Communication améliorée et alternative pour les adultes autistes parlants : aperçu et recommandations

Titre original en anglais : Augmentative and Alternative Communication for Speaking Autistic Adults: Overview and Recommendations

Zisk, A. H. & Dalton, E. (2019). Augmentative and Alternative Communication for Speaking Autistic Adults: Overview and Recommendations. Autism in Adulthood, 1(2), 93-100. https://doi.org/10.1089/aut.2018.0007

Date de publication: 13/03/2019 Ajout dans AutiHub: 07/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)

Résumé

Ces dernières années, les technologies utilisées pour la communication améliorée et alternative (CAA) ont connu un développement et une disponibilité croissants. Par conséquent, un nombre croissant de personnes autistes utilisent la CAA. Avec l'utilisation accrue de la CAA par les personnes autistes, la recherche sur l'autisme et la CAA a également augmenté. Cependant, la grande majorité de ces recherches se concentre sur les enfants autistes non parlants. L'utilisation de la CAA par les adultes autistes et par les personnes autistes parlantes a reçu une attention académique limitée. Les adultes autistes parlants utilisent souvent la CAA et beaucoup ont partagé publiquement des informations sur leurs stratégies et leurs expériences. Dans cet article, nous présentons un aperçu des différences de parole que les adultes autistes choisissent de soutenir au moyen de la CAA, y compris des difficultés variables de parole selon l'environnement et le contenu. Nous discutons également des technologies et des stratégies adoptées par les adultes autistes, y compris des outils gratuits ou peu coûteux qui ne sont pas spécifiques à la CAA, des technologies mobiles et des langues signées ou des gestes. Nous examinons les obstacles à l'utilisation de la CAA, y compris le manque de connaissance des options pertinentes, les idées fausses concernant les personnes auxquelles la CAA est destinée, et le coût des applications ou dispositifs de CAA dédiés. Nous formulons ensuite des suggestions à l'intention des adultes autistes, des personnes qui les soutiennent et des chercheurs. Dans l'ensemble, la communication, plutôt que la parole, devrait être priorisée. Les technologies de communication grand public peuvent soutenir la communication des adultes autistes, et divers outils peuvent soutenir la communication dans différents contextes. Des recherches supplémentaires sur l'utilisation et l'efficacité de la CAA pour les adultes autistes sont nécessaires, de même que des recherches sur les obstacles à l'utilisation de la CAA. Résumé vulgarisé : Quelles stratégies de communication les adultes autistes considèrent-ils comme efficaces ? Quelles stratégies de CAA sont utilisées, dans quels environnements et par qui ? Qu'est-ce qui empêche une utilisation efficace de la CAA ? Comment les spécialistes de la CAA et les adultes autistes peuvent-ils collaborer au mieux afin de promouvoir et d'évaluer l'utilisation de la CAA ? Comment les soutiens à la communication peuvent-ils être conçus pour mieux répondre aux besoins des adultes autistes ?

In recent years, technologies used for augmentative and alternative communication (AAC) have seen increasing development and availability. As a result, more and more autistic people are using AAC. With the increased use of AAC by autistic people, research on autism and AAC has also increased. However, the vast majority of this research focuses on nonspeaking autistic children. AAC use by autistic adults and by speaking autistic people has received limited academic attention. Speaking autistic adults often use AAC and many have publicly shared information about their strategies and experiences. In this article, we provide an overview of the speech differences autistic adults choose to support through AAC, including varying difficulties with speech depending on environment and content. We also discuss the technologies and strategies adopted by autistic adults, including free or low-cost tools that are not specific to AAC, mobile technologies, and signed languages or gestures. We explore barriers to AAC use, including a lack of awareness of relevant options, misconceptions about who AAC supports are for, and the cost of dedicated AAC applications or devices. We then provide suggestions for autistic adults, people supporting autistic adults, and researchers. Overall communication-rather than speech-should be prioritized. Mainstream communication technologies can support communication for autistic adults and a variety of tools can support communication across contexts. Further research into the use and effectiveness of AAC for autistic adults is needed, as is research on barriers to AAC use. Lay Summary: What communication strategies do autistic adults see as effective?What AAC strategies are being used, in what environments, and by whom?What prevents effective AAC use?How can AAC specialists and autistic adults best collaborate to promote and evaluate AAC use?How can communication supports be designed to better meet the needs of autistic adults?

