“It’s not about wanting to be thin or look small, it’s about the way it feels”: an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents

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Nimbley, E., Gillespie‐Smith, K., Duffy, F., Maloney, E., Ballantyne, C., & Sharpe, H. (2023). “It’s not about wanting to be thin or look small, it’s about the way it feels”: an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents. Journal of Eating Disorders, 11(1), 89-89. https://doi.org/10.1186/s40337-023-00813-z

Publication date: 5 Jun 2023 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)
  1. Emy Nimbley
  2. Karri Gillespie‐Smith
  3. Fiona Duffy
  1. Ellen Maloney *
  2. Carrie Ballantyne
  3. Helen Sharpe

Abstract

BACKGROUND: Despite increasing evidence to support an overlap between autism and anorexia nervosa (AN), underlying mechanisms remain poorly understood. Social and sensory factors have emerged as promising targets in both autism and AN, however there remains scope to compare these differences across autistic and non-autistic experiences of AN. Drawing on dyadic multi-perspectives, this study explored experiences of social and sensory differences in autistic and non-autistic adults and their parents and/or carers. METHODS: Using interpretative phenomenological analysis (IPA), dyadic interviews were conducted with 14 dyads, with seven autistic dyads and seven non-autistic dyads. Data analysis was subjected to a triangulation of interpretations: (1) the participants themselves; (2) a neurotypical researcher; (3) and an Autistic researcher with lived/living experience of AN. RESULTS: IPA identified three themes in each group, with similarities and differences between autistic and non-autistic dyads. Similar themes were identified regarding the importance of social connectedness and socio-emotional difficulties, as well a common lack of trust in the social and sensory self and body. Autism-specific themes centred on feelings of social 'defectiveness', disparities between sensing and expressing certain cues, and lifelong, multi-sensory processing differences. Non-autistic themes reflected social comparisons and inadequacy, and sensitivities to the learning of ideals and behaviour through early experiences. CONCLUSIONS: While similarities were observed across both groups, there appeared to be notable differences in the perceived role and influence of social and sensory differences. These findings may have important implications on the delivery and modification of eating disorder interventions. Specifically, they suggest that while treatment targets may look similar, subtle differences in underlying mechanisms and approaches may be required for Autistic individuals with AN across sensory, emotion and communication-based interventions.

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Cited references
61
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Cited references with an identified autistic author
4 / 61 (6.6%)
Cited author occurrences identified as autistic
9 / 267 (3.4%)
Among occurrences linked to AutiHub author records: 9 / 82 (11.0%). Distinct cited authors identified as autistic: 8 / 213 (3.8%).
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82 / 267 (30.7%)
Distinct linked cited authors: 47 / 213 (22.1%)
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73 / 82 (89.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 73 / 267 (27.3%). Distinct linked cited authors not identified as autistic: 39 / 47 (83.0%).
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