Impact de la pandémie de COVID-19 sur les adultes autistes : une revue de cadrage

Titre original en anglais : Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review

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Scheeren, A., Crane, L., Heyworth, M., & Pellicano, E. (2023). Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review. Current Developmental Disorders Reports, 10(1), 92-122. https://doi.org/10.1007/s40474-023-00268-6

Date de publication: 31/01/2023 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Anke Scheeren
  2. Laura Crane
  3. Melanie Heyworth *
  4. Elizabeth Pellicano

Résumé

Objectif de la revue : La pandémie de COVID-19 et les restrictions qui y sont associées ont eu un impact significatif sur la vie quotidienne des personnes, y compris celle des adultes autistes. Nous visions à (a) synthétiser tous les articles actuellement publiés sur l’impact de la pandémie de COVID-19 sur les adultes autistes et (b) identifier les enseignements pour les soins et le soutien aux adultes autistes pendant la pandémie et après la pandémie. Résultats récents : Cinquante-cinq articles répondaient aux critères d’inclusion. La plupart des études portaient sur l’impact de la pandémie sur le bien-être des adultes autistes. Plusieurs études portaient sur l’utilisation des services (de télésanté) ou sur le risque d’infection par la COVID-19 ou d’hospitalisation. Résumé : Les adultes autistes ont été significativement touchés par la pandémie, à la fois directement, comme l’indiquent des taux plus élevés d’infection par la COVID-19 et d’hospitalisation, mais aussi indirectement en raison de graves perturbations des services et de restrictions sociales. Bien que de grandes différences aient été observées tant entre les individus qu’au sein des individus en ce qui concerne les effets négatifs/positifs de la pandémie de COVID-19, la plupart des études ont rapporté un effet négatif sur la santé mentale des adultes autistes. Nous tirons de cette revue plusieurs enseignements pour les futurs soins et le futur soutien aux adultes autistes, qui doivent tous être étayés par des méthodes de recherche participative, c’est-à-dire dans lesquelles les membres de la communauté autiste participent activement à l’établissement des questions de recherche, à l’évaluation de l’acceptabilité des méthodes ainsi qu’à l’interprétation et à la diffusion des résultats. Informations supplémentaires : La version en ligne contient du matériel supplémentaire disponible à l’adresse 10.1007/s40474-023-00268-6.

Purpose of Review: The COVID-19 pandemic and its associated restrictions have had a significant impact on people's everyday lives, including the lives of Autistic adults. We aimed to (a) synthesise all papers currently published on the impact of the COVID-19 pandemic on autistic adults and (b) identify lessons for the care and support of Autistic adults in pandemic and post-pandemic times. Recent Findings: Fifty-five papers met the inclusion criteria. Most studies focused on the pandemic's impact on the wellbeing of Autistic adults. Several studies focused on the use of (telehealth) services or the risk of COVID-19 infection/hospitalisation. Summary: Autistic adults were significantly impacted by the pandemic, both directly as indicated by higher COVID-19 infection and hospitalisation rates, but also indirectly due to severe service disruptions and social restrictions. Even though there were large differences observed both between as well as within individuals in terms of the negative/positive effects of the COVID-19 pandemic, most studies reported a negative effect on Autistic adults' mental health. We draw several lessons from this review for the future care and support of Autistic adults, all of which must be underpinned by participatory research methods, that is, where Autistic community members are actively involved in setting research questions, testing the acceptability of the methods and interpreting and disseminating the results. Supplementary Information: The online version contains supplementary material available at 10.1007/s40474-023-00268-6.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
63
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
8 / 63 (12,7 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
20 / 432 (4,6 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 20 / 139 (14,4 %). Auteurices cité·es distinct·es identifié·es comme autistes : 13 / 377 (3,4 %).
Occurrences citées rattachées à la base AutiHub
139 / 432 (32,2 %)
Auteurices cité·es distinct·es rattaché·es : 93 / 377 (24,7 %)
Occurrences rattachées, non identifiées comme autistes
119 / 139 (85,6 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 119 / 432 (27,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 80 / 93 (86,0 %).
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