An Introduction to Research Methods and Ethics in Neurodiversity Studies

Jackson‐Perry, D. & Bertilsdotter Rosqvist, H. (2024). An Introduction to Research Methods and Ethics in Neurodiversity Studies. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 3-23). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-66127-3_1

Publication date: 1 Jan 2024 Added to AutiHub: 4 Jul 2026 Type: Book chapter Article language: English

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Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)

Abstract

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Cited references
85
Total cited references integrated for this publication.
Cited references with an identified autistic author
25 / 85 (29.4%)
Cited author occurrences identified as autistic
43 / 139 (30.9%)
Among occurrences linked to AutiHub author records: 43 / 84 (51.2%). Distinct cited authors identified as autistic: 24 / 115 (20.9%).
Cited author occurrences linked to AutiHub author records
84 / 139 (60.4%)
Distinct linked cited authors: 60 / 115 (52.2%)
Linked cited-author occurrences not identified as autistic
41 / 84 (48.8%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 41 / 139 (29.5%). Distinct linked cited authors not identified as autistic: 36 / 60 (60.0%).
  1. Russell Carpenter , Leslie Valley (2011). Academic Exchange Quarterly .
    Type: Article OpenAlex: https://openalex.org/W1484866350
    OpenAlex
  2. Ahmed, Sara 1969- (2023). The Feminist Killjoy Handbook . The feminist killjoy handbook.
    Type: Article OpenAlex: https://openalex.org/W7009961295
    Crossref OpenAlex
  3. Nicholas Chown *Autistic author. Learn more… (2020). Language games used to construct autism as pathology . In Neurodiversity Studies (pp. 27-38). Routledge.
    Type: Book chapter DOI: 10.4324/9780429322297-4 OpenAlex: https://openalex.org/W3033145019
    Crossref OpenAlex OpenCitations
  4. Gaile Pohlhaus (2012). Relational Knowing and Epistemic Injustice: Toward a Theory of Willful Hermeneutical Ignorance . Hypatia, 27(4), 715-735. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  5. Asasumasu, K. (no date). PSA from the actual coiner of “neurodivergent” [Tumblr]. Tumblr. Available at: https://sherlocksflataffect.tumblr.com/post/121295972384/psa-from-the-actual-coiner-of-neurodivergent
    Type: Other
    Crossref
  6. Tsitsi Chataika , Dan Goodley (2024). Introduction . In The Routledge Handbook of Postcolonial Disability Studies (pp. 3-12). Routledge.
    Type: Book chapter DOI: 10.4324/9781003310709-2 OpenAlex: https://openalex.org/W4391879111
    Crossref OpenAlex OpenCitations
  7. Mitzi Waltz (2014). Worlds of autism: across the spectrum of neurological difference . Disability & Society, 29(8), 1337-1338. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  8. Laura Basten (2023). The Codex is Always on Crip Time: ADHD(ness) and Reading . Reception: Texts, Readers, Audiences, History, 15, 89-96. The Pennsylvania State University Press.
    Crossref OpenAlex OpenCitations
  9. Elizabeth M. Radulski (2022). Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity . Human Development, 66(2), 113-127. S. Karger AG.
    Crossref OpenAlex OpenCitations
  10. Laura A. Tisoncik (2020). Autistics.Org and Finding Our Voices as an Activist Movement . In Autistic Community and the Neurodiversity Movement (pp. 65-76). Springer Singapore.
    Crossref OpenAlex OpenCitations
  11. Jan Johnston-Tyler , Yvette Analla (2015). ADDRESSING NEURODIVERSE EMPLOYMENT NEEDS: Working with Autism Spectrum Disorder I, NVLD, ADHD, Learning and Mood Disordered Clients . The Career Planning and Adult Development Journal, 31(4), 172.
    Type: Article OpenAlex: https://openalex.org/W2610283647
    OpenAlex
  12. Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Anna Stenning *Autistic author. Learn more… , Nicholas Chown *Autistic author. Learn more… (2020). Introduction . In Neurodiversity Studies (pp. 1-11). Routledge.
