Community Priorities for Preventing Suicide in Autistic People: An Approach to Guide Policy and Practice

This publication is included in the Autistic Autism Scholarship Project. two authors of this publication are identified as autistic in the project.

About the autistic author marker

Moseley, R. L., Procyshyn, T., Chikaura, T., Marsden, S. J., Parsons, T. A., Cassidy, S., Allison, C. T., Pelton, M., Weir, E., Crichton, D., Mosse, D., Rodgers, J., Hall, I., Owens, L., Cheyette, J., Hodges, H., Hedley, D., & Baron-Cohen, S. (2026). Community Priorities for Preventing Suicide in Autistic People: An Approach to Guide Policy and Practice. Autism in Adulthood. https://doi.org/10.1177/25739581261415764

Publication date: 11 Feb 2026 Added to AutiHub: 1 Oct 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
18
Publication authors identified as autistic
2 / 18 (11.1%)

Abstract

Background: Suicide is a leading cause of death for autistic people worldwide, but there is remarkably little research addressing suicide prevention strategies in this group, and virtually none that asks autistic people what they need and want. Methods: Overall, 3962 autistic people and 627 people who supported or were bereaved by the suicide of an autistic person (>95% UK-based) participated in our online surveys. We garnered their ideas for policies and interventions to prevent suicide in autistic people (Phase 1). We thematically analyzed 2373 suggestions, distilling these into 63 ideas which an independent sample prioritized (Phase 2). We identified shared and differential priorities between participants. Results: Across two samples of autistic and non-autistic people, differences were overshadowed by consensus on necessary pathways to suicide prevention. Paramount among these were the upskilling and resourcing of healthcare services to deliver timely, autism-specific support, and the improvement of diagnostic services, ensuring autistic people not diagnosed in childhood are assessed accurately, quickly, and with sensitive post-diagnostic care. Other priorities, across phases, emphasized a social, societal response to suicide in autistic people, one where reducing stigma and providing social support were favored over crisis apps, and where support should be embedded across the life course in relation to education, employment, and social care in the community. Conclusion: While UK-centric, the findings corroborate international calls for autism-specific support for people in crisis, delivered by those with specialist knowledge. These results also highlight the relationship between suicide prevention and timely autism diagnosis, and the essential need for post-diagnostic care. Mirroring shifts in national and international suicide prevention policy, participant priorities extend the focal point of suicide prevention beyond individuals in crisis, emphasizing the need for coordinated, multisector efforts to address systemic societal determinants of suicide: a strategic and expansive perspective thus far lacking in an autism context.

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Associated preprints

Confirmed Reliability level: High Manual

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:01.