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
59
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
1 / 59 (1,7 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
1 / 65 (1,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 1 / 2 (50,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 62 (1,6 %).
Occurrences citées rattachées à la base AutiHub
2 / 65 (3,1 %)
Auteurices cité·es distinct·es rattaché·es : 2 / 62 (3,2 %)
Occurrences rattachées, non identifiées comme autistes
1 / 2 (50,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 1 / 65 (1,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 1 / 2 (50,0 %).
  1. Pat Mirenda , Diana Wilk , Paul Carson (2000). A Retrospective Analysis of Technology Use Patterns of Students with Autism over a Five-Year Period . Journal of Special Education Technology, 15(3), 5-16. SAGE Publications.
    Crossref OpenAlex OpenCitations
  2. (s. d.). American Speech-Language-Hearing Association. Augmentative and alternative communication. https://www.asha.org/Practice-Portal/Professional-Issues/Augmentative-and-Alternative-Communication Accessed December10 2017.
    Type: Autre
    Crossref
  3. Christine Holyfield , Kathryn D. R. Drager , Jennifer M. D. Kremkow , Janice Light (2017). Systematic review of AAC intervention research for adolescents and adults with autism spectrum disorder . Augmentative and Alternative Communication, 33(4), 201-212. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  4. Jeff Sigafoos , Erik Drasgow (2001). Conditional Use of Aided and Unaided AAC . Focus on Autism and Other Developmental Disabilities, 16(3), 152-161. SAGE Publications.
    Crossref OpenAlex OpenCitations
  5. (s. d.). American Speech-Language-Hearing Association. Augmentative and alternative communication (AAC). https://www.asha.org/public/speech/disorders/AAC Accessed December10 2017.
    Type: Autre
    Crossref
  6. Tracy Rackensperger , Carole Krezman , David Mcnaughton , Michael B. Williams , Karen D'Silva (2005). “When I First Got It, I Wanted to Throw It Off a Cliff”: The Challenges and Benefits of Learning AAC Technologies as Described by Adults who use AAC . Augmentative and Alternative Communication, 21(3), 165-186. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  7. Pat Mirenda (2013). Augmentative and Alternative Communication . Dans Encyclopedia of Autism Spectrum Disorders (pp. 328-333). Springer New York.
    Type: Chapitre de livre DOI: 10.1007/978-1-4419-1698-3_486 OpenAlex: https://openalex.org/W4243815806
    Crossref OpenAlex OpenCitations
  8. MaryAnn Romski , Rose A. Sevcik (2005). Augmentative Communication and Early Intervention . Infants & Young Children, 18(3), 174-185. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  9. Pat Mirenda (2013). Autism Spectrum Disorder: Past, Present, and Future . Perspectives on Augmentative and Alternative Communication, 22(3), 131-138. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  10. Deanna Hughes (2014). Editorial: The Evolving Profile of AT and AAC Users . Perspectives on Augmentative and Alternative Communication, 23(3), 115-116. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  11. Michael Williams , David Beukelman , Cara Ullman (2012). AAC Text Messaging . Perspectives on Augmentative and Alternative Communication, 21(2), 56-59. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  12. Janice Light (1989). Toward a definition of communicative competence for individuals using augmentative and alternative communication systems . Augmentative and Alternative Communication, 5(2), 137-144. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Diane Nelson Bryen , Yoosun Chung , Sarah Lever (2010). What You Might Not Find in a Typical Transition Plan! Some Important Lessons From Adults Who Rely on Augmentative and Alternative Communication . Perspectives on Augmentative and Alternative Communication, 19(2), 32-40. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  14. (s. d.). National Joint Committee for the Communication Needs of Persons with Severe Disabilities (NJC.) History of the National Joint Committee. American Speech-Language-Hearing Association. https://www.asha.org/NJC/history Accessed October8 2018.
