Expériences personnelles d'adultes autistes face à la navigation dans un monde social avant et pendant le confinement lié à la Covid-19 en Espagne

Titre original en anglais : Autistic adults’ personal experiences of navigating a social world prior to and during Covid-19 lockdown in Spain

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Lois Mosquera, M., Mandy, W., Pavlopoulou, G., & Dimitriou, D. (2021). Autistic adults’ personal experiences of navigating a social world prior to and during Covid-19 lockdown in Spain. Research in Developmental Disabilities, 117, 104057. https://doi.org/10.1016/j.ridd.2021.104057

Date de publication: 06/08/2021 Ajout dans AutiHub: 07/08/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Miguel Lois Mosquera *
  2. Will Mandy
  3. Georgia Pavlopoulou
  4. Dagmara Dimitriou

Résumé

CONTEXTE : La pandémie de coronavirus SARS-CoV-2 a entraîné d'importantes restrictions de déplacement et des confinements nationaux. Ces changements drastiques ont eu des répercussions sur les routines, la vie sociale et les réseaux de soutien de la communauté autiste. OBJECTIFS : Cette étude a examiné les expériences vécues d'adultes autistes face aux attentes sociales avant et pendant le premier confinement lié à la Covid-19 en Espagne. METHODES : Une analyse thématique réflexive qualitative a été appliquée à 10 entretiens d'élicitation photographique utilisant des images fournies par cinq adultes autistes. Les entretiens ont été menés à deux moments, avant la pandémie et pendant le premier confinement. RESULTATS : Trois thèmes ont été identifiés avant la pandémie : (1) les interactions quotidiennes, (2) trouver un sentiment d'appartenance, et (3) le bien-être fragilisé, révélant le désir des participants de s'intégrer socialement tout en faisant l'expérience du rejet, ce qui affaiblissait leur santé mentale. Pendant le premier confinement lié à la Covid-19, deux thèmes principaux ont été identifiés : (1) les expériences quotidiennes positives, et (2) les échecs qui ont fait surface, soulignant une stigmatisation vécue accrue ainsi qu'un réseau de soutien à l'autisme inefficace, contribuant à une anxiété accrue. CONCLUSIONS : La présente étude apporte un soutien supplémentaire aux résultats récents mettant en évidence le manque de soutien approprié en matière de santé mentale pour les communautés autistes pendant la pandémie, dans le monde entier. Les recherches futures devraient viser à fournir davantage de données sur les expériences et les besoins des communautés autistes lorsque des changements sociétaux soudains sont imposés.

BACKGROUND: The SARS-CoV-2 coronavirus pandemic brought significant movement restrictions and national lockdowns. These drastic changes impacted routines, social life and support networks for the autistic community. AIMS: This study investigated the lived experiences of autistic adults with social expectations before and during the first Covid-19 lockdown in Spain. METHODS: A qualitative Reflexive Thematic Analysis was applied to 10 Photo Elicitation Interviews using images provided by five autistic adults. Interviews were conducted at two time points, before the pandemic and during the first lockdown. FINDINGS: Three themes before the pandemic were identified: (1) everyday interactions, (2) finding sense of belonging, and (3) fractured wellbeing, which revealed the participants' eagerness to fit in socially whilst experiencing rejection, weakening their mental health. During the first Covid-19 lockdown, two master themes were identified: (1) daily, positive experiences, and (2) surfacing failures, which emphasised an increased lived stigma as well as an ineffective autism support network, contributing to a heightened anxiety. CONCLUSIONS: The current study provides further support to the recent findings highlighting lack of appropriate mental health support for the autistic communities during the pandemic, across the world. Future research should aim to provide more data on the experiences and needs of autistic communities when sudden societal changes are imposed.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
50
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
5 / 50 (10,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
10 / 138 (7,2 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 10 / 59 (16,9 %). Auteurices cité·es distinct·es identifié·es comme autistes : 8 / 119 (6,7 %).
Occurrences citées rattachées à la base AutiHub
59 / 138 (42,8 %)
Auteurices cité·es distinct·es rattaché·es : 43 / 119 (36,1 %)
Occurrences rattachées, non identifiées comme autistes
49 / 59 (83,1 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 49 / 138 (35,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 35 / 43 (81,4 %).
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