A Spectrum of Understanding: A Qualitative Exploration of Autistic Adults' Understandings and Perceptions of Friendship(s)
This publication is included in the Autistic Autism Scholarship Project. The publication reports one autistic author, without identifying them by name.
Gillespie-Smith, K., Mair, A. P. A., Alabtullatif, A., Pain, H., & McConachie, D. (2024). A Spectrum of Understanding: A Qualitative Exploration of Autistic Adults' Understandings and Perceptions of Friendship(s). Autism in Adulthood, 6(4), 438-450. https://doi.org/10.1089/aut.2023.0051
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Authors
Abstract
Background: Previous research has often documented that friendship is an area of difficulty for autistic people, however this may be caused by a neurotypical understanding of friendship. The current study aimed at adopting a more inclusive account of friendship, involving an autistic participant group representing a range of genders and communication preferences while exploring the following question—What are autistic adults' perceptions of friendships? Method: Participants (n = 20) were interviewed using their preferred method of communication (speaking and non-speaking) during 2021–2022. Results: The results showed that three main themes emerged under an overarching theme of A Spectrum of Understanding: Identity with Others, Sharing Value, and Shared Presence. The inclusive approaches used in the current study allowed under-researched autistic groups such as non-speaking autistic people and autistic people who identify as non-binary to participate in meaningful research. Conclusions: The study offers a new perspective on the Double Empathy theory, suggesting it may be helpful to conceptualize it as a continuum of neuro-cultural learning rather than a distinctive binary centered on an autistic-allistic misunderstanding. Increased understanding of friendships in autistic groups will help to increase awareness of social belonging and support that can protect against poor mental health outcomes.
Bibliography cited by this reference
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Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 28 Oct 2026 01:01.
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- 57
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- 9
- References with detected author names
- 64 / 66 (97.0%)
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- 2
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- 2
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- References with raw author names still to review
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- 0
- From DOI or external metadata
- 202
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- 0
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- 0
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Nirit Bauminger , Cory Shulman (2003). The Development and Maintenance of Friendship in High-Functioning Children with Autism . Autism, 7(1), 81-97. SAGE Publications.Crossref OpenAlex OpenCitations
-
González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.Crossref OpenAlex OpenCitations
-
Lennard J. Davis (2002). Bending Over Backwards . New York University Press.Type: Book DOI: 10.18574/nyu/9781479820115.001.0001Crossref OpenCitations
-
Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Nirit Bauminger , Cory Shulman , Galit Agam (2004). The Link Between Perceptions of Self and of Social Relationships in High-Functioning Children with Autism . Journal of Developmental and Physical Disabilities, 16(2), 193-214. Springer Science and Business Media LLC.Crossref OpenCitations
-
Melissa H. Kuo , Gael I. Orsmond , Ellen S. Cohn , Wendy J. Coster (2013). Friendship characteristics and activity patterns of adolescents with an autism spectrum disorder . Autism, 17(4), 481-500. SAGE Publications.Crossref OpenAlex OpenCitations
-
Ellen Kohl , Priscilla McCutcheon (2015). Kitchen table reflexivity: negotiating positionality through everyday talk . Gender, Place & Culture, 22(6), 747-763. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Meliksah Demir , Kathryn A Urberg (2004). Friendship and adjustment among adolescents . Journal of Experimental Child Psychology, 88(1), 68-82. Elsevier BV.Crossref OpenAlex OpenCitations
-
Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of Autism Acceptance and Mental Health in Autistic Adults . Journal of Autism and Developmental Disorders, 48(2), 473-484. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Melikşah Demir , Metin Özdemir (2010). Friendship, Need Satisfaction and Happiness . Journal of Happiness Studies, 11(2), 243-259. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Julie C. Wojslawowicz. Bowker , Kenneth H. Rubin , Kim B. Burgess , Cathryn Booth-LaForce , Linda Rose-Krasnor (2006). Behavioral Characteristics Associated with Stable and Fluid Best Friendship Patterns in Middle Childhood . Merrill-Palmer Quarterly, 52(4), 671-693. Project MUSE.Crossref OpenAlex OpenCitations
-
Gerrit I. van Schalkwyk , Carla E. Marin , Mayra Ortiz , Max Rolison , Zheala Qayyum , James C. McPartland et al. (2017). Social Media Use, Friendship Quality, and the Moderating Role of Anxiety in Adolescents with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 47(9), 2805-2813. Springer Science and Business Media LLC.Crossref OpenCitations
-
Diane L. Wolf (2011). Emotions in the Field: The Psychology and Anthropology of Fieldwork Experience . Contemporary Sociology: A Journal of Reviews, 40(2), 166-167. SAGE Publications.OpenAlex
-
Sarah Bargiela , Robyn Steward *Autistic author. Learn more… , William Mandy (2016). The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype . Journal of Autism and Developmental Disorders, 46(10), 3281-3294. Springer Science and Business Media LLC.
