Adaptation de la thérapie familiale centrée sur les troubles des conduites alimentaires pour les enfants et les jeunes Autistes atteints d'anorexie mentale : lignes directrices cliniques fondées sur des données probantes et coproduites

Titre original en anglais : Adapting eating disorder focused family therapy for Autistic children and young people with anorexia nervosa: evidence informed, co-produced clinical guidelines

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Duffy, F., Baldoza, S., Baudinet, J., Birch, I., Broadhurst, E., Dimitropoulos, G., Ellison, C., Gillespie‐Smith, K., Loomes, R., Malik, U., Maloney, E., Small, L., Tchanturia, K., Yates, I. T., Nash, F., & Austin, A. (2026). Adapting eating disorder focused family therapy for Autistic children and young people with anorexia nervosa: evidence informed, co-produced clinical guidelines. Eating Disorders, 1-17. https://doi.org/10.1080/10640266.2026.2709604

Date de publication: 29/07/2026 Ajout dans AutiHub: 05/08/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
16
Auteur·ices de la publication identifié·es comme autistes
1 / 16 (6,2 %)
  1. Fiona Duffy
  2. Saffron Baldoza
  3. Julian Baudinet
  4. Ian Birch
  5. Emma Broadhurst
  6. Gina Dimitropoulos
  1. Clare Ellison
  2. Karri Gillespie‐Smith
  3. Rachel Loomes
  4. Umairah Malik
  5. Ellen Maloney *
  6. Lorraine Small
  1. Kate Tchanturia
  2. Iona Thomas Yates
  3. Freya Nash
  4. Amelia Austin

Résumé

Les enfants et les jeunes Autistes recevant une thérapie familiale centrée sur les troubles des conduites alimentaires (FT-ED) pour l'anorexie mentale (AN) sont plus susceptibles que leurs pairs non Autistes de nécessiter un traitement plus long et plus intensif. Des données qualitatives suggèrent que les jeunes Autistes et leurs parents rencontrent des difficultés face à une prestation perçue comme inflexible de la FT-ED, qui peut être inadaptée aux besoins autistiques. Les cliniciens dispensant ces soins signalent un manque de confiance lorsqu'ils adaptent la FT-ED à cette population, et les recommandations sur la manière de procéder sont limitées. Cet article décrit des lignes directrices fondées sur des données probantes et coproduites, élaborées au moyen d'une série d'ateliers réunissant des personnes Autistes ayant une expérience vécue d'un trouble des conduites alimentaires, des parents et des aidants, des cliniciens, des chercheurs et des représentants du troisième secteur. Ces lignes directrices visent à soutenir les cliniciens dans l'adaptation de la FT-ED pour les jeunes Autistes atteints d'AN et leurs familles, afin de dispenser des soins plus appropriés et plus efficaces. Les jeunes et leurs parents ou aidants peuvent également trouver ces lignes directrices utiles pour défendre des soins affirmant l'autisme au sein de la FT-ED.

Autistic children and young people receiving eating disorder focused family therapy (FT-ED) for anorexia nervosa (AN) are more likely than their non-Autistic peers to require longer and more intensive treatment. Qualitative evidence suggests that Autistic young people and their parents struggle with a perceived inflexible delivery of FT-ED that can be mis-attuned to autistic needs. Clinicians delivering this care report a lack of confidence when adapting FT-ED to this population, and there is limited guidance on how to do this. This paper describes evidence‑informed and coproduced guidelines, developed via a series of workshops with Autistic people with lived experience of an eating disorder, parents and carers, clinicians, researchers, and third‑sector representatives. The intention of these guidelines is to support clinicians in the adaptation of FT-ED for Autistic young people with AN and their families, with the aim of delivering more appropriate and effective care. Young people and their parents or carers may also find these guidelines helpful when advocating for autism-affirming care within FT-ED.

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Références citées
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Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
6 / 76 (7,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
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Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 7 / 139 (5,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 4 / 359 (1,1 %).
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Auteurices cité·es distinct·es rattaché·es : 72 / 359 (20,1 %)
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Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 132 / 482 (27,4 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 68 / 72 (94,4 %).
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