Perspectives à long terme sur la qualité de vie familiale après une thérapie par la musique avec de jeunes enfants sur le spectre de l'autisme : une étude phénoménologique

Titre original en anglais : Long-term perspectives of family quality of life following music therapy with young children on the autism spectrum: a phenomenological study

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Thompson, G. (2017). Long-term perspectives of family quality of life following music therapy with young children on the autism spectrum: a phenomenological study. Journal of Music Therapy, 54(4), 432-459. https://doi.org/10.1093/jmt/thx013

Date de publication: 23/11/2017 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
1
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1 / 1 (100,0 %)
  1. Grace Thompson *

Résumé

CONTEXTE : Les parents d'enfants sur le spectre de l'autisme ont constamment déclaré se sentir incertains dans leur rôle parental et souhaiter davantage de conseils pratiques de la part des prestataires de services sur la manière de soutenir leur enfant à domicile. La nécessité d'interventions apportant un soutien à la famille tout en favorisant les résultats développementaux de l'enfant est de plus en plus reconnue. OBJECTIF : Cette étude explore les perspectives de suivi de mères concernant la thérapie par la musique centrée sur la famille (FCMT), quatre ans après leur participation à un programme à domicile de 16 semaines, et fournit ainsi un point de vue unique à long terme sur les résultats de la FCMT. MÉTHODES : Huit mères ayant précédemment participé à des séances de FCMT avec leurs jeunes enfants sur le spectre de l'autisme ont été interrogées afin d'explorer leur perception d'éventuels résultats à long terme. RÉSULTATS : Une analyse phénoménologique descriptive a révélé cinq thèmes globaux, notamment : une amélioration de la confiance des mères pour interagir avec leur enfant ; de rares occasions de plaisir mutuel entre la mère et l'enfant ; une amélioration de la communication sociale et de la qualité de vie de l'enfant ; une nouvelle compréhension par les mères des intérêts et des forces de l'enfant ; et davantage d'occasions de poursuivre l'intérêt de l'enfant pour la musique. CONCLUSIONS : Les mères ont perçu des bénéfices à long terme pour les relations sociales au sein de la famille, conduisant à un enrichissement perçu de la qualité de vie de l'enfant et de la famille après les séances de thérapie par la musique.

BACKGROUND: Parents of children on the autism spectrum have consistently reported feeling uncertain in their parenting role, and desire more practical advice from service providers about how to support their child in the home. There is growing recognition of the need for interventions to provide support to the family as well as fostering child development outcomes. OBJECTIVE: This study explores mothers' follow-up perspectives of family-centered music therapy (FCMT) four years after participating in a 16-week home-based program, and therefore provides a unique long-term viewpoint on FCMT outcomes. METHODS: Eight mothers who previously participated in FCMT sessions with their young children on the autism spectrum were interviewed to explore their perception of any long-term outcomes. RESULTS: A descriptive phenomenological analysis revealed five global themes, including: improvement in mothers' confidence to engage their child; rare opportunities for mutual mother-child enjoyment; improved child social communication and quality of life; mothers' new understanding of the child's interests and strengths; and more opportunities for continuing the child's interest in music. CONCLUSIONS: Mothers perceived long-term benefits to social relationships within the family, leading to perceived enrichment in child and family quality of life following music therapy sessions.

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Références citées
62
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
5 / 62 (8,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
5 / 125 (4,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 5 / 26 (19,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 115 (0,9 %).
Occurrences citées rattachées à la base AutiHub
26 / 125 (20,8 %)
Auteurices cité·es distinct·es rattaché·es : 18 / 115 (15,7 %)
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21 / 26 (80,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 21 / 125 (16,8 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 17 / 18 (94,4 %).
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