Où sont tous les services : cartographie des services communautaires destinés aux jeunes autistes canadiens présentant des troubles de santé mentale concomitants

Titre original en anglais : Where are all the Services: Mapping Community-Based Services for Canadian Autistic Youth with Co-occurring Mental Health Conditions

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Andreasen, S., Kuntz, J., Ames, M. E., Coombs, E., & McMorris, C. A. (2024). Where are all the Services: Mapping Community-Based Services for Canadian Autistic Youth with Co-occurring Mental Health Conditions. Journal of Autism and Developmental Disorders, 56(5), 1866-1879. https://doi.org/10.1007/s10803-024-06681-z

Date de publication: 23/12/2024 Ajout dans AutiHub: 09/08/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Stephanie Andreasen
  2. Jennifer Kuntz
  3. Megan E. Ames
  4. Emily Coombs *
  5. Carly A. McMorris

Résumé

OBJECTIF : Les jeunes autistes présentent un risque accru de problèmes de santé mentale et rencontrent plusieurs obstacles à l'accès à des soutiens appropriés. Le manque de services disponibles constitue un obstacle fréquent auquel sont confrontés de nombreux jeunes autistes, seuls 43 % des jeunes autistes aux États-Unis ayant besoin de services de santé mentale les ayant reçus. On sait peu de choses sur la disponibilité de ces services de santé mentale au Canada, malgré la forte prévalence des problèmes de santé mentale chez les jeunes autistes. La présente étude est l'une des très rares à avoir examiné l'état des programmes et services communautaires visant à soutenir les difficultés de santé mentale chez les personnes autistes en Amérique du Nord, et la première étude de ce type au Canada. MÉTHODES : À l'aide d'une méthodologie d'analyse environnementale, nous avons effectué une recherche dans des listes de ressources figurant sur divers sites Web communautaires en appliquant un filtre pour « autism ». Les sites Web obtenus ont ensuite été examinés afin de déterminer quels services les prestataires offrent aux jeunes autistes (≥ 25 ans), puis les prestataires ont été contactés afin de répondre à une enquête. RÉSULTATS : 267 inscriptions de soutiens en santé mentale ont été recensées lors de la recherche initiale, dont 94 sites mentionnant spécifiquement qu'ils desservaient des jeunes autistes. Quarante-trois pour cent (n = 40) des prestataires de services ont répondu à une enquête sur les services qu'ils offraient, les approches thérapeutiques et leur formation de base. Les prestataires ont indiqué que les approches de neurodiversité et les équipes multidisciplinaires fonctionnaient bien dans leurs pratiques, mais que l'accès au financement et les perceptions de la société à l'égard de l'autisme constituaient des obstacles auxquels ils sont confrontés. CONCLUSION : Les résultats s'ajoutent à l'ensemble croissant de données probantes indiquant que la disponibilité des services constitue un obstacle systémique auquel sont confrontés de nombreux jeunes autistes lorsqu'ils accèdent à des soutiens en santé mentale.

PURPOSE: Autistic youth are at heightened risk of mental health issues and face several barriers to accessing appropriate supports. A lack of available services is a common barrier that many autistic youth experience, with only 43% of autistic youth from the US who needed mental health services receiving them. Little is known about the availability of these mental health services in Canada, despite the high prevalence of mental health issues in autistic youth. The current study is one of very few that has reviewed the state of community-based programs and services for the support of mental health challenges in autistic people in North America, and the first such study in Canada. METHODS: Using an environmental scan methodology, we conducted a search of resource listings on various community websites with a filter for "autism". The resulting websites were then reviewed to find what services providers offer for autistic youth (≥ 25 years) and contacted to complete a survey. RESULTS: 267 listings of mental health supports were identified in the initial search, with 94 sites that specifically mentioned serving autistic youth. 43% (n = 40) of service providers completed a survey about the services they offered, therapeutic approaches, and background training. Providers reported that neurodiversity approaches and multi-disciplinary teams were working well in their practices, yet funding access and society's views on autism were barriers they face. CONCLUSION: Findings add to the growing body of evidence that availability of services is a systemic barrier that many autistic youth experience when accessing mental health supports.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 16:12.

Références citées
90
Avec un DOI
73
Sans DOI, à partir du texte brut de la bibliographie
14
4 / 90 (4,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
16 / 90 (17,8 %)
Références avec noms d’auteurices détectés
78 / 90 (86,7 %)
Sans nom d’auteurice détecté
12
Sans titre structuré
15
Sans identifiant stable
14
Références avec noms bruts d’auteurices restant à vérifier
1
Références avec problème de récupération des métadonnées externes
2
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
370
À partir du DOI ou de métadonnées externes
370
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
23
115 / 370 (31,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 255 / 370 (68,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
6 / 370 (1,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 6 / 115 (5,2 %). Personnes distinctes identifiées comme autistes : 6 / 332 (1,8 %).
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