Twitter #ActuallyAutistic comme espace de résistance épistémique et de futurité crip

Titre original en anglais : #ActuallyAutistic Twitter as a Site for Epistemic Resistance and Crip Futurity

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Guberman, J. (2022). #ActuallyAutistic Twitter as a Site for Epistemic Resistance and Crip Futurity. ACM Transactions on Computer-Human Interaction, 30(3), 1-34. https://doi.org/10.1145/3569891

Date de publication: 27/10/2022 Ajout dans AutiHub: 17/08/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
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  1. Josh Guberman *

Résumé

Depuis plusieurs décennies, Internet joue un rôle essentiel dans l'auto-représentation et la création de communautés autistiques. Cette étude semi-autoethnographique et interprétativiste se tourne vers Twitter #ActuallyAutistic afin d'examiner les préoccupations autistiques concernant la recherche sur l'autisme, la manière dont ces préoccupations diffèrent de celles des chercheurs sur l'autisme, et la façon dont les personnes autistes interagissent avec la recherche sur l'autisme et les chercheurs. Je constate que les discours de Twitter #ActuallyAutistic s'alignent sur le paradigme de la neurodiversité, tandis que les discours dominants sur l'autisme dans le milieu universitaire s'alignent sur le modèle médical du handicap. Bien que les deux orientations à l'égard de la recherche sur l'autisme partagent parfois des priorités de recherche, elles représentent des approches fondamentalement inconciliables de ces priorités et de l'autisme, plus largement. J'explore la manière dont les personnes autistes sur Twitter interagissent avec des chercheurs non autistes et comment la tonalité de ces interactions varie selon le paradigme de recherche auquel un chercheur particulier adhère. Je conclus par une discussion sur la manière dont les chercheurs en IHC s'intéressant à l'autisme peuvent opérationnaliser ces résultats en abordant leurs travaux à travers le cadre de la technoscience crip.

The Internet has, for several decades, played a critical role in autistic self-advocacy and community building. This semi-autoethnographic, interpretivist study turns to #ActuallyAutistic Twitter to examine autistic concerns about autism research, how these concerns differ from those of autism researchers, and how autistics interact with autism research and researchers. I find that #ActuallyAutistic Twitter discourses align with the neurodiversity paradigm, while dominant autism discourses in the academy align with the medical model of disability. Though both orientations towards autism research sometimes share research priorities, they represent fundamentally irreconcilable approaches to these priorities and autism, more broadly. I explore how autistics on Twitter interact with non-autistic researchers and how the tenor of these interactions varies according to which research paradigm a particular researcher subscribes. I conclude with a discussion of how HCI researchers interested in autism can operationalize these findings by approaching their work through the framework of crip technoscience.

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