“There’s No Separating My View of My Body from My Autism”: A qualitative study of positive body image in autistic individuals

Authors

Abstract

While scholars have investigated positive body image across diverse populations, extant theory largely excludes those with differing socio-cognitive experiences, such as autistic individuals. Using constructivist grounded theory, this study sought to develop a grounded theory of positive body image in autistic individuals. One-to-one interviews with photo-elicitation were conducted with 20 autistic adults (7 women, 8 men, 5 non-binary/agender; aged 18-53 years) from the United Kingdom. Through a process of open, axial, and focused coding, a grounded theory was developed around a core category of positive body image in autistic adults and was found to comprise six themes: body connection, body acceptance, appreciating body functionality and neurodivergent strengths, having a body-positive protective filter, taking care of the body, and body and appearance neutrality. Our findings suggest that some aspects of positive body image in autistic individuals are consistent with those found in neurotypical adults. However, positive body image in autistic individuals further encompasses both the sensory (i.e., how the body is felt) and aesthetic (i.e., how the body is seen) body. These findings may stimulate research aimed at improving positive body image in autistic populations.

1. American Psychological Association (2012). Diagnostic and Statistical Manual of Mental Disorders . SpringerReference, 5. Springer-Verlag.

   Type: Other DOI: 10.1007/springerreference_121117 OpenAlex: https://openalex.org/W1604476085

   Crossref OpenAlex
2. Jessica M. Alleva , Phillippa C. Diedrichs , Emma Halliwell , Madelon L. Peters , Emma Dures , Bobby G. Stuijfzand et al. (2018). More than my RA: A randomized trial investigating body image improvement among women with rheumatoid arthritis using a functionality-focused intervention program. Journal of Consulting and Clinical Psychology, 86(8), 666-676. American Psychological Association (APA).

   Type: Article DOI: 10.1037/ccp0000317 OpenAlex: https://openalex.org/W2884933654

   Crossref OpenAlex OpenCitations
3. Kristina Holmqvist Gattario , Ann Frisén (2019). From negative to positive body image: Men’s and women’s journeys from early adolescence to emerging adulthood . Body Image, 28, 53-65. Elsevier BV.

   Type: Article DOI: 10.1016/j.bodyim.2018.12.002 OpenAlex: https://openalex.org/W2906666913

   Crossref OpenAlex OpenCitations
4. Kathy Charmaz (2006). Constructing grounded theory: A practical guide through qualitative analysis .

   Type: Book OpenAlex: https://openalex.org/W1605824561

   OpenAlex
5. Jessica M. Alleva , Tracy L. Tylka (2021). Body functionality: A review of the literature . Body Image, 36, 149-171. Elsevier BV.

   Type: Article DOI: 10.1016/j.bodyim.2020.11.006 OpenAlex: https://openalex.org/W3113266073

   Crossref OpenAlex OpenCitations
6. Viren Swami , Jennifer Todd , David Barron (2021). Translation and validation of body image instruments: An addendum to Swami and Barron (2019) in the form of frequently asked questions . Body Image, 37, 214-224. Elsevier BV.

   Type: Article DOI: 10.1016/j.bodyim.2021.03.002 OpenAlex: https://openalex.org/W3138712341

   Crossref OpenAlex OpenCitations
7. K. Alysse Bailey , Kimberley L. Gammage , Cathy van Ingen , David S. Ditor (2015). “It's all about acceptance”: A qualitative study exploring a model of positive body image for people with spinal cord injury . Body Image, 15, 24-34. Elsevier BV.

   Type: Article DOI: 10.1016/j.bodyim.2015.04.010 OpenAlex: https://openalex.org/W1608571865

   Crossref OpenAlex OpenCitations
8. Jessica M. Alleva , Tracy L. Tylka , Carolien Martijn , Moon I. Waldén , Jennifer B. Webb , Niva Piran (2023). “I’ll never sacrifice my well-being again:” The journey from negative to positive body image among women who perceive their body to deviate from societal norms . Body Image, 45, 153-171. Elsevier BV.

   Type: Article DOI: 10.1016/j.bodyim.2023.03.001 OpenAlex: https://openalex.org/W4327709735

   Crossref OpenAlex OpenCitations
9. Viren Swami (2018). Considering Positive Body Image through the Lens of Culture and Minority Social Identities . In Body Positive (pp. 59-91). Cambridge University Press.

   Type: Book chapter DOI: 10.1017/9781108297653.004 OpenAlex: https://openalex.org/W3008315288

   Crossref OpenAlex OpenCitations
10. Jennifer B. Webb , Nichole L. Wood-Barcalow , Tracy L. Tylka (2015). Assessing positive body image: Contemporary approaches and future directions . Body Image, 14, 130-145. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2015.03.010 OpenAlex: https://openalex.org/W1978027321

    Crossref OpenAlex OpenCitations
11. American Psychiatric Association (1994). Diagnostic and Statistical Manual of Mental Disorders . Diagnostic and Statistical Manual of Mental Disorders.

    Type: Other

    Crossref
12. Gary Yu Hin Lam , Emily Holden , Megan Fitzpatrick , Linda Raffaele Mendez , Karen Berkman (2020). “Different but connected”: Participatory action research using Photovoice to explore well-being in autistic young adults . Autism, 24(5), 1246-1259. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319898961 OpenAlex: https://openalex.org/W3002469440

    Crossref OpenAlex OpenCitations
13. Emily K. Sandoz , Kelly G. Wilson , Rhonda M. Merwin , Karen Kate Kellum (2013). Assessment of body image flexibility: The Body Image-Acceptance and Action Questionnaire . Journal of Contextual Behavioral Science, 2(1-2), 39-48. Elsevier BV.

