« La retraite est un sacré changement » : expériences de la retraite chez les personnes autistes
Titre original en anglais : “Retirement Is One Hell of a Change”: Autistic People's Experiences of Retiring
Davies, J., Matthews, R., Romualdez, A. M., Pellicano, E., & Remington, A. (2024). “Retirement Is One Hell of a Change”: Autistic People's Experiences of Retiring. Autism in Adulthood, 8(2), 162-174. https://doi.org/10.1089/aut.2023.0155
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Auteurs
Résumé
Contexte : Peu de recherches ont examiné les expériences du vieillissement chez les personnes autistes. Bien que l'importance de la retraite dans le contexte du vieillissement ait été soulignée par les personnes autistes elles-mêmes, les recherches à cet égard sont rares, une seule étude s'étant concentrée sur les expériences de la retraite d'un homme autiste. Méthodes : Dans cette étude, nous avons mené des entretiens semi-structurés avec huit personnes autistes âgées (âge moyen = 63 ans, étendue = 56-70 ans) qui avaient pris leur retraite ou étaient semi-retraitées au cours des 10 dernières années, et quatre qui prévoyaient de prendre leur retraite dans les 5 prochaines années. Nous visions à produire certains des premiers éclairages sur les expériences de la retraite chez les personnes autistes. Nous avons analysé les données à l'aide d'une analyse thématique réflexive. Résultats : Les expériences étaient diverses. Certaines personnes ont signalé des difficultés dans la planification de la retraite et l'adaptation à celle-ci, tandis que d'autres considéraient la retraite comme un répit positif face à des environnements de travail difficiles. La disponibilité de davantage de temps libre a été appréciée par certaines personnes, tandis que d'autres ont rencontré des responsabilités persistantes et des obstacles entravant les activités souhaitées. Un thème commun était l'insuffisance du soutien disponible pour les personnes autistes pendant la retraite. Les préoccupations relatives au processus de vieillissement, y compris les préoccupations concernant la dégradation de la santé et la possibilité d'entrer en établissement d'hébergement, étaient également fréquentes. Conclusion : Les recherches futures devraient examiner l'adéquation des établissements d'hébergement pour les adultes autistes âgés, envisager d'autres modalités de vie en groupe dirigées par des personnes autistes et explorer des pistes pour améliorer le soutien pendant et après la transition vers la retraite.
Bibliographie citée par cette référence
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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.
-
Jennie E. Brand (2015). The Far-Reaching Impact of Job Loss and Unemployment . Annual Review of Sociology, 41(1), 359-375. Annual Reviews.Crossref OpenAlex OpenCitations
-
David Mason , Gavin R. Stewart , Simone Josephine Capp , Francesca Happé (2022). Older Age Autism Research: A Rapidly Growing Field, but Still a Long Way to Go . Autism in Adulthood, 4(2), 164-172. SAGE Publications.Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Dawn Adams , Laura Crane , Calliope Hollingue , Connie Allen , Katherine Almendinger et al. (2024). Letter to the Editor: A possible threat to data integrity for online qualitative autism research . Autism, 28(3), 786-792. SAGE Publications.
-
Hanna van Solinge , Kène Henkens (2008). Adjustment to and satisfaction with retirement: Two of a kind? Psychology and Aging, 23(2), 422-434. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Cos Michael (2016). Why we need research about autism and ageing . Autism, 20(5), 515-516. SAGE Publications.Crossref OpenAlex OpenCitations
-
Chloe Walsh , Sinéad Lydon , Emily O’Dowd , Paul O’Connor (2020). Barriers to Healthcare for Persons with Autism: A Systematic Review of the Literature and Development of A Taxonomy . Developmental Neurorehabilitation, 23(7), 413-430. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Elizabeth O’Nions , Irene Petersen , Joshua E.J. Buckman , Rebecca A. Charlton , Claudia Cooper , Anne Corbett et al. (2023). Autism in England: assessing underdiagnosis in a population-based cohort study of prospectively collected primary care data . The Lancet Regional Health - Europe, 29, 100626. Elsevier BV.Crossref OpenAlex OpenCitations
-
Mike Oliver (1986). Social Policy and Disability: Some Theoretical Issues . Disability, Handicap & Society, 1(1), 5-17. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Susanna Baldwin , Debra Costley , Anthony Warren (2014). Employment Activities and Experiences of Adults with High-Functioning Autism and Asperger’s Disorder . Journal of Autism and Developmental Disorders, 44(10), 2440-2449. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Mary Doherty *Auteur·ice autiste. En savoir plus… , Stuart Neilson , Jane O’Sullivan , Laura Carravallah *Auteur·ice autiste. En savoir plus… , Mona Johnson *Auteur·ice autiste. En savoir plus… , Walter Cullen et al. (2022). Barriers to healthcare and self-reported adverse outcomes for autistic adults: a cross-sectional study . BMJ Open, 12(2), e056904. BMJ.
