Learning from the Experiences of Autistic Professionals Working in Health and Education

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Curnow, E., Maciver, D., Johnston, L., Murray, M., Johnstone-Cooke, V., Utley, I., Jenkins, N., Meff, T., Muggleton, J., & Rutherford, M. (2025). Learning from the Experiences of Autistic Professionals Working in Health and Education. Autism in Adulthood, 8(4), 788-800. https://doi.org/10.1089/aut.2024.0168

Publication date: 20 Jan 2025 Added to AutiHub: 17 Sep 2026 Type: Article Article language: English
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Authors

Publication authors
10
Publication authors identified as autistic
1 / 10 (10.0%)
  1. Eleanor Curnow
  2. Donald Maciver
  3. Lorna Johnston
  4. Mairead Murray
  5. Victoria Johnstone-Cooke
  1. Izy Utley
  2. Natalie Jenkins
  3. Tamsin Meff
  4. Joshua Muggleton *
  5. Marion Rutherford

Abstract

Background: This study aimed to explore the experiences of autistic professionals working in the public sector in Scotland and investigate the factors that supported them in achieving employment in their chosen career. Methods: We interviewed 34 autistic adults employed in professional roles in the health and education sectors in Scotland about their successes and challenges during training, recruitment, and employment. Interview conversations of 60–90-minute duration were transcribed verbatim. The research team, which included autistic and non-autistic researchers, conducted inductive thematic analysis. Results: Resultant themes included complexity of disclosure; navigating differences in social communication and across employment stages; and control of the environment. Autistic professionals face inequalities and unsupportive environments. Participants described multifaceted decision-making processes behind choices to disclose or withhold their autism diagnosis, which could determine their right to workplace accommodations or provoke unfavorable treatment. The styles of communication preferred by colleagues could engender misunderstanding and lead to challenges negotiating social situations, recruitment processes, and organizational culture. Participants’ needs and preferences for predictability and routine required them to use strategies to overcome the negative impacts of suboptimal social and physical environments. Conclusion: Findings confirm the importance of acceptance and inclusion and demonstrate that there is a need for culture change within public sector education and health workplaces to improve accessibility. Applying minor changes to the environment and individual communication styles can enhance workplace conditions for autistic employees. Community Brief Why is this an important issue? Fewer autistic people are employed in skilled jobs than we would expect, and autistic graduates are less likely to be employed than graduates with any other disability. We need research to understand what helps autistic people in skilled work and career development, for example, through promotion. It is important that autistic people can follow their chosen career paths without risk to their health. What was the purpose of this study? We wanted to know more about the experiences of autistic people employed in public sector professional roles in Scotland. We wanted to find out about work, training, and recruitment from their point-of-view. We wanted to understand what worked well, and what employers can improve. What did the researchers do? We interviewed 34 autistic people working in professional roles in health or education in Scotland (including nurses, doctors, teachers, occupational therapists, clinical scientists, and radiographers). We thought about what people told us to help us understand their experiences. What were the results of the study? Autistic professionals said that the decision to share their autism diagnosis at work was complicated. Before deciding to share this information, they thought about the risk of discrimination or stigma. They thought about how this might affect their access to support at work, and their wish to raise awareness of autism by acting as a role model. Sometimes colleagues communicated in ways which led to misunderstandings. Autistic employees told us that the habits and ways of working at their workplace did not suit them. They reported that work environments did not support their needs. This caused them stress and meant that they needed to find ways to stay in employment and look after their health. What do these findings add to what is already known? We already know that autistic employees face discrimination and stress in the workplace. Our research confirms that there is a need for changes to support autistic professionals. The untrue or unfair views that colleagues have about autism (and other distinctions such as age, ethnicity, race, sex, social and economic status, or gender) create discrimination and prevent people receiving support at work or progressing in their career. What are the potential weaknesses in the study? People who took part in this research were all professionals working in Scotland and were mainly White, female graduates. They had all been working for at least 2 years. This means that the training and recruitment they talked about may have happened some years ago. How will these findings help autistic adults now or in the future? Participants highlighted challenges and difficulties they face at work that affect their health and limit career progression. Findings show that employers and colleagues need better understanding of autism to reduce discrimination and help autistic professionals feel supported and safe to talk about their needs. This would help employers work with autistic professionals to identify changes to workplace habits and ways of working, which can support the well-being and career progression of autistic professionals.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 19 Sep 2026 07:57.