    Type: Article DOI: 10.1016/j.jcbs.2013.03.002 OpenAlex: https://openalex.org/W1979718987

    Crossref OpenAlex OpenCitations
14. Elizabeth A. Bates , Joseph J. McCann , Linda K. Kaye , Julie C. Taylor (2017). “Beyond words”: a researcher’s guide to using photo elicitation in psychology . Qualitative Research in Psychology, 14(4), 459-481. Informa UK Limited.

    Type: Article DOI: 10.1080/14780887.2017.1359352 OpenAlex: https://openalex.org/W2736814740

    Crossref OpenAlex OpenCitations
15. Tracy L. Tylka , Nichole L. Wood-Barcalow (2015). The Body Appreciation Scale-2: Item refinement and psychometric evaluation . Body Image, 12, 53-67. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2014.09.006 OpenAlex: https://openalex.org/W1982155526

    Crossref OpenAlex OpenCitations
16. Njål Andersen , Viren Swami (2021). Science mapping research on body image: A bibliometric review of publications in Body Image, 2004–2020 . Body Image, 38, 106-119. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2021.03.015 OpenAlex: https://openalex.org/W3143450276

    Crossref OpenAlex OpenCitations
17. Tracy L. Tylka (2018). Overview of the Field of Positive Body Image . In Body Positive (pp. 6-33). Cambridge University Press.

    Type: Book chapter DOI: 10.1017/9781108297653.002 OpenAlex: https://openalex.org/W3015921384

    Crossref OpenAlex OpenCitations
18. P.E. Sifneos (2010). The Prevalence of ‘Alexithymic’ Characteristics in Psychosomatic Patients . Psychotherapy and Psychosomatics, 22(2–6), 255-262. S. Karger AG.

    Type: Article DOI: 10.1159/000286529 OpenAlex: https://openalex.org/W1990833592

    Crossref OpenAlex OpenCitations
19. Kosuke Asada , Yoshikuni Tojo , Koichiro Hakarino , Atsuko Saito , Toshikazu Hasegawa , Shinichiro Kumagaya (2018). Brief Report: Body Image in Autism: Evidence from Body Size Estimation . Journal of Autism and Developmental Disorders, 48(2), 611-618. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-017-3323-x OpenAlex: https://openalex.org/W2765463567

    Crossref OpenAlex OpenCitations
20. Beate M. Herbert , Olga Pollatos (2012). The Body in the Mind: On the Relationship Between Interoception and Embodiment . Topics in Cognitive Science, 4(4), 692-704. Wiley.

    Type: Article DOI: 10.1111/j.1756-8765.2012.01189.x OpenAlex: https://openalex.org/W1996958171

    Crossref OpenAlex OpenCitations
21. Laura Avalos , Tracy L. Tylka , Nichole Wood-Barcalow (2005). The Body Appreciation Scale: Development and psychometric evaluation . Body Image, 2(3), 285. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2005.06.002 OpenAlex: https://openalex.org/W2018941599

    Crossref OpenAlex OpenCitations
22. Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319853442 OpenAlex: https://openalex.org/W2947577397

    Crossref OpenAlex OpenCitations
23. Yvonna S. Lincoln , Egon G. Guba (1986). But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation . New Directions for Program Evaluation, 1986(30), 73-84. Wiley.

    Type: Article DOI: 10.1002/ev.1427 OpenAlex: https://openalex.org/W1997084088

    Crossref OpenAlex OpenCitations
24. Charli Babb , Janina Brede , Catherine RG Jones , Lucy Serpell , Will Mandy , John R. E. Fox (2022). A comparison of the eating disorder service experiences of autistic and non‐autistic women in the UK . European Eating Disorders Review, 30(5), 616-627. Wiley.

    Type: Article DOI: 10.1002/erv.2930 OpenAlex: https://openalex.org/W4283747798

    Crossref OpenAlex OpenCitations
25. Ingrid Bertilsson , Amanda Lundvik Gyllensten , Arve Opheim , Gunvor Gard , Catharina Sjödahl Hammarlund (2018). Understanding one’s body and movements from the perspective of young adults with autism: A mixed-methods study . Research in Developmental Disabilities, 78, 44-54. Elsevier BV.

    Type: Article DOI: 10.1016/j.ridd.2018.05.002 OpenAlex: https://openalex.org/W2803474103

    Crossref OpenAlex OpenCitations
26. Tracy L. Tylka , Nichole L. Wood-Barcalow (2015). What is and what is not positive body image? Conceptual foundations and construct definition . Body Image, 14, 118-129. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2015.04.001 OpenAlex: https://openalex.org/W2001898215

    Crossref OpenAlex OpenCitations
27. Bailey (2016). Exploring the complexities of body image experience in middle age and older adult women within an exercise context: The simultaneous existence of negative and positive body images. Body Image .

    Type: Other

    Crossref
28. Venla Oikkonen (2013). Competing Truths . European Journal of English Studies, 17(3), 283-294. Informa UK Limited.