-
Lin Xie , Yingxi Shen , Yuanyang Wu , Hualei Yang (2021). The impact of retirement on mental health . The International Journal of Health Planning and Management, 36(5), 1697-1713. Wiley.Crossref OpenAlex OpenCitations
-
Nathalie Houlfort , Claude Fernet , Robert J. Vallerand , Andréanne Laframboise , Frédéric Guay , Richard Koestner (2015). The role of passion for work and need satisfaction in psychological adjustment to retirement . Journal of Vocational Behavior, 88, 84-94. Elsevier BV.Crossref OpenAlex OpenCitations
-
Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.Crossref OpenAlex OpenCitations
-
S. Crystal , D. Shea (1990). Cumulative Advantage, Cumulative Disadvantage, and Inequality Among Elderly People . The Gerontologist, 30(4), 437-443. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Jade Davies , Anna Melissa Romualdez , Danae Malyan , Brett Heasman , Adam Livesey *Auteur·ice autiste. En savoir plus… , Amy S. Walker et al. (2024). Autistic Adults' Priorities for Future Autism Employment Research: Perspectives from the United Kingdom . Autism in Adulthood, 6(1), 72-85. SAGE Publications.
-
Rosie Cope , Anna Remington (2022). The Strengths and Abilities of Autistic People in the Workplace . Autism in Adulthood, 4(1), 22-31. SAGE Publications.Crossref OpenAlex OpenCitations
-
Thomas H. Holmes , Richard H. Rahe (1967). The social readjustment rating scale . Journal of Psychosomatic Research, 11(2), 213-218. Elsevier BV.Crossref OpenAlex OpenCitations
-
Maria Fleischmann , Baowen Xue , Jenny Head (2020). Mental Health Before and After Retirement—Assessing the Relevance of Psychosocial Working Conditions: The Whitehall II Prospective Study of British Civil Servants . The Journals of Gerontology: Series B, 75(2), 403-413. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Marzieh Abolhassani , Rob Alessie (2013). Subjective Well-Being Around Retirement . De Economist, 161(3), 349-366. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Stephen Crystal , Dennis G Shea , Adriana M Reyes (2017). Cumulative Advantage, Cumulative Disadvantage, and Evolving Patterns of Late-Life Inequality . The Gerontologist, 57(5), 910-920. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Steven D. Stagg , Hannah Belcher (2019). Living with autism without knowing: receiving a diagnosis in later life . Health Psychology and Behavioral Medicine, 7(1), 348-361. Informa UK Limited.Crossref OpenAlex OpenCitations
-
R. C. Atchley (1989). A Continuity Theory of Normal Aging . The Gerontologist, 29(2), 183-190. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Terry A. Beehr (2014). To retire or not to retire: That is not the question . Journal of Organizational Behavior, 35(8), 1093-1108. Wiley.Crossref OpenAlex OpenCitations
-
R. C. Atchley (1971). Retirement and Leisure Participation: Continuity or Crisis? The Gerontologist, 11(1 Part 1), 13-17. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Anna Wanka (2020). Continuity and change in the transition to retirement: how time allocation, leisure practices and lifestyles evolve when work vanishes in later life . European Journal of Ageing, 17(1), 81-93. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Tiffany D. Johnson , Aparna Joshi (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430-449. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
JENNY BENNETT , KATJA MÖHRING (2015). Cumulative (Dis)advantage? The Impact of Labour Market Policies on Late Career Employment from a Life Course Perspective . Journal of Social Policy, 44(2), 213-233. Cambridge University Press (CUP).Crossref OpenAlex OpenCitations
-
Mo Wang , Kène Henkens , Hanna van Solinge (2011). Retirement adjustment: A review of theoretical and empirical advancements. American Psychologist, 66(3), 204-213. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Jindal-Snape D. (2016). A-Z of Transitions . A-Z of Transitions.Type: AutreCrossref
-
Mairead Cahill , Rose Galvin , Judith Pettigrew (2021). The retirement experiences of women academics: a qualitative, descriptive study . Educational Gerontology, 47(7), 297-311. Informa UK Limited.Crossref OpenAlex OpenCitations
-
A. Odone , V. Gianfredi , G. P. Vigezzi , A. Amerio , C. Ardito , A. d'Errico et al. (2021). Does retirement trigger depressive symptoms? A systematic review and meta-analysis . Epidemiology and Psychiatric Sciences, 30, e77-e77. Cambridge University Press (CUP).Crossref OpenAlex OpenCitations
-
B. J. Biddle (1986). Recent Developments in Role Theory . Annual Review of Sociology, 12(1), 67-92. Annual Reviews.Crossref OpenAlex OpenCitations
-
Jade Davies , Brett Heasman , Adam Livesey *Auteur·ice autiste. En savoir plus… , Amy S. Walker , Elizabeth Pellicano , Anna Remington (2022). Autistic adults’ views and experiences of requesting and receiving workplace adjustments in the UK . PLOS ONE, 17(8), e0272420. Public Library of Science (PLoS).
