Research Methods and Ethics in Neurodiversity Studies: Looking Back, Moving Forward

Bertilsdotter Rosqvist, H. & Jackson‐Perry, D. (2024). Research Methods and Ethics in Neurodiversity Studies: Looking Back, Moving Forward. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 437-456). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-66127-3_26

Publication date: 1 Jan 2024 Added to AutiHub: 4 Jul 2026 Type: Book chapter Article language: English

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Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)

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Cited references
51
Total cited references integrated for this publication.
Cited references with an identified autistic author
16 / 51 (31.4%)
Cited author occurrences identified as autistic
28 / 96 (29.2%)
Among occurrences linked to AutiHub author records: 28 / 65 (43.1%). Distinct cited authors identified as autistic: 24 / 85 (28.2%).
Cited author occurrences linked to AutiHub author records
65 / 96 (67.7%)
Distinct linked cited authors: 55 / 85 (64.7%)
Linked cited-author occurrences not identified as autistic
37 / 65 (56.9%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 37 / 96 (38.5%). Distinct linked cited authors not identified as autistic: 31 / 55 (56.4%).
1 cited bibliography entry could not be fully enriched from DOI metadata.
Crossref: not found (1)
  1. Margrit Shildrick (2009). Dangerous Discourses of Disability, Subjectivity and Sexuality . Palgrave Macmillan UK.
    Crossref OpenAlex OpenCitations
  2. Ahmed, S. (2023). The feminist killjoy handbook: The radical potential of getting in the way. Seal Press.
    Type: Other
    Crossref
  3. Sara Delamont , Robin James Smith (2023). Leaving the field . In Leaving the field. Manchester University Press.
    Crossref OpenAlex OpenCitations
  4. (2011). Disability Studies: An Interdisciplinary Introduction . Journal of Research in Special Educational Needs, 11(2), 149-150. Wiley.
    OpenAlex
  5. Lisa Alleva (2006). Taking time to savour the rewards of slow science . Nature, 443(7109), 271-271. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/443271e OpenAlex: https://openalex.org/W2004044281
    Crossref OpenAlex OpenCitations
  6. Iddo Tavory (2019). Beyond the Calculus of Power and Position: Relationships and Theorizing in Ethnography . Sociological Methods & Research, 48(4), 727-738. SAGE Publications.
    Crossref OpenAlex OpenCitations
  7. Melanie Yergeau *Autistic author. Learn more… (2013). Clinically Significant Disturbance: On Theorists Who Theorize Theory of Mind . Disability Studies Quarterly, 33(4), 1. The Ohio State University Libraries.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  8. David M. Halperin (1997). Saint Foucault . Oxford University Press.
    Crossref OpenAlex OpenCitations
  9. Damian Milton *Autistic author. Learn more… , Lyte Moon (2012). The normalisation agenda and the psycho-emotional disablement of autistic people. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(1), 1.
    Type: Article OpenAlex: https://openalex.org/W1892279485
    OpenAlex
  10. N Chown (2023). Chown, N., Beardon, L., Murphy, S. L., Suckle, E., & Baker-Rogers, J. (2023). Autism community research priorities: The potential of future research to benefit autistics. Canadian Journal of Educational and Social Studies, 3(2), 15–32. Canadian Journal of Educational and Social Studies, 3(2), 15.
    Type: Other
    Crossref
  11. Caitlin Harrington , Michele Foster , Sylvia Rodger , Jill Ashburner (2014). Engaging young people with A utism S pectrum D isorder in research interviews . British Journal of Learning Disabilities, 42(2), 153-161. Wiley.
    Crossref OpenAlex OpenCitations
  12. David Jackson‐Perry (2020). The Autistic Art of Failure? Unknowing Imperfect Systems of Sexuality and Gender . Scandinavian Journal of Disability Research, 22(1), 221-229. Stockholm University Press.
    Crossref OpenAlex OpenCitations
  13. Joyce Davidson , Michael Orsini (2013). Participatory Research with Autistic Communities . In Worlds of Autism: Across the Spectrum of Neurological Difference (pp. 169-188). University of Minnesota Press.
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  14. David Jackson‐Perry (2024). Exploring Autistic Accounts of Sexuality, Intimacy, and Authenticity . In Exploring Autistic Sexualities, Relationality, and Genders (pp. 140-158). Routledge.
    Crossref OpenAlex OpenCitations
  15. Farzad Rafi Khan , Rabia Naguib (2019). Epistemic Healing: A Critical Ethical Response to Epistemic Violence in Business Ethics . Journal of Business Ethics, 156(1), 89-104. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  16. Ipsita Dey , Sreerupa Chakrabarty , Rajanya Nandi , Rakshita Shekhar , Sakhi Singhi , Shoba Nayar et al. (2024). Autism community priorities in diverse low-resource settings: A country-wide scoping exercise in India . Autism, 28(1), 187-198. SAGE Publications.
    Crossref OpenAlex OpenCitations