    Type: Article DOI: 10.1080/13825577.2013.867181 OpenAlex: https://openalex.org/W2329137607

    Crossref OpenAlex OpenCitations
29. Douglas Harper (1986). Meaning and Work: A Study in Photo Elicitation . Current Sociology, 34(3), 24-46. SAGE Publications.

    Type: Article DOI: 10.1177/001139286034003006 OpenAlex: https://openalex.org/W2003999568

    Crossref OpenAlex OpenCitations
30. Lindsay O’Dell , Hannah Bertilsdotter Rosqvist *Autistic author. Learn more… , Francisco Ortega , Charlotte Brownlow , Michael Orsini (2016). Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism . Disability & Society, 31(2), 166-179. Informa UK Limited.

    Type: Article DOI: 10.1080/09687599.2016.1164026 OpenAlex: https://openalex.org/W2340890024

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
31. Christopher Kliewer (1999). Nothing About Us Without Us: Disability Oppression and Empowerment . Mental Retardation, 37(2), 168-169. American Association on Intellectual and Developmental Disabilities (AAIDD).

    Type: Article DOI: 10.1352/0047-6765(1999)037 OpenAlex: https://openalex.org/W2009768307

    OpenAlex
32. Simon Baron-Cohen , Sally Wheelwright , Richard Skinner , Joanne Martin , Emma Clubley (2001). The Autism-Spectrum Quotient (AQ): Evidence from Asperger Syndrome/High-Functioning Autism, Males and Females, Scientists and Mathematicians . Journal of Autism and Developmental Disorders, 31(1), 5-17. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1023/a:1005653411471 OpenAlex: https://openalex.org/W2100254283

    Crossref OpenAlex OpenCitations
33. Salma Mansour , Vanja Rozenblat , Matthew Fuller-Tyszkiewicz , Chiara Paganini , Janet Treasure , Isabel Krug (2016). Emotions mediate the relationship between autistic traits and disordered eating: A new autistic-emotional model for eating pathology . Psychiatry Research, 245, 119-126. Elsevier BV.

    Type: Article DOI: 10.1016/j.psychres.2016.08.021 OpenAlex: https://openalex.org/W2484868904

    Crossref OpenAlex OpenCitations
34. Niva Piran (2015). New possibilities in the prevention of eating disorders: The introduction of positive body image measures . Body Image, 14, 146-157. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2015.03.008 OpenAlex: https://openalex.org/W2010479523

    Crossref OpenAlex OpenCitations
35. John Galvin , Elizabeth H. Evans , Catherine V. Talbot , Claire Wilson , Gareth Richards (2022). The associations between autistic traits and disordered eating/drive for muscularity are independent of anxiety and depression in females but not males . PLOS ONE, 17(10), e0276249. Public Library of Science (PLoS).

    Type: Article DOI: 10.1371/journal.pone.0276249 OpenAlex: https://openalex.org/W4306630440

    Crossref OpenAlex OpenCitations
36. Sander Begeer , Saloua El Bouk , Wafaa Boussaid , Mark Meerum Terwogt , Hans M. Koot (2009). Underdiagnosis and Referral Bias of Autism in Ethnic Minorities . Journal of Autism and Developmental Disorders, 39(1), 142-148. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-008-0611-5 OpenAlex: https://openalex.org/W2098566407

    Crossref OpenAlex OpenCitations
37. Robert S P Jones , Ciara Quigney , Jaci C Huws (2003). First-hand accounts of sensory perceptual experiences in autism: a qualitative analysis . Journal of Intellectual & Developmental Disability, 28(2), 112-121. Informa UK Limited.

    Type: Article DOI: 10.1080/1366825031000147058 OpenAlex: https://openalex.org/W2037995195

    Crossref OpenAlex OpenCitations
38. Marika Tiggemann , Alice McCourt (2013). Body appreciation in adult women: Relationships with age and body satisfaction . Body Image, 10(4), 624-627. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2013.07.003 OpenAlex: https://openalex.org/W2040974008

    Crossref OpenAlex OpenCitations
39. Monique Botha *Autistic author. Learn more… , Eilidh Cage (2022). “Autism research is in crisis”: A mixed method study of researcher’s constructions of autistic people and autism research . Frontiers in Psychology, 13, 13. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2022.1050897 OpenAlex: https://openalex.org/W4309855376

    AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex
40. Christina S Han , John L Oliffe (2016). Photovoice in mental illness research: A review and recommendations . Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 20(2), 110-126. SAGE Publications.

    Type: Article DOI: 10.1177/1363459314567790 OpenAlex: https://openalex.org/W2109567089

    Crossref OpenAlex OpenCitations
41. Inge‐Marie Eigsti (2013). A Review of Embodiment in Autism Spectrum Disorders . Frontiers in Psychology, 4, 1. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2013.00224 OpenAlex: https://openalex.org/W2049260187

    Crossref OpenAlex OpenCitations
42. Monique Botha *Autistic author. Learn more… , Jacqueline Hanlon , Gemma Williams *Autistic author. Learn more… (2023). Does Language Matter? Identity-First Versus Person-First Language Use in Autism Research: A Response to Vivanti . Journal of Autism and Developmental Disorders, 53(2), 870-878. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04858-w OpenAlex: https://openalex.org/W3125099730

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
43. Sue Fletcher-Watson , Jonathan Adams *Autistic author. Learn more… , Kabie Brook *Autistic author. Learn more… , Tony Charman , Laura Crane , James Cusack *Autistic author. Learn more… et al. (2019). Making the future together: Shaping autism research through meaningful participation . Autism, 23(4), 943-953. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318786721 OpenAlex: https://openalex.org/W2807975560

    AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
44. Nichole L. Wood-Barcalow , Tracy L. Tylka , Casey L. Augustus-Horvath (2010). “But I Like My Body”: Positive body image characteristics and a holistic model for young-adult women . Body Image, 7(2), 106-116. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2010.01.001 OpenAlex: https://openalex.org/W2061410399

    Crossref OpenAlex OpenCitations
45. Summer Bottini , Hannah E. Morton *Autistic author. Learn more… , Kelly A. Buchanan , Kait Gould (2024). Moving from Disorder to Difference: A Systematic Review of Recent Language Use in Autism Research . Autism in Adulthood, 6(2), 128-140. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2023.0030 OpenAlex: https://openalex.org/W4386469786

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex
46. Andres Roman-Urrestarazu , Robin van Kessel , Carrie T. Allison , Fiona E. Matthews , Carol Brayne , Simon Baron-Cohen (2021). Association of Race/Ethnicity and Social Disadvantage With Autism Prevalence in 7 Million School Children in England . JAMA Pediatrics, 175(6), e210054. American Medical Association (AMA).

    Type: Article DOI: 10.1001/jamapediatrics.2021.0054 OpenAlex: https://openalex.org/W3148807712

    Crossref OpenAlex OpenCitations
47. Ann Frisén , Kristina Holmqvist (2010). What characterizes early adolescents with a positive body image? A qualitative investigation of Swedish girls and boys . Body Image, 7(3), 205-212. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2010.04.001 OpenAlex: https://openalex.org/W2061654682

    Crossref OpenAlex OpenCitations
48. Braun (2013). Successful Qualitative Research: A Guide for Beginners .

    Type: Other

    Crossref
49. Ginny Russell , Will Mandy , Daisy Elliott , Rhianna White , Tom Pittwood , Tamsin Ford (2019). Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis . Molecular Autism, 10(1), 9. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13229-019-0260-x OpenAlex: https://openalex.org/W2927010782

    Crossref OpenAlex OpenCitations
50. Marika Tiggemann (2015). Considerations of positive body image across various social identities and special populations . Body Image, 14, 168-176. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2015.03.002 OpenAlex: https://openalex.org/W2063953858

    Crossref OpenAlex OpenCitations
51. Janina Brede , Charli Babb , Catherine RG Jones , Mair Elliott , Cathy Zanker , Kate Tchanturia et al. (2020). “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women . Journal of Autism and Developmental Disorders, 50(12), 4280-4296. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04479-3 OpenAlex: https://openalex.org/W3013495962

    Crossref OpenAlex OpenCitations
52. Heather Westwood , Kate Tchanturia (2017). Autism Spectrum Disorder in Anorexia Nervosa: An Updated Literature Review . Current Psychiatry Reports, 19(7), 41. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s11920-017-0791-9 OpenAlex: https://openalex.org/W2619800727

    Crossref OpenAlex OpenCitations
53. Heather C. Mefford , Mark L. Batshaw , Eric P. Hoffman (2012). Genomics, Intellectual Disability, and Autism . New England Journal of Medicine, 366(8), 733-743. Massachusetts Medical Society.

    Type: Article DOI: 10.1056/nejmra1114194 OpenAlex: https://openalex.org/W2075364461

    Crossref OpenAlex OpenCitations
54. Janina Brede , Eilidh Cage , Joseph Trott , Lisa Palmer , Anika Smith , Lucy Serpell et al. (2022). “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis . Clinical Psychology Review, 93, 102131. Elsevier BV.

    Type: Article DOI: 10.1016/j.cpr.2022.102131 OpenAlex: https://openalex.org/W4210911395

    Crossref OpenAlex
55. Jordan Sibeoni , Laura Massoutier , Marie Valette , Emilie Manolios , Laurence Verneuil , Mario Speranza et al. (2022). The sensory experiences of autistic people: A metasynthesis . Autism, 26(5), 1032-1045. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221081188 OpenAlex: https://openalex.org/W4220735801

    Crossref OpenAlex OpenCitations
56. Catherine P. Cook-Cottone (2015). Incorporating positive body image into the treatment of eating disorders: A model for attunement and mindful self-care . Body Image, 14, 158-167. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2015.03.004 OpenAlex: https://openalex.org/W2082242231

    Crossref OpenAlex OpenCitations
57. Rachel M. Calogero , Tracy L. Tylka , Janell L. Mensinger (2016). Scientific Weightism: A View of Mainstream Weight Stigma Research Through a Feminist Lens . In Feminist Perspectives on Building a Better Psychological Science of Gender (pp. 9-28). Springer International Publishing.

    Type: Book chapter DOI: 10.1007/978-3-319-32141-7_2 OpenAlex: https://openalex.org/W2531089780

    Crossref OpenAlex OpenCitations
58. Jake Linardon , Zoe McClure , Tracy L. Tylka , Matthew Fuller-Tyszkiewicz (2022). Body appreciation and its psychological correlates: A systematic review and meta-analysis . Body Image, 42, 287-296. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2022.07.003 OpenAlex: https://openalex.org/W4286615184

    Crossref OpenAlex OpenCitations
59. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318816053 OpenAlex: https://openalex.org/W2902777586

    Crossref OpenAlex OpenCitations
60. (2012). Encyclopedia of Body Image and Human Appearance .

