An Introduction to Research Methods and Ethics in Neurodiversity Studies

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Jackson‐Perry, D. & Bertilsdotter Rosqvist, H. (2024). An Introduction to Research Methods and Ethics in Neurodiversity Studies. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 3-23). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-66127-3_1

Publication date: 1 Jan 2024 Added to AutiHub: 4 Jul 2026 Type: Book chapter Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 13:58.

Cited references
85
With a DOI
61
Without a DOI, from raw bibliography text
21
30 / 85 (35.3%) cited references include at least one author identified as autistic.
References with data to complete
18 / 85 (21.2%)
References with detected author names
71 / 85 (83.5%)
Without detected author names
14
Without a structured title
17
Without a stable identifier
20
References with raw author names still to review
14
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
140
From DOI or external metadata
139
From validated raw bibliography text
1
Raw names already validated
1
Raw names still to review
23
93 / 140 (66.4%) names are linked to an author already present in AutiHub. 47 / 140 (33.6%) names are not yet linked.
Names linked to a person identified as autistic
50 / 140 (35.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 50 / 93 (53.8%). Distinct people identified as autistic: 31 / 116 (26.7%).
  1. Russell Carpenter , Leslie Valley (2011). Academic Exchange Quarterly .
    Type: Article OpenAlex: https://openalex.org/W1484866350
    OpenAlex
  2. Ahmed, Sara 1969- (2023). The Feminist Killjoy Handbook . The feminist killjoy handbook.
    Type: Article OpenAlex: https://openalex.org/W7009961295
    Crossref OpenAlex
  3. Nicholas Chown *Autistic author. Learn more… (2020). Language games used to construct autism as pathology . In Neurodiversity Studies (pp. 27-38). Routledge.
    Type: Book chapter DOI: 10.4324/9780429322297-4 OpenAlex: https://openalex.org/W3033145019
    Crossref OpenAlex OpenCitations
  4. Gaile Pohlhaus (2012). Relational Knowing and Epistemic Injustice: Toward a Theory of Willful Hermeneutical Ignorance . Hypatia, 27(4), 715-735. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  5. Asasumasu, K. (no date). PSA from the actual coiner of “neurodivergent” [Tumblr]. Tumblr. Available at: https://sherlocksflataffect.tumblr.com/post/121295972384/psa-from-the-actual-coiner-of-neurodivergent
    Type: Other
    Crossref
  6. Tsitsi Chataika , Dan Goodley (2024). Introduction . In The Routledge Handbook of Postcolonial Disability Studies (pp. 3-12). Routledge.
    Type: Book chapter DOI: 10.4324/9781003310709-2 OpenAlex: https://openalex.org/W4391879111
    Crossref OpenAlex OpenCitations
  7. Mitzi Waltz (2014). Worlds of autism: across the spectrum of neurological difference . Disability & Society, 29(8), 1337-1338. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  8. Laura Basten (2023). The Codex is Always on Crip Time: ADHD(ness) and Reading . Reception: Texts, Readers, Audiences, History, 15, 89-96. The Pennsylvania State University Press.
    Crossref OpenAlex OpenCitations
  9. Elizabeth M. Radulski (2022). Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity . Human Development, 66(2), 113-127. S. Karger AG.
    Crossref OpenAlex OpenCitations
  10. Laura A. Tisoncik (2020). Autistics.Org and Finding Our Voices as an Activist Movement . In Autistic community and the neurodiversity movement (pp. 65-76). Springer Singapore.
    Crossref OpenAlex OpenCitations
  11. Jan Johnston-Tyler , Yvette Analla (2015). ADDRESSING NEURODIVERSE EMPLOYMENT NEEDS: Working with Autism Spectrum Disorder I, NVLD, ADHD, Learning and Mood Disordered Clients . The Career Planning and Adult Development Journal, 31(4), 172.