-
Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.
-
Robert B. Hays (1984). The Development and Maintenance of Friendship . Journal of Social and Personal Relationships, 1(1), 75-98. SAGE Publications.Crossref OpenAlex OpenCitations
-
Nirit Bauminger , Marjorie Solomon , Anat Aviezer , Kelly Heung , John Brown , Sally J. Rogers (2008). Friendship in High-functioning Children with Autism Spectrum Disorder: Mixed and Non-mixed Dyads . Journal of Autism and Developmental Disorders, 38(7), 1211-1229. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Debra L. Oswald , Eddie M. Clark , Cheryl M. Kelly (2004). Friendship Maintenance: An Analysis of Individual and Dyad Behaviors . Journal of Social and Clinical Psychology, 23(3), 413-441. Guilford Publications.Type: Article DOI: 10.1521/jscp.23.3.413.35460Crossref OpenCitations
-
Neysa Petrina , Mark Carter , Jennifer Stephenson (2014). The nature of friendship in children with autism spectrum disorders: A systematic review . Research in Autism Spectrum Disorders, 8(2), 111-126. Elsevier BV.Crossref OpenAlex OpenCitations
-
Linda C. Eaves , Helena H. Ho (2008). Young Adult Outcome of Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 38(4), 739-747. Springer Science and Business Media LLC.Crossref OpenCitations
-
Andrew Whitehouse , Helen J. Watt , E. A. Line , Dorothy V. M. Bishop (2009). Adult psychosocial outcomes of children with specific language impairment, pragmatic language impairment and autism . International Journal of Language & Communication Disorders, 44(4), 511-528. Wiley.Crossref OpenAlex OpenCitations
-
Gemma Williams *Autistic author. Learn more… , Tim Wharton , Caroline Jagoe (2021). Mutual (Mis)understanding: Reframing Autistic Pragmatic “Impairments” Using Relevance Theory . Frontiers in Psychology, 12(12), 121. Frontiers Media SA.
-
Gazi F Azad , Jill Locke , Connie Kasari , David S Mandell (2017). Race, disability, and grade: Social relationships in children with autism spectrum disorders . Autism, 21(1), 92-99. SAGE Publications.Crossref OpenAlex OpenCitations
-
Charlotte Brownlow , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Lindsay O’Dell (2015). Exploring the potential for social networking among people with autism: challenging dominant ideas of ‘friendship’ . Scandinavian Journal of Disability Research, 17(2), 188-193. Stockholm University Press.
-
Marsha Mailick Seltzer , Marty Wyngaarden Krauss , Paul Shattuck , Gael Orsmond , April Swe , Catherine Lord (2003). The Symptoms of Autism Spectrum Disorders in Adolescence and Adulthood . Journal of Autism and Developmental Disorders, 33(6), 565-581. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Vikram K. Jaswal , Nameera Akhtar (2019). Being versus appearing socially uninterested: Challenging assumptions about social motivation in autism . Behavioral and Brain Sciences, 42, 1. Cambridge University Press (CUP).Crossref OpenCitations
-
Wyndol Furman (2001). Working Models of Friendships . Journal of Social and Personal Relationships, 18(5), 583-602. SAGE Publications.Crossref OpenAlex OpenCitations
-
Nirit Bauminger-Zviely (2021). Friendships . In Encyclopedia of Autism Spectrum Disorders (pp. 2079-2087). Springer International Publishing.Crossref OpenAlex OpenCitations
-
Micah O. Mazurek (2013). Social media use among adults with autism spectrum disorders . Computers in Human Behavior, 29(4), 1709-1714. Elsevier BV.Crossref OpenCitations
-
Selman RL (1998). Making a Friend in Youth . Making a Friend in Youth.Type: OtherCrossref
-
Kate Cooper , Laura G. E. Smith , Ailsa Russell (2017). Social identity, self‐esteem, and mental health in autism . European Journal of Social Psychology, 47(7), 844-854. Wiley.Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Simon Brett , Jacquiline den Houting *Autistic author. Learn more… , Melanie Heyworth *Autistic author. Learn more… , Iliana Magiati , Robyn Steward *Autistic author. Learn more… et al. (2022). COVID-19, social isolation and the mental health of autistic people and their families: A qualitative study . Autism, 26(4), 914-927. SAGE Publications.
