« Ils pensaient que c'était une obsession » : trajectoires et perspectives d'adolescents autistes transgenres et de genres divers
Titre original en anglais : “They Thought It Was an Obsession”: Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents
Strang, J. F., Powers, M. D., Knauss, M., Sibarium, E., Leibowitz, S., Kenworthy, L., Sadikova, E., Wyss, S. E., Willing, L., Caplan, R., Pervez, N., Nowak, J., Gohari, D., Gomez‐Lobo, V., Call, D., & Anthony, L. G. (2018). “They Thought It Was an Obsession”: Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents. Journal of Autism and Developmental Disorders, 48(12), 4039-4055. https://doi.org/10.1007/s10803-018-3723-6
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Auteurs
Résumé
Malgré les recherches explorant l'autisme chez les adolescents de genres divers, aucune étude n'a recueilli les perspectives de ces individus. Des entretiens approfondis avec 22 adolescents autistes de genres divers bien caractérisés ont révélé des thèmes critiques, notamment : des souvenirs de non-conformité de genre prépubertaire ; des expériences marquantes de dysphorie de genre ; une peur de l'expression sociale du genre due à une animosité perçue envers les personnes transgenres ; et des défis spécifiques résultant de l'interaction entre la diversité de genre et la neurodiversité. Au cours de l'étude d'environ 22 mois, l'affirmation sociale de genre a augmenté chez six participants et la dysphorie de genre s'est atténuée chez quatre participants. Compte tenu de l'impératif éthique de comprendre et de prioriser les perspectives et les besoins exprimés par les adolescents autistes appartenant à une minorité de genre, ainsi que de la mise en évidence de thèmes et d'expériences partagés dans cette population, les résultats devraient orienter les approches et les priorités de la recherche clinique.
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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.
-
Jerry Willis (2007). Foundations of Qualitative Research: Interpretive and Critical Approaches . SAGE Publications, Inc..OpenAlex
-
González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.Crossref OpenAlex OpenCitations
-
Jenifer K. McGuire , Jennifer L. Doty , Jory M. Catalpa , Cindy Ola (2016). Body image in transgender young people: Findings from a qualitative, community based study . Body Image, 18, 96-107. Elsevier BV.Crossref OpenAlex OpenCitations
-
Jack L. Turban (2017). 6.2 Gender Identity and Autism Spectrum Disorder . Journal of the American Academy of Child & Adolescent Psychiatry, 56(10), S9. Elsevier BV.OpenAlex
-
Autistic Self Advocacy Network. (n.d.). Position statements: Nothing about us without us. http://autisticadvocacy.org/about-asan/position-statementsType: AutreCrossref
-
Catherine Lord , Michael Rutter , Ann Le Couteur (1994). Autism Diagnostic Interview-Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders . Journal of Autism and Developmental Disorders, 24(5), 659-685. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Ron Dumont , John O. Willis , Kathleen Veizel , Jamie Zibulsky (2014). Wechsler Intelligence Scale for Children–Fourth Edition . Encyclopedia of Special Education. Wiley.OpenAlex
-
Autistic Self Advocacy Network, National Center for Transgender Equality, & LGBTQ Task Force. (2016). Joint statement on the rights of transgender and gender non-conforming autistic people. http://autisticadvocacy.org/wp-content/uploads/2016/06/joint_statement_trans_autistic_GNC_people.pdfType: AutreCrossref
-
Jojanneke A. Bastiaansen , Harma Meffert , Simone Hein , Petra Huizinga , Cees Ketelaars , Marieke Pijnenborg et al. (2011). Diagnosing Autism Spectrum Disorders in Adults: the Use of Autism Diagnostic Observation Schedule (ADOS) Module 4 . Journal of Autism and Developmental Disorders, 41(9), 1256-1266. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Catherine Lord , Andrew Pickles , John McLennan , Michael Rutter , Joel Bregman , Susan Folstein et al. (1997). Diagnosing Autism: Analyses of Data from the Autism Diagnostic Interview . Journal of Autism and Developmental Disorders, 27(5), 501-517. Springer Science and Business Media LLC.Crossref OpenAlex
-
Sarah Bargiela , Robyn Steward *Auteur·ice autiste. En savoir plus… , Will Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.