    Type: Other

    Crossref
61. Charlton (1998). Nothing about Us Without Us: Disability Oppression and Empowerment . Nothing about Us without Us: Disability oppression and empowerment.

    Type: Other

    Crossref
62. Nathan V. Mallipeddi , Rachel A. VanDaalen (2022). Intersectionality Within Critical Autism Studies: A Narrative Review . Autism in Adulthood, 4(4), 281-289. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0014 OpenAlex: https://openalex.org/W3217407926

    Crossref OpenAlex OpenCitations
63. Michael Quinn Patton (2002). Two Decades of Developments in Qualitative Inquiry . Qualitative Social Work, 1(3), 261-283. SAGE Publications.

    Type: Article DOI: 10.1177/1473325002001003636 OpenAlex: https://openalex.org/W2115635458

    Crossref OpenAlex OpenCitations
64. Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. SAGE.

    Type: Other

    Crossref
65. A. D. Craig (2002). How do you feel? Interoception: the sense of the physiological condition of the body . Nature Reviews Neuroscience, 3(8), 655-666. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1038/nrn894 OpenAlex: https://openalex.org/W2142823391

    Crossref OpenAlex OpenCitations
66. Kathy Charmaz , Robert Thornberg (2021). The pursuit of quality in grounded theory . Qualitative Research in Psychology, 18(3), 305-327. Informa UK Limited.

    Type: Article DOI: 10.1080/14780887.2020.1780357 OpenAlex: https://openalex.org/W3036803033

    Crossref OpenAlex OpenCitations
67. Jennifer Todd , Jane E. Aspell , David Barron , Viren Swami (2019). Multiple dimensions of interoceptive awareness are associated with facets of body image in British adults . Body Image, 29, 6-16. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2019.02.003 OpenAlex: https://openalex.org/W2912047524

    Crossref OpenAlex OpenCitations
68. Barney G. Glaser , Anselm L. Strauss , Elizabeth Strutzel (1968). The Discovery of Grounded Theory; Strategies for Qualitative Research . Nursing Research, 17(4), 364. Ovid Technologies (Wolters Kluwer Health).

    Type: Article DOI: 10.1097/00006199-196807000-00014 OpenAlex: https://openalex.org/W2146691185

    OpenAlex
69. Kaaren Haas , Debra Costley , Marita Falkmer , Amanda Richdale , Kate Sofronoff , Torbjörn Falkmer (2016). Factors Influencing the Research Participation of Adults with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 46(5), 1793-1805. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-016-2708-6 OpenAlex: https://openalex.org/W2266267809

    Crossref OpenAlex OpenCitations
70. Corbin, J. & Strauss, A. (2008). Basics of qualitative research (3rd ed.). SAGE.

    Type: Other

    Crossref
71. Marieke Coussens , Birger Destoop , Stijn De Baets , Annemie Desoete , Ann Oostra , Guy Vanderstraeten et al. (2020). A Qualitative Photo Elicitation Research Study to elicit the perception of young children with Developmental Disabilities such as ADHD and/or DCD and/or ASD on their participation . PLOS ONE, 15(3), e0229538. Public Library of Science (PLoS).

    Type: Article DOI: 10.1371/journal.pone.0229538 OpenAlex: https://openalex.org/W3011078828

    Crossref OpenAlex OpenCitations
72. Niva Piran (2016). Embodied possibilities and disruptions: The emergence of the Experience of Embodiment construct from qualitative studies with girls and women . Body Image, 18, 43-60. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2016.04.007 OpenAlex: https://openalex.org/W2403317549

    Crossref OpenAlex OpenCitations
73. Laura Crane , Richard Batty , Hanna Adeyinka , Lorna Goddard , Lucy A. Henry , Elisabeth L. Hill (2018). Autism diagnosis in the United Kingdom: perspectives of autistic adults, parents and professionals . J. Autism Dev. Disord., 48(11), 3761. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3639-1 OpenAlex: https://openalex.org/W2808369589

    Crossref OpenAlex OpenCitations
74. Arielle C. Smith , Isaac Ahuvia , Sakura Ito , Jessica L. Schleider (2023). Project Body Neutrality: Piloting a digital single‐session intervention for adolescent body image and depression . International Journal of Eating Disorders, 56(8), 1554-1569. Wiley.

    Type: Article DOI: 10.1002/eat.23976 OpenAlex: https://openalex.org/W4367669336

    Crossref OpenAlex OpenCitations
75. Denise DuBois , Stephanie H. Ameis , Meng-Chuan Lai , Manuel F. Casanova , Pushpal Desarkar (2016). Interoception in Autism Spectrum Disorder: A review . International Journal of Developmental Neuroscience, 52(1), 104-111. Wiley.

    Type: Article DOI: 10.1016/j.ijdevneu.2016.05.001 OpenAlex: https://openalex.org/W2415326721

    Crossref OpenAlex OpenCitations
76. Elizabeth A. Daniels Meghan M. Gillen Charlotte H. Markey (2018). Body positive: Understanding and Improving Body Image in Science and Practice .

    Type: Article OpenAlex: https://openalex.org/W3174961569

    Crossref OpenAlex
77. Helen Tager‐Flusberg , Daniela Plesa Skwerer , Robert M Joseph , Brianna Brukilacchio , Jessica Decker , Brady Eggleston et al. (2017). Conducting research with minimally verbal participants with autism spectrum disorder . Autism, 21(7), 852-861. SAGE Publications.