Cited references
62
With a DOI
46
Without a DOI, from raw bibliography text
16
19 / 62 (30.6%) cited references include at least one author identified as autistic.
References with data to complete
7 / 62 (11.3%)
References with detected author names
55 / 62 (88.7%)
Without detected author names
7
Without a structured title
7
Without a stable identifier
16
References with raw author names still to review
7
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
551
From DOI or external metadata
551
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
9
402 / 551 (73.0%) names are linked to an author already present in AutiHub. 149 / 551 (27.0%) names are not yet linked.
Names linked to a person identified as autistic
32 / 551 (5.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 32 / 402 (8.0%). Distinct people identified as autistic: 29 / 503 (5.8%).
  1. Victoria Newell , Lucy Phillips , Chris Jones , Ellen Townsend , Caroline Richards , Sarah Cassidy (2023). A systematic review and meta-analysis of suicidality in autistic and possibly autistic people without co-occurring intellectual disability . Molecular Autism, 14(1), 12. Springer Science and Business Media LLC.
    Crossref
  2. Cassidy S (2022). Autism and autistic traits in those who died by suicide in England . Br J Psychiatry., 1.
    Type: Other
    Crossref
  3. Claire M. Brown , Victoria Newell , Ensu Sahin , Darren Hedley (2024). Updated Systematic Review of Suicide in Autism: 2018–2024 . Current Developmental Disorders Reports, 11(4), 225-256. Springer Science and Business Media LLC.
    Crossref
  4. Department of Health , Social Care (2023). Suicide prevention strategy for England: 2023 to 2028 . Suicide prevention strategy for England: 2023 to 2028.
    Type: Other
    Crossref
  5. Jacqui Rodgers , Sarah Cassidy , Mirabel Pelton , Jane Goodwin , Janelle Wagnild , Nawaraj Bhattarai et al. (2024). Feasibility and acceptability of autism adapted safety plans: an external pilot randomised controlled trial . eClinicalMedicine, 73, 102662. Elsevier BV.
    Crossref
  6. Orr N (2025). The effectiveness, cost-effectiveness and experiences of interventions to reduce suicidality for autistic people: A scoping review . Autism, 136236132513762.
    Type: Other
    Crossref
  7. Jane Pirkis , Rakhi Dandona , Morton Silverman , Murad Khan , Keith Hawton (2024). Preventing suicide: a public health approach to a global problem . The Lancet Public Health, 9(10), e787-e795. Elsevier BV.
    Crossref
  8. Rory C. O’Connor , Carol M Worthman , Marie Abanga , Nikoletta Athanassopoulou , Niall Boyce , Lai Fong Chan et al. (2023). Gone Too Soon: priorities for action to prevent premature mortality associated with mental illness and mental distress . The Lancet Psychiatry, 10(6), 452-464. Elsevier BV.
    Crossref
  9. Grant A (2023). Unmet need, epistemic injustice and early death: How social policy for autistic adults in England and Wales fails to slay Beveridge’s five giants . Social Policy Review, 35, 239.
    Type: Other
    Crossref
  10. Procyshyn TL (2025). ‘I did not think they could help me’: UK-based autistic adults’ reasons for not seeking public healthcare when experiencing suicidality . Autism, 136236132513707.
    Type: Other
    Crossref
  11. Cassidy S (2021). Where do we go from here . Autism community priorities for future suicide research.
    Type: Other
    Crossref
  12. Céline El Baou , Georgia Bell , Rob Saunders , Joshua E J Buckman , Will Mandy , Dave Dagnan et al. (2023). Effectiveness of primary care psychological therapy services for treating depression and anxiety in autistic adults in England: a retrospective, matched, observational cohort study of national health-care records . The Lancet Psychiatry, 10(12), 944-954. Elsevier BV.
    Crossref
  13. Rachel L. Moseley *Autistic author. Learn more… (2025). “A combination of everything”: A mixed-methods approach to the factors which autistic people consider important in suicidality . Autism in Adulthood.
    Type: Other
    Crossref
  14. (n.d.). Moseley RL Marsden SJ Pelton M et al. “The best way we can stop suicides is by making lives worth living”: Perspectives on suicide prevention from the autism community. Accepted EClinicalMedicine.
    Type: Other
    Crossref