    Type: Book chapter DOI: 10.4324/9780429322297-1 OpenAlex: https://openalex.org/W4234970737
    Crossref OpenAlex OpenCitations
  13. Davida Hartman , Tara O’Donnell-Killen , Jessica K. Doyle *Autistic author. Learn more… , Dr Maeve Kavanagh , Dr Anna Day , Dr Juliana Azevedo (2023). The Adult Autism Assessment Handbook . Hodder & Stoughton Ltd: An Hachette Company.
    Crossref OpenAlex OpenCitations
  14. Kim Q. Hall (2017). Queer Epistemology and Epistemic Injustice . In The Routledge Handbook of Epistemic Injustice (pp. 158-166). Routledge.
    Crossref OpenAlex OpenCitations
  15. Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Anna Stenning *Autistic author. Learn more… , Nicholas Chown *Autistic author. Learn more… (2020). Neurodiversity studies . In Neurodiversity Studies (pp. 226-229). Routledge.
    Crossref OpenAlex OpenCitations
  16. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
    Crossref OpenAlex OpenCitations
  17. Robert Chapman *Autistic author. Learn more… (2020). The reality of autism: On the metaphysics of disorder and diversity . Philosophical Psychology, 33(6), 799-819. Informa UK Limited.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  18. Teddy G. Goetz , Noah Adams (2024). The transgender and gender diverse and attention deficit hyperactivity disorder nexus: A systematic review . Journal of Gay & Lesbian Mental Health, 28(1), 2-19. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  19. Kristen Bottema‐Beutel (2024). Putting autism research in social contexts . Autism, 28(7), 1597-1601. SAGE Publications.
    Crossref OpenAlex OpenCitations
  20. Iris Schneid , Aviad E. Raz (2020). The mask of autism: Social camouflaging and impression management as coping/normalization from the perspectives of autistic adults . Social Science & Medicine, 248, 112826. Elsevier BV.
    Crossref OpenAlex OpenCitations
  21. Georgina Taylor (2021). Editorial: Embracing neurodiversity in medicine . Australian Journal of General Practice, 50(3), 101-101. The Royal Australian College of General Practitioners.
    Crossref OpenAlex OpenCitations
  22. Dieuwertje Dyi Huijg (2020). Neuronormativity in theorising agency . In Neurodiversity Studies (pp. 213-217). Routledge.
    Crossref OpenAlex OpenCitations
  23. Robert Chapman *Autistic author. Learn more… , Havi Carel (2022). Neurodiversity, epistemic injustice, and the good human life . Journal of Social Philosophy, 53(4), 614-631. Wiley.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  24. Robert Chapman *Autistic author. Learn more… (2023). Empire of Normality . Pluto Press.
    Crossref OpenAlex OpenCitations
  25. Lynn Clouder , Mehmet Karakus , Alessia Cinotti , María Virginia Ferreyra , Genoveva Amador Fierros , Patricia Rojo (2020). Neurodiversity in higher education: a narrative synthesis . Higher Education, 80(4), 757-778. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Akiko Hart (2020). A new alliance? In Neurodiversity Studies (pp. 221-225). Routledge.
    Crossref OpenAlex OpenCitations
  27. Linn J Sandberg , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Alisa Grigorovich (2021). Regulating, fostering and preserving: the production of sexual normates through cognitive ableism and cognitive othering . Culture, Health & Sexuality, 23(10), 1421-1434. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  28. N Chown (2023). Chown, N., Murphy, S., & Suckle, E. (2023). The autism worldview dilemma: To normalise or not to normalise, that is the question. Good Autism Practice (GAP), 24(2), 5–12. Good Autism Practice (GAP), 24(2), 5.
    Type: Other
    Crossref
  29. Cansu Elmadagli (2023). The Future of Critical Autism Studies (CAS): Thinking through Critical Discourse Studies and Postcolonial Feminism . Ought: The Journal of Autistic Culture, 5(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.
