpenAlex OpenCitations
  16. Andrew Pickles , Ann Le Couteur , Kathy Leadbitter , Erica Salomone , Rachel Cole-Fletcher , Hannah Tobin et al. (2016). Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial . The Lancet, 388(10059), 2501-2509. Elsevier BV.
    Type: Article DOI: 10.1016/s0140-6736(16)31229-6 OpenAlex: https://openalex.org/W2537346844
    Crossref OpenAlex OpenCitations
  17. Jan Baedke (2013). The epigenetic landscape in the course of time: Conrad Hal Waddington’s methodological impact on the life sciences . Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences, 44(4), 756-773. Elsevier BV.
    Type: Article DOI: 10.1016/j.shpsc.2013.06.001 OpenAlex: https://openalex.org/W2078997694
    Crossref OpenAlex OpenCitations
  18. Claire Petitmengin , Anne Remillieux , Camila Valenzuela-Moguillansky (2019). Discovering the structures of lived experience . Phenomenology and the Cognitive Sciences, 18(4), 691-730. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11097-018-9597-4 OpenAlex: https://openalex.org/W2904417442
    Crossref OpenAlex OpenCitations
  19. Sander Van de Cruys , Kris Evers , Ruth Van der Hallen , Lien Van Eylen , Bart Boets , Lee de-Wit et al. (2014). Precise minds in uncertain worlds: Predictive coding in autism. Psychological Review, 121(4), 649-675. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0037665 OpenAlex: https://openalex.org/W2098533845
    Crossref OpenAlex OpenCitations
  22. Ben Belek (2019). Articulating Sensory Sensitivity: From Bodies with Autism to Autistic Bodies . Medical Anthropology, 38(1), 30-43. Informa UK Limited.
    Type: Article DOI: 10.1080/01459740.2018.1460750 OpenAlex: https://openalex.org/W2801826397
    Crossref OpenAlex OpenCitations
  23. Catherine McDermott (2022). Theorising the neurotypical gaze: autistic love and relationships in The Bridge (Bron/Broen 2011–2018) . Medical Humanities, 48(1), 51-62. BMJ.
    Type: Article DOI: 10.1136/medhum-2020-011906 OpenAlex: https://openalex.org/W3125687894
    Crossref OpenAlex OpenCitations
  24. Dimitris Bolis , Joshua Balsters , Nicole Wenderoth , Cristina Becchio , Leonhard Schilbach (2017). Beyond Autism: Introducing the Dialectical Misattunement Hypothesis and a Bayesian Account of Intersubjectivity . Psychopathology, 50(6), 355-372. S. Karger AG.
    Type: Article DOI: 10.1159/000484353 OpenAlex: https://openalex.org/W2764030498
    Crossref OpenCitations
  26. Jasmine Phung , Melanie Penner , Clémentine Pirlot , Christie Welch (2021). What I Wish You Knew: Insights on Burnout, Inertia, Meltdown, and Shutdown From Autistic Youth . Frontiers in Psychology, 12, 741421-741421. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2021.741421 OpenAlex: https://openalex.org/W3210845099
    Crossref OpenAlex OpenCitations
  27. Andrew Whitehouse , Kandice J. Varcin , Sarah Pillar , Wesley Billingham , Gail A. Alvares , Josephine Barbaro et al. (2021). Effect of Preemptive Intervention on Developmental Outcomes Among Infants Showing Early Signs of Autism . JAMA Pediatrics, 175(11), e213298. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamapediatrics.2021.3298 OpenAlex: https://openalex.org/W3199581472
    Crossref OpenAlex OpenCitations