Où sont tous les services : cartographie des services communautaires destinés aux jeunes autistes canadiens présentant des troubles de santé mentale concomitants
Titre original en anglais : Where are all the Services: Mapping Community-Based Services for Canadian Autistic Youth with Co-occurring Mental Health Conditions
Andreasen, S., Kuntz, J., Ames, M. E., Coombs, E. C., & McMorris, C. A. (2024). Where are all the Services: Mapping Community-Based Services for Canadian Autistic Youth with Co-occurring Mental Health Conditions. Journal of Autism and Developmental Disorders, 56(5), 1866-1879. https://doi.org/10.1007/s10803-024-06681-z
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Résumé
OBJECTIF : Les jeunes autistes présentent un risque accru de problèmes de santé mentale et rencontrent plusieurs obstacles à l'accès à des soutiens appropriés. Le manque de services disponibles constitue un obstacle fréquent auquel sont confrontés de nombreux jeunes autistes, seuls 43 % des jeunes autistes aux États-Unis ayant besoin de services de santé mentale les ayant reçus. On sait peu de choses sur la disponibilité de ces services de santé mentale au Canada, malgré la forte prévalence des problèmes de santé mentale chez les jeunes autistes. La présente étude est l'une des très rares à avoir examiné l'état des programmes et services communautaires visant à soutenir les difficultés de santé mentale chez les personnes autistes en Amérique du Nord, et la première étude de ce type au Canada. MÉTHODES : À l'aide d'une méthodologie d'analyse environnementale, nous avons effectué une recherche dans des listes de ressources figurant sur divers sites Web communautaires en appliquant un filtre pour « autism ». Les sites Web obtenus ont ensuite été examinés afin de déterminer quels services les prestataires offrent aux jeunes autistes (≥ 25 ans), puis les prestataires ont été contactés afin de répondre à une enquête. RÉSULTATS : 267 inscriptions de soutiens en santé mentale ont été recensées lors de la recherche initiale, dont 94 sites mentionnant spécifiquement qu'ils desservaient des jeunes autistes. Quarante-trois pour cent (n = 40) des prestataires de services ont répondu à une enquête sur les services qu'ils offraient, les approches thérapeutiques et leur formation de base. Les prestataires ont indiqué que les approches de neurodiversité et les équipes multidisciplinaires fonctionnaient bien dans leurs pratiques, mais que l'accès au financement et les perceptions de la société à l'égard de l'autisme constituaient des obstacles auxquels ils sont confrontés. CONCLUSION : Les résultats s'ajoutent à l'ensemble croissant de données probantes indiquant que la disponibilité des services constitue un obstacle systémique auquel sont confrontés de nombreux jeunes autistes lorsqu'ils accèdent à des soutiens en santé mentale.
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