-
Lieze Sohier , Luc Van Ootegem , Elsy Verhofstadt (2021). Well-Being During the Transition from Work to Retirement . Journal of Happiness Studies, 22(1), 263-286. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Devon Gorry , Sita Nataraj Slavov (2021). The effect of retirement on health biomarkers . Economics & Human Biology, 40, 100949. Elsevier BV.Crossref OpenAlex OpenCitations
-
T. A. Beehr , M. M. Bennett (2015). Working After Retirement: Features of Bridge Employment and Research Directions . Work, Aging and Retirement, 1(1), 112-128. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
Clémentine Garrouste , Elsa Perdrix (2022). Is there a consensus on the health consequences of retirement? A literature review . Journal of Economic Surveys, 36(4), 841-879. Wiley.Crossref OpenAlex OpenCitations
-
Tanya St. John , Sara Woods , Tammara Bode , Cassidy Ritter , Annette Estes (2022). A review of executive functioning challenges and strengths in autistic adults . The Clinical Neuropsychologist, 36(5), 1116-1147. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Rachel Grove , Rosa A. Hoekstra , Marlies Wierda , Sander Begeer (2018). Special interests and subjective wellbeing in autistic adults . Autism Research, 11(5), 766-775. Wiley.Crossref OpenAlex OpenCitations
-
Georg Henning , Magnus Lindwall , Boo Johansson (2016). Continuity in Well-Being in the Transition to Retirement . GeroPsych, 29(4), 225-237. Hogrefe Publishing Group.Crossref OpenAlex OpenCitations
-
Matteo Picchio , Jan C. van Ours (2020). Mental Health Effects of Retirement . De Economist, 168(3), 419-452. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Ye In Hwang , Kitty‐Rose Foley , Kieran Elley , Scott Brown , Dawn-Joy Leong , Xue Li et al. (2023). Experiences of Performing Daily Activities in Middle-Aged and Older Autistic Adults: A Qualitative Study . Journal of Autism and Developmental Disorders, 53(5), 2037-2049. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Aoife Hickey , Jason Crabtree , Joshua Stott (2018). ‘Suddenly the first fifty years of my life made sense’: Experiences of older people with autism . Autism, 22(3), 357-367. SAGE Publications.Crossref OpenAlex OpenCitations
-
Dhaval Dave , Inas Rashad , Jasmina Spasojevic (2008). The Effects of Retirement on Physical and Mental Health Outcomes . Southern Economic Journal, 75(2), 497-523. Wiley.Crossref OpenAlex OpenCitations
-
Joseph Guan , Guohua Li (2017). Injury Mortality in Individuals With Autism . American Journal of Public Health, 107(5), 791-793. American Public Health Association.Crossref OpenAlex OpenCitations
-
Hua-Lei Yang , Yi-Wen Tao , Si-Meng Cheng , Xiao-Qing Tang , Jin-Yan Cao , Dong-Fei Shen (2023). The effect of retirement on obesity in women: Evidence from China . SSM - Population Health, 22, 101379. Elsevier BV.Crossref OpenAlex OpenCitations
-
Georgina Warner , Jeremy R. Parr , James Cusack *Auteur·ice autiste. En savoir plus… (2019). Workshop Report: Establishing Priority Research Areas to Improve the Physical Health and Well-Being of Autistic Adults and Older People . Autism in Adulthood, 1(1), 20-26. SAGE Publications.
