‘Living in a world that’s not about us’: The impact of everyday life on the health and wellbeing of autistic women and gender diverse people

Authors

Abstract

BACKGROUND: Autistic women and gender diverse people have specific needs related to their physical and mental health. They also experience more barriers to accessing services. While there are autobiographical accounts of the 'invisible' challenges that autistic women and gender diverse people face day-to-day, there has been limited research that explores how these experiences impact health and wellbeing. OBJECTIVES: This study aimed to understand the everyday experiences of autistic women and gender diverse people, and their impact on health and wellbeing. DESIGN: Qualitative methods were used to elicit rich information about the unique experiences of autistic women and gender diverse people. METHODS: We conducted semi-structured interviews with 31 autistic adults. The data were analysed using reflexive thematic analysis. RESULTS: We identified 3 themes and 10 subthemes. Our first theme described 'all the stuff that you have to do to get through life', including managing domestic tasks, parenting, unique health needs and co-occurring physical conditions. The second theme outlined the impact of 'living in a world that's not about us', describing how navigating the neurotypical world, managing gender role expectations and trying to fit impacts on mental health. Our third theme outlined the positive impacts of 'shedding all the layers and being myself', including the importance of formal identification, exploring autistic identity and community, and including autistic people in research to support them to 'have a good life on their own terms'. CONCLUSION: This study emphasized the importance of shifting the responsibility of health and wellbeing from the individual, and the importance of interpersonal, community, cultural, policy and societal factors in ensuring positive health outcomes for autistic women and gender diverse people. It also highlighted areas that enable autistic women and gender diverse people to flourish, including autistic community connectedness, positive relationships and autistic-affirming support from health professionals.

1. Patricia Howlin , Joanne Arciuli , Sander Begeer , Jon Brock , Kristina Clarke , Debra Costley et al. (2015). Research on adults with autism spectrum disorder: Roundtable report . Journal of Intellectual and Developmental Disability, 40(4), 388-393. Informa UK Limited.

   Type: Article DOI: 10.3109/13668250.2015.1064343 OpenAlex: https://openalex.org/W1869783492

   Crossref OpenAlex OpenCitations
2. World Health Organisation (1946). Preamble to the constitution of the World Health Organization as adopted by the International Health Conference . Preamble to the constitution of the World Health Organization as adopted by the International Health Conference.

   Type: Other

   Crossref
3. Felicity Sedgewick , Jenni Leppanen , Kate Tchanturia (2021). Gender differences in mental health prevalence in autism . Advances in Autism, 7(3), 208-224. Emerald.

   Type: Article DOI: 10.1108/aia-01-2020-0007 OpenAlex: https://openalex.org/W3016216785

   Crossref OpenAlex OpenCitations
4. Damian Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.

   Type: Article DOI: 10.1080/09687599.2012.710008 OpenAlex: https://openalex.org/W1968949608

   AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
5. Kai Ruggeri , Eduardo Garcia-Garzon , Áine Maguire , Sandra Matz , Felicia A. Huppert (2020). Well-being is more than happiness and life satisfaction: a multidimensional analysis of 21 countries . Health and Quality of Life Outcomes, 18(1), 192-192. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1186/s12955-020-01423-y OpenAlex: https://openalex.org/W3036680904

   Crossref OpenAlex OpenCitations
6. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.

   Type: Article DOI: 10.1192/bjp.bp.114.160192 OpenAlex: https://openalex.org/W2168424072

   Crossref OpenAlex OpenCitations
7. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.

   Type: Article DOI: 10.1191/1478088706qp063oa OpenAlex: https://openalex.org/W1979290264

   Crossref OpenAlex OpenCitations
8. Felicia A Huppert (2009). Psychological Well‐being: Evidence Regarding its Causes and Consequences† . Applied Psychology: Health and Well-Being, 1(2), 137-164. Wiley.

   Type: Article DOI: 10.1111/j.1758-0854.2009.01008.x OpenAlex: https://openalex.org/W2033418294

   Crossref OpenAlex OpenCitations
9. Kenny Rodriguez-Wallberg , Juno Obedin-Maliver , Bernard Taylor , Norah Van Mello , Kelly Tilleman , Leena Nahata (2023). Reproductive health in transgender and gender diverse individuals: A narrative review to guide clinical care and international guidelines . International Journal of Transgender Health, 24(1), 7-25. Informa UK Limited.

