The INSAR Community Collaborator Request: Using community–academic partnerships to enhance outcomes of participatory autism research

This publication is included in the Autistic Autism Scholarship Project. five authors of this publication are identified as autistic in the project.

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Poulsen, R. E., Dwyer, P., Gassner, D. L., Heyworth, M., & Williams, Z. J. (2023). The INSAR Community Collaborator Request: Using community–academic partnerships to enhance outcomes of participatory autism research. Autism Research, 16(11), 2071-2076. https://doi.org/10.1002/aur.3027

Publication date: 9 Sep 2023 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
5
Publication authors identified as autistic
5 / 5 (100.0%)
  1. Rebecca E. Poulsen *
  2. Patrick Dwyer *
  3. Dena L. Gassner *
  4. Melanie Heyworth *
  5. Zachary J. Williams *

Abstract

Participatory approaches, in which researchers work together with members of the autism community (e.g., autistic people, family members, caregivers, or other stakeholders) to design, conduct, and disseminate research, have become increasingly prominent within the field of autism research over the past decade. Despite growing academic and community interest in conducting participatory studies, stakeholder collaboration remains infrequent in autism research, at least partially due to systemic barriers. To help reduce barriers to engaging in participatory autism research, the International Society for Autism Research (INSAR) Autistic Researchers Committee has launched the INSAR Community Collaborator Request (ICCR; https://www.autism-insar.org/page/iccr), a platform on the INSAR website that allows autism researchers conducting participatory research to seek out stakeholder collaborators from the autism community (including both autistic people and their family members/caregivers, as relevant to a given research project). Interested stakeholders also have the opportunity to subscribe to ICCR posts, allowing them to be alerted of new opportunities for collaboration and potentially increasing their involvement in autism research. Overall, the ICCR provides a venue to connect autism researchers with potential community collaborators, reducing barriers to participatory autism research and increasing the frequency of successful community-academic partnerships within the field. We are hopeful that in the long term, such changes will lead to greater alignment between research outputs and the goals of the greater autism community, and consequently an increase in the overall quality and relevance of autism research.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
39
With a DOI
37
Without a DOI, from raw bibliography text
1
22 / 39 (56.4%) cited references include at least one author identified as autistic.
References with data to complete
1 / 39 (2.6%)
References with detected author names
38 / 39 (97.4%)
Without detected author names
1
Without a structured title
1
Without a stable identifier
1
References with raw author names still to review
1
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
218
From DOI or external metadata
218
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
1
178 / 218 (81.7%) names are linked to an author already present in AutiHub. 40 / 218 (18.3%) names are not yet linked.
Names linked to a person identified as autistic
121 / 218 (55.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 121 / 178 (68.0%). Distinct people identified as autistic: 94 / 171 (55.0%).
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