To address racial disparities in autism research, we must think globally, act locally

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Jones, D. & Mandell, D. S. (2020). To address racial disparities in autism research, we must think globally, act locally. Autism, 24(7), 1587-1589. https://doi.org/10.1177/1362361320948313

Publication date: 30 Sep 2020 Added to AutiHub: 23 Oct 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)
  1. Desiree Jones *
  2. David S Mandell

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 29 Oct 2026 01:01.

Cited references
22
With a DOI
19
Without a DOI, from raw bibliography text
3
0 / 22 (0.0%) cited references include at least one author identified as autistic.
References with data to complete
2 / 22 (9.1%)
References with detected author names
21 / 22 (95.5%)
Without detected author names
1
Without a structured title
2
Without a stable identifier
3
References with raw author names still to review
1
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
98
From DOI or external metadata
98
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
1
9 / 98 (9.2%) names are linked to an author already present in AutiHub. 89 / 98 (90.8%) names are not yet linked.
Names linked to a person identified as autistic
0 / 98 (0.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 0 / 9 (0.0%). Distinct people identified as autistic: 0 / 88 (0.0%).
  1. Chazeman S. Jackson , J. Nadine Gracia (2014). Addressing Health and Health-Care Disparities: The Role of a Diverse Workforce and the Social Determinants of Health . Public Health Reports®, 129(1_suppl2), 57-61. SAGE Publications.
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  2. Marcella Alsan , Owen Garrick , Grant Graziani (2019). Does Diversity Matter for Health? Experimental Evidence from Oakland . American Economic Review, 109(12), 4071-4111. American Economic Association.
    Type: Article DOI: 10.1257/aer.20181446 OpenAlex: https://openalex.org/W2848286189
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  3. Jamie N. Pearson , Hedda Meadan (2018). African American Parents’ Perceptions of Diagnosis and Services for Children with Autism . Education and Training in Autism and Developmental Disabilities, 53(1), 17-32. SAGE Publications.
    Type: Article DOI: 10.1177/215416471805300103 OpenAlex: https://openalex.org/W2883343720
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  4. Sandra Magaña , Susan L. Parish , Esther Son (2015). Have Racial and Ethnic Disparities in the Quality of Health Care Relationships Changed for Children With Developmental Disabilities and ASD? American Journal on Intellectual and Developmental Disabilities, 120(6), 504-513. Informa UK Limited.
    Type: Article DOI: 10.1352/1944-7558-120.6.504 OpenAlex: https://openalex.org/W1827686461
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  5. American College of Physicians (2010). American College of Physicians. (2010). Racial and ethnic disparities in health care, updated 2010. Racial and ethnic disparities in health care, updated 2010.
    Type: Other
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  6. Murad H. Taani , Bev Zabler , Michael Fendrich , Rachel Schiffman (2020). Lessons learned for recruitment and retention of low-income African Americans . Contemporary Clinical Trials Communications, 17, 100533. Elsevier BV.
    Type: Article DOI: 10.1016/j.conctc.2020.100533 OpenAlex: https://openalex.org/W3002399657
    Crossref OpenAlex OpenCitations
  7. David S Mandell , Lisa D. Wiggins , Laura Arnstein Carpenter , Julie Daniels , Carolyn DiGuiseppi , Maureen S. Durkin et al. (2009). Racial/Ethnic Disparities in the Identification of Children With Autism Spectrum Disorders . American Journal of Public Health, 99(3), 493-498. American Public Health Association.
    Type: Article DOI: 10.2105/ajph.2007.131243 OpenAlex: https://openalex.org/W1969090439
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  8. L.Ebony Boulware , Lisa A Cooper , Lloyd E Ratner , Thomas A LaVeist , Neil R Powe (2003). Race and trust in the health care system . Public Health Reports, 118(4), 358-365. SAGE Publications.
    Type: Article DOI: 10.1016/s0033-3549(04)50262-5 OpenAlex: https://openalex.org/W4250013579
    Crossref OpenAlex OpenCitations
  9. David S Mandell , Richard F. Ittenbach , Susan E. Levy , Jennifer A. Pinto-Martin (2007). Disparities in Diagnoses Received Prior to a Diagnosis of Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 37(9), 1795-1802. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-006-0314-8 OpenAlex: https://openalex.org/W2122780702
    Crossref OpenAlex OpenCitations