    Type: Article OpenAlex: https://openalex.org/W2610283647
    OpenAlex
  12. Hannah Bertilsdotter Rosqvist *Autistic author. Learn more… , Anna Stenning *Autistic author. Learn more… , Nicholas Chown *Autistic author. Learn more… (2020). Introduction . In Neurodiversity Studies (pp. 1-11). Routledge.
    Type: Book chapter DOI: 10.4324/9780429322297-1 OpenAlex: https://openalex.org/W4234970737
    Crossref OpenAlex OpenCitations
  13. Kim Q. Hall (2017). Queer Epistemology and Epistemic Injustice . In The Routledge Handbook of Epistemic Injustice (pp. 158-166). Routledge.
    Crossref OpenAlex OpenCitations
  14. Hannah Bertilsdotter Rosqvist *Autistic author. Learn more… , Anna Stenning *Autistic author. Learn more… , Nicholas Chown *Autistic author. Learn more… (2020). Neurodiversity studies . In Neurodiversity Studies (pp. 226-229). Routledge.
    Crossref OpenAlex OpenCitations
  15. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
    Crossref OpenAlex OpenCitations
  16. Teddy G. Goetz , Noah Adams *Autistic author. Learn more… (2024). The transgender and gender diverse and attention deficit hyperactivity disorder nexus: A systematic review . Journal of Gay & Lesbian Mental Health, 28(1), 2-19. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  17. Kristen Bottema-Beutel (2024). Putting autism research in social contexts . Autism, 28(7), 1597-1601. SAGE Publications.
    Crossref OpenAlex OpenCitations
  18. Iris Schneid , Aviad E. Raz (2020). The mask of autism: Social camouflaging and impression management as coping/normalization from the perspectives of autistic adults . Social Science & Medicine, 248(112), 112826. Elsevier BV.
    Crossref OpenAlex OpenCitations
  19. Georgina Taylor (2021). Editorial: Embracing neurodiversity in medicine . Australian Journal of General Practice, 50(3), 101-101. The Royal Australian College of General Practitioners.
    Crossref OpenAlex OpenCitations
  20. Dieuwertje Dyi Huijg (2020). Neuronormativity in theorising agency . In Neurodiversity Studies (pp. 213-217). Routledge.
    Crossref OpenAlex OpenCitations
  21. Robert Chapman *Autistic author. Learn more… (2023). Empire of Normality . Pluto Press.
    Crossref OpenAlex OpenCitations
  22. Lynn Clouder , Mehmet Karakus , Alessia Cinotti , María Virginia Ferreyra , Genoveva Amador Fierros , Patricia Rojo (2020). Neurodiversity in higher education: a narrative synthesis . Higher Education, 80(4), 757-778. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  23. Akiko Hart (2020). A new alliance? In Neurodiversity Studies (pp. 221-225). Routledge.
    Crossref OpenAlex OpenCitations
  24. Linn J Sandberg , Hannah Bertilsdotter Rosqvist *Autistic author. Learn more… , Alisa Grigorovich (2021). Regulating, fostering and preserving: the production of sexual normates through cognitive ableism and cognitive othering . Culture, Health & Sexuality, 23(10), 1421-1434. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  25. N Chown (2023). Chown, N., Murphy, S., & Suckle, E. (2023). The autism worldview dilemma: To normalise or not to normalise, that is the question. Good Autism Practice (GAP), 24(2), 5–12. Good Autism Practice (GAP), 24(2), 5.
    Type: Other
    Crossref
  26. Cansu Elmadagli *Autistic author. Learn more… (2023). The Future of Critical Autism Studies (CAS): Thinking through Critical Discourse Studies and Postcolonial Feminism . Ought: The Journal of Autistic Culture, 5(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  27. Desiree R Jones , DAVID S. MANDELL (2020). To address racial disparities in autism research, we must think globally, act locally . Autism, 24(7), 1587-1589. SAGE Publications.