-
Elizabeth K. Cridland , Sandra Thom-Jones *Auteur·ice autiste. En savoir plus… , Peter Caputi , Chris Magee (2014). Being a Girl in a Boys’ World: Investigating the Experiences of Girls with Autism Spectrum Disorders During Adolescence . Journal of Autism and Developmental Disorders, 44(6), 1261-1274. Springer Science and Business Media LLC.
-
Emily M. Lund (2014). Social Communication Questionnaire . Encyclopedia of Special Education. Wiley.OpenAlex
-
James R. Barker (1993). Tightening the Iron Cage: Concertive Control in Self-Managing Teams . Administrative Science Quarterly, 38(3), 408. JSTOR.Crossref OpenAlex OpenCitations
-
John F. Strang , Haley Meagher , Lauren Kenworthy , A. de Vries , Edgardo Menvielle , Scott Leibowitz et al. (2018). Initial Clinical Guidelines for Co-Occurring Autism Spectrum Disorder and Gender Dysphoria or Incongruence in Adolescents . Journal of Clinical Child & Adolescent Psychology, 47(1), 105-115. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Joseph J. Ryan , Shane J. Lopez (2001). Wechsler Adult Intelligence Scale-III . Dans Understanding Psychological Assessment (pp. 19-42). Springer US.OpenAlex
-
Emma Williams , Kate Gleeson , Bridget E Jones (2019). How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis . Autism, 23(1), 8-28. SAGE Publications.Crossref OpenAlex OpenCitations
-
Sibel Kazak Berument , Michael Rutter , Catherine Lord , Andrew Pickles , Anthony Bailey (1999). Autism screening questionnaire: Diagnostic validity . British Journal of Psychiatry, 175(5), 444-451. Royal College of Psychiatrists.OpenAlex OpenCitations
-
SK Berument (1999). Berument, S. K., Rutter, M., Lord, C., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: Diagnostic validity. The British Journal of Psychiatry: The Journal of Mental Science, 175(5), 444–451. https://doi.org/10 . 1192/bjp. 175. 5. 44 The British Journal of Psychiatry: The Journal of Mental Science, 175(5), 444.Crossref
-
Nicola K Gale , Gemma Heath , Elaine Cameron , Sabina Rashid , Sabi Redwood (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research . BMC Medical Research Methodology, 13(1), 117-117. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Marta R. Bizic , Milos Jeftovic , Slavica Pusica , Borko Stojanovic , Dragana Duisin , Svetlana Vujovic et al. (2018). Gender Dysphoria: Bioethical Aspects of Medical Treatment . BioMed Research International, 2018, 1-6. Wiley.Crossref OpenAlex OpenCitations
-
Francesca Happé , Uta Frith (2006). The Weak Coherence Account: Detail-focused Cognitive Style in Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 36(1), 5-25. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Sven Bölte , Fritz Poustka , John N. Constantino (2008). Assessing autistic traits: cross‐cultural validation of the social responsiveness scale (SRS) . Autism Research, 1(6), 354-363. Wiley.Crossref OpenAlex OpenCitations
-
Katerina Papanikolaou , Elena Paliokosta , Giorgos Houliaras , Sofia Vgenopoulou , Eleni Giouroukou , Artemios Pehlivanidis et al. (2009). Using the Autism Diagnostic Interview-Revised and the Autism Diagnostic Observation Schedule-Generic for the Diagnosis of Autism Spectrum Disorders in a Greek Sample with a Wide Range of Intellectual Abilities . Journal of Autism and Developmental Disorders, 39(3), 414-420. Springer Science and Business Media LLC.OpenAlex OpenCitations
-