  10. Jina Jang , Johnny L. Matson , Paige E. Cervantes , Matthew J. Konst (2014). The relationship between ethnicity and age of first concern in toddlers with autism spectrum disorder . Research in Autism Spectrum Disorders, 8(7), 925-932. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2014.04.003 OpenAlex: https://openalex.org/W1985460373
    Crossref OpenAlex OpenCitations
  11. Cantor J. C. (1996). Physician service to the underserved: Implications for affirmative action in medical education . Inquiry, 33(2), 167.
    Type: Other
    Crossref
  12. Thomas A. LaVeist , Amani Nuru-Jeter (2002). Is Doctor-Patient Race Concordance Associated with Greater Satisfaction with Care? Journal of Health and Social Behavior, 43(3), 296. SAGE Publications.
    Type: Article DOI: 10.2307/3090205 OpenAlex: https://openalex.org/W2037884136
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  13. Sarah Dababnah , Wendy E. Shaia , Karen Campion , Helen M. Nichols (2018). “We Had to Keep Pushing”: Caregivers' Perspectives on Autism Screening and Referral Practices of Black Children in Primary Care . Intellectual and Developmental Disabilities, 56(5), 321-336. Informa UK Limited.
    Type: Article DOI: 10.1352/1934-9556-56.5.321 OpenAlex: https://openalex.org/W2894823838
    Crossref OpenAlex OpenCitations
  14. Elizabeth A. West , Jason C. Travers , Talya D. Kemper , Lisa M. Liberty , Debra L. Cote , Meaghan M. McCollow et al. (2016). Racial and Ethnic Diversity of Participants in Research Supporting Evidence-Based Practices for Learners With Autism Spectrum Disorder . The Journal of Special Education, 50(3), 151-163. SAGE Publications.
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    Crossref OpenAlex OpenCitations
  15. Vanessa G. Jarquin , Lisa D. Wiggins , Laura A. Schieve , Kim Van Naarden-Braun (2011). Racial Disparities in Community Identification of Autism Spectrum Disorders Over Time; Metropolitan Atlanta, Georgia, 2000–2006 . Journal of Developmental & Behavioral Pediatrics, 32(3), 179-187. Ovid Technologies (Wolters Kluwer Health).
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  16. Monica Webb Hooper , Charlene Mitchell , Vanessa J. Marshall , Chesley Cheatham , Kristina Austin , Kimberly Sanders et al. (2019). Understanding Multilevel Factors Related to Urban Community Trust in Healthcare and Research . International Journal of Environmental Research and Public Health, 16(18), 3280. MDPI AG.
    Type: Article DOI: 10.3390/ijerph16183280 OpenAlex: https://openalex.org/W2971672763
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  17. INSAR Board of Directors and Cultural Diversity Committee. (2020). INSAR statements on discrimination and the black lives matter movement. https://www.autism-insar.org/page/INSARstatement
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  18. Ibrahima C. Sankaré , Rachelle Bross , Arleen F. Brown , Homero E. del Pino , Loretta F. Jones , D'Ann M. Morris et al. (2015). Strategies to Build Trust and Recruit African American and Latino Community Residents for Health Research: A Cohort Study . Clinical and Translational Science, 8(5), 412-420. Wiley.
    Type: Article DOI: 10.1111/cts.12273 OpenAlex: https://openalex.org/W2129710215
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  19. David R. Williams , Naomi Priest , Norman Anderson (2019). Understanding Associations between Race, Socioeconomic Status, and Health . In The Social Medicine Reader, Volume II, Third Edition (pp. 258-267). Duke University Press.
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  20. Miriam Komaromy , Kevin Grumbach , Michael Drake , Karen Vranizan , Nicole Lurie , Dennis Keane et al. (1996). The Role of Black and Hispanic Physicians in Providing Health Care for Underserved Populations . New England Journal of Medicine, 334(20), 1305-1310. Massachusetts Medical Society.
    Type: Article DOI: 10.1056/nejm199605163342006 OpenAlex: https://openalex.org/W2317610227
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  21. David R. Williams , Naomi Priest , Norman B. Anderson (2016). Understanding associations among race, socioeconomic status, and health: Patterns and prospects. Health Psychology, 35(4), 407-411. American Psychological Association (APA).
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  22. Wendy E. Shaia , Helen M. Nichols , Sarah Dababnah , Karen Campion , Nicole Garbarino (2020). Brief Report: Participation of Black and African-American Families in Autism Research . Journal of Autism and Developmental Disorders, 50(5), 1841-1846. Springer Science and Business Media LLC.
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