   Type: Article DOI: 10.1080/26895269.2022.2035883 OpenAlex: https://openalex.org/W4293509694

   Crossref OpenAlex OpenCitations
10. Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.

    Type: Article DOI: 10.1002/ejsp.2297 OpenAlex: https://openalex.org/W2593228649

    Crossref OpenAlex OpenCitations
11. Kaitlin H. Koffer Miller , Dylan S. Cooper , Wei Song , Lindsay Shea (2022). Self-reported service needs and barriers reported by autistic adults: Differences by gender identity . Research in Autism Spectrum Disorders, 92, 101916. Elsevier BV.

    Type: Article DOI: 10.1016/j.rasd.2022.101916 OpenAlex: https://openalex.org/W4211141648

    Crossref OpenAlex OpenCitations
12. Kuem Sun Han , Lin Kim , Insop Shim (2012). Stress and Sleep Disorder . Experimental Neurobiology, 21(4), 141-150. The Korean Society for Brain and Neural Science.

    Type: Article DOI: 10.5607/en.2012.21.4.141 OpenAlex: https://openalex.org/W2034921462

    Crossref OpenAlex OpenCitations
13. Andrew Cashin , Thomas Buckley , Julian N Trollor , Nicholas Lennox (2018). A scoping review of what is known of the physical health of adults with autism spectrum disorder . Journal of Intellectual Disabilities, 22(1), 96-108. SAGE Publications.

    Type: Article DOI: 10.1177/1744629516665242 OpenAlex: https://openalex.org/W2519892621

    Crossref OpenAlex OpenCitations
14. Ami Tint , Jonathan A. Weiss (2018). A qualitative study of the service experiences of women with autism spectrum disorder . Autism, 22(8), 928-937. SAGE Publications.

    Type: Article DOI: 10.1177/1362361317702561 OpenAlex: https://openalex.org/W2754922100

    Crossref OpenAlex OpenCitations
15. Charles W. Ralston (1992). Annals of Child Development . Journal of Developmental & Behavioral Pediatrics, 13(2), 137. Ovid Technologies (Wolters Kluwer Health).

    Type: Article DOI: 10.1097/00004703-199204000-00011 OpenAlex: https://openalex.org/W2037135519

    OpenAlex
16. Lisa A. Croen , Ousseny Zerbo , Yinge Qian , Maria L Massolo , Steve Rich , Stephen Sidney et al. (2015). The health status of adults on the autism spectrum . Autism, 19(7), 814-823. SAGE Publications.

    Type: Article DOI: 10.1177/1362361315577517 OpenAlex: https://openalex.org/W2108322879

    Crossref OpenAlex OpenCitations
17. Michael Oliver (1983). Social Work with Disabled People . Macmillan Education UK.

    Type: Book DOI: 10.1007/978-1-349-86058-6 OpenAlex: https://openalex.org/W4299557921

    Crossref OpenAlex OpenCitations
18. Amy Hamilton , Michael P. Marshal , Pamela J. Murray (2011). Autism Spectrum Disorders and Menstruation . Journal of Adolescent Health, 49(4), 443-445. Elsevier BV.

    Type: Article DOI: 10.1016/j.jadohealth.2011.01.015 OpenAlex: https://openalex.org/W2037472407

    Crossref OpenAlex OpenCitations
19. Ewelina Rydzewska , Laura A. Hughes-McCormack , Christopher Gillberg , Angela Henderson , Cecilia MacIntyre , Julie Rintoul et al. (2019). General health of adults with autism spectrum disorders – A whole country population cross-sectional study . Research in Autism Spectrum Disorders, 60(April 2019), 59-66. Elsevier BV.

    Type: Article DOI: 10.1016/j.rasd.2019.01.004 OpenAlex: https://openalex.org/W2912237256

    Crossref OpenAlex OpenCitations
20. Pia Bradshaw , Claire Pickett , Mieke L van Driel , Katie Brooker , Anna Urbanowicz (2021). Recognising, supporting and understanding Autistic adults in general practice settings . Australian Journal of General Practice, 50(3), 126-130. The Royal Australian College of General Practitioners.