Lori Krasny , Brenda J Williams , Sherri Provencal , Sally Ozonoff (2003). Social skills interventions for the autism spectrum: essential ingredients and a model curriculum . Child and Adolescent Psychiatric Clinics of North America, 12(1), 107-122. Elsevier BV.Crossref OpenAlex OpenCitations
-
SUSIE CHANDLER , Tony Charman , GILLIAN BAIRD , Emily Simonoff , TOM LOUCAS , DAVID MELDRUM et al. (2007). Validation of the Social Communication Questionnaire in a Population Cohort of Children With Autism Spectrum Disorders . Journal of the American Academy of Child & Adolescent Psychiatry, 46(10), 1324-1332. Elsevier BV.Crossref OpenAlex OpenCitations
-
E. Coleman , W. Bockting , M. Botzer , P. Cohen-Kettenis , G. DeCuypere , Jacob I. Feldman et al. (2012). Standards of Care for the Health of Transsexual, Transgender, and Gender-Nonconforming People, Version 7 . International Journal of Transgenderism, 13(4), 165-232. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Kylie M. Gray , Bruce J. Tonge , Deborah J. Sweeney (2008). Using the Autism Diagnostic Interview-Revised and the Autism Diagnostic Observation Schedule with Young Children with Developmental Delay: Evaluating Diagnostic Validity . Journal of Autism and Developmental Disorders, 38(4), 657-667. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Hannah Cholemkery , Laura Mojica , Sonja Rohrmann , Angelika Gensthaler , Christine M. Freitag (2014). Can Autism Spectrum Disorders and Social Anxiety Disorders be Differentiated by the Social Responsiveness Scale in Children and Adolescents? Journal of Autism and Developmental Disorders, 44(5), 1168-1182. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Samantha J. Gridley , Julia M. Crouch , Yolanda Evans , Whitney Eng , Emily Antoon , Melissa Lyapustina et al. (2016). Youth and Caregiver Perspectives on Barriers to Gender-Affirming Health Care for Transgender Youth . Journal of Adolescent Health, 59(3), 254-261. Elsevier BV.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Auteur·ice autiste. En savoir plus… , Katherine McDonald , Sebastian Dern , W. Cody Boisclair *Auteur·ice autiste. En savoir plus… , Elesia Ashkenazy *Auteur·ice autiste. En savoir plus… et al. (2013). Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership . Journal of General Internal Medicine, 28(6), 761-769. Springer Science and Business Media LLC.
-
Jack L. Turban , Gerrit I. van Schalkwyk (2018). “Gender Dysphoria” and Autism Spectrum Disorder: Is the Link Real? Journal of the American Academy of Child & Adolescent Psychiatry, 57(1), 8-9.e2. Elsevier BV.Crossref OpenAlex OpenCitations
-
Elin Skagerberg , Domenico Di Ceglie , Polly Carmichael (2015). Brief Report: Autistic Features in Children and Adolescents with Gender Dysphoria . Journal of Autism and Developmental Disorders, 45(8), 2628-2632. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
J Constantino (2012). Social Responsiveness Scale 2 (SRS 2) . Social Responsiveness Scale 2 (SRS 2).Type: AutreCrossref
-
Christina Corsello , Vanessa Hus , Andrew Pickles , Susan Risi , Edwin H. Cook , Bennett L. Leventhal et al. (2007). Between a ROC and a hard place: decision making and making decisions about using the SCQ . Journal of Child Psychology and Psychiatry, 48(9), 932-940. Wiley.Crossref OpenAlex OpenCitations
-
Blythe A. Corbett , Deanna M. Swain , Catherine Coke , David Simon , Cassandra Newsom , Nea Houchins‐Juarez et al. (2014). Improvement in Social Deficits in Autism Spectrum Disorders Using a Theatre‐Based, Peer‐Mediated Intervention . Autism Research, 7(1), 4-16. Wiley.Crossref OpenAlex OpenCitations
-
