Meta-Synthesis of Autistic Adults’ First-Person Perspectives About Mental Health-Related Services

Authors

Abstract

Background: Autistic adults are at high risk of co-occurring mental health disorders, including depression, anxiety, nonsuicidal self-injury, and suicidality. Existing services are not adequately meeting autistic adults’ mental health needs. To better inform evidence-based care, there is a need to synthesize and integrate autistic people’s perspectives about the mental health-related services they receive. Methods: Using the PRISMA method, 40 studies of first-person experiences for autistic adults about mental health-related services met inclusion for this systematic review. Electronic database searches in PsycINFO and PubMed were conducted up to July 2023. Studies needed to be published, qualitative or mixed-methods, and had to include self-report of autistic adults who had experiences with mental health-related services. Original articles were reviewed, coded, and analyzed in line with a modified critical constructivist grounded theory approach. Results: Twelve studies inquired about participants’ experiences and needs with general services, and 28 studies explored participants’ experiences with specific services such as specific mental health interventions, support groups, or social-focused interventions. Our analyses of the 40 studies revealed five categories with regard to autistic clients’ perspectives on their mental health services: (1) to be more tailored to their individual needs, (2) to provide more accommodations in both format and content, (3) to include more practical support, in addition to emotional support, (4) for providers to have both knowledge of the heterogeneity of autism and humility in their work, and (5) to encourage and embrace a sense of autistic identity and community. Conclusion: Our results offer practical changes that clinicians can make to improve their services and create a better experience for autistic adults. Notably, our analyses highlight that too often the services autistic people receive focus on changing them, rather than on changing or coping with the environment. Diversity in participants was a limitation across our studies (participants were majority White, in a Western-based country, and did not have a co-occurring intellectual disability), and future research should ensure greater diversity in first-person perspectives. Community Brief Why is this an important issue? Autistic adults frequently experience mental health challenges such as depression and anxiety. Unfortunately, autistic adults are not satisfied with their care and report that their experiences with mental health services are not compatible or effective for what they need. What was the purpose of this study? To improve the quality of care, it is important to understand what autistic adults want from their mental health services. Our purpose is to provide practical recommendations to mental health clinicians working with autistic adults. What did the researchers do? We conducted a systematic review of 40 studies that gathered firsthand experiences of autistic individuals about mental health-related services. The studies included autistic first-person perspectives on general mental health service needs, as well as perspectives on specific mental health-related services such as counseling or psychiatric services, support groups, or psychotherapy groups. What were the results of the study? From our analysis, we identified several categories to answer the question: what do autistic adults want from their mental health-related services? 1. Mainstream mental health services should be made available to autistic clients as autistic clients often do not qualify for such services. Clinicians should tailor services to autistic client’s skill set, needs, and age, and not based on stereotypes of autism. 2. Clinicians should offer accommodations to address the unique needs for autistic clients, including the following: Sensory needs: make changes in the environment such as lights, sounds, or offer telehealth options. Time expectations: offer longer duration of sessions or greater number of sessions given the difficulty of getting used to a new clinician. Communication needs: offer options to accommodate different communication styles such as using written or visual information or slowing down when speaking. 3. Autistic clients may need pragmatic support such as filling out a form, figuring out job benefits, or problem-solving house situations. Clinicians should be flexible in supporting their client’s practical needs or referring to services that are tailored toward practical support. 4. Clinicians should know about autism and have the humility to honor the autistic client’s lived experiences. Clinicians should understand the heterogeneity of autism. 5. Clinicians should use a strength-based approach within the neurodiversity paradigm and not a medical-based approach to help clients explore and understand their autistic identity. Autistic peer support groups and groups that are led by a neurodivergent clinician are often better at embodying that approach. What do these findings add to what was already known? An important finding is that autistic adults want services that focus on exploring their identities and managing the stressors of living with a disability in an ableist society, instead of changing the adult’s characteristics. What are potential weaknesses in the study? The population sample included in the study was not very diverse. Participants were majority White, in a Western-based country, and did not have a co-occurring intellectual disability. How will these findings help autistic adults now or in the future? Our results offer practical recommendations for clinicians so that autistic adults can have a more helpful and affirming service experience.

1. Wendy Mitchell , Bryony Beresford (2014). Young people with high‐functioning autism and Asperger's syndrome planning for and anticipating the move to college: what supports a positive transition? British Journal of Special Education, 41(2), 151-171. Wiley.