    Crossref OpenAlex OpenCitations
  30. Desiree R. Jones , David S. Mandell (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.
    Crossref OpenAlex OpenCitations
  31. Dekker M. (2023). A correction on the origin of the term ‘neurodiversity’. Independent living on the autistic spectrum: Where those who are different find that they’re not alone. Martijn ‘McDutchie’ Dekker [Blog]. https://www.inlv.org/2023/07/13/neurodiversity-origin.html
    Type: Other
    Crossref
  32. Damian Milton *Autistic author. Learn more… , Susy Ridout , Dinah Murray *Autistic author. Learn more… , Nicola Martin , Richard M. Mills (2020). The Neurodiversity Reader: exploring concepts, lived experiences and implications for practice . The neurodiversity reader: Exploring concepts, lived experiences and implications for practice.
    Type: Article OpenAlex: https://openalex.org/W3098790027
    OpenAlex
  33. Julie Dind (2021). Review of Neurodiversity Studies: A New Critical Paradigm edited by Hanna Bertilsdotter Rosqvist et al. Disability Studies Quarterly, 41(1). The Ohio State University Libraries.
    Crossref OpenAlex OpenCitations
  34. Catherine McDermott (2022). Theorising the neurotypical gaze: autistic love and relationships in The Bridge (Bron/Broen 2011–2018) . Medical Humanities, 48(1), 51-62. BMJ.
    Crossref OpenAlex OpenCitations
  35. Éric Fombonne , Katharine E. Zuckerman (2022). Clinical Profiles of Black and White Children Referred for Autism Diagnosis . Journal of Autism and Developmental Disorders, 52(3), 1120-1130. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  36. Donna Haraway (1988). Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective . Feminist Studies, 14(3), 575. JSTOR.
    Type: Article DOI: 10.2307/3178066 OpenAlex: https://openalex.org/W3146083582
    Crossref OpenAlex OpenCitations
  37. Michael Orsini (2025). Who needs to (un)know? On the generative possibilities of ignorance for autistic futures . International Journal of Qualitative Studies in Education, 38(5), 640-657. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  38. K Gobbo (2019). Gobbo, K., Putney, V. T., & Shmulsky, S. (2019). Should neurodiversity culture influence how instructors teach? Academic Exchange Quarterly, 23(4), 12–17. Academic Exchange Quarterly, 23(4), 12.
    Type: Other
    Crossref
  39. David M Halperin (1995). Saint Foucault . Oxford University PressNew York, NY.
    Crossref OpenAlex OpenCitations
  40. (2022). Learning from Autistic Teachers . Jessica Kingsley Publishers.
    Crossref OpenAlex OpenCitations
  41. Lill Hultman , Maya Hultman (2023). “Believe me, only I know how I feel.” An autoethnographic account of experiences of epistemic injustice in mental health care . Frontiers in Psychiatry, 14, 1058422-1058422. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  42. Daniel Robinson (2022). Neurodiversity in medical education: How can we improve postgraduate learning for neurodiverse doctors? Medical Teacher, 44(5), 564-566. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  43. Kristien Hens , Leni Van Goidsenhoven (2023). Developmental diversity: Putting the development back into research about developmental conditions . Frontiers in Psychiatry, 13, 986732-986732. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  44. Ari Ne'eman *Autistic author. Learn more… , Elizabeth Pellicano (2022). Neurodiversity as Politics . Human Development, 66(2), 149-157. S. Karger AG.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  45. Johnston-Tyler, J., & Analla, Y. (2015) ‘Addressing neurodiverse employment needs: Working with Autism Spectrum Disorder I, NVLD, ADHD, Learning and Mood Disordered Clients’., Career Planning & Adult Development Journal, 31(4).
    Type: Other
    Crossref
  46. Kourti M. (2022). Autism, race, ethnicity and the whiteness of the neurodiversity movement. Presentation at the Autscape Conference, Derbyshire. http://www.autscape.org/2022/programme/presentations
    Type: Other
    Crossref
  47. Ndakaitei Manase (2024). Africanising Neurodiversity . In The Routledge Handbook of Postcolonial Disability Studies (pp. 103-114). Routledge.
    Crossref OpenAlex OpenCitations
  48. Edmund J. S. Sonuga‐Barke (2023). Paradigm ‘flipping’ to reinvigorate translational science: Outlining a neurodevelopmental science framework from a ‘neurodiversity’ perspective . Journal of Child Psychology and Psychiatry, 64(10), 1405-1408. Wiley.