Daniel E. Shumer , Sari L. Reisner , Laura Edwards-Leeper , Amy C. Tishelman (2016). Evaluation of Asperger Syndrome in Youth Presenting to a Gender Dysphoria Clinic . LGBT Health, 3(5), 387-390. SAGE Publications.Crossref OpenAlex OpenCitations
-
Janet E. Lainhart , Erin D. Bigler , Maureen Bocian , Hilary Coon , Elena Dinh , Géraldine Dawson et al. (2006). Head circumference and height in autism: A study by the collaborative program of excellence in autism . American Journal of Medical Genetics Part A, 140A(21), 2257-2274. Wiley.Crossref OpenAlex OpenCitations
-
Hane Lee , Alison R. Marvin , Tamara Watson , Judith Piggot , J. Kiely Law , Paul A. Law et al. (2010). Accuracy of phenotyping of autistic children based on internet implemented parent report . American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 153B(6), 1119-1126. Wiley.Crossref OpenAlex OpenCitations
-
A. de Vries , Thomas D. Steensma , Theo A.H. Doreleijers , Peggy T. Cohen-Kettenis (2011). Puberty Suppression in Adolescents With Gender Identity Disorder: A Prospective Follow-Up Study . The Journal of Sexual Medicine, 8(8), 2276-2283. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Leena Nahata , Gwendolyn P. Quinn , Nicole M. Caltabellotta , Amy C. Tishelman (2017). Mental Health Concerns and Insurance Denials Among Transgender Adolescents . LGBT Health, 4(3), 188-193. SAGE Publications.Crossref OpenAlex OpenCitations
-
A. de Vries , Ilse Noens , Peggy T. Cohen-Kettenis , Ina A. van Berckelaer-Onnes , Theo A. Doreleijers (2010). Autism Spectrum Disorders in Gender Dysphoric Children and Adolescents . Journal of Autism and Developmental Disorders, 40(8), 930-936. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Vanessa Hus , Catherine Lord (2014). The Autism Diagnostic Observation Schedule, Module 4: Revised Algorithm and Standardized Severity Scores . Journal of Autism and Developmental Disorders, 44(8), 1996-2012. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Ellis, R. (2016). Transgender man with Asperger’s killed by Mesa, Arizona, police. Cable News Network (CNN). http://www.cnn.com/2016/02/06/us/transgender-man-with-aspergers-killed/index.htmlType: AutreCrossref
-
Caroline Moul , Avril Cauchi , David J. Hawes , John Brennan , Mark R. Dadds (2015). Differentiating Autism Spectrum Disorder and Overlapping Psychopathology with a Brief Version of the Social Responsiveness Scale . Child Psychiatry & Human Development, 46(1), 108-117. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Anna I. R. van der Miesen , A. de Vries , Thomas D. Steensma , Catharina A. Hartman (2018). Autistic Symptoms in Children and Adolescents with Gender Dysphoria . Journal of Autism and Developmental Disorders, 48(5), 1537-1548. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Aoife Hickey , Jason Crabtree , Joshua Stott (2018). ‘Suddenly the first fifty years of my life made sense’: Experiences of older people with autism . Autism, 22(3), 357-367. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kenneth J. Zucker , A. Natisha Nabbijohn , Alanna Santarossa , Hayley Wood , Susan J. Bradley , Joanna Matthews et al. (2017). Intense/obsessional interests in children with gender dysphoria: a cross-validation study using the Teacher’s Report Form . Child and Adolescent Psychiatry and Mental Health, 11(1), 51-51. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Vicky Holt , Elin Skagerberg , Michael Dunsford (2016). Young people with features of gender dysphoria: Demographics and associated difficulties . Clinical Child Psychology and Psychiatry, 21(1), 108-118. SAGE Publications.Crossref OpenAlex OpenCitations