   Type: Article DOI: 10.1111/1467-8578.12064 OpenAlex: https://openalex.org/W1480882165

   Crossref OpenAlex
2. Tara R. Buck , Joseph Viskochil , Megan Farley , Hilary Coon , William M. McMahon , Jubel Morgan et al. (2014). Psychiatric Comorbidity and Medication Use in Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 44(12), 3063-3071. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1007/s10803-014-2170-2 OpenAlex: https://openalex.org/W1997388980

   Crossref OpenAlex
3. I. Carina Gillberg , Adam Helles , Eva Billstedt , Christopher Gillberg (2016). Boys with Asperger Syndrome Grow Up: Psychiatric and Neurodevelopmental Disorders 20 Years After Initial Diagnosis . Journal of Autism and Developmental Disorders, 46(1), 74-82. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1007/s10803-015-2544-0 OpenAlex: https://openalex.org/W1934558299

   Crossref OpenAlex
4. Anne G. Lever , Hilde M. Geurts (2016). Age‐related differences in cognition across the adult lifespan in autism spectrum disorder . Autism Research, 9(6), 666-676. Wiley.

   Type: Article DOI: 10.1002/aur.1545 OpenAlex: https://openalex.org/W1943659515

   Crossref OpenAlex
5. Brenna B. Maddox , Andrea Trubanova , Susan W. White (2017). Untended wounds: Non-suicidal self-injury in adults with autism spectrum disorder . Autism, 21(4), 412-422. SAGE Publications.

   Type: Article DOI: 10.1177/1362361316644731 OpenAlex: https://openalex.org/W2380785725

   Crossref OpenAlex
6. Björn Hofvander , Richard Delorme , Pauline Chaste , Agneta Nydén , Elisabet Wentz , Ola Ståhlberg et al. (2009). Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders . BMC Psychiatry, 9(1), 35. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1186/1471-244x-9-35 OpenAlex: https://openalex.org/W1970834718

   Crossref OpenAlex
7. Sarah Cassidy , Paul Bradley , Janine Robinson , Carrie Allison , Meghan McHugh , Simon Baron-Cohen (2014). Suicidal ideation and suicide plans or attempts in adults with Asperger's syndrome attending a specialist diagnostic clinic: a clinical cohort study . The Lancet Psychiatry, 1(2), 142-147. Elsevier BV.

   Type: Article DOI: 10.1016/s2215-0366(14)70248-2 OpenAlex: https://openalex.org/W2126021938

   Crossref OpenAlex
8. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.

   Type: Article DOI: 10.1192/bjp.bp.114.160192 OpenAlex: https://openalex.org/W2168424072

   Crossref OpenAlex
9. Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , W. Cody Boisclair *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… et al. (2013). Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership . Journal of General Internal Medicine, 28(6), 761-769. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1007/s11606-012-2262-7 OpenAlex: https://openalex.org/W1999004010

   AutiHub · Autistic Scholars Crossref OpenAlex
10. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318816053 OpenAlex: https://openalex.org/W2902777586

    Crossref OpenAlex
11. Valérie Van Hees , Tinneke Moyson , Herbert Roeyers (2015). Higher Education Experiences of Students with Autism Spectrum Disorder: Challenges, Benefits and Support Needs . Journal of Autism and Developmental Disorders, 45(6), 1673-1688. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-014-2324-2 OpenAlex: https://openalex.org/W2031696817

    Crossref OpenAlex
12. Gemma M. Griffith , Vasiliki Totsika , Susie Nash , Richard P. Hastings (2012). ‘I just don’t fit anywhere’: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood . Autism, 16(5), 532-546. SAGE Publications.

    Type: Article DOI: 10.1177/1362361311405223 OpenAlex: https://openalex.org/W2118012655

    Crossref OpenAlex
13. S. Bhaumik , F. C. Tyrer , C. McGrother , S. K. Ganghadaran (2008). Psychiatric service use and psychiatric disorders in adults with intellectual disability . Journal of Intellectual Disability Research, 52(11), 986-995. Wiley.

    Type: Article DOI: 10.1111/j.1365-2788.2008.01124.x OpenAlex: https://openalex.org/W2060868372

    Crossref OpenAlex
14. Joshua N. Hook , Don E. Davis , Jesse Owen , Everett L. Worthington , Shawn O. Utsey (2013). Cultural humility: Measuring openness to culturally diverse clients. Journal of Counseling Psychology, 60(3), 353-366. American Psychological Association (APA).

    Type: Article DOI: 10.1037/a0032595 OpenAlex: https://openalex.org/W2070982161

    Crossref OpenAlex
15. Tove Lugnegård , Maria Unenge Hallerbäck , Christopher Gillberg (2011). Psychiatric comorbidity in young adults with a clinical diagnosis of Asperger syndrome . Research in Developmental Disabilities, 32(5), 1910-1917. Elsevier BV.

    Type: Article DOI: 10.1016/j.ridd.2011.03.025 OpenAlex: https://openalex.org/W2121489543

    Crossref OpenAlex
16. Eve Müller , Adriana Schuler , Gregory B. Yates (2008). Social challenges and supports from the perspective of individuals with Asperger syndrome and other autism spectrum disabilities . Autism, 12(2), 173-190. SAGE Publications.