    Type: Article DOI: 10.1177/1362361316654605 OpenAlex: https://openalex.org/W2474377819

    Crossref OpenAlex OpenCitations
78. Ebenezer Dassah , Heather M. Aldersey , Kathleen E. Norman (2017). Photovoice and Persons With Physical Disabilities: A Scoping Review of the Literature . Qualitative Health Research, 27(9), 1412-1422. SAGE Publications.

    Type: Article DOI: 10.1177/1049732316687731 OpenAlex: https://openalex.org/W2581613336

    Crossref OpenAlex OpenCitations
79. Denzin, N. K., & Lincoln, Y. S. (2005). Introduction: The Discipline and Practice of Qualitative Research. In N. K. Denzin & Y. S. Lincoln (Eds.), The Sage handbook of qualitative research (pp. 1–32). Sage Publications Ltd.

    Type: Other

    Crossref
80. Jessie E. Menzel , Michael P. Levine (2011). Embodying experiences and the promotion of positive body image: The example of competitive athletics. In Self-objectification in women: Causes, consequences, and counteractions. (pp. 163-186). American Psychological Association.

    Type: Book chapter DOI: 10.1037/12304-008 OpenAlex: https://openalex.org/W2498327180

    Crossref OpenAlex OpenCitations
81. Hannah Pickard , Elizabeth Pellicano , Jacquiline den Houting *Autistic author. Learn more… , Laura Crane (2022). Participatory autism research: Early career and established researchers’ views and experiences . Autism, 26(1), 75-87. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211019594 OpenAlex: https://openalex.org/W3164821382

    AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
82. (2010). Diagnostic and Statistical Manual of Mental Disorders . In Handbook of Disease Burdens and Quality of Life Measures (pp. 4189-4189). Springer New York.

    Type: Book chapter DOI: 10.1007/978-0-387-78665-0_5485 OpenAlex: https://openalex.org/W2502993979

    OpenAlex
83. Sean Healy , Carly Pacanowski , Lauren Kennedy , Iva Obrusnikova (2021). “This cage that I’m stuck inside”: Autistic adults’ perceptions of weight management, body weight, and body image . Autism, 25(7), 1985-1998. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211006989 OpenAlex: https://openalex.org/W3158994599

    Crossref OpenAlex OpenCitations
84. Monique M. Hennink , Bonnie N. Kaiser , Vincent C. Marconi (2017). Code Saturation Versus Meaning Saturation . Qualitative Health Research, 27(4), 591-608. SAGE Publications.

    Type: Article DOI: 10.1177/1049732316665344 OpenAlex: https://openalex.org/W2524597629

    Crossref OpenAlex OpenCitations
85. Sarah L. Field , John R. E. Fox , Catherine RG Jones , Marc O. Williams (2023). “Work WITH us”: a Delphi study about improving eating disorder treatment for autistic women with anorexia nervosa . Journal of Eating Disorders, 11(1), 17. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s40337-023-00740-z OpenAlex: https://openalex.org/W4319753765

    Crossref OpenAlex
86. Christina Nicolaidis , Dora M. Raymaker *Autistic author. Learn more… , Katherine McDonald , Emily M. Lund , Sandra M. Leotti , Steven K. Kapp *Autistic author. Learn more… et al. (2020). Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations . Autism in Adulthood, 2(1), 61-76. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2019.0074 OpenAlex: https://openalex.org/W3008675651

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
87. Alana Oswald , Janine Chapman , Carlene Wilson (2017). Do interoceptive awareness and interoceptive responsiveness mediate the relationship between body appreciation and intuitive eating in young women? Appetite, 109, 66-72. Elsevier BV.

    Type: Article DOI: 10.1016/j.appet.2016.11.019 OpenAlex: https://openalex.org/W2552487459

    Crossref OpenAlex OpenCitations
88. J P Mackey , Philosophical Studies, with support from the National University of Ireland (1963). Phenomenology of Perception . Philosophical Studies, 12, 320-321. Philosophy Documentation Center.

    Type: Article DOI: 10.5840/philstudies19631271 OpenAlex: https://openalex.org/W2562184061

    OpenAlex
89. Glauser (1967). The discovery of grounded theory: Strategies for qualitative research .

    Type: Other

    Crossref
90. Laura Hull , K.V. Petrides , Carrie T. Allison , P. Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). "Putting on my best normal": social camouflaging in adults with autism spectrum conditions . J. Autism Dev. Disord., 47(8), 2519. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-017-3166-5 OpenAlex: https://openalex.org/W2616560149

    Crossref OpenAlex OpenCitations
91. David Preece , Rodrigo Becerra , Alfred Allan , Ken Robinson , Justine Dandy (2017). Establishing the theoretical components of alexithymia via factor analysis: Introduction and validation of the attention-appraisal model of alexithymia . Personality and Individual Differences, 119(119), 341-352. Elsevier BV.

    Type: Article DOI: 10.1016/j.paid.2017.08.003 OpenAlex: https://openalex.org/W2744994719

    Crossref OpenAlex OpenCitations
92. Timothy R Hatfield , Rhonda F Brown , Melita J Giummarra , Bigna Lenggenhager (2019). Autism spectrum disorder and interoception: Abnormalities in global integration? Autism, 23(1), 212-222. SAGE Publications.

