Sante et acces aux soins de sante des personnes transgenres et non binaires autistes au Canada : une etude transversale

Titre original en anglais : Health and Health Care Access of Autistic Transgender and Nonbinary People in Canada: A Cross-Sectional Study

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Adams, N., Jacobsen, K., Li, L., Francino, M., Rutherford, L., Tei, C., Scheim, A., & Bauer, G. (2024). Health and Health Care Access of Autistic Transgender and Nonbinary People in Canada: A Cross-Sectional Study. Autism in Adulthood, 7(1), 66-80. https://doi.org/10.1089/aut.2023.0024

Date de publication: 28/03/2024 Ajout dans AutiHub: 30/08/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
1 / 8 (12,5 %)
  1. Noah Adams *
  2. Kai Jacobsen
  3. Lux Li
  4. Matt Francino
  1. Leo Rutherford
  2. ChrŸs Tei
  3. Ayden Scheim
  4. Greta Bauer

Résumé

Contexte : L'existence et les besoins en soins de sante des personnes qui sont a la fois autistes et transgenres et non binaires (TNB) font de plus en plus l'objet de discussions publiques. Bien que les recherches montrant une prevalence plus elevee de l'autisme parmi les personnes TNB continuent de se developper, peu de travaux rendent compte de leurs experiences en matiere de soins primaires, de sante mentale et de soins d'affirmation de genre (GAC), en particulier entre les personnes TNB autistes auto-identifiees et diagnostiquees. Cet article explore cette intersection. Methodes : Nous avons realise une analyse de sous-groupe de l'enquete nationale Trans PULSE Canada 2019 (n = 2873). Nous avons inclus a la fois les personnes ayant declare elles-memes un diagnostic d'autisme (n = 230) et celles qui s'auto-identifiaient comme autistes sans en avoir un (n = 176). Nous avons compare les caracteristiques demographiques des participants, leur etat de sante et leurs experiences en matiere de soins de sante selon le statut autistique (diagnostique, auto-identifie uniquement, ou allistique [non autiste]) a l'aide de tests du chi carre ponderes et d'analyses de regression logistique. Resultats : Parmi les participants a Trans PULSE, 14,3 % etaient autistes (8,1 % diagnostiques, 6,2 % auto-identifies). Comparativement a leurs pairs allistiques, les participants autistes etaient plus jeunes, avaient des niveaux plus faibles d'education, d'emploi et de revenu, et etaient plus susceptibles de s'identifier comme asexuels. Ils ont egalement signale une moins bonne sante generale globale, un taux plus eleve de besoins en soins de sante non satisfaits et des disparites importantes en matiere de sante mentale. Bien que peu de participants autistes diagnostiques (3,7 %) ou auto-identifies (1,1 %) aient declare s'etre vu directement refuser des GAC en raison de l'autisme, 25,5 % des personnes diagnostiquees et 36,1 % des personnes auto-identifiees ont evite de maniere preventive de communiquer des informations a ce sujet lors d'evaluations de l'aptitude aux GAC au cours de l'annee precedente. Conclusions : Nos resultats soulignent la necessite de modifier la prise en charge des personnes TNB autistes dans les soins primaires et de sante mentale. Les recherches futures devraient explorer a la fois les reponses individuelles et les changements systematiques face a ces defis.

Background: The existence and health care needs of individuals who are both autistic and transgender and nonbinary (TNB) are increasingly discussed publicly. While research demonstrating a greater prevalence of autism among TNB individuals continues to grow, little captures their experiences with primary, mental health, and gender-affirming care (GAC), particularly between self-identified and diagnosed autistic TNB individuals. This article explores this nexus. Methods: We conducted a subgroup analysis of the Trans PULSE Canada 2019 national survey (n = 2873). We included both individuals who self-reported a diagnosis of autism (n = 230) and those who self-identify as autistic without one (n = 176). We compared participant demographics, health status, and health care experiences by autistic status (diagnosed, self-identified only, or allistic [non-autistic]) using weighted chi-square tests and logistic regression analyses. Results: Of Trans PULSE participants, 14.3% were autistic (8.1% diagnosed, 6.2% self-identified). Compared with their allistic peers, autistic participants were younger, had lower levels of education, employment, and income, and were more likely to identify as asexual. They also reported worse overall general health, a higher rate of unmet health care needs, and significant mental health disparities. While few diagnosed (3.7%) or self-identified (1.1%) autistic participants reported being directly denied GAC due to autism, 25.5% of diagnosed and 36.1% of self-identified individuals preemptively avoided sharing information about it during GAC readiness assessments in the past year. Conclusions: Our findings highlight the need for changes to treatment of autistic TNB people in primary and mental health care. Future research should explore both individual responses and systematic changes to these challenges.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 18:17.

Références citées
72
Avec un DOI
57
Sans DOI, à partir du texte brut de la bibliographie
15
13 / 72 (18,1 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
13 / 72 (18,1 %)
Références avec noms d’auteurices détectés
59 / 72 (81,9 %)
Sans nom d’auteurice détecté
13
Sans titre structuré
12
Sans identifiant stable
14
Références avec noms bruts d’auteurices restant à vérifier
11
Références avec problème de récupération des métadonnées externes
2
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
264
À partir du DOI ou de métadonnées externes
264
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
12
131 / 264 (49,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 133 / 264 (50,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
21 / 264 (8,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 21 / 131 (16,0 %). Personnes distinctes identifiées comme autistes : 16 / 224 (7,1 %).
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