  15. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Crossref
  16. Sirwan Khalid Ahmed , Ribwar Arsalan Mohammed , Abdulqadir J. Nashwan , Radhwan Hussein Ibrahim , Araz Qadir Abdalla , Barzan Mohammed M. Ameen et al. (2025). Using thematic analysis in qualitative research . Journal of Medicine, Surgery, and Public Health, 6, 100198. Elsevier BV.
    Crossref
  17. Janina Brede , Eilidh Cage , Joseph Trott , Lisa Palmer , Anika Smith , Lucy Serpell et al. (2022). “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis . Clinical Psychology Review, 93, 102131. Elsevier BV.
    Crossref
  18. Sophia Dückert , Petia Gewohn , Hannah König , Daniel Schöttle , Alexander Konnopka , Pascal Rahlff et al. (2023). Barriers and needs in mental healthcare of adults with autism spectrum disorder in Germany: a qualitative study in autistic adults, relatives, and healthcare providers . BMC Psychiatry, 23(1), 528. Springer Science and Business Media LLC.
    Crossref
  19. Laura Moore , Fionnuala Larkin , Sarah Foley (2024). Mental Health Professionals’ Experiences of Adapting Mental Health Interventions for Autistic Adults: A Systematic Review and Thematic Synthesis . Journal of Autism and Developmental Disorders, 54(7), 2484-2501. Springer Science and Business Media LLC.
    Crossref
  20. Jodie Wilson *Autistic author. Learn more… , Claire M. Brown , Susan M Hayward , Mark A. Stokes , David Nicholas , Darren Hedley (2025). Autistic Adults’ Experiences Seeking and Receiving Support for Mental Health and Suicidal Thoughts and Behavior . Autism in Adulthood. SAGE Publications.
    Crossref
  21. Natasha Marrus , Kathleen A Koth , Jessica A Hellings , Rachel G. McDonald , McLeod Frampton Gwynette , Rebecca Muhle et al. (2023). Psychiatry training in autism spectrum disorder and intellectual disability: Ongoing gaps and emerging opportunities . Autism, 27(3), 679-689. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221112197
    Crossref
  22. Jessica V Smith , Goldie A. McQuaid , Gregory L. Wallace , Emily Neuhaus , Andrea Lopez , Allison B. Ratto et al. (2024). Time is of the essence: Age at autism diagnosis, sex assigned at birth, and psychopathology . Autism, 28(11), 2909-2922. SAGE Publications.
    Crossref
  23. Will Mandy (2022). Six ideas about how to address the autism mental health crisis . Autism, 26(2), 289-292. SAGE Publications.
    Crossref
  24. Arvid Nikolai Kildahl , Tuva Langjord , Geir Pedersen , Oddbjørn Hove , Øyvind Urnes , Terje Torgersen et al. (2025). Screening for autism in psychiatric inpatients with severe self-harm – results from the Extreme Challenges research project . Nordic Journal of Psychiatry, 79(4), 303-313. Informa UK Limited.
    Type: Article DOI: 10.1080/08039488.2025.2497820
    Crossref
  25. (n.d.). Joint call to end an ‘avoidable and devastating crisis’ of autism diagnosis waiting times. 2024. https://www.autism.org.uk/what-we-do/news/joint-call [Last accessed: January14 2025].
    Type: Other
    Crossref
  26. (n.d.). Autism Action. What we do. 2025. https://autismaction.org.uk/about-us/what-we-do/ [Last accessed: January14 2025].
    Type: Other
    Crossref
  27. (n.d.). National Suicide Prevention Office Australian Government. The National Suicide Prevention Strategy. 2025 National Suicide Prevention Office; [Last accessed: January14 2025].
    Type: Other
    Crossref
  28. Meng-Chuan Lai , Hsiang‐Yuan Lin , Stephanie H. Ameis (2022). Towards equitable diagnoses for autism and attention-deficit/hyperactivity disorder across sexes and genders . Current Opinion in Psychiatry, 35(2), 90-100. Ovid Technologies (Wolters Kluwer Health).
    Crossref
  29. Shari Jager-Hyman , Brenna Maddox , Samantha R. Crabbe , DAVID S. MANDELL (2020). Mental Health Clinicians’ Screening and Intervention Practices to Reduce Suicide Risk in Autistic Adolescents and Adults . Journal of Autism and Developmental Disorders, 50(10), 3450-3461. Springer Science and Business Media LLC.
    Crossref
  30. Soo Jung Rim , KeumJoo Kwak , Subin Park (2023). Risk of psychiatric comorbidity with autism spectrum disorder and its association with diagnosis timing using a nationally representative cohort . Research in Autism Spectrum Disorders, 104, 102134. Elsevier BV.
    Crossref
