Adapting eating disorder focused family therapy for Autistic children and young people with anorexia nervosa: evidence informed, co-produced clinical guidelines

Duffy, F., Baldoza, S., Baudinet, J., Birch, I., Broadhurst, E., Dimitropoulos, G., Ellison, C., Gillespie‐Smith, K., Loomes, R., Malik, U., Maloney, E., Small, L., Tchanturia, K., Yates, I. T., Nash, F., & Austin, A. (2026). Adapting eating disorder focused family therapy for Autistic children and young people with anorexia nervosa: evidence informed, co-produced clinical guidelines. Eating Disorders, 1-17. https://doi.org/10.1080/10640266.2026.2709604

Publication date: 29 Jul 2026 Added to AutiHub: 5 Aug 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
16
Publication authors identified as autistic
1 / 16 (6.2%)

Abstract

Autistic children and young people receiving eating disorder focused family therapy (FT-ED) for anorexia nervosa (AN) are more likely than their non-Autistic peers to require longer and more intensive treatment. Qualitative evidence suggests that Autistic young people and their parents struggle with a perceived inflexible delivery of FT-ED that can be mis-attuned to autistic needs. Clinicians delivering this care report a lack of confidence when adapting FT-ED to this population, and there is limited guidance on how to do this. This paper describes evidence‑informed and coproduced guidelines, developed via a series of workshops with Autistic people with lived experience of an eating disorder, parents and carers, clinicians, researchers, and third‑sector representatives. The intention of these guidelines is to support clinicians in the adaptation of FT-ED for Autistic young people with AN and their families, with the aim of delivering more appropriate and effective care. Young people and their parents or carers may also find these guidelines helpful when advocating for autism-affirming care within FT-ED.

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Cited references
76
Total cited references integrated for this publication.
Cited references with an identified autistic author
6 / 76 (7.9%)
Cited author occurrences identified as autistic
7 / 482 (1.5%)
Among occurrences linked to AutiHub author records: 7 / 139 (5.0%). Distinct cited authors identified as autistic: 4 / 359 (1.1%).
Cited author occurrences linked to AutiHub author records
139 / 482 (28.8%)
Distinct linked cited authors: 72 / 359 (20.1%)
Linked cited-author occurrences not identified as autistic
132 / 139 (95.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 132 / 482 (27.4%). Distinct linked cited authors not identified as autistic: 68 / 72 (94.4%).
  1. Norman Dalkey , Olaf Helmer (1963). An Experimental Application of the DELPHI Method to the Use of Experts . Management Science, 9(3), 458-467. Institute for Operations Research and the Management Sciences (INFORMS).
    Crossref OpenAlex
  2. (n.d.). Adam B. (2025 June 24). Neurodevelopmental pathways and waiting times in Scotland (research briefing SB 25-25). Scottish Parliament. https://www.parliament.scot/chamber-and-committees/research-prepared-for-parliament/research-briefings/2025/6/24/sb-2525/pdf
    Type: Other
    Crossref
  3. Elizabeth Dodge , Matthew Hodes , Ivan Eisler , Christopher Dare (1995). Family therapy for bulimia nervosa in adolescents: an exploratory study . Journal of Family Therapy, 17(1), 59-77. Wiley.
    Crossref OpenAlex
  4. Christopher Dare (1985). The family therapy of anorexia nervosa . Journal of Psychiatric Research, 19(2-3), 435-443. Elsevier BV.
    Crossref OpenAlex
  5. James Adamson , Janina Brede , Charli Babb , Lucy Serpell , Catherine R. G. Jones , John Fox et al. (2022). Towards identifying a method of screening for autism amongst women with restrictive eating disorders . European Eating Disorders Review, 30(5), 592-603. Wiley.
    Type: Article DOI: 10.1002/erv.2918 OpenAlex: https://openalex.org/W4283827804
    Crossref OpenAlex
  6. Ivan Eisler , Mima Simic , Gerald F.M. Russell , Christopher Dare (2007). A randomised controlled treatment trial of two forms of family therapy in adolescent anorexia nervosa: a five‐year follow‐up . Journal of Child Psychology and Psychiatry, 48(6), 552-560. Wiley.
