‘You Feel Like You Failed Your Child’: Parental Experiences of Autism Diagnostic Report Language

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Kerr, S., Robertson, A., Davies, J., & Lang, J. (2026). ‘You Feel Like You Failed Your Child’: Parental Experiences of Autism Diagnostic Report Language. Neurodiversity, 4. https://doi.org/10.1177/27546330261483779

Publication date: 1 Sep 2026 Added to AutiHub: 18 Sep 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
1 / 4 (25.0%)
  1. Sophie Kerr
  2. Ashley Robertson
  3. Jennifer Davies
  4. Jason Lang *

Abstract

This study explored parents’ perceptions of the language used in neurodevelopmental diagnostic reports following autism assessments. The research examined how deficit-based language within traditional diagnostic frameworks influence families’ experiences, understanding and engagement with their child's diagnosis. Fifteen parents of autistic children participated in semi-structured interviews, analysed through reflexive thematic analysis. Four themes were identified: deficit framing as misrepresentation of the child, the value of words, reframing diagnosis through neuro-affirming language and affirmation versus access. Parents reported that language in reports was discouraging, overly focused on deficits and at times misrepresented their child's strengths and identity. Neurodivergent participants expressed sensitivity to deficit-based terminology. While many valued more affirming, strengths-based language, some recognised that deficit-oriented language remains necessary to secure support from education and health services. This reveals a complex paradox: language that may grant access to help can simultaneously undermine identity and well-being. The findings indicate that diagnostic language has emotional and relational impact on families and may shape children's self-identity. While changing language alone cannot resolve systemic challenges, adopting more neuro-affirming practices could improve diagnostic experiences and support positive identity development. The study underscores the need for cultural and institutional change to support meaningful, inclusive diagnostic practices reflecting the values of the neurodiversity movement.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 19 Sep 2026 07:57.

Cited references
82
With a DOI
69
Without a DOI, from raw bibliography text
13
19 / 82 (23.2%) cited references include at least one author identified as autistic.
References with data to complete
4 / 82 (4.9%)
References with detected author names
78 / 82 (95.1%)
Without detected author names
4
Without a structured title
3
Without a stable identifier
13
References with raw author names still to review
4
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
208
From DOI or external metadata
208
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
4
96 / 208 (46.2%) names are linked to an author already present in AutiHub. 112 / 208 (53.8%) names are not yet linked.
Names linked to a person identified as autistic
25 / 208 (12.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 25 / 96 (26.0%). Distinct people identified as autistic: 16 / 187 (8.6%).
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