Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol

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Øverland, E., Hauge, Å. L., Orm, S., Pellicano, E., Øie, M. G., Skogli, E. W., & Andersen, P. N. (2022). Exploring life with autism: Quality of Life, daily functioning and compensatory strategies from childhood to emerging adulthood: A qualitative study protocol. Frontiers in Psychiatry, 13, 1058601-1058601. https://doi.org/10.3389/fpsyt.2022.1058601

Publication date: 25 Nov 2022 Added to AutiHub: 20 Sep 2026 Type: Article Article language: English
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Authors

Publication authors
7
Publication authors identified as autistic
1 / 7 (14.3%)
  1. Elisabeth Øverland
  2. Åshild Lappegard Hauge
  3. Stian Orm *
  4. Elizabeth Pellicano
  1. Merete Glenne Øie
  2. Erik Winther Skogli
  3. Per Normann Andersen

Abstract

Introduction This study aims to investigate self-perceived quality of life, daily functioning, and the use of compensatory strategies in emerging adults with autism 1. Methods and analysis Participants will be recruited from the Lillehammer Neurodevelopmental 10-year follow-up study (LINEUP), with the aim of 15 individual in-depth interviews. Subsequently, two focus groups with clinicians will be invited to reflect on the themes found in the individual interviews. All interviews will be recorded and analyzed using reflexive thematic analysis. Ethics and dissemination The study is approved by the Regional Committee for Medical Research Ethics in South-East Norway. The findings will be disseminated to academic and clinical audiences through journal articles and conference presentations. To reach the broader autistic and autism communities, the findings will be shared with the Autism Society at national and local meetings, in their membership magazine, and on their social media channel.

Bibliography cited by this reference

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 02:39.

Cited references
68
With a DOI
62
Without a DOI, from raw bibliography text
6
19 / 68 (27.9%) cited references include at least one author identified as autistic.
References with data to complete
4 / 68 (5.9%)
References with detected author names
68 / 68 (100.0%)
Without detected author names
0
Without a structured title
4
Without a stable identifier
6
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
261
From DOI or external metadata
261
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
165 / 261 (63.2%) names are linked to an author already present in AutiHub. 96 / 261 (36.8%) names are not yet linked.
Names linked to a person identified as autistic
36 / 261 (13.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 36 / 165 (21.8%). Distinct people identified as autistic: 26 / 205 (12.7%).
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