“[I] don’t wanna just be like a cog in the machine”: Narratives of autism and skilled employment

Raymaker, D. M., Sharer, M., Maslak, J., Powers, L. E., McDonald, K., Kapp, S. K., Moura, I., Wallington, A., & Nicolaidis, C. (2022). “[I] don’t wanna just be like a cog in the machine”: Narratives of autism and skilled employment. Autism, 27(1), 65-75. https://doi.org/10.1177/13623613221080813

Publication date: 1 Apr 2022 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
9
Publication authors identified as autistic
3 / 9 (33.3%)

Abstract

Autistic people experience disparities in employment which may be exacerbated for individuals in skilled employment. Little is known about the experiences of autistic people in skilled employment or how they define success. We used a community-based participatory research approach to conduct a thematic analysis with an inductive approach at a semantic level through a critical realist paradigm. We interviewed 45 autistic people with skilled training, 11 supervisors, and 8 key informants. We purposively sampled to maximize variation. We addressed trustworthiness through multiple coders and peer debriefing. Common themes included high stakes of disclosure, unconventional pathways to careers, disconnects with service and support systems, mental health challenges from trauma/burnout, autistic advantages in the workplace, and complex dimensions of discrimination. Participants defined success as opportunities for growth, work/life balance, financial independence, sense of community, and feeling valued, accepted, and like their work had meaning. Strategies to facilitate success suggested a multi-faceted and wholistic approach including attention to the role of supervisors. Our findings suggest a highly customizable, systems-focused, multifaceted approach to autism employment intervention could be useful in improving skilled employment outcomes. We recommend further work particularly in the areas of disclosure and destigmatizing disability in the workplace. Lay abstract Autistic people are less likely to be employed than the general population. Autistic people with skilled training (e.g. training for jobs in acting, plumbing, science, or social work) might be even less likely to get a good job in their field. Little is known about the experiences of autistic people in skilled employment or what employment success means to them. We interviewed 45 autistic people with skilled training in a wide range of fields, 11 job supervisors, and 8 topic experts. We asked them about their experiences, what they felt helped them to be successful at work, and what employment success means to them. Participants talked about the high stakes of disclosure, taking unconventional pathways to careers, disconnects with service and support systems, mental health challenges from trauma and burnout, the autistic advantages in the workplace, and complex dimensions of discrimination. Participants said success meant opportunities for growth, good work/life balance, financial independence, sense of community, and feeling valued, accepted, and like their work had meaning. Things that helped them be successful included flexible, accepting workplaces, supportive and respectful supervisors, and direct communication. What we learned suggests that an individualized, wholistic approach to autism employment intervention that considers both employers and employees and employee mental health could be useful. We also recommend more research into disclosure and destigmatizing disability at work.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
51
Total cited references integrated for this publication.
Cited references with an identified autistic author
6 / 51 (11.8%)
Cited author occurrences identified as autistic
19 / 201 (9.5%)
Among occurrences linked to AutiHub author records: 19 / 68 (27.9%). Distinct cited authors identified as autistic: 7 / 168 (4.2%).
Cited author occurrences linked to AutiHub author records
68 / 201 (33.8%)
Distinct linked cited authors: 42 / 168 (25.0%)
Linked cited-author occurrences not identified as autistic
49 / 68 (72.1%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 49 / 201 (24.4%). Distinct linked cited authors not identified as autistic: 35 / 42 (83.3%).
2 cited bibliography entries could not be fully enriched from DOI metadata.