    Crossref OpenAlex
  7. James Adamson , Emma Kinnaird , Danielle Glennon , Madeleine Oakley , Kate Tchanturia (2020). Carers’ views on autism and eating disorders comorbidity: qualitative study . BJPsych Open, 6(3), e51. Royal College of Psychiatrists.
    Crossref OpenAlex
  8. Sara Donetto , Paola Pierri , Vicki Tsianakas , Glenn Robert (2015). Experience-based Co-design and Healthcare Improvement: Realizing Participatory Design in the Public Sector . The Design Journal, 18(2), 227-248. Informa UK Limited.
    Crossref OpenAlex
  9. Colleen Alford , Andrew Wallis , Phillipa Hay , Deborah Mitchison (2025). Understanding the child and adolescent eating disorder treatment experiences of autistic people and parents . Journal of Eating Disorders, 13(1), 128-128. Springer Science and Business Media LLC.
    Crossref OpenAlex
  10. Carrie Allison , Bonnie Auyeung , Simon Baron-Cohen (2012). Toward Brief “Red Flags” for Autism Screening: The Short Autism Spectrum Quotient and the Short Quantitative Checklist in 1,000 Cases and 3,000 Controls . Journal of the American Academy of Child & Adolescent Psychiatry, 51(2), 202-212.e7. Elsevier BV.
    Crossref OpenAlex
  11. Erica Allan , Daniel Le Grange , Susan M. Sawyer , Louise A. McLean , Elizabeth K. Hughes (2018). Parental Expressed Emotion During Two Forms of Family‐Based Treatment for Adolescent Anorexia Nervosa . European Eating Disorders Review, 26(1), 46-52. Wiley.
    Type: Article DOI: 10.1002/erv.2564 OpenAlex: https://openalex.org/W2765601034
    Crossref OpenAlex
  12. David L Sackett , William M C Rosenberg , J A Muir Gray , R Brian Haynes , W Scott Richardson (1996). Evidence based medicine: what it is and what it isn't . BMJ, 312(7023), 71-72. BMJ.
    Crossref OpenAlex
  13. P. Bate , Glenn Robert (2006). Experience-based design: from redesigning the system around the patient to co-designing services with the patient . Quality and Safety in Health Care, 15(5), 307-310. BMJ.
    Crossref OpenAlex
  14. Amelia Austin , A. G. Anderson , Junghee Lee , H. Vander Steen , C. Savard , C. Bergmann et al. (2025). Efficacy of Eating Disorder Focused Family Therapy for Adolescents With Anorexia Nervosa: A Systematic Review and Meta‐Analysis . International Journal of Eating Disorders, 58(1), 3-36. Wiley.
    Crossref OpenAlex
  15. Ivan Eisler , Christopher Dare , Matthew Hodes , Gerald Russell , Elizabeth Dodge , Daniel Le Grange (2000). Family Therapy for Adolescent Anorexia Nervosa: The Results of a Controlled Comparison of Two Family Interventions . Journal of Child Psychology and Psychiatry, 41(6), 727-736. Wiley.
    Crossref OpenAlex
  16. Austin A. Loomes R. & Duffy F. (2026). Eating disorder focused family therapy with Autistic children and young people: A narrative review of recent developments. Manuscript submitted for publication.
    Type: Other
    Crossref
  17. Carol B. Peterson , Carolyn Black Becker , Janet Treasure , Roz Shafran , Rachel Bryant-Waugh (2016). The three-legged stool of evidence-based practice in eating disorder treatment: research, clinical, and patient perspectives . BMC Medicine, 14(1), 69-69. Springer Science and Business Media LLC.
    Crossref OpenAlex
  18. Amelia Austin , Manya Singh , Sela Scott , Maria Nicula , Andrea Krishnapillai , Jayden Lee et al. (2026). Transition From Child to Adult Eating Disorder Services: A Qualitative Meta‐Aggregation . European Eating Disorders Review. Wiley.