Cited references
64
With a DOI
54
Without a DOI, from raw bibliography text
10
20 / 64 (31.2%) cited references include at least one author identified as autistic.
References with data to complete
8 / 64 (12.5%)
References with detected author names
56 / 64 (87.5%)
Without detected author names
8
Without a structured title
8
Without a stable identifier
10
References with raw author names still to review
5
References with external metadata lookup issues
3
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
224
From DOI or external metadata
224
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
5
152 / 224 (67.9%) names are linked to an author already present in AutiHub. 72 / 224 (32.1%) names are not yet linked.
Names linked to a person identified as autistic
55 / 224 (24.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 55 / 152 (36.2%). Distinct people identified as autistic: 37 / 170 (21.8%).
  2. Jade Davies , Anna Melissa Romualdez , Elizabeth Pellicano , Anna Remington (2024). Career progression for autistic people: A scoping review . Autism, 28(11), 2690-2706. SAGE Publications.
    Type: Article DOI: 10.1177/13623613241236110 OpenAlex: https://openalex.org/W4392761565
    Crossref OpenAlex OpenCitations
  3. Jade Eloise Norris , Jemma Nicholson , Rachel Prosser , Jessica Farrell , Anna Remington , Laura Crane et al. (2024). Perceptions of autistic and non-autistic adults in employment interviews: The role of impression management . Research in Autism Spectrum Disorders, 112, 102333. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2024.102333 OpenAlex: https://openalex.org/W4391309223
    Crossref OpenAlex OpenCitations
  4. Bridget C. O’Brien , Ilene B. Harris , Thomas J. Beckman , Darcy A. Reed , David A. Cook (2014). Standards for Reporting Qualitative Research . Academic Medicine, 89(9), 1245-1251. Oxford University Press (OUP).
    Type: Article DOI: 10.1097/acm.0000000000000388 OpenAlex: https://openalex.org/W2331393505
    Crossref OpenAlex OpenCitations
  6. Julia Cook , Laura Crane , Will Mandy (2024). Dropping the mask: it takes two . Autism, 28(4), 831. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231183059 OpenAlex: https://openalex.org/W4383186102
    Crossref OpenAlex OpenCitations
  7. Laura Yvonne Bulk , Adam Easterbrook , Earllene Roberts , Marlee Groening , Susan Murphy , Michael Lee et al. (2017). ‘We are not anything alike’: marginalization of health professionals with disabilities . Disability & Society, 32(5), 615-634. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2017.1308247 OpenAlex: https://openalex.org/W2606296284
    Crossref OpenAlex OpenCitations
  8. Eleanor Buckley , Elizabeth Pellicano , Anna Remington (2021). “The Real Thing I Struggle with is Other People’s Perceptions”: The Experiences of Autistic Performing Arts Professionals and Attitudes of Performing Arts Employers in the UK . Journal of Autism and Developmental Disorders, 51(1), 45-59. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04517-0 OpenAlex: https://openalex.org/W3023240124
    Crossref OpenAlex OpenCitations
  10. Charlotte Brownlow , Shalene Werth , Kathleen Keefe (2018). Autism Spectrum Disorder: Emotion Work in the Workplace . In Work and Identity (pp. 23-37). Springer International Publishing.