  17. Michael Orsini (2025). Who needs to (un)know? On the generative possibilities of ignorance for autistic futures . International Journal of Qualitative Studies in Education, 38(5), 640-657. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  18. Dodson, W. (2022). Secrets of your ADHD brain. ADDitude. https://www.additudemag.com/secrets-of-the-adhd-brain/ Downloaded April 27, 2024
    Type: Other
    Crossref
  19. Alyssa Hillary Zisk *Autistic author. Learn more… (2023). Critical Autism Studies Beyond Academia: An Annotated List . Ought: The Journal of Autistic Culture, 5(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  20. Richard Woods *Autistic author. Learn more… , Mitzi Waltz (2019). The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton . Research Open (London South Bank University), 1(6).
    Type: Article OpenAlex: https://openalex.org/W2955160085
    OpenAlex
  21. Ellis, C. (2016). Compassionate research: Interviewing and storytelling from a relational ethics of care. In The Routledge international handbook on narrative and life history (pp. 441–455). Routledge.
    Type: Other
    Crossref
  22. Catherine McDermott (2022). Theorising the neurotypical gaze: autistic love and relationships in The Bridge (Bron/Broen 2011–2018) . Medical Humanities, 48(1), 51-62. BMJ.
    Crossref OpenAlex OpenCitations
  23. Goodley, D. (2017). Disability Studies: An Interdisciplinary Introduction. 2nd edn. London: SAGE Publications Ltd.
    Type: Other
    Crossref
  24. Judith Halberstam (2011). The Queer Art of Failure . Duke University Press.
    Type: Book DOI: 10.2307/j.ctv11sn283
    Crossref
  25. Hallowell, E. M., Ratey, J. J. (2021). ADHD 2. 0: New science and essential strategies for thriving with distraction-from childhood through adulthood. Ballantine Books.
    Type: Other
    Crossref
  26. Carolyn Ellis (2016). Compassionate research: Interviewing and storytelling from a relational ethics of care .
    Type: Article DOI: 10.4324/9781315768199-43 OpenAlex: https://openalex.org/W3189028311 Crossref: not found
    OpenAlex
  27. (2022). Canadian Journal of Educational and Social Studies . Canadian Journal of Educational and Social Studies. MATIS Translation Services.
    OpenAlex
  28. Kristien Hens , Leni Van Goidsenhoven (2023). Developmental diversity: Putting the development back into research about developmental conditions . Frontiers in Psychiatry, 13, 986732-986732. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  29. Limburg, J. (2022). Letters to my weird sisters. On autism, feminism and motherhood. Atlantic Books.
    Type: Other
    Crossref
  30. Edmund J. S. Sonuga‐Barke (2023). Paradigm ‘flipping’ to reinvigorate translational science: Outlining a neurodevelopmental science framework from a ‘neurodiversity’ perspective . Journal of Child Psychology and Psychiatry, 64(10), 1405-1408. Wiley.
    Crossref OpenAlex OpenCitations
  31. Milton, D., & Moon, L. (2012). The normalisation agenda and the psycho-emotional disablement of autistic people. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(1)
    Type: Other
    Crossref
  32. Nicholas Chown *Autistic author. Learn more… , Luke Beardon , Shona Louise Murphy , Elsa Suckle , Joanna Baker-Rogers (2023). Autism Community Research Priorities: The Potential of Future Research to Benefit Autistics . Canadian Journal of Educational and Social Studies, 3(2), 15. MATIS Translation Services.
    OpenAlex
  33. Mingus, M. (2011). Access intimacy: The missing link. Leaving Evidence. https://leavingevidence.wordpress.com/2011/05/05/access-intimacy-the-missing-link/
    Type: Other
    Crossref
  34. Judith Halberstam (2011). The Queer Art of Failure . Duke University Press.
    OpenCitations
  35. Damian Milton *Autistic author. Learn more… , Jonathan Green (2024). Theorising autism . Autism, 28(4), 795-797. SAGE Publications.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  36. Mingus, M. (2017). Access intimacy, interdependence and disability justice. Leaving Evidence. https://leavingevidence.wordpress.com/2017/04/12/access-intimacy-interdependence-and-disability-justice/
    Type: Other
    Crossref
  37. F Murray (2019). Murray, F. (2019). Me and monotropism. Psychologist, 32, 44–48. Psychologist, 32, 44.
    Type: Other
    Crossref
  38. NIHR. (2023). Payment guidance for researchers and professionals. Available at https://www.nihr.ac.uk/documents/payment-guidance-for-researchers-and-professionals/27392
    Type: Other
    Crossref
  39. PARC. (2020). The participatory autism research collective. The Participatory Autism Research Collective.
    Type: Other
    Crossref
  40. Ahmed, Sara 1969- (n.d.). The feminist killjoy handbook the radical potential of getting in the way .
    Type: Article OpenAlex: https://openalex.org/W7065979290
    OpenAlex
  41. Woods, R., & Waltz, M. (2019). The strength of autistic expertise and its implications for autism knowledge production: A response to Damian Milton. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(6).
    Type: Other
    Crossref