Crossref: not found (1) · DataCite: not found (1)
  1. Barbara A. Israel , David Satcher (2013). Methods For Community - Based Participatory Research For Health .
    Type: Book OpenAlex: https://openalex.org/W1498878353
    OpenAlex
  2. Connie Anderson , Catherine Butt , Clare Sarsony (2021). Young Adults on the Autism Spectrum and Early Employment-Related Experiences: Aspirations and Obstacles . Journal of Autism and Developmental Disorders, 51(1), 88-105. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  3. Paula Brough , Carolyn Timms , Michael P. O'Driscoll , Thomas Kalliath , Oi-Ling Siu , Cindy Sit et al. (2014). Work–life balance: a longitudinal evaluation of a new measure across Australia and New Zealand workers . The International Journal of Human Resource Management, 25(19), 2724-2744. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  4. Yoshihiro Kinoshita , Toshi A Furukawa , Ichiro M Omori , Norio Watanabe , Max Marshall , Gary R Bond et al. (2010). Supported employment for adults with severe mental illness . Cochrane Database of Systematic Reviews, 2010(1). John Wiley & Sons, Ltd.
    OpenAlex
  5. ATLAS.ti. (2018). ATLAS.ti: Qualitative data analysis. https://atlasti.com
    Type: Other
    Crossref
  6. Jennifer T. McDonough , Grant Revell (2010). Accessing employment supports in the adult system for transitioning youth with autism spectrum disorders . Journal of Vocational Rehabilitation, 32(2), 89-100. SAGE Publications.
    Crossref OpenAlex OpenCitations
  7. Sally L. Chappel , Beth C. Somers (2010). Employing persons with autism spectrum disorders: A collaborative effort . Journal of Vocational Rehabilitation, 32(2), 117-124. SAGE Publications.
    Crossref OpenAlex OpenCitations
  8. Benach J., Muntaner C., Santana V. (2007). Employment conditions and health inequalities. http://www.who.int/social_determinants/resources/articles/emconet_who_report.pdf?ua=1
    Type: Other
    Crossref
  9. Patricia Howlin , Jennifer Alcock , Catherine Burkin (2005). An 8 year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome . Autism, 9(5), 533-549. SAGE Publications.
    Crossref OpenAlex OpenCitations
  10. Bernick M. S. (2015). The autism job club: The neurodiverse workforce in the new normal of employment . The autism job club: The neurodiverse workforce in the new normal of employment.
    Type: Other
    Crossref
  11. Susan L. Morrow (2005). Quality and trustworthiness in qualitative research in counseling psychology. Journal of Counseling Psychology, 52(2), 250-260. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  12. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Barbara A. Israel , Amy J. Schulz , Edith A. Parker , Adam B. Becker (2001). Community-based Participatory Research: Policy Recommendations for Promoting a Partnership Approach in Health Research . Education for Health: Change in Learning & Practice, 14(2), 182-197. The Network: Towards Unity for Health.
    Crossref OpenAlex OpenCitations
  14. E B Faragher , M Cass , C L Cooper (2005). The relationship between job satisfaction and health: a meta-analysis . Occupational and Environmental Medicine, 62(2), 105-112. BMJ.
    Crossref OpenAlex OpenCitations
  15. Joan Benach , Orielle Solar , Montserrat Vergara , Christophe Vanroelen , Vilma Santana , Antía Castedo et al. (2010). Six Employment Conditions and Health Inequalities: A Descriptive Overview . International Journal of Health Services, 40(2), 269-280. SAGE Publications.
    OpenAlex
  16. Susan M. Burroughs , Lillian T. Eby (1998). Psychological sense of community at work: A measurement system and explanatory framework . Journal of Community Psychology, 26(6), 509-532.
    Type: Article DOI: 10.1002/(sici)1520-6629(199811)26:6 OpenAlex: https://openalex.org/W2033226725 Crossref: not found DataCite: not found
    Crossref OpenAlex OpenCitations
  17. Sally Lindsay , Victoria Osten , Mana Rezai , Sunny Bui (2021). Disclosure and workplace accommodations for people with autism: a systematic review . Disability and Rehabilitation, 43(5), 597-610. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  18. Philip W. Bush , Robert E. Drake , Haiyi Xie , Gregory J. McHugo , William R. Haslett (2009). The Long-Term Impact of Employment on Mental Health Service Use and Costs for Persons With Severe Mental Illness . Psychiatric Services, 60(8), 1024-1031. American Psychiatric Association Publishing.
