« J'avais l'impression d'avoir un telephone a l'ancienne qui sonnait dans mes seins » : une enquete en ligne sur les experiences d'alimentation du nourrisson de parents autistes ayant accouche au Royaume-Uni

Titre original en anglais : “It felt like I had an old fashioned telephone ringing in my breasts”: An online survey of UK Autistic birthing parents' experiences of infant feeding

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Grant, A., Griffiths, C., Williams, K., & Brown, A. (2023). “It felt like I had an old fashioned telephone ringing in my breasts”: An online survey of UK Autistic birthing parents' experiences of infant feeding. Maternal & Child Nutrition, 20(1), e13581-e13581. https://doi.org/10.1111/mcn.13581

Date de publication: 01/11/2023 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
2 / 4 (50,0 %)
  1. Aimee Grant *
  2. Catrin Griffiths
  3. Kathryn Williams *
  4. Amy Brown

Résumé

Environ 3 % des personnes sont autistes. Les personnes autistes communiquent differemment des personnes non autistes et font l'experience du monde sensoriel differemment. Les donnees indiquant que les personnes autistes peuvent etre confrontees a des obstacles supplementaires a l'allaitement sont limitees. Nous sommes une equipe de recherche dirigee par des personnes autistes qui a elabore une enquete en ligne apres consultation de la communaute autiste. Les personnes autistes du Royaume-Uni qui avaient ete enceintes etaient admissibles a participer a l'enquete, qui portait sur l'ensemble du parcours de maternite. Au total, 193 personnes ont participe, dont 152 avaient des experiences d'alimentation du nourrisson (137 d'allaitement, 82 d'alimentation au lait infantile). Les participants etaient tres motives a allaiter, et presque la moitie de ceux qui allaitaient consideraient cette experience positive tout le temps ou la plupart du temps. Cependant, l'allaitement - et en particulier le reflexe d'ejection du lait - pouvait entrainer de la douleur et des difficultes sensorielles, y compris le fait de « se sentir bizarre ». L'expression du lait maternel tout le temps ou la plupart du temps a ete rapportee par 10 % des participants qui allaitaient. L'intensite et l'imprevisibilite de l'alimentation au sein comme de l'alimentation au lait infantile etaient difficiles a gerer. Les parents ont indique qu'il etait facile de comprendre comment preparer le lait infantile, mais que cela pouvait aussi etre une experience negative et source d'anxiete. Le soutien pour l'alimentation au sein et au lait infantile etait souvent considere comme inadequat. Lorsque les parents accedaient a un soutien a l'allaitement, cela ameliorait significativement diverses experiences d'allaitement. Cependant, les participants recommandaient un soutien davantage adapte et une continuite de l'accompagnement. Afin de repondre aux besoins des parents autistes ayant accouche, les personnes fournissant un soutien a l'alimentation du nourrisson devraient recevoir une formation sur l'autisme selon une perspective qui affirme la neurodiversite, laquelle devrait etre dispensee par des personnes autistes.

Around 3% of people are Autistic. Autistic people communicate differently from non-Autistic people and experience the sensory world differently. There is limited evidence that Autistic people can face additional barriers to breastfeeding. We are an Autistic-led research team that developed an online survey following consultation with the Autistic community. Autistic people from the UK who had been pregnant were eligible to take part in the survey, which focused on the entire maternity journey. A total of 193 people participated, of whom 152 had experiences of infant feeding (137 breastfeeding, 82 formula feeding). Participants were highly motivated to breastfeed, and almost half of those who breastfed found it positive always or most of the time. However, breastfeeding-and in particular the milk let-down reflex-could result in pain and sensory difficulties, including 'feeling odd'. Expressing breastmilk always or most of the time was reported by 10% of breastfeeding participants. The intensity and unpredictability of both breast and formula feeding were challenging to manage. Parents reported that it was easy to understand how to prepare infant formula, but that it could also be a negative and anxiety-inducing experience. Support for breast and formula feeding was often considered inadequate. When parents did access breastfeeding support, this significantly improved a range of breastfeeding experiences. However, participants recommended more tailored support and continuity of carer. To meet the needs of Autistic birthing parents, those providing infant feeding support should receive training on Autism through a neurodiversity-affirming lens, which should be delivered by Autistic people.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
55
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
10 / 55 (18,2 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
21 / 239 (8,8 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 21 / 56 (37,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 12 / 205 (5,9 %).
Occurrences citées rattachées à la base AutiHub
56 / 239 (23,4 %)
Auteurices cité·es distinct·es rattaché·es : 33 / 205 (16,1 %)
Occurrences rattachées, non identifiées comme autistes
35 / 56 (62,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 35 / 239 (14,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 21 / 33 (63,6 %).
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