“For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Brede, J., Babb, C., Jones, C. R. G., Elliott, M., Zanker, C., Tchanturia, K., Serpell, L., Fox, J. R. E., & Mandy, W. (2020). “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women. Journal of Autism and Developmental Disorders, 50(12), 4280-4296. https://doi.org/10.1007/s10803-020-04479-3

Publication date: 9 Apr 2020 Added to AutiHub: 4 Oct 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
9
Publication authors identified as autistic
1 / 9 (11.1%)
  1. Janina Brede
  2. Charli Babb
  3. Catherine R G Jones
  4. Mair Elliott *
  5. Cathy Zanker
  1. Kate Tchanturia
  2. Lucy Serpell
  3. John R. E. Fox
  4. William Mandy

Abstract

Abstract Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing.

Bibliography cited by this reference

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 23 Oct 2026 07:59.

Cited references
73
With a DOI
65
Without a DOI, from raw bibliography text
5
2 / 73 (2.7%) cited references include at least one author identified as autistic.
References with data to complete
4 / 73 (5.5%)
References with detected author names
70 / 73 (95.9%)
Without detected author names
3
Without a structured title
4
Without a stable identifier
5
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
269
From DOI or external metadata
269
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
6
70 / 269 (26.0%) names are linked to an author already present in AutiHub. 199 / 269 (74.0%) names are not yet linked.
Names linked to a person identified as autistic
2 / 269 (0.7%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 2 / 70 (2.9%). Distinct people identified as autistic: 2 / 210 (1.0%).
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