    Crossref OpenAlex OpenCitations
  19. Julie Lounds Taylor , Leann E. Smith , Marsha R. Mailick (2014). Engagement in Vocational Activities Promotes Behavioral Development for Adults with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 44(6), 1447-1460. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  20. Vickie Pasterski , Liam Gilligan , Richard Curtis (2014). Traits of Autism Spectrum Disorders in Adults with Gender Dysphoria . Archives of Sexual Behavior, 43(2), 387-393. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  21. Jessica Dreaver , Craig Thompson , Sonya Girdler , Margareta Adolfsson , Melissa H. Black , Marita Falkmer (2020). Success Factors Enabling Employment for Adults on the Autism Spectrum from Employers’ Perspective . Journal of Autism and Developmental Disorders, 50(5), 1657-1667. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  22. David Nicholas , Malvina Klag (2020). Critical Reflections on Employment Among Autistic Adults . Autism in Adulthood, 2(4), 289-295. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. Foden T. J. (2008). Adult employment: Strangers in a strange land. http://www.iancommunity.org/cs/articles/strange_land
    Type: Other
    Crossref
  24. David Hagner , Bernard F. Cooney (2005). “I Do That for Everybody”: Supervising Employees With Autism . Focus on Autism and Other Developmental Disabilities, 20(2), 91-97. SAGE Publications.
    Crossref OpenAlex OpenCitations
  25. Lawrence A. Palinkas , Sarah M. Horwitz , Carla A. Green , Jennifer P. Wisdom , Naihua Duan , Kimberly Hoagwood (2015). Purposeful Sampling for Qualitative Data Collection and Analysis in Mixed Method Implementation Research . Administration and Policy in Mental Health and Mental Health Services Research, 42(5), 533-544. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Judith M.S. Gross , Amalia Monroe‐Gulick , Debbie Davidson‐Gibbs , Chad Nye (2018). PROTOCOL: Multifaceted interventions for supporting community participation among adults with disabilities: a systematic review . Campbell Systematic Reviews, 14(1), 1-31. SAGE Publications.
    Type: Article DOI: 10.1002/cl2.214 OpenAlex: https://openalex.org/W2960988987
    Crossref OpenAlex OpenCitations
  27. Theo Lorenc , Mark Rodgers , David Marshall , Hollie Melton , Rebecca Rees , Kath Wright et al. (2018). Support for adults with autism spectrum disorder without intellectual impairment: Systematic review . Autism, 22(6), 654-668. SAGE Publications.
    Crossref OpenAlex OpenCitations
  28. Susan Hayward , Keith R. McVilly , Mark A. Stokes (2019). “I Would Love to Just Be Myself”: What Autistic Women Want at Work . Autism in Adulthood, 1(4), 297-305. SAGE Publications.
    Crossref OpenAlex OpenCitations
  29. Darren Hedley , Mirko Uljarević , Lauren Cameron , Santoshi Halder , Amanda L. Richdale , Cheryl Dissanayake (2017). Employment programmes and interventions targeting adults with autism spectrum disorder: A systematic review of the literature . Autism, 21(8), 929-941. SAGE Publications.
    Crossref OpenAlex OpenCitations
  30. Anna Melissa Romualdez , Brett Heasman , Zachary Walker , Jade Davies , Anna Remington (2021). “People Might Understand Me Better”: Diagnostic Disclosure Experiences of Autistic Individuals in the Workplace . Autism in Adulthood, 3(2), 157-167. SAGE Publications.
    Crossref OpenAlex OpenCitations
  31. Steve Vincent , Joe O'Mahoney (2018). Critical Realism and Qualitative Research: An Introductory Overview . In The SAGE Handbook of Qualitative Business and Management Research Methods: History and Traditions (pp. 201-216). SAGE Publications Ltd.
    Crossref OpenCitations
  32. Human Rights Campaign Foundation. (2018). A workplace divided: Understanding the climate for LGBTQ workers nationwide. https://www.hrc.org/resources/a-workplace-divided-understanding-the-climate-for-lgbtq-workers-nationwide:
    Type: Other
    Crossref
  33. Paul Wehman , Valerie Brooke , Alissa Molinelli Brooke , Whitney Ham , Carol Schall , Jennifer McDonough et al. (2016). Employment for adults with autism spectrum disorders: A retrospective review of a customized employment approach . Research in Developmental Disabilities, 53-54, 61-72. Elsevier BV.