    Type: Article DOI: 10.1177/1362361307086664 OpenAlex: https://openalex.org/W2075707097

    Crossref OpenAlex
17. Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.

    Type: Article DOI: 10.1177/2156869318804297 OpenAlex: https://openalex.org/W2896204132

    AutiHub · Autistic Scholars Crossref OpenAlex
18. Subini Ancy Annamma , David Connor , Beth Ferri (2013). Dis/ability critical race studies (DisCrit): theorizing at the intersections of race and dis/ability . Race Ethnicity and Education, 16(1), 1-31. Informa UK Limited.

    Type: Article DOI: 10.1080/13613324.2012.730511 OpenAlex: https://openalex.org/W2079740793

    Crossref OpenAlex
19. Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2021). Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health . Autism in Adulthood, 3(4), 320-329. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0071 OpenAlex: https://openalex.org/W3170765972

    Crossref OpenAlex
20. Kathryn Mederise Jantz (2011). Support Groups for Adults With Asperger Syndrome . Focus on Autism and Other Developmental Disabilities, 26(2), 119-128. SAGE Publications.

    Type: Article DOI: 10.1177/1088357611406903 OpenAlex: https://openalex.org/W2095677778

    Crossref OpenAlex
21. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-03878-x OpenAlex: https://openalex.org/W2909219349

    Crossref OpenAlex
22. Maria H. F. Grypdonck (2006). Qualitative Health Research in the Era of Evidence-Based Practice . Qualitative Health Research, 16(10), 1371-1385. SAGE Publications.

    Type: Article DOI: 10.1177/1049732306294089 OpenAlex: https://openalex.org/W2109330440

    Crossref OpenAlex
23. (n.d.). e_1_3_4_14_2

    Type: Other DOI: 10.1097/yco.000000000000039 Crossref: not found DataCite: not found

    Crossref
24. Jill G. Morawski (2005). Reflexivity and the psychologist . History of the Human Sciences, 18(4), 77-105. SAGE Publications.

    Type: Article DOI: 10.1177/0952695105058472 OpenAlex: https://openalex.org/W2115172271

    Crossref OpenAlex
25. Adam Helles , I Carina Gillberg , Christopher Gillberg , Eva Billstedt (2017). Asperger syndrome in males over two decades: Quality of life in relation to diagnostic stability and psychiatric comorbidity . Autism, 21(4), 458-469. SAGE Publications.

    Type: Article DOI: 10.1177/1362361316650090 OpenAlex: https://openalex.org/W2407840290

    Crossref OpenAlex
26. Jamil Jivraj , Lori‐Ann R. Sacrey , Amanda S. Newton , David Nicholas , Lonnie Zwaigenbaum (2014). Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review . Autism, 18(7), 782-793. SAGE Publications.

    Type: Article DOI: 10.1177/1362361314539858 OpenAlex: https://openalex.org/W2116321105

    AutiHub · Documentation center Crossref OpenAlex
27. Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13229-018-0226-4 OpenAlex: https://openalex.org/W2887488849

    Crossref OpenAlex
28. Laura Crane , Fern Adams , Georgia Harper , Jack Welch , Elizabeth Pellicano (2019). ‘Something needs to change’: Mental health experiences of young autistic adults in England . Autism, 23(2), 477-493. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318757048 OpenAlex: https://openalex.org/W2787370458

    Crossref OpenAlex
29. Madonna G. Constantine (2007). Racial microaggressions against African American clients in cross-racial counseling relationships. Journal of Counseling Psychology, 54(1), 1-16. American Psychological Association (APA).

    Type: Article DOI: 10.1037/0022-0167.54.1.1 OpenAlex: https://openalex.org/W2122728285

    Crossref OpenAlex
30. Ami Tint , Jonathan A. Weiss (2018). A qualitative study of the service experiences of women with autism spectrum disorder . Autism, 22(8), 928-937. SAGE Publications.

    Type: Article DOI: 10.1177/1362361317702561 OpenAlex: https://openalex.org/W2754922100

    Crossref OpenAlex
31. Steven K. Kapp *Autistic author. Learn more… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).

    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426

    AutiHub · Autistic Scholars Crossref OpenAlex
32. Vanessa Vogan , Johanna Lake , Ami Tint , Jonathan A. Weiss , Yona Lunsky (2017). Tracking health care service use and the experiences of adults with autism spectrum disorder without intellectual disability: A longitudinal study of service rates, barriers and satisfaction . Disability and Health Journal, 10(2), 264-270. Elsevier BV.