    Type: Book chapter DOI: 10.1007/978-3-319-73936-6_3 OpenAlex: https://openalex.org/W2788547257
    Crossref OpenAlex OpenCitations
  11. Simon M. Bury , Rebecca L. Flower , Rosslynn Zulla , David Nicholas , Darren Hedley (2021). Workplace Social Challenges Experienced by Employees on the Autism Spectrum: An International Exploratory Study Examining Employee and Supervisor Perspectives . Journal of Autism and Developmental Disorders, 51(5), 1614-1627. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04662-6 OpenAlex: https://openalex.org/W3064282906
    Crossref OpenAlex OpenCitations
  12. Sally Lindsay , Victoria Osten , Mana Rezai , Sunny Bui (2021). Disclosure and workplace accommodations for people with autism: a systematic review . Disability and Rehabilitation, 43(5), 597-610. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2019.1635658 OpenAlex: https://openalex.org/W2953880694
    Crossref OpenAlex OpenCitations
  13. Jonathan Vincent , Kevin Ralston (2024). Uncovering employment outcomes for autistic university graduates in the United Kingdom: An analysis of population data . Autism, 28(3), 732-743. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231182756 OpenAlex: https://openalex.org/W4381839327
    Crossref OpenAlex OpenCitations
  16. S. Petty , Lydia Tunstall , Hannah Richardson , Niamh Eccles (2023). Workplace Adjustments for Autistic Employees: What is ‘Reasonable’? Journal of Autism and Developmental Disorders, 53(1), 236-244. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05413-x OpenAlex: https://openalex.org/W4205533564
    Crossref OpenAlex OpenCitations
  17. Victoria Sweetmore (2022). Mental health nursing and autism: I am a mental health nurse so why did it take me so long to realize I’m autistic? Journal of Psychiatric and Mental Health Nursing, 29(6), 770-773. Wiley.
    Type: Article DOI: 10.1111/jpm.12762 OpenAlex: https://openalex.org/W3154907934
    Crossref OpenAlex OpenCitations
  18. Anna Krzeminska , Robert D. Austin , Susanne M. Bruyère , Darren Hedley (2019). The advantages and challenges of neurodiversity employment in organizations . Journal of Management & Organization, 25(04), 453-463. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/jmo.2019.58 OpenAlex: https://openalex.org/W2915163444
    Crossref OpenAlex OpenCitations
  20. Åsa Hedlund * (2023). Autistic nurses: do they exist? British Journal of Nursing, 32(4), 210-214. Mark Allen Group.
    Type: Article DOI: 10.12968/bjon.2023.32.4.210 OpenAlex: https://openalex.org/W4321770236
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  21. Natasha Saltes (2022). ‘It’s all about student accessibility. No one ever talks about teacher accessibility’: Examining ableist expectations in academia . International Journal of Inclusive Education, 26(7), 674-700. Informa UK Limited.
    Type: Article DOI: 10.1080/13603116.2020.1712483 OpenAlex: https://openalex.org/W3000107907
    Crossref OpenAlex OpenCitations
  25. Cat StEvens (2024). The lived experience of autistic teachers: a review of the literature . International Journal of Inclusive Education, 28(9), 1871-1885. Informa UK Limited.
    Type: Article DOI: 10.1080/13603116.2022.2041738 OpenAlex: https://openalex.org/W4220668611
    Crossref OpenAlex OpenCitations
  27. Xiangyu Man , Xiji Zhu , Cong Sun (2020). The Positive Effect of Workplace Accommodation on Creative Performance of Employees With and Without Disabilities . Frontiers in Psychology, 11, 1217-1217. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2020.01217 OpenAlex: https://openalex.org/W3036198521
    Crossref OpenAlex OpenCitations
  28. Hawker D (2022). Neurodiversity is not just for those we work with: A group of autistic psychologists write . The Psychologist, 2023.
    Type: Other
    Crossref
  29. Clare Cummins , Elizabeth Pellicano , Laura Crane (2020). Autistic adults’ views of their communication skills and needs . International Journal of Language & Communication Disorders, 55(5), 678-689. Wiley.
