Cela me sauve littéralement des cuillères : expériences des personnes autistes en matière de troubles de l’alimentation et de l’ingestion — une étude Photovoice
Titre original en anglais : It Is Literally Saving Me Spoons: Autistic People’s Experiences of Eating and Feeding Disorders—A Photovoice Study
Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.
À propos de la mention auteur·ice autisteBuchan, K., Maloney, E., Duffy, F., Sader, M., Nimbley, E., Kettley, S., Sharpe, H., & Gillespie-Smith, K. (2026). It Is Literally Saving Me Spoons: Autistic People’s Experiences of Eating and Feeding Disorders—A Photovoice Study. Autism in Adulthood. https://doi.org/10.1177/25739581261482021
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Auteurs
Résumé
Contexte : Malgré la forte prévalence des troubles de l’alimentation et de l’ingestion (TAI) chez les personnes autistes, peu d’études qualitatives explorent ce chevauchement au-delà des femmes autistes atteintes d’anorexie mentale (AM). Méthodes : Nous avons utilisé Photovoice pour explorer les expériences de personnes autistes présentant des TAI parmi des genres et des typologies de TAI diversifiés. Notre échantillon final comprenait 14 personnes autistes (hommes n = 3, femmes n = 8, gender-queer n = 3 ; m = 31,07 ans). Les participants ont réalisé cinq ateliers répartis en quatre groupes (n = 20 séances de groupe), produisant des images qui représentaient le mieux leurs expériences de TAI et en discutant avec leur groupe. Nous avons effectué une analyse de contenu des images et une analyse thématique inductive-réflexive des transcriptions des ateliers, des messages Microsoft Teams et des récits associés aux images. Résultats : Notre analyse a produit cinq thèmes principaux : (1) l’identité autiste : comment les diagnostics d’autisme façonnent les expériences de TAI et les perceptions de la normalité ; (2) le « seau du débordement » : comment la surcharge cognitive et sensorielle déclenche des comportements liés aux TAI ; (3) l’intersectionnalité diagnostique : comment les traits interagissent entre l’autisme, les TAI et les diagnostics concomitants, compliquant leur distinction clinique ; (4) « partez sans moi » (conséquences sociales) : comment le retrait social motivé par les TAI entre en conflit avec un désir de reconnexion ; et (5) les services et le soutien : les principaux obstacles à l’accès aux soins, la nécessité d’un traitement tenant compte de l’autisme et la valeur des méthodes créatives. Nos résultats concordent avec les modèles existants relatifs à l’autisme et aux TAI tout en élargissant la représentation aux hommes, aux personnes de genre divers et aux personnes présentant une boulimie nerveuse et un trouble d’hyperphagie boulimique. Conclusion : Nos résultats remettent en question les conceptions fondées sur le déficit de la sociabilité autiste, soulignent la manière dont l’identité, le débordement et l’intersectionnalité façonnent les expériences de TAI, et démontrent le besoin urgent de soins tenant compte de l’autisme, dirigés par la communauté et rejetant les présupposés neuronormatifs.
Bibliographie citée par cette référence
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Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 01:04.
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