    Type: Article DOI: 10.1016/j.dhjo.2016.11.002 OpenAlex: https://openalex.org/W2551789181

    Crossref OpenAlex
33. A. Liberati , Doug Altman , J. Tetzlaff , C. Mulrow , P. C Gotzsche , J. P A Ioannidis et al. (2009). The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: explanation and elaboration . BMJ, 339(jul21 1), b2700-b2700. BMJ.

    Type: Article DOI: 10.1136/bmj.b2700 OpenAlex: https://openalex.org/W2134833483

    Crossref OpenAlex
34. Janina Brede , Eilidh Cage , Joseph Trott , Lisa Palmer , Anika Smith , Lucy Serpell et al. (2022). “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis . Clinical Psychology Review, 93, 102131. Elsevier BV.

    Type: Article DOI: 10.1016/j.cpr.2022.102131 OpenAlex: https://openalex.org/W4210911395

    Crossref OpenAlex
35. Russell Lang , April Regester , Stacy Lauderdale , Kristen Ashbaugh , Anna Haring (2010). Treatment of anxiety in autism spectrum disorders using cognitive behaviour therapy: A systematic review . Developmental Neurorehabilitation, 13(1), 53-63. Informa UK Limited.

    Type: Article DOI: 10.3109/17518420903236288 OpenAlex: https://openalex.org/W2136564157

    Crossref OpenAlex
36. Dawn Adams , Kate Young (2021). A Systematic Review of the Perceived Barriers and Facilitators to Accessing Psychological Treatment for Mental Health Problems in Individuals on the Autism Spectrum . Review Journal of Autism and Developmental Disorders, 8(4), 436-453. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s40489-020-00226-7 OpenAlex: https://openalex.org/W3094212365

    Crossref OpenAlex
37. Elizabeth M. Vera , Suzette L. Speight (2003). Multicultural Competence, Social Justice, and Counseling Psychology: Expanding Our Roles . The Counseling Psychologist, 31(3), 253-272. SAGE Publications.

    Type: Article DOI: 10.1177/0011000003031003001 OpenAlex: https://openalex.org/W2160101004

    Crossref OpenAlex
38. Anne-Marie DePape , Sally Lindsay (2016). Lived Experiences From the Perspective of Individuals With Autism Spectrum Disorder . Focus on Autism and Other Developmental Disabilities, 31(1), 60-71. SAGE Publications.

    Type: Article DOI: 10.1177/1088357615587504 OpenAlex: https://openalex.org/W2245253210

    Crossref OpenAlex
39. Jesse Owen , Karen W. Tao , Zac E. Imel , Bruce E. Wampold , Emil Rodolfa (2014). Addressing racial and ethnic microaggressions in therapy. Professional Psychology: Research and Practice, 45(4), 283-290. American Psychological Association (APA).

    Type: Article DOI: 10.1037/a0037420 OpenAlex: https://openalex.org/W2328085122

    Crossref OpenAlex
40. Frances A. Kelley (2015). The therapy relationship with lesbian and gay clients. Psychotherapy, 52(1), 113-118. American Psychological Association (APA).

    Type: Article DOI: 10.1037/a0037958 OpenAlex: https://openalex.org/W2334457005

    Crossref OpenAlex
41. Jonathan Lachal , Anne Revah-Levy , Massimiliano Orri , Marie Rose Moro (2017). Metasynthesis: An Original Method to Synthesize Qualitative Literature in Psychiatry . Frontiers in Psychiatry, 8, 269-269. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2017.00269 OpenAlex: https://openalex.org/W2773405152

    Crossref OpenAlex
42. Teal Benevides , Stephen M. Shore , Kate Palmer , Patricia Duncan , Alex Plank , May-Lynn Andresen et al. (2020). Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project . Autism, 24(4), 822-833. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320908410 OpenAlex: https://openalex.org/W3026368736

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex
43. Department of Health (2014). Think autism: Fulfilling and rewarding lives, the strategy for adults with autism in England: An update . Think autism: Fulfilling and rewarding lives, the strategy for adults with autism in England: An update.

    Type: Other

    Crossref
44. John Reynolds , Susan Achilles , Charles Achilles (2014). Problem Analysis . Routledge.

    Type: Book DOI: 10.4324/9781315853178 OpenAlex: https://openalex.org/W4243781842

    Crossref OpenAlex
45. Heidi M. Levitt , Sue L. Motulsky , Fredrick J. Wertz , Susan L. Morrow , Joseph G. Ponterotto (2017). Recommendations for designing and reviewing qualitative research in psychology: Promoting methodological integrity. Qualitative Psychology, 4(1), 2-22. American Psychological Association (APA).

    Type: Article DOI: 10.1037/qup0000082 OpenAlex: https://openalex.org/W2556869215

    Crossref OpenAlex
46. Cohen Avital Alfandari , Magnezi Racheli , Weinstein Orly (2020). Review and Analysis of mental health reforms in several countries: Implementation, comparison and future challenges . Annals of Psychiatry and Treatment, 4(1), 013-024. Peertechz Publications Private Limited.