    Crossref OpenAlex
  19. Catherine S. Stewart , Fiona S. McEwen , Anna Konstantellou , Ivan Eisler , Mima Simic (2017). Impact of ASD Traits on Treatment Outcomes of Eating Disorders in Girls . European Eating Disorders Review, 25(2), 123-128. Wiley.
    Type: Article DOI: 10.1002/erv.2497 OpenAlex: https://openalex.org/W2569992871
    Crossref OpenAlex
  20. Rachel Loomes , Laura Hull , Will Mandy (2017). What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis . Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466-474. Elsevier BV.
    Crossref OpenAlex
  21. Julian Baudinet , Mima Simic , Ivan Eisler (2021). Formulation in eating disorder focused family therapy: why, when and how? Journal of Eating Disorders, 9(1), 97-97. Springer Science and Business Media LLC.
    Crossref OpenAlex
  22. Heather Westwood , Will Mandy , Mima Simic , Kate Tchanturia (2018). Assessing ASD in Adolescent Females with Anorexia Nervosa using Clinical and Developmental Measures: a Preliminary Investigation . Journal of Abnormal Child Psychology, 46(1), 183-192. Springer Science and Business Media LLC.
    Crossref OpenAlex
  23. Mariotti, Mauro , Saba, George , Stratton, Peter (2021). Handbook of Systemic Approaches to Psychotherapy Manuals . Springer International Publishing.
    Crossref OpenAlex
  24. Heather Westwood , Kate Tchanturia (2017). Autism Spectrum Disorder in Anorexia Nervosa: An Updated Literature Review . Current Psychiatry Reports, 19(7), 41-41. Springer Science and Business Media LLC.
    Crossref OpenAlex
  25. Mette Bentz , Signe Holm Pedersen , Ulla Moslet (2022). Case series of family‐based treatment for restrictive‐type eating disorders and comorbid autism: What can we learn? A brief report . European Eating Disorders Review, 30(5), 641-647. Wiley.
    Type: Article DOI: 10.1002/erv.2938 OpenAlex: https://openalex.org/W4284988654
    Crossref OpenAlex
  26. Emma Kinnaird , Caroline Norton , Kate Tchanturia (2017). Clinicians’ views on working with anorexia nervosa and autism spectrum disorder comorbidity: a qualitative study . BMC Psychiatry, 17(1), 292-292. Springer Science and Business Media LLC.
    Crossref OpenAlex
  27. Mette Bentz , Signe Holm Pedersen , Ulla Moslet , Nikolaj Petersen , Anne Katrine Pagsberg (2025). Predictors of response to family-based treatment for anorexia nervosa in youth: insights from the VIBUS project . European Child & Adolescent Psychiatry, 34(11), 3665-3684. Springer Science and Business Media LLC.
    Crossref OpenAlex
  28. Margherita Boltri , Walter Sapuppo (2021). Anorexia Nervosa and Autism Spectrum Disorder: A Systematic Review . Psychiatry Research, 306, 114271. Elsevier BV.
    Crossref OpenAlex
  29. Gina Dimitropoulos , Ashley L. Landers , Victoria E. Freeman , Jason Novick , Olivia Cullen , Marla Engelberg et al. (2018). Family-based treatment for transition age youth: parental self-efficacy and caregiver accommodation . Journal of Eating Disorders, 6(1), 13-13. Springer Science and Business Media LLC.
    Crossref OpenAlex
  30. Children’s Commissioner for England. (2024). Waiting times for assessment and support for autism ADHD and other neurodevelopmental conditions. https://assets.childrenscommissioner.gov.uk/wpuploads/2024/10/CCo-report-on-ND-waiting-times_final.pdf
    Type: Other
    Crossref
  31. Jennifer Couturier , Leanna Isserlin , Mark Norris , Wendy Spettigue , Melissa Brouwers , Melissa Kimber et al. (2020). Canadian practice guidelines for the treatment of children and adolescents with eating disorders . Journal of Eating Disorders, 8(1), 4-4. Springer Science and Business Media LLC.