    Type: Article DOI: 10.1177/1362361317738392 OpenAlex: https://openalex.org/W2770302805

    Crossref OpenAlex OpenCitations
93. Alek Krumm , F. Richard Ferraro , Brita Ingvalson (2017). Exploring the Relationship Between Autistic Traits and Body Image, Body Satisfaction, and Body Competence . The Journal of Psychology, 151(6), 566-579. Informa UK Limited.

    Type: Article DOI: 10.1080/00223980.2017.1372343 OpenAlex: https://openalex.org/W2764231680

    Crossref OpenAlex OpenCitations
94. Viren Swami , David Barron (2019). Translation and validation of body image instruments: Challenges, good practice guidelines, and reporting recommendations for test adaptation . Body Image, 31, 204-220. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2018.08.014 OpenAlex: https://openalex.org/W2891657677

    Crossref OpenAlex OpenCitations
95. Cari-lène Mul , Steven D. Stagg , Bruno Herbelin , Jane E. Aspell (2018). The Feeling of Me Feeling for You: Interoception, Alexithymia and Empathy in Autism . Journal of Autism and Developmental Disorders, 48(9), 2953-2967. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3564-3 OpenAlex: https://openalex.org/W2796562389

    Crossref OpenAlex OpenCitations
96. Hannah Hobson , Audrey Linden , Laura Crane , Tamara Kalandadze (2023). Towards reproducible and respectful autism research: Combining open and participatory autism research practices . Research in Autism Spectrum Disorders, 106. Center for Open Science.

    Type: Preprint DOI: 10.31234/osf.io/zdns5 OpenAlex: https://openalex.org/W4367369037

    Crossref OpenAlex
97. David Mason *Autistic author. Learn more… , Helen McConachie , Deborah Garland , Alex Petrou , Jacqui Rodgers , Jeremy R. Parr (2018). Predictors of quality of life for autistic adults . Autism Research, 11(8), 1138. Wiley.

    Type: Article DOI: 10.1002/aur.1965 OpenAlex: https://openalex.org/W2800039438

    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
98. Jake Linardon , Mariel Messer , Tracy L. Tylka (2023). Functionality appreciation and its correlates: Systematic review and meta-analysis . Body Image, 45, 65-72. Elsevier BV.

    Type: Article DOI: 10.1016/j.bodyim.2023.02.002 OpenAlex: https://openalex.org/W4320928745

    Crossref OpenAlex OpenCitations
99. Jachyra (2019). “Girls don’t have big tummies”: The experiences of weight-related discussions for children with . Autism Spectrum Disorders Autism, 23(5), 1096.

    Type: Other

    Crossref
100. Emma Kinnaird , Caroline Norton , Caroline Pimblett , Catherine Stewart , Kate Tchanturia (2019). Eating as an autistic adult: An exploratory qualitative study . PLOS ONE, 14(8), e0221937. Public Library of Science (PLoS).

     Type: Article DOI: 10.1371/journal.pone.0221937 OpenAlex: https://openalex.org/W2970888915

     Crossref OpenAlex OpenCitations
101. Dominic A. Trevisan , Termara Parker , James C. McPartland (2021). First-Hand Accounts of Interoceptive Difficulties in Autistic Adults . Journal of Autism and Developmental Disorders, 51(10), 3483-3491. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s10803-020-04811-x OpenAlex: https://openalex.org/W3120884960

     Crossref OpenAlex OpenCitations
102. Koch (2016). Body image in Autism: An exploratory study of the effects of dance movement therapy . Autism Open Access, 6(2).

     Type: Other

     Crossref
103. Norman K. Denzin , Yvonna S. Lincoln (2005). Introduction: The discipline and practice of qualitative research.

     Type: Article OpenAlex: https://openalex.org/W2892747141

     OpenAlex
104. Emy Nimbley , Karri Gillespie-Smith , Fiona Duffy , Ellen Maloney *Autistic author. Learn more… , Carrie Ballantyne , Helen Sharpe (2023). “It’s not about wanting to be thin or look small, it’s about the way it feels”: an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents . Journal of Eating Disorders, 11(1), 89. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1186/s40337-023-00813-z OpenAlex: https://openalex.org/W4379469620

     AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
105. Antoinette M. Landor , Virginia L. Ramseyer Winter , Idia Binitie Thurston , Jamie Chan , Nadia Craddock , Brianna A. Ladd et al. (2024). The Sociostructural-Intersectional Body Image (SIBI) framework: Understanding the impact of white supremacy in body image research and practice . Body Image, 48, 101674. Elsevier BV.

     Type: Article DOI: 10.1016/j.bodyim.2023.101674 OpenAlex: https://openalex.org/W4390360125

     Crossref OpenAlex OpenCitations
106. Dominic A. Trevisan , Wolf E. Mehling , James C. McPartland (2021). Adaptive and Maladaptive Bodily Awareness: Distinguishing Interoceptive Sensibility and Interoceptive Attention from Anxiety‐Induced Somatization in Autism and Alexithymia . Autism Research, 14(2), 240-247. Wiley.

     Type: Article DOI: 10.1002/aur.2458 OpenAlex: https://openalex.org/W3113982056

     Crossref OpenAlex OpenCitations
107. Christina Nicolaidis , Dora M. Raymaker *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , Mel Baggs *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007. SAGE Publications.