    Type: Article DOI: 10.31128/ajgp-11-20-5722 OpenAlex: https://openalex.org/W3130006675

    Crossref OpenAlex OpenCitations
21. Urie Bronfenbrenner (1986). Ecology of the family as a context for human development: Research perspectives. Developmental Psychology, 22(6), 723-742. American Psychological Association (APA).

    Type: Article DOI: 10.1037/0012-1649.22.6.723 OpenAlex: https://openalex.org/W2050336499

    Crossref OpenAlex OpenCitations
22. Mary Doherty *Autistic author. Learn more… , Mona Johnson *Autistic author. Learn more… , Carole Buckley (2021). Supporting autistic doctors in primary care: challenging the myths and misconceptions . British Journal of General Practice, 71(708), 294-295. Royal College of General Practitioners.

    Type: Article DOI: 10.3399/bjgp21x716165 OpenAlex: https://openalex.org/W3174054039

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
23. Keely Cheslack-Postava , Rebecca M. Jordan-Young (2012). Autism spectrum disorders: Toward a gendered embodiment model . Social Science & Medicine, 74(11), 1667-1674. Elsevier BV.

    Type: Article DOI: 10.1016/j.socscimed.2011.06.013 OpenAlex: https://openalex.org/W2054697480

    Crossref OpenAlex OpenCitations
24. Vicki Gibbs , Jennie Hudson , Elizabeth Pellicano (2023). The Extent and Nature of Autistic People’s Violence Experiences During Adulthood: A Cross-sectional Study of Victimisation . Journal of Autism and Developmental Disorders, 53(9), 3509-3524. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-022-05647-3 OpenAlex: https://openalex.org/W4285094625

    Crossref OpenAlex OpenCitations
25. Elizabeth Pellicano , Unsa Fatima , Gabrielle Hall *Autistic author. Learn more… , Melanie Heyworth *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… , Rozanna Lilley et al. (2022). A capabilities approach to understanding and supporting autistic adulthood . Nature Reviews Psychology, 1(11), 624-639. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1038/s44159-022-00099-z OpenAlex: https://openalex.org/W4294631565

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex OpenCitations
26. Anthony Biglan , Brian R. Flay , Dennis D. Embry , Irwin N. Sandler (2012). The critical role of nurturing environments for promoting human well-being. American Psychologist, 67(4), 257-271. American Psychological Association (APA).

    Type: Article DOI: 10.1037/a0026796 OpenAlex: https://openalex.org/W2079887362

    Crossref OpenAlex OpenCitations
27. Anne V. Kirby , Amanda V. Bakian , Yue Zhang , Deborah A. Bilder , Brooks R. Keeshin , Hilary Coon (2019). A 20‐year study of suicide death in a statewide autism population . Autism Research, 12(4), 658-666. Wiley.

    Type: Article DOI: 10.1002/aur.2076 OpenAlex: https://openalex.org/W2911505910

    Crossref OpenAlex OpenCitations
28. Anna I. R. van der Miesen , Hannah Hurley , A. de Vries (2016). Gender dysphoria and autism spectrum disorder: A narrative review . International Review of Psychiatry, 28(1), 70-80. Informa UK Limited.

    Type: Article DOI: 10.3109/09540261.2015.1111199 OpenAlex: https://openalex.org/W2235180922

    Crossref OpenAlex OpenCitations
29. William D. Spector , Sidney Katz , John B. Murphy , John P. Fulton (1987). The hierarchical relationship between activities of daily living and instrumental activities of daily living . Journal of Chronic Diseases, 40(6), 481-489. Elsevier BV.

    Type: Article DOI: 10.1016/0021-9681(87)90004-x OpenAlex: https://openalex.org/W2091096212

    Crossref OpenAlex OpenCitations
30. Caroline Kassee , Stephanie Babinski , Ami Tint , Yona Lunsky , Hilary K. Brown , Stephanie H. Ameis et al. (2020). Physical health of autistic girls and women: a scoping review . Molecular Autism, 11(1), 84-84. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13229-020-00380-z OpenAlex: https://openalex.org/W3094995723

    Crossref OpenAlex OpenCitations
31. Urie Bronfenbrenner (1977). Toward an experimental ecology of human development. American Psychologist, 32(7), 513-531. American Psychological Association (APA).