-
Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Sang Bum Lee , Jae Hun Oh , Jeong Ho Park , Seung Pill Choi , Jung Hee Wee (2018). Differences in youngest-old, middle-old, and oldest-old patients who visit the emergency department . Clinical and Experimental Emergency Medicine, 5(4), 249-255. The Korean Society of Emergency Medicine.Crossref OpenAlex OpenCitations
-
Ginny Russell , Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Daisy Elliott , Chris Elphick , Ruth Gwernan‐Jones , Christabel Owens (2019). Mapping the Autistic Advantage from the Accounts of Adults Diagnosed with Autism: A Qualitative Study . Autism in Adulthood, 1(2), 124-133. SAGE Publications.
-
Ashforth BE. (2001). Role Transitions in Organizational Life: An Identity-Based Perspective . Role Transitions in Organizational Life: An Identity-Based Perspective.Type: AutreCrossref
-
Gerhard Krug , Katrin Drasch , Monika Jungbauer-Gans (2019). The social stigma of unemployment: consequences of stigma consciousness on job search attitudes, behaviour and success . Journal for Labour Market Research, 53(1). Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Christian J. Bachmann , Juliana Höfer , Inge Kamp-Becker , Charlotte Küpper , Luise Poustka , Stefan Roepke et al. (2019). Internalised stigma in adults with autism: A German multi-center survey . Psychiatry Research, 276, 94-99. Elsevier BV.Crossref OpenAlex OpenCitations
-
Sarah Griffiths , Carrie Allison , Rebecca Kenny , Rosemary Holt , Paula Smith , Simon Baron-Cohen (2019). The Vulnerability Experiences Quotient (VEQ): A Study of Vulnerability, Mental Health and Life Satisfaction in Autistic Adults . Autism Research, 12(10), 1516-1528. Wiley.Crossref OpenAlex OpenCitations
-
Nancy Doyle , Almuth McDowall , Uzma Waseem (2022). Intersectional Stigma for Autistic People at Work: A Compound Adverse Impact Effect on Labor Force Participation and Experiences of Belonging . Autism in Adulthood, 4(4), 340-356. SAGE Publications.Crossref OpenAlex OpenCitations
-
Victoria Clarke , Virginia Braun (2014). Thematic Analysis . Dans Encyclopedia of Critical Psychology (pp. 1947-1952). Springer New York.Type: Chapitre de livre DOI: 10.1007/978-1-4614-5583-7_311 OpenAlex: https://openalex.org/W4232818056OpenCitations
-
Alice Turnock , Kate Langley , Catherine R.G. Jones (2022). Understanding Stigma in Autism: A Narrative Review and Theoretical Model . Autism in Adulthood, 4(1), 76-91. SAGE Publications.Crossref OpenAlex OpenCitations
-
Catherine J. Crompton , Cos Michael , Michael E. Dawson , Sue Fletcher‐Watson (2020). Residential Care for Older Autistic Adults: Insights from Three Multiexpert Summits . Autism in Adulthood, 2(2), 121-127. SAGE Publications.Crossref OpenAlex OpenCitations
-
Prashant Bordia , Shari Read , Sarbari Bordia (2020). Retiring: Role identity processes in retirement transition . Journal of Organizational Behavior, 41(5), 445-460. Wiley.Crossref OpenAlex OpenCitations
-
Anastasia H. Anderson , Jennifer Stephenson , Mark Carter (2024). A qualitative study of the transition to employment of former university students on the autism spectrum from Australia and New Zealand . International Journal of Developmental Disabilities, 70(3), 365-374. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Melissa H. Black , Soheil Mahdi , Ben Milbourn , Melissa Scott , Alan H. Gerber , Christopher Esposito et al. (2020). Multi‐informant International Perspectives on the Facilitators and Barriers to Employment for Autistic Adults . Autism Research, 13(7), 1195-1214. Wiley.Crossref OpenAlex OpenCitations
-
Elizabeth Pellicano , Gabrielle Hall *Auteur·ice autiste. En savoir plus… , Ru Ying Cai (2024). Autistic adults’ experiences of financial wellbeing: Part II . Autism, 28(5), 1090-1106. SAGE Publications.
