Recueillir les perspectives de la communauté pour éclairer la conception d'ateliers de création musicale adaptés à l'autisme pour le bien-être

Titre original en anglais : Gathering community perspectives to inform the design of autism-friendly music-making workshops for wellbeing

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Thompson, G., Raine, M., Hayward, S., & Kilpatrick, H. (2020). Gathering community perspectives to inform the design of autism-friendly music-making workshops for wellbeing. International Journal of Wellbeing, 10(5), 117-143. https://doi.org/10.5502/ijw.v10i5.1497

Date de publication: 16/12/2020 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Grace Thompson *
  2. Melissa Raine
  3. Susan Hayward
  4. Hannah Kilpatrick

Résumé

De nombreuses personnes autistes déclarent ressentir un isolement social, un facteur de risque reconnu de faible bien-être psychologique. Promouvoir l'inclusion sociale constitue donc une tâche essentielle mais complexe. Les activités créatives communautaires telles que les groupes de musique peuvent améliorer le sentiment de lien social des individus et réduire l'expérience de l'isolement social. Cependant, la littérature décrivant les perspectives des personnes autistes sur la manière de favoriser un engagement réussi dans ces occasions de groupe créatives et inclusives est limitée. Ce projet vise à recueillir les perspectives de personnes autistes âgées de 18 à 25 ans afin d'éclairer la conception d'ateliers de création musicale adaptés à l'autisme pour le bien-être. Ce projet de co-conception a impliqué une équipe de recherche composée d'universitaires autistes et non autistes, ainsi qu'un groupe consultatif incluant de jeunes adultes autistes et des défenseurs de l'autisme. Ensemble, nous avons conçu une enquête en ligne et des questions d'entretien structuré afin d'évaluer les préférences des personnes autistes concernant l'engagement dans des activités musicales en groupe. L'enquête en ligne a recueilli 30 réponses aux questions portant sur des informations démographiques, des opinions sur les activités de groupe fondées sur la musique, et des points de vue sur les meilleures manières de soutenir l'accès et la participation au sein de la communauté locale. En outre, cinq entretiens structurés ont été menés avec des participants à l'enquête qui se sont portés volontaires pour fournir des réponses de suivi approfondies. Les données de l'enquête sont présentées de manière descriptive, et les données d'entretien ont fait l'objet d'une analyse thématique inductive. Les participants ont décrit leur motivation à rejoindre des ateliers de création musicale proposés dans la communauté et ont proposé diverses façons d'améliorer l'accessibilité. Les thèmes qualitatifs issus des textes libres de l'enquête et des entretiens suggèrent que les facteurs environnementaux et sociaux agissent conjointement pour créer un sentiment de sécurité et d'inclusion. En particulier, une atmosphère accueillante et l'acceptation de la diversité étaient attendues de la part de l'animateur de l'atelier et des membres du groupe. Ces résultats ont des implications importantes pour la coproduction de futurs ateliers de création musicale destinés au bien-être des personnes autistes.

Many autistic people report experiencing social isolation, a recognized risk factor for poor psychological wellbeing. Promoting social inclusion is therefore a vital yet complex task. Community-based creative activities such as music groups can improve individuals' sense of social connection and reduce the experience of social isolation. However, limited literature is available that describes autistic people's perspectives about how to foster successful engagement in these creative and inclusive group opportunities. This project aims to gather perspectives from autistic individuals aged between 18 to 25 years to inform the design of autism-friendly musicmaking workshops for wellbeing. This co-design project involved a research team comprizing autistic and non-autistic academics, and an advisory group that included autistic young adults and autism advocates. Together, we designed an online survey and structured interview questions to gauge autistic people's preferences for engagement in group-based music activities. There were 30 responses to the online survey questions which collected demographic information, opinions about group music-based activities, and views about ways to best support access and participation in the local community. In addition, five structured interviews were conducted with survey participants who volunteered to provide in-depth follow-up responses. Survey data are presented descriptively, and interview data underwent inductive thematic analysis. Participants described being motivated to join music-making workshops offered in the community and proposed various ways to improve accessibility. The qualitative themes from the survey free text and interviews suggest that both environmental and social factors work together to create a sense of safety and inclusion. In particular, a welcoming atmosphere and acceptance of diversity were expected from the workshop facilitator and group members. These findings have important implications for the co-production of future music-making workshops for the wellbeing of autistic people.

Bibliographie citée par cette référence

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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
51
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
4 / 51 (7,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
4 / 153 (2,6 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 4 / 60 (6,7 %). Auteurices cité·es distinct·es identifié·es comme autistes : 3 / 139 (2,2 %).
Occurrences citées rattachées à la base AutiHub
60 / 153 (39,2 %)
Auteurices cité·es distinct·es rattaché·es : 48 / 139 (34,5 %)
Occurrences rattachées, non identifiées comme autistes
56 / 60 (93,3 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 56 / 153 (36,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 45 / 48 (93,8 %).
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