    Type: Article DOI: 10.1111/1460-6984.12552 OpenAlex: https://openalex.org/W3038420360
    Crossref OpenAlex OpenCitations
  32. Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2021). Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health . Autism in Adulthood, 3(4), 320-329. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0071 OpenAlex: https://openalex.org/W3170765972
    Crossref OpenAlex OpenCitations
  33. Jonathan Vincent , Marc Fabri (2022). The Ecosystem of Competitive Employment for University Graduates with Autism . International Journal of Disability, Development and Education, 69(5), 1823-1839. Informa UK Limited.
    Type: Article DOI: 10.1080/1034912x.2020.1821874 OpenAlex: https://openalex.org/W3049771145
    Crossref OpenAlex OpenCitations
  34. Rutherford M (2022). Autism Spectrum Disorders - Recent Advances and New Perspectives [Working Title] . Autism Spectrum Disorders - Recent Advances and New Perspectives [Working Title].
    Type: Other
    Crossref
  35. Lawrence C. (2019). “I can be a role model for Autistic pupils”: Investigating the voice of the Autistic teacher . Teacher Education Advancement Network Journal, 11(2), 50.
    Type: Other
    Crossref
  36. David Thorpe , Marisa McKinlay , James Richards , Kate Sang , Mary E. Stewart (2024). The Lived Experience of Autistic Adults in Employment: A Systematic Search and Synthesis . Autism in Adulthood, 6(4), 495-509. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2022.0114 OpenAlex: https://openalex.org/W4390661920
    Crossref OpenAlex OpenCitations
  37. Rebecca Wood , Francesca Happé (2023). What are the views and experiences of autistic teachers? Findings from an online survey in the UK . Disability & Society, 38(1), 47. Informa UK Limited.
    Type: Article DOI: 10.1080/09687599.2021.1916888 OpenAlex: https://openalex.org/W3161009706
    Crossref OpenAlex OpenCitations
  38. Donald Maciver , Marion Rutherford , Lorna Johnston , Eleanor Curnow , Marie Boilson , Mairead Murray (2023). An interdisciplinary nationwide complex intervention for lifespan neurodevelopmental service development: Underpinning principles and realist programme theory . Frontiers in Rehabilitation Sciences, 3, 1060596-1060596. Frontiers Media SA.
    Type: Article DOI: 10.3389/fresc.2022.1060596 OpenAlex: https://openalex.org/W4318457047
    Crossref OpenAlex OpenCitations
  40. Rebecca Wood (2024). Happier on the outside? Discourses of exclusion, disempowerment and belonging from former autistic school staff . Journal of Research in Special Educational Needs, 24(1), 39. Wiley.
    Type: Article DOI: 10.1111/1471-3802.12612 OpenAlex: https://openalex.org/W4384828278
    Crossref OpenAlex OpenCitations
  41. (n.d.). e_1_3_4_22_2
    Type: Other DOI: 10.3389/fpsyt.2023
    Crossref
  42. Mikaela Finn , Rebecca L. Flower , Han Ming Leong , Darren Hedley (2023). ‘If I’m just me, I doubt I’d get the job’: A qualitative exploration of autistic people’s experiences in job interviews . Autism, 27(7), 2086-2097. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231153480 OpenAlex: https://openalex.org/W4321004272
    Crossref OpenAlex OpenCitations
  45. David Byrne (2022). A worked example of Braun and Clarke’s approach to reflexive thematic analysis . Quality & Quantity, 56(3), 1391-1412. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11135-021-01182-y OpenAlex: https://openalex.org/W3175998072
    Crossref OpenAlex OpenCitations
  47. (n.d.). e_1_3_4_28_2
    Type: Other DOI: 10.3390/edusci13070670
    Crossref
  49. (n.d.). Scottish Government. Learning Disabilities Autism and Neurodivergence Bill: Consultation. Scottish Government Mental Health Directorate. https://www.gov.scot/publications/learning-disabilities-autism-neurodivergence-bill-consultation/documents/ [Last accessed: July19 2024].