    Type: Autre
    Crossref
  15. Nancy C. Brady , Susan Bruce , Amy Goldman , Karen Erickson , Beth Mineo , Bill T. Ogletree et al. (2016). Communication Services and Supports for Individuals With Severe Disabilities: Guidance for Assessment and Intervention . American Journal on Intellectual and Developmental Disabilities, 121(2), 121-138. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  16. Monique Hines , Susan Balandin , Leanne Togher (2011). Communication and AAC in the Lives of Adults with Autism: The Stories of Their Older Parents . Augmentative and Alternative Communication, 27(4), 256-266. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  17. Jane Farrall (2013). AAC Apps and ASD: Giving Voice to Good Practice . Perspectives on Augmentative and Alternative Communication, 22(3), 157-163. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  18. Laura Foran Lewis (2016). Realizing a diagnosis of autism spectrum disorder as an adult . International Journal of Mental Health Nursing, 25(4), 346-354. Wiley.
    Crossref OpenAlex OpenCitations
  19. Samuel Sennott , Adam Bowker (2009). Autism, AAC, and Proloquo2Go . Perspectives on Augmentative and Alternative Communication, 18(4), 137-145. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  20. (s. d.). Speak for Yourself AAC. www.speakforyourself.org Accessed October8 2018.
    Type: Autre
    Crossref
  21. Elizabeth K. Hanson (2014). My Client Talks! Do I Still Need to Consider AAC in my Treatment Planning? Speech Supplementation Strategies: AAC for Clients Who Talk! Perspectives on Augmentative and Alternative Communication, 23(3), 124-131. American Speech Language Hearing Association.
    Crossref OpenAlex OpenCitations
  22. (s. d.). AssistiveWare. www.assistiveware.com Accessed October8 2018.
    Type: Autre
    Crossref
  23. Laura Foran Lewis (2016). Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults . Archives of Psychiatric Nursing, 30(5), 575-580. Elsevier BV.
    Crossref OpenAlex OpenCitations
  24. (s. d.). Zangari C. PrAACtical Alert: AAC App Discounts. PrAACtical AAC. Published March 22 2018. http://praacticalaac.org/praactical/praactical-alert-aac-app-discounts Accessed October8 2018
    Type: Autre
    Crossref
  25. (s. d.). Zangari C. Toolbox. PrAACtical AAC. http://praacticalaac.org/toolbox Accessed October8 2018.
    Type: Autre
    Crossref
  26. (s. d.). Zangari C. 5 References That Support the Use of AAC for People with ASD. PrAACtical AAC. Published February 1 2013. http://praacticalaac.org/praactical/5-references-that-support-the-use-of-aac-for-people-with-asd Accessed October8 2018
    Type: Autre
    Crossref
  27. (s. d.). Theoriesofminds ed. Jul 2 2017: AAC (augmentative and alternative communication) (transcript). Autchat. Published July 7 2017. http://autchat.com/jul-2-2017-aac-augmentative-and-alternative-communication-transcript Accessed December10 2017.
    Type: Autre
    Crossref
  28. (s. d.). Theoriesofminds ed. Aug 13 2017: Useful Apps. Autchat. Published August 20 2017. http://autchat.com/aug-13-2017-useful-apps Accessed December10 2017.