    Crossref OpenAlex
  32. Dimitri Chubinidze , Catherine Perry , Kate Tchanturia (2025). Artificial intelligence-assisted visual elicitation in anorexia nervosa . neuropsychiatrie, 39(3), 144-154. Springer Science and Business Media LLC.
    Crossref OpenAlex
  33. Emma Kinnaird , Yasemin Dandil , Zhuo Li , Katherine Smith , Caroline Pimblett , Rafiu Agbalaya et al. (2020). Pragmatic Sensory Screening in Anorexia Nervosa and Associations with Autistic Traits . Journal of Clinical Medicine, 9(4), 1182. MDPI AG.
    Crossref OpenAlex
  34. Dimitri Chubinidze , Elisa Zesch , Amanda Sarpong , Zhuo Li , Claire Baillie , Kate Tchanturia (2024). The Sensory Landscape and Embodied Experiences in Anorexia Nervosa Treatment: An Inpatient Sensory Ethnography . Journal of Clinical Medicine, 13(23), 7172. MDPI AG.
    Crossref OpenAlex
  35. Copp-Thomas J. (2021). Supporting autistic people with eating disorders: A guide to adapting treatment and supporting recovery . Supporting autistic people with eating disorders: A guide to adapting treatment and supporting recovery, 90.
    Type: Other
    Crossref
  36. Katherine Amanda Smith , Kate Tchanturia (2020). Are Huddles the Missing PEACE of the Puzzle in Implementing Clinical Innovation for the Eating Disorder and Autism Comorbidity? Frontiers in Psychiatry, 11, 593720-593720. Frontiers Media SA.
    Crossref OpenAlex
  37. Emma Kinnaird , Madeleine Oakley , Vanessa Lawrence , Sukhi Shergill , Kate Tchanturia (2021). A peer interview qualitative study exploring support for carers of people with comorbid autism and eating disorders . Journal of Eating Disorders, 9(1), 42-42. Springer Science and Business Media LLC.
    Crossref OpenAlex
  38. Catherine Crone , Laura J. Fochtmann , Evelyn Attia , Robert Boland , Javier Escobar , Victor Fornari et al. (2023). The American Psychiatric Association Practice Guideline for the Treatment of Patients With Eating Disorders . American Journal of Psychiatry, 180(2), 167-171. American Psychiatric Association Publishing.
    Crossref OpenAlex
  39. Takeshi Inoue , Ryoko Otani , Toshiyuki Iguchi , Ryuta Ishii , Soh Uchida , Ayumi Okada et al. (2021). Prevalence of autism spectrum disorder and autistic traits in children with anorexia nervosa and avoidant/restrictive food intake disorder . BioPsychoSocial Medicine, 15(1), 9-9. Springer Science and Business Media LLC.
    Crossref OpenAlex
  40. Zhuo Li , Daniel Halls , Sarah Byford , Kate Tchanturia (2022). Autistic characteristics in eating disorders: Treatment adaptations and impact on clinical outcomes . European Eating Disorders Review, 30(5), 671-690. Wiley.
    Type: Article DOI: 10.1002/erv.2875 OpenAlex: https://openalex.org/W3211811263
    Crossref OpenAlex
  41. Gina Dimitropoulos , Maria Nicula , Andrea Krishnapillai , Amelia Austin , Manya Singh , Jayden Lee et al. (2025). Transitions for youth and young adults with eating disorders and/or other mental health conditions: a Canadian guideline . Journal of Eating Disorders, 13(1), 158-158. Springer Science and Business Media LLC.
    Crossref OpenAlex
  42. Rachel Loomes , Rachel Bryant-Waugh (2021). Widening the reach of family-based interventions for Anorexia Nervosa: autism-adaptations for children and adolescents . Journal of Eating Disorders, 9(1), 157-157. Springer Science and Business Media LLC.