    Type: Article DOI: 10.1037/0003-066x.32.7.513 OpenAlex: https://openalex.org/W2103066851

    Crossref OpenAlex OpenCitations
32. Leann Smith DaWalt , Julie Lounds Taylor , Arezoo Movaghar , Jinkuk Hong , Bryan Kim , Murray Brilliant et al. (2021). Health profiles of adults with autism spectrum disorder: Differences between women and men . Autism Research, 14(9), 1896-1904. Wiley.

    Type: Article DOI: 10.1002/aur.2563 OpenAlex: https://openalex.org/W3173811501

    Crossref OpenAlex OpenCitations
33. Kenneth R. McLeroy , Daniel Bibeau , Allan Steckler , Karen Glanz (1988). An Ecological Perspective on Health Promotion Programs . Health Education Quarterly, 15(4), 351-377. SAGE Publications.

    Type: Article DOI: 10.1177/109019818801500401 OpenAlex: https://openalex.org/W2158089900

    Crossref OpenAlex OpenCitations
34. Freya Rumball , Francesca Happé , Nick Grey (2020). Experience of Trauma and PTSD Symptoms in Autistic Adults: Risk of PTSD Development Following DSM ‐5 and Non‐DSM ‐5 Traumatic Life Events . Autism Research, 13(12), 2122-2132. Wiley.

    Type: Article DOI: 10.1002/aur.2306 OpenAlex: https://openalex.org/W3016541693

    Crossref OpenAlex OpenCitations
35. M. P. Lawton , E. M. Brody (1969). Assessment of Older People: Self-Maintaining and Instrumental Activities of Daily Living . The Gerontologist, 9(3 Part 1), 179-186. Oxford University Press (OUP).

    Type: Article DOI: 10.1093/geront/9.3_part_1.179 OpenAlex: https://openalex.org/W2128529067

    Crossref OpenAlex OpenCitations
36. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.

    Type: Article DOI: 10.1016/s2215-0366(19)30289-5 OpenAlex: https://openalex.org/W2936336589

    Crossref OpenAlex OpenCitations
37. Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom . Autism, 18(7), 756-770. SAGE Publications.

    Type: Article DOI: 10.1177/1362361314529627 OpenAlex: https://openalex.org/W2155427676

    AutiHub · Documentation center Crossref OpenAlex OpenCitations
38. Reubs J. Walsh , Lydia Krabbendam , Jeroen Dewinter , Sander Begeer (2018). Brief Report: Gender Identity Differences in Autistic Adults: Associations with Perceptual and Socio-cognitive Profiles . Journal of Autism and Developmental Disorders, 48(12), 4070-4078. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3702-y OpenAlex: https://openalex.org/W2887528816

    Crossref OpenAlex OpenCitations
39. Rita George , Mark A. Stokes (2018). A Quantitative Analysis of Mental Health Among Sexual and Gender Minority Groups in ASD . Journal of Autism and Developmental Disorders, 48(6), 2052-2063. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3469-1 OpenAlex: https://openalex.org/W2785158416

    Crossref OpenAlex OpenCitations
40. Robyn Steward *Autistic author. Learn more… , Laura Crane , Eilish Mairi Roy , Anna Remington , Elizabeth Pellicano (2018). “Life is Much More Difficult to Manage During Periods”: Autistic Experiences of Menstruation . Journal of Autism and Developmental Disorders, 48(12), 4287-4292. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3664-0 OpenAlex: https://openalex.org/W2809451435

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
41. Penelope Strauss , Angus Cook , Vanessa Watson , Sam Winter , Andrew Whitehouse , Nicole Albrecht et al. (2021). Mental health difficulties among trans and gender diverse young people with an autism spectrum disorder (ASD): Findings from Trans Pathways . Journal of Psychiatric Research, 137, 360-367. Elsevier BV.

