« La retraite est un sacré changement » : expériences de la retraite chez les personnes autistes

Titre original en anglais : “Retirement Is One Hell of a Change”: Autistic People's Experiences of Retiring

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Davies, J., Matthews, R., Romualdez, A. M., Pellicano, E., & Remington, A. (2024). “Retirement Is One Hell of a Change”: Autistic People's Experiences of Retiring. Autism in Adulthood, 8(2), 162-174. https://doi.org/10.1089/aut.2023.0155

Date de publication: 05/03/2024 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Jade Davies
  2. Rose Matthews *
  3. Anna Melissa Romualdez
  4. Elizabeth Pellicano
  5. Anna Remington

Résumé

Contexte : Peu de recherches ont examiné les expériences du vieillissement chez les personnes autistes. Bien que l'importance de la retraite dans le contexte du vieillissement ait été soulignée par les personnes autistes elles-mêmes, les recherches à cet égard sont rares, une seule étude s'étant concentrée sur les expériences de la retraite d'un homme autiste. Méthodes : Dans cette étude, nous avons mené des entretiens semi-structurés avec huit personnes autistes âgées (âge moyen = 63 ans, étendue = 56-70 ans) qui avaient pris leur retraite ou étaient semi-retraitées au cours des 10 dernières années, et quatre qui prévoyaient de prendre leur retraite dans les 5 prochaines années. Nous visions à produire certains des premiers éclairages sur les expériences de la retraite chez les personnes autistes. Nous avons analysé les données à l'aide d'une analyse thématique réflexive. Résultats : Les expériences étaient diverses. Certaines personnes ont signalé des difficultés dans la planification de la retraite et l'adaptation à celle-ci, tandis que d'autres considéraient la retraite comme un répit positif face à des environnements de travail difficiles. La disponibilité de davantage de temps libre a été appréciée par certaines personnes, tandis que d'autres ont rencontré des responsabilités persistantes et des obstacles entravant les activités souhaitées. Un thème commun était l'insuffisance du soutien disponible pour les personnes autistes pendant la retraite. Les préoccupations relatives au processus de vieillissement, y compris les préoccupations concernant la dégradation de la santé et la possibilité d'entrer en établissement d'hébergement, étaient également fréquentes. Conclusion : Les recherches futures devraient examiner l'adéquation des établissements d'hébergement pour les adultes autistes âgés, envisager d'autres modalités de vie en groupe dirigées par des personnes autistes et explorer des pistes pour améliorer le soutien pendant et après la transition vers la retraite.

Background: Limited research has examined autistic people's experiences of aging. Although the significance of retirement in the context of aging has been highlighted by autistic people themselves, there is a dearth of research in this regard, with only one study focusing on the retirement experiences of one autistic man. Methods: In this study, we conducted semi-structured interviews with eight older autistic people (mean age = 63 years, range = 56-70 years) who had retired or semi-retired in the past 10 years, and four who were planning to retire in the next 5 years. We aimed to generate some of the first insights regarding autistic people's retirement experiences. We analyzed the data using reflexive thematic analysis. Results: Experiences were diverse. Challenges in retirement planning and adjustment were reported by some, whereas others viewed retirement as a positive respite from challenging work environments. The availability of more leisure time was appreciated by some, whereas others encountered ongoing responsibilities and obstacles hindering desired activities. A common theme was the inadequate support available for autistic people during retirement. Concerns about the aging process, including concerns about health decline and the possibility of entering residential care, were also common. Conclusion: Future research should examine the suitability of residential care for older autistic adults, consider alternative autistic-led group living arrangements, and explore avenues for improved support during and after the retirement transition.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 17:07.

Références citées
82
Avec un DOI
72
Sans DOI, à partir du texte brut de la bibliographie
10
16 / 82 (19,5 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 82 (4,9 %)
Références avec noms d’auteurices détectés
78 / 82 (95,1 %)
Sans nom d’auteurice détecté
4
Sans titre structuré
4
Sans identifiant stable
10
Références avec noms bruts d’auteurices restant à vérifier
4
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
291
À partir du DOI ou de métadonnées externes
291
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
4
120 / 291 (41,2 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 171 / 291 (58,8 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
28 / 291 (9,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 28 / 120 (23,3 %). Personnes distinctes identifiées comme autistes : 20 / 254 (7,9 %).
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