    Crossref OpenAlex
  43. Elizabeth Dodge , Julian Baudinet , Amelia Austin , Ivan Eisler , Daniel Le Grange , Gina Dimitropoulos (2026). Family therapy for emerging adults with anorexia nervosa: Expert opinion on evidence, practice considerations, and future directions . European Eating Disorders Review, 34(1), 44-54. Wiley.
    Type: Article DOI: 10.1002/erv.3129 OpenAlex: https://openalex.org/W4401677743
    Crossref OpenAlex
  44. Renee D. Rienecke , Daniel Le Grange (2022). The five tenets of family-based treatment for adolescent eating disorders . Journal of Eating Disorders, 10(1), 60-60. Springer Science and Business Media LLC.
    Crossref OpenAlex
  45. Eating Disorders and Autism Collaborative. (2025). Clinical environmental audit tool. https://edacresearch.co.uk/img/news/Sensory_Environment_Audit_Tool.pdf
    Type: Other
    Crossref
  46. Zhuo Li , Dimitri Chubinidze , Philippa Croft , Jessica Webb , Amanda Sarpong , Elisa Zesch et al. (2025). “Don’t talk to me like I am an illness”: exploring patients’ needs using the communication passport in an eating disorder service . neuropsychiatrie, 39(1), 28-35. Springer Science and Business Media LLC.
    Crossref OpenAlex
  47. Eisler I. (2016). Maudsley service manual for Child and adolescent eating Disorders . Maudsley service manual for Child and adolescent eating Disorders.
    Type: Other
    Crossref
  48. Felicity Hasson , Sinead Keeney , Hugh McKenna (2025). Revisiting the Delphi technique - Research thinking and practice: A discussion paper . International Journal of Nursing Studies, 168, 105119. Elsevier BV.
    Crossref OpenAlex
  49. Haugaard V. (2025). FBT needs to change and I believe that lived experience should Be at the heart of that”: A qualitative exploration of autistic young people’s experiences and perspectives of eating disorder focused family therapy (FT-ED) [Doctoral thesis]. University of Edinburgh.
    Type: Other
    Crossref
  50. Sara Ryan , Jane Maddison , Kate Baxter , Mark Wilberforce , Yvonne Birks , Emmie Morrissey et al. (2024). Understanding and using experiences of social care to guide service improvements: translating a co-design approach from health to social care . Health and Social Care Delivery Research, 12(27), 1-84. National Institute for Health and Care Research.
    Type: Article DOI: 10.3310/myht8970 OpenAlex: https://openalex.org/W4402478697
    Crossref OpenAlex
  51. Jess Kerr‐Gaffney , Emy Nimbley , Amelia Austin , Karri Gillespie‐Smith , Helen Sharpe , Fiona Duffy (2026). A scoping review of the relationship between autistic traits and eating disorders: exploring the secondary impact of eating disorders and co-occurring psychiatric diagnoses . Frontiers in Psychiatry, 17, 1837078-1837078. Frontiers Media SA.
    Crossref OpenAlex
  52. Kate Tchanturia , Dimitri Chubinidze , Fiona Duffy , Emy Nimbley , Zhuo Li , Joanna Holliday (2025). Implementation Insights from the PEACE Pathway Across UK Eating Disorder Services . Nutrients, 17(9), 1532. MDPI AG.
    Crossref OpenAlex
  53. Le Grange D. (2009). Treating bulimia in adolescents: A family-based approach . Treating bulimia in adolescents: A family-based approach.
    Type: Other
    Crossref
  54. Maria Livanou , Marta Marlais , Charlotte Burton , Nora Kornai , Anna Bromley , Pareena Dutt et al. (2026). Co‐Producing the Transition to Eating Disorder Youth Intervention: Experience‐Based Co‐Design Workshops Supporting Young People in Transition . International Journal of Eating Disorders, 59(6), 1330-1343. Wiley.
    Crossref OpenAlex
  55. Lock J. (2026). Treatment manual for anorexia Nervosa . Treatment manual for anorexia Nervosa.
    Type: Other
    Crossref
  56. Sofia Loizou , Kate Beresford , Julian Baudinet , Paula Herrera-Gener , Danielle Oregan , Colleen Alford et al. (2025). A pilot study investigating the acceptability and feasibility of a group intervention for parents of autistic young people with anorexia nervosa within a specialist eating disorders service . Journal of Eating Disorders, 13(1), 217-217. Springer Science and Business Media LLC.