    Type: Autre
    Crossref
  29. (s. d.). When my speech shorts out I use this program. AssistiveWare. Published July 9 2015. http://www.assistiveware.com/when-my-speech-shorts-out-i-use-program Accessed December10 2017
    Type: Autre
    Crossref
  30. (s. d.). Niemeijer D. The state of AAC in English-speaking countries: First results from the survey. AssistiveWare. November 15 2015. www.assistiveware.com/state-aac-english-speaking-countries-first-results-survey Accessed December10 2017
    Type: Autre
    Crossref
  31. Wayman L (s. d.). Presented at 49th Annual Autism Society National Conference; July 12–15 . Presented at 49th Annual Autism Society National Conference; July 12–15.
    Type: Autre
    Crossref
  32. Sequenzia A. (2015). Typed Words, Loud Voices . Typed words, loud voices.
    Type: Autre
    Crossref
  33. (s. d.). Sparrow M. Coping with a Crisis When You Have Unreliable or Intermittent Speech. Thinking Persons Guide to Autism. Published November 13 2017. http://www.thinkingautismguide.com/2017/11/coping-with-crisis-when-you-have.html Accessed December10 2017
    Type: Autre
    Crossref
  34. (s. d.). American Psychiatric Association. Anxiety disorders. In: Diagnostic and Statistical Manual of Mental Disorders 5th ed. Washington DC: American Psychiatric Association; 2013. https://dsm.psychiatryonline.org/doi/full/10 . 1176/appi.books. 9780890425596.dsm05
    Type: Autre
    Crossref
  35. Julia Sinclair (2012). Autism Network International: The development of a community and its culture . In Bascom J, ed. Loud Hands: Autistic People Speaking. Washington, DC: The Autistic Press;, 22.
    Type: Autre
    Crossref
  36. (s. d.). Murphy J. Having a meltdown? Use the emergency chat app for help. Geek club books: Autism storytelling. Published August 6 2015. https://geekclubbooks.com/2015/08/meltdown-emergency-chat-app-help Accessed December10 2017
    Type: Autre
    Crossref
  37. Sibley KA (2015). My cat comes when my tablet calls him . In: Sequenzia A, Grace EJ, eds. Typed Words, Loud Voices. Fort Worth, TX: Autonomous Press;, 60.
    Type: Autre
    Crossref
  38. Allen B (2015). Notes on not speaking . In: Sequenzia A, Grace EJ, eds. Typed Words, Loud Voices. Fort Worth, TX: Autonomous Press;, 29.
    Type: Autre
    Crossref
  39. Baggs A (2012). Autism, speech, and assistive technology . In: Bascom J, ed. Loud Hands: Autistic People Speaking. Washington, DC: The Autistic Press;, 320.
    Type: Autre
    Crossref
  40. (s. d.). Asasumasu K. If you don't use your words you won't be indistinguishable. Radical Neurodivergence Speaking. Published October 4 2013. https://timetolisten.blogspot.com/2013/10/if-you-dont-use-your-words-you-wont-be.html Accessed October8 2018
    Type: Autre
    Crossref
  41. Kimmel A (2015). Interview . In: Sequenzia A, Grace EJ, eds. Typed Words, Loud Voices. Fort Worth, TX: Autonomous Press;, 29.
    Type: Autre
    Crossref
  42. von Woerkom A (2015). June 16, 2002 . In: Sequenzia A, Grace EJ, eds. Typed Words, Loud Voices. Fort Worth, TX: Autonomous Press;, 30.
    Type: Autre
    Crossref
  43. Kim C (2015). A barrier of sound, not of feeling . In: Sequenzia A, Grace EJ, eds. Typed Words, Loud Voices. Fort Worth, TX: Autonomous Press;, 17.
    Type: Autre
    Crossref
  44. (s. d.). Mamautistic. Time Mutism and Levels of Communication. June 13 2017. https://mamautistic.wordpress.com/2017/06/13/time-mutism-and-levels-of-communication Accessed December10 2017
    Type: Autre
    Crossref
  45. Williams M (1995). The internet and AAC . Alternatively Speaking, 2(3), 1.
    Type: Autre
    Crossref
  46. Sedgewick MZ (2017). The rugged beauty of creating a neuroqueer space . In Ryskamp D, Harvey S, eds. Spoon Knife 2: Test Chamber. Fort Worth, TX: Neuroqueer Press;, 140.