    Type: Article DOI: 10.17352/apt.000015 OpenAlex: https://openalex.org/W3016209860

    Crossref OpenAlex
47. Debbie Spain , Freya Rumball , Lucy O'Neill , Jacqueline Sin , Jonathan Prunty , Francesca Happé (2017). Conceptualizing and Treating Social Anxiety in Autism Spectrum Disorder: A Focus Group Study with Multidisciplinary Professionals . Journal of Applied Research in Intellectual Disabilities, 30(S1), 10-21. Wiley.

    Type: Article DOI: 10.1111/jar.12320 OpenAlex: https://openalex.org/W2561617360

    Crossref OpenAlex
48. Kaitlin H Koffer Miller , Mary Mathew , Stacy L Nonnemacher , Lindsay Shea (2018). Program experiences of adults with autism, their families, and providers: Findings from a focus group study . Autism, 22(3), 345-356. SAGE Publications.

    Type: Article DOI: 10.1177/1362361316679000 OpenAlex: https://openalex.org/W2589118743

    Crossref OpenAlex
49. Heidi M. Levitt (2018). How to conduct a qualitative meta-analysis: Tailoring methods to enhance methodological integrity . Psychotherapy Research, 28(3), 367-378. Informa UK Limited.

    Type: Article DOI: 10.1080/10503307.2018.1447708 OpenAlex: https://openalex.org/W2790594462

    Crossref OpenAlex
50. Mathew T. Milen , David Nicholas (2017). Examining transitions from youth to adult services for young persons with autism . Social Work in Health Care, 56(7), 636-648. Informa UK Limited.

    Type: Article DOI: 10.1080/00981389.2017.1318800 OpenAlex: https://openalex.org/W2615952614

    Crossref OpenAlex
51. Heidi M. Levitt (2021). Essentials of critical-constructivist grounded theory research. American Psychological Association.

    Type: Book DOI: 10.1037/0000231-000 OpenAlex: https://openalex.org/W3184383939

    Crossref OpenAlex
52. Ashleigh Hillier , Jody Goldstein , Deirdra Murphy , Rhoda Trietsch , Jacqueline Keeves , Eva Mendes et al. (2018). Supporting university students with autism spectrum disorder . Autism, 22(1), 20-28. SAGE Publications.

    Type: Article DOI: 10.1177/1362361317699584 OpenAlex: https://openalex.org/W2727383144

    Crossref OpenAlex
53. Heidi M. Levitt , Bediha Ipekci , Zenobia Morrill , Javier L. Rizo (2021). Intersubjective recognition as the methodological enactment of epistemic privilege: A critical basis for consensus and intersubjective confirmation procedures. Qualitative Psychology, 8(3), 407-427. American Psychological Association (APA).

    Type: Article DOI: 10.1037/qup0000206 OpenAlex: https://openalex.org/W3194489494

    Crossref OpenAlex
54. Rafe McCullough , Franco Dispenza , Lindy K. Parker , Cory J. Viehl , Catharina Y. Chang , Thomas M. Murphy (2017). The Counseling Experiences of Transgender and Gender Nonconforming Clients . Journal of Counseling & Development, 95(4), 423-434. Wiley.

    Type: Article DOI: 10.1002/jcad.12157 OpenAlex: https://openalex.org/W2755554476

    Crossref OpenAlex
55. Heidi M. Levitt , Zenobia Morrill , Kathleen M. Collins , Javier L. Rizo (2021). The methodological integrity of critical qualitative research: Principles to support design and research review. Journal of Counseling Psychology, 68(3), 357-370. American Psychological Association (APA).

    Type: Article DOI: 10.1037/cou0000523 OpenAlex: https://openalex.org/W3164303525

    Crossref OpenAlex
56. P. Maloret , T. Scott (2018). Don't ask me what's the matter, ask me what matters: Acute mental health facility experiences of people living with autism spectrum conditions . Journal of Psychiatric and Mental Health Nursing, 25(1), 49-59. Wiley.

    Type: Article DOI: 10.1111/jpm.12438 OpenAlex: https://openalex.org/W2765388978

    Crossref OpenAlex
57. Amy L Accardo , S Jay Kuder , John Woodruff (2019). Accommodations and support services preferred by college students with autism spectrum disorder . Autism, 23(3), 574-583. SAGE Publications.

    Type: Article DOI: 10.1177/1362361318760490 OpenAlex: https://openalex.org/W2793409694

    Crossref OpenAlex
58. Shenae Calleja , Jonathan Kingsley , Fakir M Amirul Islam , Rachael McDonald (2022). Barriers to Accessing Healthcare: Perspectives from Autistic Adults and Carers . Qualitative Health Research, 32(2), 267-278. SAGE Publications.