    Type: Article DOI: 10.1016/j.jpsychires.2021.03.005 OpenAlex: https://openalex.org/W3138305906

    Crossref OpenAlex OpenCitations
42. Monique Botha *Autistic author. Learn more… , Bridget Dibb , David M. Frost (2022). ‘It’s being a part of a grand tradition, a grand counter-culture which involves communities’: A qualitative investigation of autistic community connectedness . Autism, 26(8), 2151-2164. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221080248 OpenAlex: https://openalex.org/W4221109625

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
43. Sarah Bargiela , Robyn Steward *Autistic author. Learn more… , Will Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-016-2872-8 OpenAlex: https://openalex.org/W2494524772

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
44. Fabienne Cazalis , Elisabeth Reyes , Séverine Leduc , David Gourion (2022). Evidence That Nine Autistic Women Out of Ten Have Been Victims of Sexual Violence . Frontiers in Behavioral Neuroscience, 16, 852203-852203. Frontiers Media SA.

    Type: Article DOI: 10.3389/fnbeh.2022.852203 OpenAlex: https://openalex.org/W4225009262

    Crossref OpenAlex OpenCitations
45. Patrick Dwyer *Autistic author. Learn more… (2022). The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers? Human Development, 66(2), 73-92. S. Karger AG.

    Type: Article DOI: 10.1159/000523723 OpenAlex: https://openalex.org/W4213371521

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
46. Laura Graham Holmes , Jennifer Ames , Maria L Massolo , Denise M. Nunez , Lisa A. Croen (2022). Improving the Sexual and Reproductive Health and Health Care of Autistic People . Pediatrics, 149(Supplement 4). American Academy of Pediatrics (AAP).

    Type: Article DOI: 10.1542/peds.2020-049437j OpenAlex: https://openalex.org/W4223987997

    Crossref OpenAlex OpenCitations
47. Lucie Kanfiszer , Fran Davies , Suzanne Collins (2017). ‘I was just so different’: The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships . Autism, 21(6), 661-669. SAGE Publications.

    Type: Article DOI: 10.1177/1362361316687987 OpenAlex: https://openalex.org/W2598764139

    Crossref OpenAlex OpenCitations
48. Christina G. McDonnell , Elizabeth A. DeLucia (2021). Pregnancy and Parenthood Among Autistic Adults: Implications for Advancing Maternal Health and Parental Well-Being . Autism in Adulthood, 3(1), 100-115. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0046 OpenAlex: https://openalex.org/W3118997953

    Crossref OpenAlex OpenCitations
49. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.

    Type: Book DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917

    Crossref OpenAlex OpenCitations
50. Annabeth P Groenman , Carolien Torenvliet , Tulsi A Radhoe , Joost A Agelink van Rentergem , Hilde M. Geurts (2022). Menstruation and menopause in autistic adults: Periods of importance? Autism, 26(6), 1563-1572. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211059721 OpenAlex: https://openalex.org/W3166746716

    Crossref OpenAlex OpenCitations
51. Silvana Unigwe , Carole Buckley , Laura Crane , Lorcan Kenny , Anna Remington , Elizabeth Pellicano (2017). GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study . British Journal of General Practice, 67(659), e445-e452. Royal College of General Practitioners.

    Type: Article DOI: 10.3399/bjgp17x690449 OpenAlex: https://openalex.org/W2614102167

    Crossref OpenAlex OpenCitations
52. Gavin R. Stewart , Anne Corbett , Clive Ballard , Byron Creese , Dag Aarsland , Adam Hampshire et al. (2022). Traumatic life experiences and post‐traumatic stress symptoms in middle‐aged and older adults with and without autistic traits . International Journal of Geriatric Psychiatry, 37(2). Wiley.

    Type: Article DOI: 10.1002/gps.5669 OpenAlex: https://openalex.org/W4200412786

    Crossref OpenAlex OpenCitations
53. Emily White , Gregory L. Wallace , Julia Bascom *Autistic author. Learn more… , Anna Chelsea Armour , Kelly Register‐Brown , Haroon Popal et al. (2017). Sex differences in parent‐reported executive functioning and adaptive behavior in children and young adults with autism spectrum disorder . Autism Research, 10(10), 1653-1662. Wiley.