    Type: Autre
    Crossref
  47. (s. d.). @endeverstar. HOLY SHIT TSHIRTS ARE AAC THIS EXPLAINS SO MUCH ABT MY WARDROBE ☇ homo qui vixit ☇ added Julia Maureen @onyourownside Replying to @endeverstar they're aac. https://twitter.com/endeverstar/status/934127410546483200 . Posted November 24 2017.
    Type: Autre
    Crossref
  48. (s. d.). @derekthebard. This is one of the AAC apps I use Sono Flex Lite by @TobiiTechnology It was actually my first AAC app. I find its interface a bit too slow for my needs (to be fair its not really made for me) so I mostly use it for preset phrases (food orders basic pleasentries etc.) https://twitter.com/derekthebard/status/940738897402671104 . Posted December 12 2017.
    Type: Autre
    Crossref
  49. (s. d.). Murray D Brook K Brook K. ASK: Autistic space kit: Autistic empowerment for the 21st century. http://www.autisticspacekit.co.uk/pdf/poster.pdf Accessed December10 2017.
    Type: Autre
    Crossref
  50. Jones SR (2015). The song of life unfolding . In: Sequenzia A, Grace EJ, eds. Typed Words, Loud Voices. Fort Worth, TX: Autonomous Press;, 119.
    Type: Autre
    Crossref
  51. Anonymous (2015). My many communication systems . In: Sequenzia A, Grace EJ, eds. Typed Words, Loud Voices. Fort Worth, TX: Autonomous Press;, 90.
    Type: Autre
    Crossref
  52. (s. d.). Asasumasu K. Allistic to Neurodivergent K Interpreters are GOOD. We Are Like Your Child. Published July 13 2013. https://wearelikeyourchild.blogspot.com/2013/07/allistic-to-neurodivergent-k.html Accessed October8 2018
    Type: Autre
    Crossref
  53. (s. d.). Non Speaking Not Silent. Comming out telling friends and family you communicate using AAC. AAC Apps Service Dogs and Autistic Life Things. Published November 1 2015. http://nonspeakingnotsilent.blogspot.ca/2015/10/comming-out-telling-friends-and-family.html Accessed December26 2017
    Type: Autre
    Crossref
  54. (s. d.). Baggs M. Communication page I used to handle that invasive woman I met. Ballastexistenz. Published June 25 2012. https://ballastexistenz.wordpress.com/2012/06/25/communication-page-i-used-to-handle-that-invasive-woman-i-met Accessed October8 2018
    Type: Autre
    Crossref
  55. Beukelman DR (2013). Augmentative and Alternative Communication: Supporting Children and Adults with Complex Communication Needs . Augmentative and Alternative Communication: Supporting Children and Adults with Complex Communication Needs.
    Type: Autre
    Crossref
  56. (s. d.). @rsocialskills..@yes_thattoo I have bad anxiety about being perceived as faking; can break communication that would otherwise work. #ussaachat. https://twitter.com/rsocialskills/status/819717710292590593 . Posted January 12 2017.
    Type: Autre
    Crossref
  57. (s. d.). Alexis D. On functioning and “functioning.” Autistic Academic. June 2 2015. https://autisticacademic.com/2015/06/02/on-functioning-and-functioning Accessed December26 2017
    Type: Autre
    Crossref
  58. Elmore K (2014). Embracing interdependence: Technology developers, autistic users, and technical communicators . In: Meloncon L, ed. Rhetorical Accessability: At the Intersection of Technical Communication and Disability Studies. New York, NY: Routledge;, 15.
    Type: Autre
    Crossref