Predictors of quality of life for autistic adults
This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.
About the autistic author markerMason, D., McConachie, H., Garland, D., Petrou, A., Rodgers, J., & Parr, J. R. (2018). Predictors of quality of life for autistic adults. Autism Research, 11(8), 1138-1147. https://doi.org/10.1002/aur.1965
- Journal or book title
- Autism Research
- Publisher
- Wiley
- Volume
- 11
- Issue
- 8
- Pages
- 1138-1147
This publication is integrated into AutiHub through:
Authors
Abstract
Abstract Research with adults on the autism spectrum is as yet limited in scope and quality. The present study describes quality of life (QoL) of a large sample of autistic adults in the UK and investigates characteristics that may be predictive of QoL. A total of 370 autistic adults from the Adult Autism Spectrum Cohort‐UK (ASC‐UK) completed the WHOQoL‐BREF, and the Social Responsiveness Scale (SRS, autism symptom severity), along with the ASC‐UK registration questionnaire giving information on mental health and their life situation. QoL for autistic adults was lower than for the general population for each WHOQoL domain. Younger participants reported higher QoL than older participants in psychological and environment domains. Males reported higher physical QoL than females, and females reported higher social QoL than males. Significant positive predictors of QoL were: being employed (physical QoL), receiving support (social and environment QoL), and being in a relationship (social QoL). Having a mental health condition and higher SRS total score were negative predictors of QoL across all four domains. Autistic adults require access to effective mental health interventions, and informal and formal support for their social difficulties, to improve their quality of life. Autism Res 2018, 11: 1138–1147. © 2018 The Authors Autism Research published by International Society for Autism Research and Wiley Periodicals, Inc. Lay summary There has been limited research into the lived experience of autistic adults. Using the World Health Organization quality of life measure, we found that autistic people (370) in the UK reported their quality of life to be lower than that of the general population. Better quality of life was associated with being in a relationship; those with a mental health condition had poorer quality of life. This research suggests some ways in which autistic people can be helped to improve their quality of life.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 01:01.
- With a DOI
- 44
- Without a DOI, from raw bibliography text
- 3
- References with detected author names
- 47 / 47 (100.0%)
- Without detected author names
- 0
- Without a structured title
- 0
- Without a stable identifier
- 3
- References with raw author names still to review
- 0
- References with external metadata lookup issues
- 1
- From DOI or external metadata
- 169
- From validated raw bibliography text
- 0
- Raw names already validated
- 0
- Raw names still to review
- 0
-
Inge Kamp-Becker , Johanna Schröder , Helmut Remschmidt , Christian J. Bachmann (2010). Health-related quality of life in adolescents and young adults with high functioning autism-spectrum disorder . Psychological Medicine, 31(7), 1. German Medical Science GMS Publishing House.Crossref OpenAlex OpenCitations
-
Michael Ayres , Jeremy R. Parr , Jacqui Rodgers , David Mason *Autistic author. Learn more… , Leah Avery , Darren Flynn (2018). A systematic review of quality of life of adults on the autism spectrum . Autism, 22(7), 774. SAGE Publications.
-
Sarah Bargiela , Robyn Steward *Autistic author. Learn more… , Will Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.
-
Karen Guldberg , Jenny Mackness , Elpida Makriyannis , Charlene Tait (2013). Knowledge Management and Value Creation in a Third Sector Organisation . Knowledge and Process Management, 20(3), 113-122. Wiley.Crossref OpenAlex OpenCitations
-
Paul Wehman , Valerie Brooke , Alissa Molinelli Brooke , Whitney Ham , Carol Schall , Jennifer McDonough et al. (2016). Employment for adults with autism spectrum disorders: A retrospective review of a customized employment approach . Research in Developmental Disabilities, 53-54, 61-72. Elsevier BV.Crossref OpenAlex OpenCitations
-
Heidi Sivertsen , Guro Hanevold Bjørkløf , Knut Engedal , Geir Selbæk , Anne-Sofie Helvik (2015). Depression and Quality of Life in Older Persons: A Review . Dementia and Geriatric Cognitive Disorders, 40(5-6), 311-339. S. Karger AG.OpenAlex
-
Lauren Bishop-Fitzpatrick , Jinkuk Hong , Leann E. Smith , Renee A. Makuch , Jan S. Greenberg , Marsha R. Mailick (2016). Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis . Journal of Autism and Developmental Disorders, 46(8), 2707-2719. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
I. Carina Gillberg , Adam Helles , Eva Billstedt , Christopher Gillberg (2016). Boys with Asperger Syndrome Grow Up: Psychiatric and Neurodevelopmental Disorders 20 Years After Initial Diagnosis . Journal of Autism and Developmental Disorders, 46(1), 74-82. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Katherine Gotham , Alison R Marvin , Julie Lounds Taylor , Zachary Warren , Connie M Anderson , Paul A Law et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data . Autism, 19(7), 794-804. SAGE Publications.Crossref OpenAlex OpenCitations
