The INSAR Community Collaborator Request: Using community–academic partnerships to enhance outcomes of participatory autism research

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Poulsen, R., Dwyer, P., Gassner, D. L., Heyworth, M., & Williams, Z. J. (2023). The INSAR Community Collaborator Request: Using community–academic partnerships to enhance outcomes of participatory autism research. Autism Research, 16(11), 2071-2076. https://doi.org/10.1002/aur.3027

Publication date: 9 Sep 2023 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
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Authors

Publication authors
5
Publication authors identified as autistic
5 / 5 (100.0%)
  1. Rebecca Poulsen *
  2. Patrick Dwyer *
  3. Dena L. Gassner *
  4. Melanie Heyworth *
  5. Zachary J. Williams *

Abstract

Participatory approaches, in which researchers work together with members of the autism community (e.g., autistic people, family members, caregivers, or other stakeholders) to design, conduct, and disseminate research, have become increasingly prominent within the field of autism research over the past decade. Despite growing academic and community interest in conducting participatory studies, stakeholder collaboration remains infrequent in autism research, at least partially due to systemic barriers. To help reduce barriers to engaging in participatory autism research, the International Society for Autism Research (INSAR) Autistic Researchers Committee has launched the INSAR Community Collaborator Request (ICCR; https://www.autism-insar.org/page/iccr), a platform on the INSAR website that allows autism researchers conducting participatory research to seek out stakeholder collaborators from the autism community (including both autistic people and their family members/caregivers, as relevant to a given research project). Interested stakeholders also have the opportunity to subscribe to ICCR posts, allowing them to be alerted of new opportunities for collaboration and potentially increasing their involvement in autism research. Overall, the ICCR provides a venue to connect autism researchers with potential community collaborators, reducing barriers to participatory autism research and increasing the frequency of successful community-academic partnerships within the field. We are hopeful that in the long term, such changes will lead to greater alignment between research outputs and the goals of the greater autism community, and consequently an increase in the overall quality and relevance of autism research.

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These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
39
Total cited references integrated for this publication.
Cited references with an identified autistic author
20 / 39 (51.3%)
Cited author occurrences identified as autistic
88 / 218 (40.4%)
Among occurrences linked to AutiHub author records: 88 / 168 (52.4%). Distinct cited authors identified as autistic: 65 / 173 (37.6%).
Cited author occurrences linked to AutiHub author records
168 / 218 (77.1%)
Distinct linked cited authors: 128 / 173 (74.0%)
Linked cited-author occurrences not identified as autistic
80 / 168 (47.6%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 80 / 218 (36.7%). Distinct linked cited authors not identified as autistic: 63 / 128 (49.2%).
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