    Crossref OpenAlex OpenCitations
  49. Marshall, B. A. (2022). Workplace neurodiversity: An exploratory study (Doctoral dissertation, Alliant International University).
    Type: Other
    Crossref
  50. Rebecca Wood , Laura Crane , Francesca Happé , Ruth Moyse (2024). Learning from autistic teachers: lessons about change in an era of COVID-19 . Educational Review, 76(5), 1209-1231. Informa UK Limited.
    OpenAlex OpenCitations
  51. McDermott, L. G. (2023). Neuroqueering physics: A new scientific literacy. arXiv preprint arXiv:2307. 05531.
    Type: Other
    Crossref
  52. Linda Örulv (2023). Neurodiversity and dementia . In Critical Dementia Studies (pp. 247-262). Routledge.
    Crossref OpenAlex OpenCitations
  53. Lisanne E. Meinen (2023). Share the Experience, Don’t Take it: Toward Attunement With Neurodiversity in Videogames . Games and Culture, 18(7), 919-939. SAGE Publications.
    Crossref OpenAlex OpenCitations
  54. Alex Toft (2023). Telling Disabled and Autistic Sexuality Stories: Reflecting upon the Current Research Landscape and Possible Future Developments . Sexes, 4(1), 102-117. MDPI AG.
    Crossref OpenAlex OpenCitations
  55. Milton, D., Ridout, S., Murray, D., Martin, N., & Mills, R. (2020). The neurodiversity reader: Exploring concepts, lived experiences and implications for practice. Pavilion.
    Type: Other
    Crossref
  56. Damian Milton *Autistic author. Learn more… , Jonathan Green (2024). Theorising autism . Autism, 28(4), 795-797. SAGE Publications.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  57. D Milton (2013). Milton, D., & Bracher, M. (2013). Autistics speak but are they heard? A Journal of the BSA MedSoc Group, 7(2013), 61–69. A Journal of the BSA MedSoc Group, 7(2013), 61.
    Type: Other
    Crossref
  58. T Nagel (1986). The view from nowhere . The view from nowhere.
    Type: Other
    Crossref
  59. Neumeier, S. M. (2018).‘To Siri With Love’ and the problem with neurodiversity lite. Rewire News Group. https://rewirenewsgroup.com/2018/02/09/siri-love-problem-neurodiversity-lite/
    Type: Other
    Crossref
  60. Perry, M. (2023). Voices in my head: Representations of mental illness in contemporary American musical theater.
    Type: Other
    Crossref
  61. van Schaik, M. (2021). Accept the idea that neurodiverse kids exist: Dyslexic narratives and neurodiversity paradigm visions. Unpublished theses, Wilfrid Laurier University. Theses and Dissertations (Comprehensive). 2403. https://scholars.wlu.ca/etd/2403
    Type: Other
    Crossref
  62. Perry, McKay (2023). "Voices in My Head:" Representations of Mental Illness in Contemporary American Musical Theater . ScholarWorks@UMassAmherst (University of Massachusetts Amherst). University of Massachusetts Amherst.
    Type: Article DOI: 10.7275/35040821 OpenAlex: https://openalex.org/W6902752860
    OpenAlex
  63. S Silberman (2015). Neurotribes . Neurotribes.
    Type: Other
    Crossref
  64. Sinclair, J. (1999). Don’t mourn for us. Autistic Rights Movement UK.
    Type: Other
    Crossref
  65. Sinclair, J. (2005). History of ANI. Autism Network International. https://www.autismnetworkinternational.org/History_of_ANI.html
    Type: Other
    Crossref
  66. J Singer (1999). Disability discourse . Disability discourse, 59.
    Type: Other
    Crossref
  67. Vreeling, L. L. (2021). All over the Place? A contextualized and experiential perspective of ADHD (Doctoral dissertation).
    Type: Other
    Crossref
  68. Walker, N. (2014) Neurodiversity: Some Basic Terms & Definitions. Available at: https://neurocosmopolitanism.com/neurodiversity-some-basic-terms-definitions .
    Type: Other
    Crossref