-
A Kol (2016). Transfixed [Motion picture] . Transfixed [Motion picture].Type: AutreCrossref
-
Catherine Lord , Susan Risi , Linda Lambrecht , Edwin H. Cook , Bennett L. Leventhal , Pamela C. DiLavore et al. (2000). The Autism Diagnostic Observation Schedule—Generic: A Standard Measure of Social and Communication Deficits Associated with the Spectrum of Autism . Journal of Autism and Developmental Disorders, 30(3), 205-223. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Catherine Lord (2012). Autism Diagnostic Observation Schedule . Autism diagnostic observation schedule.Type: AutreCrossref
-
Sarah E. Valentine , Jillian C. Shipherd (2018). A systematic review of social stress and mental health among transgender and gender non-conforming people in the United States . Clinical Psychology Review, 66, 24-38. Elsevier BV.Crossref OpenAlex OpenCitations
-
Frederick T. L. Leong (2008). Diagnostic and Statistical Manual of Mental Disorders(DSM) . Encyclopedia of Counseling. SAGE Publications, Inc..OpenAlex
-
Gary B. Mesibov , Victoria Shea , Eric Schopler , Lynn Adams , Elif Merkler , Sloane Burgess et al. (2004). The Teacch Approach to Autism Spectrum Disorders . Springer US.Crossref OpenAlex OpenCitations
-
Stephen T. Russell , Amanda M. Pollitt , Gu Li , Arnold H. Grossman (2018). Chosen Name Use Is Linked to Reduced Depressive Symptoms, Suicidal Ideation, and Suicidal Behavior Among Transgender Youth . Journal of Adolescent Health, 63(4), 503-505. Elsevier BV.OpenAlex OpenCitations
-
J Ritchie (2003). Practice: A guide for social science students and researchers . Practice: A Guide for Social Science Students and Researchers.Type: AutreCrossref
-
ST Russell (2018). Russell, S. T., Pollitt, A. M., Li, G., & Grossman, A. H. (2018). Chosen name use is linked to reduced depressive symptoms, suicidal ideation, and suicidal behavior among transgender youth. Journal of Adolescent Health. https://doi.org/10 . 1016/jadohealth. 2018. 02. 003 Journal of Adolescent Health.Crossref
-
M Rutter (2003). The Social Communication Questionnaire . The Social Communication Questionnaire.Type: AutreCrossref
-
Catherine Lord , Michael Rutter , Susan Goode , Jacquelyn Heemsbergen , Heather Jordan , Lynn Mawhood et al. (2016). Autism Diagnostic Observation Schedule . PsycTESTS Dataset. American Psychological Association (APA).OpenAlex
-
GI Schalkwyk van (2015). van Schalkwyk, G. I., Klingensmith, K., & Volkmar, F. R (2015). Gender identity and autism spectrum disorders. The Yale Journal of Biology and Medicine. 88(1), 81–83. The Yale Journal of Biology and Medicine, 88(1), 81.Type: AutreCrossref
-
So Hyun Kim , Catherine Lord (2018). Autism Diagnostic Observation Schedule . Dans Encyclopedia of Clinical Neuropsychology (pp. 1-6). Springer International Publishing.Type: Chapitre de livre DOI: 10.1007/978-3-319-56782-2_1520-2 OpenAlex: https://openalex.org/W4245291020OpenAlex
-
David Wechsler (2012). Wechsler Intelligence Scale for Children, Fourth Edition . PsycTESTS Dataset. American Psychological Association (APA).Crossref OpenAlex
-
D Wechsler (2008). Wechsler Adult Intelligence Scale-IV . Wechsler Adult Intelligence Scale-IV.Type: AutreCrossref
-
Anne Snow (2013). Social Communication Questionnaire . Dans Encyclopedia of Autism Spectrum Disorders (pp. 2893-2895). Springer New York.Type: Chapitre de livre DOI: 10.1007/978-1-4419-1698-3_1651 OpenAlex: https://openalex.org/W4250855288OpenAlex