    Type: Article DOI: 10.1002/aur.1811 OpenAlex: https://openalex.org/W2621191851

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
54. Meredith R. Maroney , Sharon G. Horne (2022). “Tuned into a different channel”: Autistic transgender adults’ experiences of intersectional stigma. Journal of Counseling Psychology, 69(6), 761-774. American Psychological Association (APA).

    Type: Article DOI: 10.1037/cou0000639 OpenAlex: https://openalex.org/W4294128129

    Crossref OpenAlex OpenCitations
55. Rebecca Poulsen *Autistic author. Learn more… , Charlotte Brownlow , Wenn Lawson *Autistic author. Learn more… , Elizabeth Pellicano (2022). Meaningful research for autistic people? Ask autistics! Autism, 26(1), 3-5. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211064421 OpenAlex: https://openalex.org/W4206188884

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex OpenCitations
56. Chelsea Auld , Kitty‐Rose Foley , Andrew Cashin (2022). Daily living skills of autistic adolescents and young adults: A scoping review . Australian Occupational Therapy Journal, 69(4), 456-474. Wiley.

    Type: Article DOI: 10.1111/1440-1630.12806 OpenAlex: https://openalex.org/W4225261520

    Crossref OpenAlex OpenCitations
57. Johnston M (1996). Models of disability . Psychologist, 9, 205.

    Type: Other

    Crossref
58. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.

    Type: Article DOI: 10.1080/2159676x.2019.1628806 OpenAlex: https://openalex.org/W2950504429

    Crossref OpenAlex OpenCitations
59. Elizabeth Pellicano , Jacquiline den Houting *Autistic author. Learn more… (2022). Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science . Journal of Child Psychology and Psychiatry, 63(4), 381-396. Wiley.

    Type: Article DOI: 10.1111/jcpp.13534 OpenAlex: https://openalex.org/W3208557763

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex OpenCitations
60. Victoria Milner , Hollie McIntosh , Emma Colvert , Francesca Happé (2019). A Qualitative Exploration of the Female Experience of Autism Spectrum Disorder (ASD) . Journal of Autism and Developmental Disorders, 49(6), 2389-2402. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-019-03906-4 OpenAlex: https://openalex.org/W2917614824

    Crossref OpenAlex OpenCitations
61. Nicholas Chown *Autistic author. Learn more… , Luke Beardon (2017). Theoretical Models and Autism . In Encyclopedia of Autism Spectrum Disorders (pp. 1-7). Springer New York.

    Type: Book chapter DOI: 10.1007/978-1-4614-6435-8_102171-1 OpenAlex: https://openalex.org/W3033269643

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
62. Priscilla Samuel , Rui Ying Yew , Merrilyn Hooley , Martha Hickey , Mark A. Stokes (2022). Sensory challenges experienced by autistic women during pregnancy and childbirth: a systematic review . Archives of Gynecology and Obstetrics, 305(2), 299-311. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s00404-021-06109-4 OpenAlex: https://openalex.org/W3165860750

    Crossref OpenAlex OpenCitations
63. Pia Bradshaw , Elizabeth Pellicano , Mieke van Driel , Anna Urbanowicz (2019). How Can We Support the Healthcare Needs of Autistic Adults Without Intellectual Disability? Current Developmental Disorders Reports, 6(2), 45-56. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s40474-019-00159-9 OpenAlex: https://openalex.org/W2944177211

    Crossref OpenAlex OpenCitations
64. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319853442 OpenAlex: https://openalex.org/W2947577397

    Crossref OpenAlex OpenCitations
65. Bronfenbrenner U (1989). Annals of child development . Annals of child development, 187.

    Type: Other

    Crossref
66. Monique Botha *Autistic author. Learn more… , Kristen Gillespie-Lynch (2022). Come as You Are: Examining Autistic Identity Development and the Neurodiversity Movement through an Intersectional Lens . Human Development, 66(2), 93-112. S. Karger AG.