    Crossref OpenAlex OpenCitations
  28. Dekker M. (2023). A correction on the origin of the term ‘neurodiversity’. Independent living on the autistic spectrum: Where those who are different find that they’re not alone. Martijn ‘McDutchie’ Dekker [Blog]. https://www.inlv.org/2023/07/13/neurodiversity-origin.html
    Type: Other
    Crossref
  29. Damian Milton *Autistic author. Learn more… , Susy Ridout *Autistic author. Learn more… , Dinah Murray *Autistic author. Learn more… , Nicola Martin , Richard M. Mills (2020). The Neurodiversity Reader: exploring concepts, lived experiences and implications for practice . The neurodiversity reader: Exploring concepts, lived experiences and implications for practice.
    Type: Article OpenAlex: https://openalex.org/W3098790027
    OpenAlex
  30. Julie Dind (2021). Review of Neurodiversity Studies: A New Critical Paradigm edited by Hanna Bertilsdotter Rosqvist et al. Disability Studies Quarterly, 41(1). The Ohio State University Libraries.
    Crossref OpenAlex OpenCitations
  31. Catherine McDermott (2022). Theorising the neurotypical gaze: autistic love and relationships in The Bridge (Bron/Broen 2011–2018) . Medical Humanities, 48(1), 51-62. BMJ.
    Crossref OpenAlex OpenCitations
  32. Éric Fombonne , Katharine E. Zuckerman (2022). Clinical Profiles of Black and White Children Referred for Autism Diagnosis . Journal of Autism and Developmental Disorders, 52(3), 1120-1130. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  33. Donna Haraway (1988). Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective . Feminist Stud, 14(3), 575. JSTOR.
    Type: Article DOI: 10.2307/3178066 OpenAlex: https://openalex.org/W3146083582
    Crossref OpenAlex OpenCitations
  34. Michael Orsini (2025). Who needs to (un)know? On the generative possibilities of ignorance for autistic futures . International Journal of Qualitative Studies in Education, 38(5), 640-657. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  35. K Gobbo (2019). Gobbo, K., Putney, V. T., & Shmulsky, S. (2019). Should neurodiversity culture influence how instructors teach? Academic Exchange Quarterly, 23(4), 12–17. Academic Exchange Quarterly, 23(4), 12.
    Type: Other
    Crossref
  36. David M Halperin (1995). Saint Foucault . Oxford University PressNew York, NY.
    Crossref OpenAlex OpenCitations
  37. (2022). Learning from Autistic Teachers . Jessica Kingsley Publishers.
    Crossref OpenAlex OpenCitations
  38. Lill Hultman , Maya Hultman (2023). “Believe me, only I know how I feel.” An autoethnographic account of experiences of epistemic injustice in mental health care . Frontiers in Psychiatry, 14, 1058422-1058422. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  39. Daniel Robinson (2022). Neurodiversity in medical education: How can we improve postgraduate learning for neurodiverse doctors? Medical Teacher, 44(5), 564-566. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  40. Kristien Hens , Leni Van Goidsenhoven (2023). Developmental diversity: Putting the development back into research about developmental conditions . Frontiers in Psychiatry, 13, 986732-986732. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  41. Ari Ne'eman *Autistic author. Learn more… , Elizabeth Pellicano (2022). Neurodiversity as Politics . Human Development, 66(2), 149-157. S. Karger AG.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  42. Johnston-Tyler, J., & Analla, Y. (2015) ‘Addressing neurodiverse employment needs: Working with Autism Spectrum Disorder I, NVLD, ADHD, Learning and Mood Disordered Clients’., Career Planning & Adult Development Journal, 31(4).
    Type: Other
    Crossref
  43. Kourti M. (2022). Autism, race, ethnicity and the whiteness of the neurodiversity movement. Presentation at the Autscape Conference, Derbyshire. http://www.autscape.org/2022/programme/presentations
    Type: Other
    Crossref
  44. Ndakaitei Manase (2024). Africanising Neurodiversity . In The Routledge Handbook of Postcolonial Disability Studies (pp. 103-114). Routledge.
    Crossref OpenAlex OpenCitations
  45. Edmund J. S. Sonuga‐Barke (2023). Paradigm ‘flipping’ to reinvigorate translational science: Outlining a neurodevelopmental science framework from a ‘neurodiversity’ perspective . Journal of Child Psychology and Psychiatry, 64(10), 1405-1408. Wiley.