     Type: Article DOI: 10.1177/1362361319830523 OpenAlex: https://openalex.org/W2926826419

     AutiHub · Autistic Autism Scholarship Project AutiHub · Documentation center Crossref OpenAlex OpenCitations
108. Erin Vinoski Thomas , Jan Warren-Findlow , Jennifer B. Webb , Margaret M. Quinlan , Sarah B. Laditka , Charlie L. Reeve (2019). “It’s very valuable to me that I appear capable”: A qualitative study exploring relationships between body functionality and appearance among women with visible physical disabilities . Body Image, 30, 81-92. Elsevier BV.

     Type: Article DOI: 10.1016/j.bodyim.2019.05.007 OpenAlex: https://openalex.org/W2954674116

     Crossref OpenAlex OpenCitations
109. Phaedra Longhurst *Autistic author. Learn more… (2023). Body image and autism: A scoping review . Research in Autism Spectrum Disorders, 105, 102170. Elsevier BV.

     Type: Article DOI: 10.1016/j.rasd.2023.102170 OpenAlex: https://openalex.org/W4367692681

     AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex
110. Phaedra Longhurst *Autistic author. Learn more… , C. Blair Burnette (2023). Challenges and opportunities for conceptualizing intuitive eating in autistic people . International Journal of Eating Disorders, 56(12), 2189-2199. Wiley.

     Type: Article DOI: 10.1002/eat.24057 OpenAlex: https://openalex.org/W4387357203

     AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
111. Tracy L. Tylka (2019). Body Appreciation . In Handbook of Positive Body Image and Embodiment (pp. 22-32). Oxford University Press.

     Type: Book chapter DOI: 10.1093/med-psych/9780190841874.003.0003 OpenAlex: https://openalex.org/W4253244317

     Crossref OpenAlex OpenCitations
112. Phaedra Longhurst *Autistic author. Learn more… , Viren Swami (2023). A feeling difficult to identify: Alexithymia is inversely associated with positive body image in adults from the United Kingdom . Journal of Affective Disorders, 334, 121-128. Elsevier BV.

     Type: Article DOI: 10.1016/j.jad.2023.04.142 OpenAlex: https://openalex.org/W4372311413

     Crossref OpenAlex OpenCitations
113. Bomikazi M. Lupindo , Anastasia Maw , Nokuthula Shabalala (2023). Late diagnosis of autism: Exploring experiences of males diagnosed with autism in adulthood . Current Psychology Advance Online Publication, 42(28), 24181-24197. Springer Science and Business Media LLC.

     Type: Article DOI: 10.1007/s12144-022-03514-z OpenAlex: https://openalex.org/W4289667230

     Crossref OpenAlex
114. Mia L. Pellizzer , Tracey D. Wade (2023). Developing a definition of body neutrality and strategies for an intervention . Body Image, 46, 434-442. Elsevier BV.

     Type: Article DOI: 10.1016/j.bodyim.2023.07.006 OpenAlex: https://openalex.org/W4385752815

     Crossref OpenAlex OpenCitations
115. Merleau-Ponty (1962). Phenomenology of Perception .

     Type: Other

     Crossref
116. (n.d.). National Institute for Health and Care Research [NIHR], 2023, July, Payment guidance for researchers and professionals. NIHR. 〈 https://www.nihr.ac.uk/documents/payment-guidance-for-researchers-and-professionals/27392〉 .

     Type: Other

     Crossref
117. Carla Rice , Sarah Riley , Andrea LaMarre , K. Alysse Bailey (2021). What a body can do: Rethinking body functionality through a feminist materialist disability lens . Body Image, 38, 95-105. Elsevier BV.

     Type: Article DOI: 10.1016/j.bodyim.2021.03.014 OpenAlex: https://openalex.org/W3153683391

     Crossref OpenAlex OpenCitations
118. Elizabeth Pellicano , Dawn Adams , Laura Crane , Calliope Holingue , Connie Allen , Katherine Almendinger *Autistic author. Learn more… et al. (2024). Letter to the Editor: A possible threat to data integrity for online qualitative autism research . Autism, 28(3), 786. SAGE Publications.

     Type: Article DOI: 10.1177/13623613231174543 OpenAlex: https://openalex.org/W4377220250

     AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex
119. Piran, Niva (2019). The Developmental Theory of Embodiment . In Handbook of Positive Body Image and Embodiment (pp. 105-117). Oxford University Press.

     Type: Book chapter DOI: 10.1093/med-psych/9780190841874.003.0011 OpenAlex: https://openalex.org/W4249052827

     Crossref OpenAlex OpenCitations
120. Niva Piran , Tanya Teall (2013). The Developmental Theory of Embodiment . In Preventing Eating-Related and Weight-Related Disorders (pp. 169-198). Wilfrid Laurier Press.

     Type: Book chapter DOI: 10.51644/9781554584239-009

     Crossref OpenCitations
121. (n.d.). Swami, V. (2022, October 6). Body neutrality: what it is and how it can help lead to more positive body image. The Conversation. 〈 https://theconversation.com/body-neutrality-what-it-is-and-how-it-can-help-lead-to-more-positive-body-image-191799#:~:text=Basically%2C%20the%20aim%20is%20to,body%20neutrality%20is%20about%20acceptance〉 .

     Type: Other

     Crossref
122. Viren Swami (2022). Body neutrality: what it is and how it can help lead to more positive body image . The Conversation.

     Type: Online article DOI: 10.64628/ab.jtewx3axs OpenAlex: https://openalex.org/W4413594539

     OpenAlex