Research Methods and Ethics in Neurodiversity Studies: Looking Back, Moving Forward

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Bertilsdotter Rosqvist, H. & Jackson‐Perry, D. (2024). Research Methods and Ethics in Neurodiversity Studies: Looking Back, Moving Forward. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 437-456). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-66127-3_26

Publication date: 1 Jan 2024 Added to AutiHub: 4 Jul 2026 Type: Book chapter Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)
  1. Hannah Bertilsdotter Rosqvist *
  2. David Jackson‐Perry

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
51
With a DOI
34
Without a DOI, from raw bibliography text
14
16 / 51 (31.4%) cited references include at least one author identified as autistic.
References with data to complete
16 / 51 (31.4%)
References with detected author names
37 / 51 (72.5%)
Without detected author names
14
Without a structured title
14
Without a stable identifier
14
References with raw author names still to review
12
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
96
From DOI or external metadata
96
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
15
65 / 96 (67.7%) names are linked to an author already present in AutiHub. 31 / 96 (32.3%) names are not yet linked.
Names linked to a person identified as autistic
31 / 96 (32.3%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 31 / 65 (47.7%). Distinct people identified as autistic: 27 / 85 (31.8%).
  1. Margrit Shildrick (2009). Dangerous Discourses of Disability, Subjectivity and Sexuality . Palgrave Macmillan UK.
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  14. N Chown (2023). Chown, N., Beardon, L., Murphy, S. L., Suckle, E., & Baker-Rogers, J. (2023). Autism community research priorities: The potential of future research to benefit autistics. Canadian Journal of Educational and Social Studies, 3(2), 15–32. Canadian Journal of Educational and Social Studies, 3(2), 15.
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  15. Caitlin Harrington , Michele Foster , Sylvia Rodger , Jill Ashburner (2014). Engaging young people with A utism S pectrum D isorder in research interviews . British Journal of Learning Disabilities, 42(2), 153-161. Wiley.
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  17. David Jackson‐Perry (2020). The Autistic Art of Failure? Unknowing Imperfect Systems of Sexuality and Gender . Scandinavian Journal of Disability Research, 22(1), 221-229. Stockholm University Press.
    Type: Article DOI: 10.16993/sjdr.634 OpenAlex: https://openalex.org/W3045433300
    Crossref OpenAlex OpenCitations
  18. Joyce Davidson , Michael Orsini (2013). Participatory Research with Autistic Communities . In Worlds of Autism: Across the Spectrum of Neurological Difference (pp. 169-188). University of Minnesota Press.
    Type: Book chapter DOI: 10.5749/minnesota/9780816688883.003.0008 OpenAlex: https://openalex.org/W2482967799
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  19. David Jackson‐Perry (2024). Exploring Autistic Accounts of Sexuality, Intimacy, and Authenticity . In Exploring Autistic Sexualities, Relationality, and Genders (pp. 140-158). Routledge.
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  20. Farzad Rafi Khan , Rabia Naguib (2019). Epistemic Healing: A Critical Ethical Response to Epistemic Violence in Business Ethics . Journal of Business Ethics, 156(1), 89-104. Springer Science and Business Media LLC.
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  21. Ipsita Dey , Sreerupa Chakrabarty , Rajanya Nandi , Rakshita Shekhar , Sakhi Singhi , Shoba Nayar et al. (2024). Autism community priorities in diverse low-resource settings: A country-wide scoping exercise in India . Autism, 28(1), 187-198. SAGE Publications.
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  22. Michael Orsini (2025). Who needs to (un)know? On the generative possibilities of ignorance for autistic futures . International Journal of Qualitative Studies in Education, 38(5), 640-657. Informa UK Limited.
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  23. Dodson, W. (2022). Secrets of your ADHD brain. ADDitude. https://www.additudemag.com/secrets-of-the-adhd-brain/ Downloaded April 27, 2024
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  24. Alyssa Hillary Zisk * (2023). Critical Autism Studies Beyond Academia: An Annotated List . Ought: The Journal of Autistic Culture, 5(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.
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  25. Richard Woods * , Mitzi Waltz (2019). The strength of autistic expertise and its implications for autism knowledge production: a response to Damian Milton . Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(6), 6.
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  41. Milton, D., & Moon, L. (2012). The normalisation agenda and the psycho-emotional disablement of autistic people. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(1)
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  42. Nicholas Chown * , Luke Beardon , Shona Louise Murphy , Elsa Suckle , Joanna Baker-Rogers (2023). Autism Community Research Priorities: The Potential of Future Research to Benefit Autistics . Canadian Journal of Educational and Social Studies, 3(2), 15. MATIS Translation Services.
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