    Type: Article DOI: 10.1177/10497323211050362 OpenAlex: https://openalex.org/W4200464949

    Crossref OpenAlex
59. Irene P. Walsh , Patricia Delmar , Caroline Jagoe (2018). “It's Not the Asperger's That Causes the Anxiety, It's the Communication” . Topics in Language Disorders, 38(2), 108-125. Ovid Technologies (Wolters Kluwer Health).

    Type: Article DOI: 10.1097/tld.0000000000000149 OpenAlex: https://openalex.org/W2801669634

    Crossref OpenAlex
60. M. Ariel Cascio , Éric Racine (2022). Do Different Kinds of Minds Need Different Kinds of Services? Qualitative Results from a Mixed-Method Survey of Service Preferences of Autistic Adults and Parents . Neuroethics, 15(1). Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s12152-022-09487-x OpenAlex: https://openalex.org/W4221065918

    Crossref OpenAlex
61. Maria Strömberg , Lina Liman , Peter Bang , Kajsa Igelström (2022). Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings . Autism in Adulthood, 4(1), 66-75. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0074 OpenAlex: https://openalex.org/W3205684935

    Crossref OpenAlex
62. Carly A. McMorris , Jessica Baraskewich , Megan A. Ames , Komal T. Shaikh , Busisiwe L. Ncube , James M. Bebko (2019). Mental Health Issues in Post-Secondary Students with Autism Spectrum Disorder: Experiences in Accessing Services . International Journal of Mental Health and Addiction, 17(3), 585-595. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s11469-018-9988-3 OpenAlex: https://openalex.org/W2889722199

    Crossref OpenAlex
63. David Mason , Barry Ingham , Heather Birtles , Cos Michael , Clare Scarlett , Ian A. James et al. (2021). How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians . Autism, 25(3), 774-785. SAGE Publications.

    Type: Article DOI: 10.1177/1362361321993709 OpenAlex: https://openalex.org/W3159192570

    Crossref OpenAlex
64. Brittany N. Hand , Daniel Gilmore , Lauren Harris , Amy Darragh , Christopher Hanks , Daniel Coury et al. (2021). “They Looked at Me as a Person, Not Just a Diagnosis”: A Qualitative Study of Patient and Parent Satisfaction with a Specialized Primary Care Clinic for Autistic Adults . Autism in Adulthood, 3(4), 347-355. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0082 OpenAlex: https://openalex.org/W3171933299

    Crossref OpenAlex
65. Jiedi Lei , Steph Calley , Mark Brosnan , Chris Ashwin , Ailsa Russell (2020). Evaluation of a Transition to University Programme for Students with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 50(7), 2397-2411. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3776-6 OpenAlex: https://openalex.org/W2896594377

    Crossref OpenAlex
66. Emeline Han , Melisa Mei Jin Tan , Laura Crane , Helena Legido-Quigley (2021). A qualitative study of autism services and supports in Singapore: Perspectives of service providers, autistic adults and caregivers . Autism, 25(8), 2279-2290. SAGE Publications.

    Type: Article DOI: 10.1177/13623613211016112 OpenAlex: https://openalex.org/W3165307410

    Crossref OpenAlex
67. Jacqui Rodgers (2019). Uncertain Futures: Reporting the Experiences and Worries of Autistic Adults and Possible Implications for Social Work Practice . The British Journal of Social Wor, 49(7), 1817.

    Type: Other

    Crossref
68. Ingrid Honan , Nicole Sharp , Sarah McIntyre , Hayley Smithers‐Sheedy , Isabelle Balde , Kirsten Quinn et al. (2023). Program evaluation of an adapted PEERS ® social skills program in young adults with autism spectrum disorder and/or mild intellectual impairment and social skills difficulties . Journal of Evaluation in Clinical Practice, 29(1), 126-135. Wiley.

    Type: Article DOI: 10.1111/jep.13743 OpenAlex: https://openalex.org/W4289889798

    Crossref OpenAlex
69. Emma Kinnaird , Caroline Norton , Catherine Stewart , Kate Tchanturia (2019). Same behaviours, different reasons: what do patients with co-occurring anorexia and autism want from treatment? International Review of Psychiatry, 31(4), 308-317. Informa UK Limited.

    Type: Article DOI: 10.1080/09540261.2018.1531831 OpenAlex: https://openalex.org/W2919305369

    Crossref OpenAlex
70. Siva priya Santhanam , Lynne E. Hewitt (2021). Perspectives of Adults With Autism on Social Communication Intervention . Communication Disorders Quarterly, 42(3), 156-165. SAGE Publications.