    Type: Other
    Crossref
  50. Sally Lindsay , Kristina Fuentes , Sharmigaa Ragunathan , Luiza Lamaj , Jaclyn Dyson (2023). Ableism within health care professions: a systematic review of the experiences and impact of discrimination against health care providers with disabilities . Disability and Rehabilitation, 45(17), 2715-2731. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2022.2107086 OpenAlex: https://openalex.org/W4290694751
    Crossref OpenAlex OpenCitations
  51. (n.d.). Scottish Government. Fair Work action plan: Becoming a leading Fair Work Nation by 2025. Scottish Government. 4. Public sector and the role of leadership—gov.scot. Available from: www.gov.scot [Last accessed: July25 2024].
    Type: Other
    Crossref
  52. (n.d.). Department for Work and Pensions. The Buckland Review of Autism Employment: Report and recommendations. 2024. 28 Feb 2024. The Buckland Review of Autism Employment: report and recommendations—GOV. UK. Available from: www.gov.uk
    Type: Other
    Crossref
  53. (n.d.). e_1_3_4_33_2
    Type: Other DOI: 10.1177/13623613198
    Crossref
  55. Virginia Braun , Victoria Clarke (2022). Thematic Analysis . In Encyclopedia of Quality of Life and Well-Being Research (pp. 1-7). Springer International Publishing.
    Type: Book chapter DOI: 10.1007/978-3-319-69909-7_3470-2 OpenAlex: https://openalex.org/W4320081749
    Crossref OpenAlex
  56. Victoria Clarke , Virginia Braun (2014). Thematic Analysis . In Encyclopedia of Critical Psychology (pp. 1947-1952). Springer New York.
    Type: Book chapter DOI: 10.1007/978-1-4614-5583-7_311 10.1007/978-3-319-69909-7_3470-2 10.1007/978-94-007-0753-5_3470 10.1037/13620-004
    OpenCitations
  57. (n.d.). Lumivero. NVivo (Version 13 2020 R1). Available from: www.lumivero.com
    Type: Other
    Crossref
  58. Gayle L. Overton , Ferran Marsà-Sambola , Rachael Martin , Penny Cavenagh (2024). Understanding the Self-identification of Autism in Adults: a Scoping Review . Review Journal of Autism and Developmental Disorders, 11(4), 682-702. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-023-00361-x OpenAlex: https://openalex.org/W4323360123
    Crossref OpenAlex OpenCitations
  60. Carl A. Frizell , Devin Graham , Amber DuVentre , Sheena D. Brown (2025). Embracing Neuro-Inclusivity Within Physician Assistant/Associate Education: Challenging Organizational Cultural Norms and Navigating Communication Challenges . The Journal of Physician Assistant Education, 36(1), e102-e106. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/jpa.0000000000000575 OpenAlex: https://openalex.org/W4391487315
    Crossref OpenAlex OpenCitations
  61. Clare Granger , Zain Hameed , Rebecca Kelly (2023). Neurodivergence and the healthcare workforce: a hidden facet within equality, diversity and inclusion? BMJ Leader, 7(Suppl 2), 1.7-7. BMJ.
    Type: Article DOI: 10.1136/leader-2023-000809 OpenAlex: https://openalex.org/W4388707757
    Crossref OpenAlex OpenCitations
  62. UK Government (2010). Equality Act . Equality Act.
    Type: Other
    Crossref
  63. Heasman B (2020). DARE Report on adjustments . DARE Report on adjustments.
    Type: Other
    Crossref
  64. (n.d.). National Statistics. Scotland’s Census 2022—Ethnic group national identity language and religion. https://www.scotlandscensus.gov.uk/2022-results/scotland-s-census-2022-ethnic-group-national-identity-language-and-religion/#section3 [Last accessed: July18 2024].
    Type: Other
    Crossref