    Crossref OpenAlex OpenCitations
  46. Marshall, B. A. (2022). Workplace neurodiversity: An exploratory study (Doctoral dissertation, Alliant International University).
    Type: Other
    Crossref
  47. McDermott, L. G. (2023). Neuroqueering physics: A new scientific literacy. arXiv preprint arXiv:2307. 05531.
    Type: Other
    Crossref
  48. Linda Örulv (2023). Neurodiversity and dementia . In Critical Dementia Studies (pp. 247-262). Routledge.
    Crossref OpenAlex OpenCitations
  49. Lisanne E. Meinen (2023). Share the Experience, Don’t Take it: Toward Attunement With Neurodiversity in Videogames . Games and Culture, 18(7), 919-939. SAGE Publications.
    Crossref OpenAlex OpenCitations
  50. Alex Toft (2023). Telling Disabled and Autistic Sexuality Stories: Reflecting upon the Current Research Landscape and Possible Future Developments . Sexes, 4(1), 102-117. MDPI AG.
    Crossref OpenAlex OpenCitations
  51. Milton, D., Ridout, S., Murray, D., Martin, N., & Mills, R. (2020). The neurodiversity reader: Exploring concepts, lived experiences and implications for practice. Pavilion.
    Type: Other
    Crossref
  52. Damian Milton *Autistic author. Learn more… , Jonathan Green (2024). Theorising autism . Autism, 28(4), 795-797. SAGE Publications.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  53. D Milton (2013). Milton, D., & Bracher, M. (2013). Autistics speak but are they heard? A Journal of the BSA MedSoc Group, 7(2013), 61–69. A Journal of the BSA MedSoc Group, 7(2013), 61.
    Type: Other
    Crossref
  54. T Nagel (1986). The view from nowhere . The view from nowhere.
    Type: Other
    Crossref
  55. Neumeier, S. M. (2018).‘To Siri With Love’ and the problem with neurodiversity lite. Rewire News Group. https://rewirenewsgroup.com/2018/02/09/siri-love-problem-neurodiversity-lite/
    Type: Other
    Crossref
  56. Perry, M. (2023). Voices in my head: Representations of mental illness in contemporary American musical theater.
    Type: Other
    Crossref
  57. van Schaik, M. (2021). Accept the idea that neurodiverse kids exist: Dyslexic narratives and neurodiversity paradigm visions. Unpublished theses, Wilfrid Laurier University. Theses and Dissertations (Comprehensive). 2403. https://scholars.wlu.ca/etd/2403
    Type: Other
    Crossref
  58. Perry, McKay (2023). "Voices in My Head:" Representations of Mental Illness in Contemporary American Musical Theater . ScholarWorks@UMassAmherst (University of Massachusetts Amherst). University of Massachusetts Amherst.
    Type: Article DOI: 10.7275/35040821 OpenAlex: https://openalex.org/W6902752860
    OpenAlex
  59. S Silberman (2015). Neurotribes . Neurotribes.
    Type: Other
    Crossref
  60. Jim Sinclair *Autistic author. Learn more… Sinclair, J. (1999). Don’t mourn for us. Autistic Rights Movement UK.
    Type: Other
    Crossref
  61. Sinclair, J. (2005). History of ANI. Autism Network International. https://www.autismnetworkinternational.org/History_of_ANI.html
    Type: Other
    Crossref
  62. J. Singer (1999). Disability Discourse . Disability Discourse, 59.
    Type: Other
    Crossref
  63. Vreeling, L. L. (2021). All over the Place? A contextualized and experiential perspective of ADHD (Doctoral dissertation).
    Type: Other
    Crossref
  64. Walker, N. (2014) Neurodiversity: Some Basic Terms & Definitions. Available at: https://neurocosmopolitanism.com/neurodiversity-some-basic-terms-definitions .
    Type: Other
    Crossref