    Crossref OpenAlex OpenCitations
  34. David Nicholas , Mark Attridge , Lonnie Zwaigenbaum , Margaret Clarke (2015). Vocational support approaches in autism spectrum disorder: A synthesis review of the literature . Autism, 19(2), 235-245. SAGE Publications.
    Crossref OpenAlex OpenCitations
  35. Paul Shattuck , Sarah Carter Narendorf , Benjamin Cooper , Paul R. Sterzing , Mary Wagner , Julie Lounds Taylor (2012). Postsecondary Education and Employment Among Youth With an Autism Spectrum Disorder . Pediatrics, 129(6), 1042-1049. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  36. Yoshihiro Kinoshita , Toshi A Furukawa , Kuni Kinoshita , Mina Honyashiki , Ichiro M Omori , Max Marshall et al. (2013). Supported employment for adults with severe mental illness . Cochrane Database of Systematic Reviews, 2013(9), CD008297-CD008297. Wiley.
    Crossref OpenAlex OpenCitations
  37. Julie Lounds Taylor , Melissa L. McPheeters , Nila A. Sathe , Dwayne Dove , Jeremy Veenstra‐VanderWeele , Zachary Warren (2012). A Systematic Review of Vocational Interventions for Young Adults With Autism Spectrum Disorders . Pediatrics, 130(3), 531-538. American Academy of Pediatrics (AAP).
    Crossref OpenAlex OpenCitations
  38. Judith L. M. McCoyd , Toba Schwaber Kerson (2006). Conducting Intensive Interviews Using Email . Qualitative Social Work, 5(3), 389-406. SAGE Publications.
    Crossref OpenAlex OpenCitations
  39. Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… (2015). Community-based participatory research with communities defined by race, ethnicity, and disability: Translating theory to practice . In The SAGE Handbook of Action Research (pp. 167). SAGE Publications Ltd.
    Crossref OpenAlex OpenCitations
  40. Erabaddage Gishan Tharanga Sumanasiri , Mohd Shukri Ab Yajid , Ali Khatibi (2016). Organization-Based Self-Esteem (OBSE) And Its Influence On Self-Perceived Employability (SPE) Of IT Export Sector Employees In Sri Lanka . European Scientific Journal, ESJ, 12(14), 124. European Scientific Institute, ESI.
    Crossref OpenAlex OpenCitations
  41. The National Autism Resource & Information Center. (2018). Employment research and reports. Autism NOW Center. http://autismnow.org/on-the-job/employment-research-and-reports/
    Type: Other
    Crossref
  42. Christiane E. S. Rudolph , Andreas Lundin , Jill W. Åhs , Christina Dalman , Kyriaki Kosidou (2018). Brief Report: Sexual Orientation in Individuals with Autistic Traits: Population Based Study of 47,000 Adults in Stockholm County . Journal of Autism and Developmental Disorders, 48(2), 619-624. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  43. Sandy Thompson-Hodgetts , Chantal Labonte , Rinita Mazumder , Shanon Phelan (2020). Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others . Research in Autism Spectrum Disorders, 77, 101598. Elsevier BV.
    Crossref OpenAlex OpenCitations
  44. Robert Wood Johnson Foundation Qualitative Research Guidelines Project. (2008). Critical or subtle realist paradigm. http://www.qualres.org/HomeCrit-3517.html
    Type: Other
    Crossref
  45. U. S. Bureau of Labor Statistics. (2020). Labor force characteristics by race and ethnicity, 2019. https://www.bls.gov/opub/reports/race-and-ethnicity/2019/home.htm
    Type: Other
    Crossref
  46. U. S. Department of Labor. (2021). Customized employment. https://www.dol.gov/agencies/odep/program-areas/customized-employment
    Type: Other
    Crossref