-
Murray D. (n.d.). The Routledge International Handbook of Critical Autism Studies . The Routledge International Handbook of Critical Autism Studies.Type: OtherCrossref
-
Philippa L Howard , Felicity Sedgewick (2021). ‘Anything but the phone!’: Communication mode preferences in the autism community . Autism, 25(8), 2265-2278. SAGE Publications.Crossref OpenAlex OpenCitations
-
Bradley Lewis (2019). Authoring Autism: On Rhetoric and Neurological Queerness . Journal of Medical Humanities, 40(2), 277-279. Springer Science and Business Media LLC.OpenAlex
-
Brett Heasman *Autistic author. Learn more… , Alex Gillespie (2019). Neurodivergent intersubjectivity: Distinctive features of how autistic people create shared understanding . Autism, 23(4), 910-921. SAGE Publications.
-
Damian E. M. Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
-
Laura Hull , K.V. Petrides , William Mandy (2020). The Female Autism Phenotype and Camouflaging: a Narrative Review . Review Journal of Autism and Developmental Disorders, 7(4), 306-317. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Felicity Sedgewick , Vivian Hill , Elizabeth Pellicano (2019). ‘It’s different for girls’: Gender differences in the friendships and conflict of autistic and neurotypical adolescents . Autism, 23(5), 1119-1132. SAGE Publications.Crossref OpenAlex OpenCitations
-
Damian E. M. Milton *Autistic author. Learn more… , Brett Heasman *Autistic author. Learn more… , Elizabeth Sheppard (2021). Double Empathy . In Encyclopedia of Autism Spectrum Disorders (pp. 1509-1517). Springer International Publishing.Crossref OpenAlex OpenCitations
-
Regina Brady , Alessia Maccarrone , Jennifer Holloway , Ciara Gunning , Cressida Pacia (2020). Exploring Interventions Used to Teach Friendship Skills to Children and Adolescents with High-Functioning Autism: a Systematic Review . Review Journal of Autism and Developmental Disorders, 7(4), 295-305. Springer Science and Business Media LLC.Crossref OpenCitations
-
Felicity Sedgewick , Laura Crane , Vivian Hill , Elizabeth Pellicano (2019). Friends and Lovers: The Relationships of Autistic and Neurotypical Women . Autism in Adulthood, 1(2), 112-123. SAGE Publications.Crossref OpenAlex OpenCitations
-
Catherine J. Crompton , Sonny Hallett *Autistic author. Learn more… , Danielle Ropar , Emma G. Flynn , Sue Fletcher-Watson (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family . Autism, 24(6), 1438-1448. SAGE Publications.
-
Anja Stiller , Jan Weber , Finja Strube , Thomas Mößle (2019). Caregiver Reports of Screen Time Use of Children with Autism Spectrum Disorder: A Qualitative Study . Behavioral Sciences, 9(5), 56. MDPI AG.Crossref OpenAlex OpenCitations
-
Kilee M DeBrabander , Kerrianne E Morrison , Desiree Jones *Autistic author. Learn more… , Daniel J Faso , Mike Chmielewski , Noah Sasson (2019). Do First Impressions of Autistic Adults Differ Between Autistic and Nonautistic Observers? Autism in Adulthood, 1(4), 250-257. SAGE Publications.
-
Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.Crossref OpenAlex OpenCitations
-
Catherine J. Crompton , Danielle Ropar , Claire VM Evans-Williams *Autistic author. Learn more… , Emma G. Flynn , Sue Fletcher-Watson (2020). Autistic peer-to-peer information transfer is highly effective . Autism, 24(7), 1704-1712. SAGE Publications.