  31. Chen YJ (2025). Initial diagnosis patterns of coexisting mental health and neurodevelopmental conditions in autistic children and youth: Evidence from a nationally representative sample in Canada . Child Psychology Psychiatry..
    Type: Other
    Crossref
  32. Will Mandy , Emily Midouhas , Mariko Hosozawa , Noriko Cable , Amanda Sacker , Eirini Flouri (2022). Mental health and social difficulties of late‐diagnosed autistic children, across childhood and adolescence . Journal of Child Psychology and Psychiatry, 63(11), 1405-1414. Wiley.
    Crossref
  33. Ingrid Kiehl , Ruby Pease , Corinna Hackmann (2024). The adult experience of being diagnosed with autism spectrum disorder: A qualitative meta-synthesis . Autism, 28(5), 1060-1074. SAGE Publications.
    Crossref
  34. Hannah Gellini , Magda Marczak (2024). “I Always Knew I Was Different”: Experiences of Receiving a Diagnosis of Autistic Spectrum Disorder in Adulthood—a Meta-Ethnographic Systematic Review . Review Journal of Autism and Developmental Disorders, 11(3), 620-639. Springer Science and Business Media LLC.
    Crossref
  35. Jade Eloise Norris , Rebecca Harvey , Laura Hull (2025). Post-diagnostic support for adults diagnosed with autism in adulthood in the UK: A systematic review with narrative synthesis . Autism, 29(2), 284-309. SAGE Publications.
    Crossref
  36. Sarah Wigham , Patrick Welsh , Barry Ingham , Colin Wilson , Amy Fisher-Rogers , Rhianna Lees et al. (2024). Post-Autism Diagnosis Support for Adults in the United Kingdom: Positive and Negative Experiences and Proposed Solutions to Address Gaps in Service Provision . Autism in Adulthood. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2023.0079
    Crossref
  37. Jon Glasby , Justin Waring , Robin Miller , Anne‐Marie Glasby , Rebecca Ince (2025). Out of Sight, Out of Mind—Explaining and Challenging the Re‐Institutionalisation of People With Learning Disabilities and/or Autistic People . Sociology of Health & Illness, 47(2). Wiley.
    Type: Article DOI: 10.1111/1467-9566.70009
    Crossref
  38. (n.d.). Pelton M Moseley R Hedley D et al. Unmasking a hidden public health crisis: suicide prevention amongst autistic people. In preparation.
    Type: Other
    Crossref
  39. Duleeka Knipe , Paul Moran , Laura D Howe , Saffron Karlsen , Nav Kapur , Lauren Revie et al. (2024). Ethnicity and suicide in England and Wales: a national linked cohort study . The Lancet Psychiatry, 11(8), 611-619. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(24)00184-6
    Crossref
  40. Emily F. Ferguson , Emily Spackman , Ru Ying Cai , Antonio Y. Hardan , Mirko Uljarevic (2025). Exploring the Heterogeneity of Self‐Injurious Behaviors in Autistic Youth: Patterns, Predictors, and Implications for Intervention . Autism Research, 18(1), 133-151. Wiley.
    Type: Article DOI: 10.1002/aur.3269 OpenAlex: https://openalex.org/W4404652370
    Crossref
  41. Global Burden of Disease Collaborators (n.d.). Global, regional, and national burden of 12 mental disorders in 204 countries and territories, 1990–2019: A systematic analysis for the Global Burden of Disease Study 2019 . Lancet Psychiatry., 2022(2), 137.
    Type: Other
    Crossref
  42. (n.d.). World Health Organisation. Suicide worldwide in 2021: Global health estimates. 2025. https://www.who.int/publications/i/item/9789240110069 [Last accessed: October27 2025].
    Type: Other
    Crossref
  43. Oksana I. Talantseva , Raisa S. Romanova , Ekaterina M. Shurdova , Tatiana A. Dolgorukova , Polina S. Sologub , Olga S. Titova et al. (2023). The global prevalence of autism spectrum disorder: A three-level meta-analysis . Frontiers in Psychiatry, 14, 1071181-1071181. Frontiers Media SA.
    Crossref
  44. Aishat F. Akomolafe , Bushra M. Abdallah , Fathima R. Mahmood , Amgad M. Elshoeibi , Aisha Abdulla Al-Khulaifi , Elhassan Mahmoud et al. (2025). Estimates of the prevalence of autism spectrum disorder in the Middle East and North Africa region: A systematic review and Meta-Analysis . BMC Public Health, 25(1). Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12889-025-23651-x
    Crossref
  45. (n.d.). World Health Organisation. Suicide: Fact Sheet. 2025. https://www.who.int/news-room/fact-sheets/detail/suicide [Last accessed: October27 2025].
    Type: Other
    Crossref