    Type: Article DOI: 10.1159/000524123 OpenAlex: https://openalex.org/W4293192631

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
67. Rachel Moseley *Autistic author. Learn more… , Tanya Druce , Julie Gamble-Turner (2020). ‘When my autism broke’: A qualitative study spotlighting autistic voices on menopause . Autism, 24(6), 1423-1437. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319901184 OpenAlex: https://openalex.org/W3003985604

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
68. (n.d.). World Health Organisation. Social determinants of health https://www.who.int/health-topics/social-determinants-of-health#tab=tab_1 (2022 accessed September 2022).

    Type: Other

    Crossref
69. (n.d.). Jack C. A day in the life of a woman with autism. Living with autism: a personal perspective. Psychology Today August 2021 https://www.psychologytoday.com/intl/blog/women-autism-spectrum-disorder/202108/day-in-the-life-woman-autism (accessed July 2022).

    Type: Other

    Crossref
70. Piper R (n.d.). ‘I thought I was lazy’: the invisible struggle for autistic women . The Establishment.

    Type: Other

    Crossref
71. Stella Mo , Nina Viljoen , Shivani Sharma (2022). The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis . Autism, 26(4), 951-962. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211037896 OpenAlex: https://openalex.org/W4226237227

    Crossref OpenAlex OpenCitations
72. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04575-4 OpenAlex: https://openalex.org/W3036418460

    Crossref OpenAlex OpenCitations
73. Samuel R. C. Arnold , Julianne M. Higgins *Autistic author. Learn more… , Janelle Weise , Aishani Desai , Elizabeth Pellicano , Julian N Trollor (2023). Confirming the nature of autistic burnout . Autism, 27(7), 1906-1918. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221147410 OpenAlex: https://openalex.org/W4315927930

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
74. Mo, Stella (2021). The Impact of Socio-Cultural Values on Autistic Women: an Interpretative Phenomenological Analysis . PubMed, 26(4), 951.

    Type: Article OpenAlex: https://openalex.org/W3127694951

    OpenAlex
75. Ye In Hwang , Kitty‐Rose Foley , Kieran Elley , Scott Brown , Dawn-Joy Leong , Xue Li et al. (2023). Experiences of Performing Daily Activities in Middle-Aged and Older Autistic Adults: A Qualitative Study . Journal of Autism and Developmental Disorders, 53(5), 2037-2049. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-022-05473-7 OpenAlex: https://openalex.org/W4214533226

    Crossref OpenAlex
76. Miriam Harmens , Felicity Sedgewick , Hannah Hobson (2022). Autistic women’s diagnostic experiences: Interactions with identity and impacts on well-being . Women's Health, 18, 17455057221137477-17455057221137477. SAGE Publications.

    Type: Article DOI: 10.1177/17455057221137477 OpenAlex: https://openalex.org/W4309363025

    Crossref OpenAlex OpenCitations
77. (n.d.). National Disability Insurance Agency. Understanding the NDIS https://www.ndis.gov.au/understanding/what-ndis (2023 accessed March 2023).

    Type: Other

    Crossref
78. Vicki Gibbs , Jennie Hudson , Ye In Hwang , Samuel R. C. Arnold , Julian N Trollor , Elizabeth Pellicano (2021). Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates . Research in Autism Spectrum Disorders, 89, 101866. Elsevier BV.

    Type: Article DOI: 10.1016/j.rasd.2021.101866 OpenAlex: https://openalex.org/W3204452424

    Crossref OpenAlex OpenCitations
79. Cameron A Maitland , Sinéad Rhodes , Anne O’Hare , Mary E. Stewart (2021). Social identities and mental well-being in autistic adults . Autism, 25(6), 1771-1783. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211004328 OpenAlex: https://openalex.org/W3160089913

    Crossref OpenAlex OpenCitations
80. (n.d.). Grove R Clapham H Moodie T et al. Research priorities for autistic girls women and gender diverse people in Australia https://www.uts.edu.au/autistic-women-and-girls-research-priorities (2022 accessed November 2022).

    Type: Other

    Crossref
81. (n.d.). United Nations Office of the High Commissioner for Human Rights (OHCHR) The struggle of trans and gender diverse persons: independent expert on sexual orientation and gender identity https://www.ohchr.org/en/special-procedures/ie-sexual-orientation-and-gender-identity/struggle-trans-and-gender-diverse-persons (2023 accessed March 2023).