-
Traolach Brugha , Lucy Doos , Althea Tempier , Stewart Einfeld , Patricia Howlin (2015). Outcome measures in intervention trials for adults with autism spectrum disorders; a systematic review of assessments of core autism features and associated emotional and behavioural problems . International Journal of Methods in Psychiatric Research, 24(2), 99-115. Wiley.Crossref OpenAlex OpenCitations
-
Audrey F. Burgess , Steven E. Gutstein (2007). Quality of Life for People with Autism: Raising the Standard for Evaluating Successful Outcomes . Child and Adolescent Mental Health, 12(2), 80-86. Wiley.Crossref OpenAlex OpenCitations
-
Peter F. Gerhardt , Ilene Lainer (2011). Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon . Journal of Contemporary Psychotherapy, 41(1), 37-45. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Paul Shattuck , Anne M. Roux , Laura E Hudson , Julie Lounds Taylor , Matthew J Maenner , Jean-Francois Trani (2012). Services for Adults with an Autism Spectrum Disorder . The Canadian Journal of Psychiatry, 57(5), 284-291. SAGE Publications.Crossref OpenAlex OpenCitations
-
John N. Constantino (2013). Social Responsiveness Scale . In Social responsiveness scale (pp. 2919-2929). Springer New York.Crossref OpenAlex
-
Adam Helles , I Carina Gillberg , Christopher Gillberg , Eva Billstedt (2017). Asperger syndrome in males over two decades: Quality of life in relation to diagnostic stability and psychiatric comorbidity . Autism, 21(4), 458-469. SAGE Publications.Crossref OpenAlex OpenCitations
-
Patricia Howlin , Jennifer Alcock , Catherine Burkin (2005). An 8 year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome . Autism, 9(5), 533-549. SAGE Publications.Crossref OpenAlex OpenCitations
-
Department of Health (2015). Statutory guidance for local authorities and NHS organisations to support implementation of the adult autism strategy . Statutory guidance for local authorities and NHS organisations to support implementation of the adult autism strategy.Type: OtherCrossref
-
Marieke Jennes-Coussens , Joyce Magill-Evans , Cyndie Koning (2006). The quality of life of young men with Asperger syndrome . Autism, 10(4), 403-414. SAGE Publications.Crossref OpenAlex OpenCitations
-
Lisa Walsh , Sinéad Lydon , Olive Healy (2014). Employment and Vocational Skills Among Individuals with Autism Spectrum Disorder: Predictors, Impact, and Interventions . Review Journal of Autism and Developmental Disorders, 1(4), 266-275. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Alissa Levy , Adrienne Perry (2011). Outcomes in adolescents and adults with autism: A review of the literature . Research in Autism Spectrum Disorders, 5(4), 1271-1282. Elsevier BV.Crossref OpenAlex OpenCitations
-
Anne M. Roux , Paul Shattuck , Benjamin P. Cooper , Kristy A. Anderson , Mary Wagner , Sarah C. Narendorf (2013). Postsecondary Employment Experiences Among Young Adults With an Autism Spectrum Disorder . Journal of the American Academy of Child & Adolescent Psychiatry, 52(9), 931-939. Elsevier BV.Crossref OpenAlex OpenCitations
-
THE WHOQOL GROUP (1998). Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment . Psychological Medicine, 28(3), 551-558. Cambridge University Press (CUP).Crossref OpenAlex OpenCitations
-
Francesca Happé , Rebecca A. Charlton (2012). Aging in Autism Spectrum Disorders: A Mini-Review . Gerontology, 58(1), 70-78. S. Karger AG.Crossref OpenAlex OpenCitations
-
Jahnese Hamilton , Barry Ingham , Iain McKinnon , Jeremy R. Parr , Louise Yuen‐Chong Tam , Ann Le Couteur (2017). Mental capacity to consent to research? Experiences of consenting adults with intellectual disabilities and/or autism to research . British Journal of Learning Disabilities, 45(4), 230-237. Wiley.Crossref OpenAlex OpenCitations
-
Rahul Khanna , Krutika Jariwala-Parikh , Donna West-Strum , Rohan Mahabaleshwarkar (2014). Health-related quality of life and its determinants among adults with autism . Research in Autism Spectrum Disorders, 8(3), 157-167. Elsevier BV.Crossref OpenAlex OpenCitations
-
Diego Mugno , Liliana Ruta , Valentina Genitori D'Arrigo , Luigi Mazzone (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder . Health and Quality of Life Outcomes, 5(1), 22-22. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Yoko Kamio , Naoko Inada , Tomonori Koyama (2013). A nationwide survey on quality of life and associated factors of adults with high-functioning autism spectrum disorders . Autism, 17(1), 15-26. SAGE Publications.Crossref OpenAlex OpenCitations
-
Helen McConachie , David Mason *Autistic author. Learn more… , Jeremy R. Parr , Deborah Garland , Colin Wilson , Jacqui Rodgers (2018). Enhancing the validity of a quality of life measure for Autistic people . Journal of Autism and Developmental Disorders, 48(5), 1596. Springer Science and Business Media LLC.