    Crossref OpenAlex
  57. Laura Pettitt , Rose-Marie Satherley , Lucy Hale (2025). “No one was coming to save us”: an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa . Journal of Eating Disorders, 13(1), 264-264. Springer Science and Business Media LLC.
    Crossref OpenAlex
  58. Tracey D. Wade , Ulrike Schmidt (2026). Learning the Lessons of Premature Discontinuation of Eating Disorder Therapy: Informing Guidelines to Improve Retention . International Journal of Eating Disorders, 59(6), 1278-1288. Wiley.
    Crossref OpenAlex
  59. Nash F. & Thomas Yates I. (2025). [Unpublished manuscript]. Department of Clinical Psychology University of Edinburgh.
    Type: Other
    Crossref
  60. National Institute for Health and Care Excellence. (2017). Eating disorders: Recognition and treatment. https://www.nice.org.uk/guidance/ng69
    Type: Other
    Crossref
  61. Emy Nimbley , Imogen Peebles , Rachel Loomes , Emma Clark , Amelia Austin , Fiona Duffy (2026). ‘ That's Not Our Pathway ’: Parent and Carer Experiences of Eating Disorder Focused Family Therapy (FT‐ED) for Autistic Young People With Anorexia Nervosa . European Eating Disorders Review, 34(4), 1130-1139. Wiley.
    Crossref OpenAlex
  62. National Institute for Health and Care Research. (2022). NIHR Public contributor reward and recognition policy. https://www.nihr.ac.uk/about-us/who-we-are/policies-and-guidelines/public-contributor-reward-policy
    Type: Other
    Crossref
  63. Helena Tuomainen , Rebecca Appleton , Gail Asher , Gwendolyn C. Dieleman , Tomislav Franić , Giovanni de Girolamo et al. (2026). European Society of Child and Adolescent Psychiatry (ESCAP) practical guidance for clinicians and mental health services regarding child to adult mental health service transitions and managed discharge at the service boundary . European Child & Adolescent Psychiatry, 35(4), 1357-1368. Springer Science and Business Media LLC.
    Crossref OpenAlex
  64. NHS England. (2026). Eating disorder services for children and young people: National guidance. https://www.england.nhs.uk/long-read/eating-disorder-services-for-children-and-young-people-national-guidance/
    Type: Other
    Crossref
  65. NHS England. (n.d.). Making information and the words we use accessible. https://www.england.nhs.uk/learning-disabilities/about/get-involved/involving-people/making-information-and-the-words-we-use-accessible/#autism
    Type: Other
    Crossref
  66. Emy Nimbley , Amelia Austin , Kate Tchanturia , Kai S. Thomas , Catherine R. G. Jones , Karri Gillespie‐Smith et al. (2026). Clinician Perspectives on Barriers and Enablers to Autism‐Affirming Eating Disorder Care . European Eating Disorders Review. Wiley.
    Crossref OpenAlex
  67. Scottish Government. (2021). Children and young people - national neurodevelopmental specification: Principles and standards of care. https://www.gov.scot/publications/national-neurodevelopmental-specification-children-young-people-principles-standards-care/documents/
    Type: Other
    Crossref
  68. Scottish Intercollegiate Guidelines Network. (2022). SIGN 164 eating disorders: A national clinical guideline. https://www.sign.ac.uk/media/1987/sign-164-eating-disorders-v2.pdf
    Type: Other
    Crossref
  69. White M. (1990). Narrative means to therapeutic ends . Narrative means to therapeutic ends.
    Type: Other
    Crossref
  70. Williams K. (2021). Supporting autistic people with eating disorders: A guide to adapting treatment and supporting recovery . Supporting autistic people with eating disorders: A guide to adapting treatment and supporting recovery, 70.
    Type: Other
    Crossref