    Type: Other

    Crossref
82. (n.d.). Victorian Government. LGBTIQ+ inclusive language guide https://www.vic.gov.au/inclusive-language-guide (2021 accessed March 2023).

    Type: Other

    Crossref
83. Eilidh Cage , Rebekah Cranney , Monique Botha *Autistic author. Learn more… (2022). Brief Report: Does Autistic Community Connectedness Moderate the Relationship Between Masking and Wellbeing? Autism in Adulthood, 4(3), 247-253. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0096 OpenAlex: https://openalex.org/W4283387728

    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
84. Moyna Catherine Talcer , Orla Duffy , Katy Pedlow (2023). A Qualitative Exploration into the Sensory Experiences of Autistic Mothers . Journal of Autism and Developmental Disorders, 53(2), 834-849. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-021-05188-1 OpenAlex: https://openalex.org/W3182387516

    Crossref OpenAlex OpenCitations
85. Monique Botha *Autistic author. Learn more… (2021). Academic, Activist, or Advocate? Angry, Entangled, and Emerging: A Critical Reflection on Autism Knowledge Production . Frontiers in Psychology, 12(6), 727542-727542. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2021.727542 OpenAlex: https://openalex.org/W3203087437

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex OpenCitations
86. QSR International Pty Ltd (2020). QSR International Pty Ltd. NVivo (released in March 2020), 2020. NVivo (released in March 2020).

    Type: Other

    Crossref
87. Melanie Heyworth *Autistic author. Learn more… , Simon Brett , Jacquiline den Houting *Autistic author. Learn more… , Iliana Magiati , Robyn Steward *Autistic author. Learn more… , Anna Urbanowicz et al. (2023). “I'm the Family Ringmaster and Juggler”: Autistic Parents' Experiences of Parenting During the COVID-19 Pandemic . Autism in Adulthood, 5(1), 24-36. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0097 OpenAlex: https://openalex.org/W4280653010

    AutiHub · Autistic Scholars Crossref OpenAlex
88. Kinga Ferenc , Mateusz Płatos , Katarzyna Byrka , Magdalena Ewa Król (2023). Looking through rainbow-rimmed glasses: Taking neurodiversity perspective is related to subjective well-being of autistic adults . Autism, 27(5), 1348-1361. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221135818 OpenAlex: https://openalex.org/W4308957609

    Crossref OpenAlex OpenCitations
89. (n.d.). Opar A. The healthcare system is failing autistic adults. Spectrum News 25 July 2018 https://www.spectrumnews.org/features/deep-dive/healthcare-system-failing-autistic-adults/ (accessed August 2022).

    Type: Other

    Crossref
90. (n.d.). Kennedy A (ed.). Autism and gaslighting – Joely Williams speaks on ‘all things autism’. Psychreg 23 August https://www.psychreg.org/autism-gaslighting/ (2019 accessed August 2022).

    Type: Other

    Crossref
91. Anna Urbanowicz , Timothy Parkin , Kate van Dooren , Sonya Girdler , Marina Ciccarelli , Nicholas Lennox (2020). The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum . Research and Practice in Intellectual and Developmental Disabilities, 7(2), 179-192. Informa UK Limited.

    Type: Article DOI: 10.1080/23297018.2020.1735943 OpenAlex: https://openalex.org/W3016395777

    Crossref
92. Rachel Grove , Hayley Clapham *Autistic author. Learn more… , Tess Moodie *Autistic author. Learn more… , Sarah Gurrin *Autistic author. Learn more… , Gabrielle Hall *Autistic author. Learn more… (2025). ‘Nothing About Us, Without Us’: Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia . Journal of Autism and Developmental Disorders, 55(7), 2522-2538. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-024-06330-5 OpenAlex: https://openalex.org/W4396672231

    AutiHub · Autistic Scholars OpenAlex
93. (n.d.). Golden T. The arts and health equity: four opportunities for impact https://www.giarts.org/arts-and-health-equity-four-opportunities-impact (2019 accessed March 2023).

    Type: Other

    Crossref