-
James Anderson , Charles Marley , Karri Gillespie-Smith , Leonie Carter , Ken MacMahon (2020). When the mask comes off: Mothers’ experiences of parenting a daughter with autism spectrum condition . Autism, 24(6), 1546-1556. SAGE Publications.Crossref OpenAlex OpenCitations
-
Nathan V. Mallipeddi , Rachel A. VanDaalen (2022). Intersectionality Within Critical Autism Studies: A Narrative Review . Autism in Adulthood, 4(4), 281-289. SAGE Publications.Crossref OpenCitations
-
Christina Nicolaidis , Dora Raymaker *Autistic author. Learn more… , Katherine McDonald , Emily M. Lund , Sandra Leotti , Steven Kapp *Autistic author. Learn more… et al. (2020). Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations . Autism in Adulthood, 2(1), 61-76. SAGE Publications.
-
López N (2017). National Academy of Medicine . National Academy of Medicine.Type: OtherCrossref
-
Debora M. Kagohara , Larah van der Meer , Sathiyaprakash Ramdoss , Mark F. O’Reilly , Giulio E. Lancioni , Tonya N. Davis et al. (2013). Using iPods® and iPads® in teaching programs for individuals with developmental disabilities: A systematic review . Research in Developmental Disabilities, 34(1), 147-156. Elsevier BV.Crossref OpenCitations
-
Karri Gillespie-Smith , Gillian Hendry , Nicole Anduuru , Tracey Laird , Carrie Ballantyne (2021). Using social media to be ‘social’: Perceptions of social media benefits and risk by autistic young people, and parents . Research in Developmental Disabilities, 118, 104081. Elsevier BV.Crossref OpenAlex OpenCitations
-
Deborah M. Ward , Karen E. Dill-Shackleford , Micah O. Mazurek (2018). Social Media Use and Happiness in Adults with Autism Spectrum Disorder . Cyberpsychology, Behavior, and Social Networking, 21(3), 205-209. SAGE Publications.Crossref OpenCitations
-
Allison Squires (2022). National Academy of Medicine . In Health Policy and Advanced Practice Nursing. Springer Publishing Company.OpenAlex
-
Georgia Pavlopoulou , Claire J. Usher , Amy Pearson *Autistic author. Learn more… (2022). ‘I can actually do it without any help or someone watching over me all the time and giving me constant instruction’: Autistic adolescent boys' perspectives on engagement in online video gaming . British Journal of Developmental Psychology, 40(4), 557-571. Wiley.
-
Melvin Seeman , Erving Goffman (1964). Stigma: Notes on the Management of Spoiled Identity. American Sociological Review, 29(5), 770. SAGE Publications.OpenAlex
-
Lennard J. Davis (2002). Bending Over Backwards . New York University Press.OpenAlex OpenCitations
-
(n.d.). Nind M. Conducting qualitative research with people with learning communication and other disabilities: Methodological challenges. eprints.ncrm.ac.uk. 2008. https://eprints.ncrm.ac.uk/491 Accessed June8 2020.Type: OtherCrossref
-
Yergeau M. (2018). Authoring autism: On rhetoric and neurological queerness . Authoring autism: On rhetoric and neurological queerness.Type: OtherCrossref
-
Christopher J. Hand , Ashley Kennedy , Ruth Filik , Melanie Pitchford , Christopher M. Robus (2023). Emoji Identification and Emoji Effects on Sentence Emotionality in ASD-Diagnosed Adults and Neurotypical Controls . Journal of Autism and Developmental Disorders, 53(6), 2514-2528. Springer Science and Business Media LLC.Type: Article DOI: 10.1007/s10803-022-05557-4Crossref OpenCitations
-
Lorimer F (2010). Emotions in the Field: The Psychology and Anthropology of Fieldwork Experience . Emotions in the Field: The Psychology and Anthropology of Fieldwork Experience.Type: OtherCrossref
-
Hollway W (2016). Emotional experience plus reflection: Countertransference and reflexivity in research . Psychotherapist, 62.Type: OtherCrossref
-
(n.d.). facebook.com/emergentdivergence. Neuroculture and the dangers of homogeneity—Emergent Divergence. emergentdivergence.com. 2022. https://emergentdivergence.com/2022/02/06/neuroculture-and-the-dangers-of-homogeneity Accessed August3 2023.Type: OtherCrossref
-
Goffman E (1963). Stigma: Notes on the Management of Spoiled Identity . Stigma: Notes on the Management of Spoiled Identity.Type: OtherCrossref