    Type: Article DOI: 10.1177/1525740120905501 OpenAlex: https://openalex.org/W3006639211

    Crossref OpenAlex
71. Rackeb Tesfaye , Valérie Courchesne , Afiqah Yusuf , Tal Savion-Lemieux , Ilina Singh , Keiko Shikako-Thomas et al. (2019). Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities . Autism, 23(8), 1882-1896. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319831487 OpenAlex: https://openalex.org/W2924684014

    Crossref OpenAlex
72. Brenna B. Maddox , Samantha Crabbe , Rinad S Beidas , Lauren Brookman-Frazee , Carolyn C Cannuscio , Judith S. Miller et al. (2020). “I wouldn’t know where to start”: Perspectives from clinicians, agency leaders, and autistic adults on improving community mental health services for autistic adults . Autism, 24(4), 919-930. SAGE Publications.

    Type: Article DOI: 10.1177/1362361319882227 OpenAlex: https://openalex.org/W2988923336

    Crossref OpenAlex
73. Ailsa Russell , Daisy Gaunt , Kate Cooper , Jeremy Horwood , Stephen Barton , Ian Ensum et al. (2019). Guided self-help for depression in autistic adults: the ADEPT feasibility RCT . Health Technology Assessment, 23(68), 1-94. National Institute for Health and Care Research.

    Type: Article DOI: 10.3310/hta23680 OpenAlex: https://openalex.org/W2994656717

    Crossref OpenAlex
74. Laura Crane , Caroline Hearst *Autistic author. Learn more… , Maria Ashworth , Jade Davies , Elisabeth L. Hill (2021). Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme . Journal of Autism and Developmental Disorders, 51(3), 892-905. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04486-4 OpenAlex: https://openalex.org/W3014483935

    AutiHub · Autistic Scholars Crossref OpenAlex
75. Megan Prass , Arcadia Ewell , Clara E. Hill , Dennis M. Kivlighan (2021). Solicited and Unsolicited Therapist Advice inPsychodynamic Psychotherapy: Is it Advised? Counselling Psychology Quarterly, 34(2), 253-274. Informa UK Limited.

    Type: Article DOI: 10.1080/09515070.2020.1723492 OpenAlex: https://openalex.org/W3005586798

    Crossref OpenAlex
76. Laura Crane , Caroline Hearst *Autistic author. Learn more… , Maria Ashworth , Jade Davies (2023). Evaluating the online delivery of an autistic-led programme to support newly diagnosed or identified autistic adults . Autism & Developmental Language Impairments, 8, 23969415231189608-23969415231189608. SAGE Publications.

    Type: Article DOI: 10.1177/23969415231189608 OpenAlex: https://openalex.org/W4385323356

    AutiHub · Autistic Scholars Crossref OpenAlex
77. Alena Valderrama , Alejandra Martínez , Kathleen Charlebois , Lucila Guerrero *Autistic author. Learn more… , Baudouin Forgeot d’Arc (2023). For autistic persons by autistic persons: Acceptability of a structured peer support service according to key stakeholders . Health Expectations, 26(1), 463-475. Wiley.

    Type: Article DOI: 10.1111/hex.13680 OpenAlex: https://openalex.org/W4310459308

    AutiHub · Autistic Scholars Crossref OpenAlex
78. Edmund Coleman-Fountain , Carole Buckley , Bryony Beresford (2020). Improving mental health in autistic young adults: a qualitative study exploring help-seeking barriers in UK primary care . British Journal of General Practice, 70(694), e356-e363. Royal College of General Practitioners.

    Type: Article DOI: 10.3399/bjgp20x709421 OpenAlex: https://openalex.org/W3016467546

    Crossref OpenAlex
79. Jonathan Ee , Jan Mei Lim , Biza Stenfert Kroese , John Rose (2021). Services for people with intellectual disabilities and mental health problems in Singapore: perspectives from mainstream mental health professionals . International Journal of Developmental Disabilities, 67(5), 371-380. Informa UK Limited.

    Type: Article DOI: 10.1080/20473869.2021.1932394 OpenAlex: https://openalex.org/W3200875875

    Crossref OpenAlex
80. Micah Mazurek , Jessica Pappagianopoulos , Sophie Brunt , Eleonora Sadikova , Rose Nevill , Michelle Menezes et al. (2023). A mixed methods study of autistic adults' mental health therapy experiences . Clinical Psychology & Psychotherapy, 30(4), 767-779. Wiley.

    Type: Article DOI: 10.1002/cpp.2835 OpenAlex: https://openalex.org/W4318323630

    Crossref OpenAlex
81. Charli Babb , Janina Brede , Catherine R G Jones , Mair Elliott , Cathy Zanker , Kate Tchanturia et al. (2021). ‘It’s not that they don’t want to access the support... it’s the impact of the autism’: The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals . Autism, 25(5), 1409-1421. SAGE Publications.