-
Suzanne Skevington , M. Lotfy , K.A. O'Connell (2004). The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A Report from the WHOQOL Group . Quality of Life Research, 13(2), 299-310. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Leann E. Smith , Matthew J. Maenner , Marsha Mailick Seltzer (2012). Developmental Trajectories in Adolescents and Adults With Autism: The Case of Daily Living Skills . Journal of the American Academy of Child & Adolescent Psychiatry, 51(6), 622-631. Elsevier BV.Crossref OpenAlex OpenCitations
-
Jinkuk Hong , Lauren Bishop-Fitzpatrick , Leann E. Smith , Jan S. Greenberg , Marsha R. Mailick (2016). Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports . Journal of Autism and Developmental Disorders, 46(4), 1368-1378. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
H. ‐C. Steinhausen , C. Mohr Jensen , M. B. Lauritsen (2016). A systematic review and meta‐analysis of the long‐term overall outcome of autism spectrum disorders in adolescence and adulthood . Acta Psychiatrica Scandinavica, 133(6), 445-452. Wiley.Crossref OpenAlex OpenCitations
-
James W Varni , Christine A Limbers , Tasha M Burwinkle (2007). How young can children reliably and validly self-report their health-related quality of life?: An analysis of 8,591 children across age subgroups with the PedsQL™ 4.0 Generic Core Scales . Health and Quality of Life Outcomes, 5(1), 1-1. Springer Science and Business Media LLC.OpenAlex OpenCitations
-
J O Renty , Herbert Roeyers (2006). Quality of life in high-functioning adults with autism spectrum disorder . Autism, 10(5), 511-524. SAGE Publications.Crossref OpenAlex OpenCitations
-
P. C. Oliver , J. Piachaud , P. Tyrer , A. Regan , M. Dack , Regi Alexander et al. (2005). Randomized controlled trial of assertive community treatment in intellectual disability: the TACTILD study . Journal of Intellectual Disability Research, 49(7), 507-515. Wiley.Crossref OpenAlex OpenCitations
-
Patricia Howlin , Iliana Magiati (2017). Autism spectrum disorder . Current Opinion in Psychiatry, 30(2), 69-76. Ovid Technologies (Wolters Kluwer Health).Crossref OpenAlex OpenCitations
-
Laura Hull , K.V. Petrides , Carrie T. Allison , P. Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Teresa A. Myers (2011). Goodbye, Listwise Deletion: Presenting Hot Deck Imputation as an Easy and Effective Tool for Handling Missing Data . Communication Methods and Measures, 5(4), 297-310. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Elizabeth A. Perkins , Karen A. Berkman (2012). Into the Unknown: Aging with Autism Spectrum Disorders . American Journal on Intellectual and Developmental Disabilities, 117(6), 478-496. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Barbara FC van Heijst , Hilde M. Geurts (2015). Quality of life in autism across the lifespan: A meta-analysis . Autism, 19(2), 158-167. SAGE Publications.Crossref OpenAlex OpenCitations
-
Ling-Yi Lin (2014). Quality of Life of Taiwanese Adults with Autism Spectrum Disorder . PLoS ONE, 9(10), e109567. Public Library of Science (PLoS).Crossref OpenAlex OpenCitations
-
Anne G. Lever , Hilde M. Geurts (2016). Psychiatric Co-occurring Symptoms and Disorders in Young, Middle-Aged, and Older Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 46(6), 1916-1930. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Suzanne Skevington , Farah M. McCrate (2012). Expecting a good quality of life in health: assessing people with diverse diseases and conditions using the WHOQOL‐BREF . Health Expectations, 15(1), 49-62. Wiley.Crossref OpenAlex OpenCitations
-
Philippa Moss , Will Mandy , Patricia Howlin (2017). Child and Adult Factors Related to Quality of Life in Adults with Autism . Journal of Autism and Developmental Disorders, 47(6), 1830-1837. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
National Institute for Health , Clinical Excellence (2012). Autism spectrum disorder in adults: Diagnosis and management . Autism spectrum disorder in adults: Diagnosis and management.Type: OtherCrossref
-
Parr J.R. (2016). Autism spectrum disorder in mid and later life . Autism spectrum disorder in mid and later life.Type: OtherCrossref
-
S.D. Wright , C. Wright (2017). AUTISM SPECTRUM DISORDER IN MID AND LATER LIFE . Innovation in Aging, 1(suppl_1), 1139-1139. Oxford University Press (OUP).OpenAlex