-
David Mason , Simone J. Capp , Gavin R. Stewart , Matthew J. Kempton , Karen Glaser , Patricia Howlin et al. (2021). A Meta-analysis of Outcome Studies of Autistic Adults: Quantifying Effect Size, Quality, and Meta-regression . Journal of Autism and Developmental Disorders, 51(9), 3165-3179. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
(s. d.). Davies J Romualdez AM Pellicano E Remington A. Career progression for autistic people: A scoping review. Under review.Type: AutreCrossref
-
Melissa Sharpe , Claire Hutchinson , June Alexander (2022). The Lived Experiences and Perspectives of People with Autism Spectrum Disorder in Mainstream Employment in Australia . Disabilities, 2(2), 164-177. MDPI AG.Crossref OpenAlex OpenCitations
-
(s. d.). Office for National Statistics. Outcomes for disabled people in the UK—Office for National Statistics. 2022. https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/disability/articles/outcomesfordisabledpeopleintheuk/2021#employment [Last accessed November14 2022].Type: AutreCrossref
-
Ru Ying Cai , Gabrielle Hall *Auteur·ice autiste. En savoir plus… , Elizabeth Pellicano (2024). Predicting the financial wellbeing of autistic adults: Part I . Autism, 28(5), 1203-1215. SAGE Publications.AutiHub · Chercheur·euses autistes Crossref
-
Kana Grace , Anna Remington , Brynmor Lloyd‐Evans , Jade Davies , Laura Crane (2022). Loneliness in autistic adults: A systematic review . Autism, 26(8), 2117-2135. SAGE Publications.Crossref OpenAlex OpenCitations
-
Jade Davies , Rachel Melinek *Auteur·ice autiste. En savoir plus… , Adam Livesey *Auteur·ice autiste. En savoir plus… , Estelle Killick , Evelyn Sam , Anna Melissa Romualdez et al. (2024). “I did what I could to earn some money and be of use”: A qualitative exploration of autistic people’s journeys to career success and fulfilment . Center for Open Science.Crossref OpenAlex OpenCitations
-
Hodges JS (2004). Supporting the transition of one man with autism from work to retirement . Ther Recreation J, 38(3), 301.Type: AutreCrossref
-
Damien Ridge , Laurna Bullock , Hilary Causer , Tamsin Fisher , Samantha Hider , Tom Kingstone et al. (2023). ‘Imposter participants’ in online qualitative research, a new and increasing threat to data integrity? Health Expectations, 26(3), 941-944. Wiley.Crossref OpenAlex OpenCitations
-
(s. d.). Department for Work and Pensions. Work pay and benefits: People in low income households. https://www.ethnicity-facts-figures.service.gov.uk/work-pay-and-benefits/pay-and-income/people-in-low-income-households/latest [Last accessed: November 28 2023].Type: AutreCrossref
-
Padley M (2023). A Minimum Income Standard for the United Kingdom in 2023 . A Minimum Income Standard for the United Kingdom in 2023.Type: AutreCrossref
-
(s. d.). Qualtrics. Qualtrics. https://www.qualtrics.com [Last accessed: June 24 2023].Type: AutreCrossref
-
Virginia Braun , Victoria Clarke (2022). Thematic Analysis . Dans Encyclopedia of Quality of Life and Well-Being Research (pp. 1-7). Springer International Publishing.Type: Chapitre de livre DOI: 10.1007/978-3-319-69909-7_3470-2 OpenAlex: https://openalex.org/W4320081749Crossref OpenAlex
-
Nancy S. Jecker (2023). The dignity of work: An ethical argument against mandatory retirement . Journal of Social Philosophy, 54(2), 152-168. Wiley.Crossref OpenAlex OpenCitations
-
Gemma Goodall , Odd Morten Mjøen , Aud Elisabeth Witsø , Sissel Horghagen , Lisbeth Kvam (2022). Barriers and Facilitators in the Transition From Higher Education to Employment for Students With Disabilities: A Rapid Systematic Review . Frontiers in Education, 7. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
Braun V. (2013). Successful Qualitative Research: A Practical Guide for Beginners . Successful qualitative research: A practical guide for beginners.Type: AutreCrossref
-
Janet M. Dukerich , Blake E. Ashforth (2001). Role Transitions in Organizational Life: An Identity-Based Perspective . The Academy of Management Review, 26(4), 670. Academy of Management.OpenAlex
-
Gambone JV. (2000). ReFirement: A Boomer's Guide to Life after 50 . ReFirement: A Boomer's Guide to Life after 50.Type: AutreCrossref
-
John Jamieson , Virginia Braun , Victoria Clarke (2014). Successful Qualitative Research: A practical guide for beginners . QMiP Bulletin, 1(18), 39-41. British Psychological Society.OpenAlex