    Type: Article DOI: 10.1177/1362361321991257 OpenAlex: https://openalex.org/W3133083399

    Crossref OpenAlex
82. Yona Lunsky , Brianne Redquest , Carly Albaum , Sue Hutton , Maxine Share , Daniel Share-Strom et al. (2022). Virtual Group–Based Mindfulness Intervention for Autistic Adults: a Feasibility Study . Mindfulness, 13(7), 1706-1718. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s12671-022-01909-4 OpenAlex: https://openalex.org/W4282582019

    Crossref OpenAlex
83. Britta Westerberg , Sofie Bäärnhielm , Clover Giles , Ulrika Hylén , Fredrik Holländare , Susanne Bejerot (2021). An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences . Frontiers in Psychiatry, 12, 789663-789663. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2021.789663 OpenAlex: https://openalex.org/W4200508972

    Crossref OpenAlex
84. Sebastian Charles Keith Shaw *Autistic author. Learn more… , Sue McCowan *Autistic author. Learn more… , Mary Doherty *Autistic author. Learn more… , Bernadette Grosjean *Autistic author. Learn more… , Malcolm Kinnear (2021). The neurodiversity concept viewed through an autistic lens . The Lancet Psychiatry, 8(8), 654-655. Elsevier BV.

    Type: Article DOI: 10.1016/s2215-0366(21)00247-9 OpenAlex: https://openalex.org/W3185159180

    AutiHub · Autistic Scholars Crossref OpenAlex
85. Matthew J. Maenner , Kelly A. Shaw , Amanda V. Bakian , Deborah A. Bilder , Maureen S. Durkin , Amy Esler et al. (2021). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018 . MMWR. Surveillance Summaries, 70(11), 1-16. Centers for Disease Control MMWR Office.

    Type: Article DOI: 10.15585/mmwr.ss7011a1 OpenAlex: https://openalex.org/W3216151710

    Crossref OpenAlex
86. (n.d.). e_1_3_4_73_2

    Type: Other DOI: 10.1007/s10803-017-3331 Crossref: not found DataCite: not found

    Crossref
87. Nathaniel Hidalgo , Douglas Sjöwall , Hanna Agius , Caroline Byström , Annika Brar , Jacqueline Borg et al. (2022). Psychoeducational group intervention for intellectually able adults with autism and their close relations (Prisma) – an open feasibility study . BMC Psychiatry, 22(1), 556-556. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s12888-022-04134-4 OpenAlex: https://openalex.org/W4292336319

    Crossref OpenAlex
88. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2024). A Qualitative Study of Adults’ and Support Persons’ Experiences of Support After Autism Diagnosis . Journal of Autism and Developmental Disorders, 54(3), 1157-1170. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-022-05828-0 OpenAlex: https://openalex.org/W4311280066

    Crossref OpenAlex
89. Sebastian Charles Keith Shaw *Autistic author. Learn more… , Lucy-Jane Davis , Mary Doherty *Autistic author. Learn more… (2022). Considering autistic patients in the era of telemedicine: the need for an adaptable, equitable, and compassionate approach . BJGP Open, 6(1), BJGPO.2021.0174. Royal College of General Practitioners.

    Type: Article DOI: 10.3399/bjgpo.2021.0174 OpenAlex: https://openalex.org/W4206988063

    Crossref OpenAlex
90. Catherine J. Crompton , Sonny Hallett *Autistic author. Learn more… , Christine McAuliffe , Andrew C. Stanfield , Sue Fletcher‐Watson (2022). “A Group of Fellow Travellers Who Understand”: Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood . Frontiers in Psychology, 13, 831628-831628. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2022.831628 OpenAlex: https://openalex.org/W4221114197

    AutiHub · Autistic Scholars Crossref OpenAlex
91. Mary Doherty *Autistic author. Learn more… , Sue McCowan *Autistic author. Learn more… , Sebastian Charles Keith Shaw *Autistic author. Learn more… (2023). Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings . British Journal of Hospital Medicine, 84(4), 1-9. IMR Press.

    Type: Article DOI: 10.12968/hmed.2023.0006 OpenAlex: https://openalex.org/W4366162947

    AutiHub · Autistic Scholars Crossref OpenAlex
92. Sebastian Charles Keith Shaw *Autistic author. Learn more… , Lucy-Jane Davis (16289837) , Mary Doherty *Autistic author. Learn more… (2022). Considering autistic patients in the era of telemedicine: the need for an adaptable, equitable, and compassionate approach . INDIGO (University of Illinois at Chicago).

    Type: Article OpenAlex: https://openalex.org/W4220652391

    OpenAlex
93. Anna Robinson , Juan Pablo Kalawski (2023). Experiences of the step-out technique in emotion-focused therapy for clients with autistic process . Person-Centered & Experiential Psychotherapies, 22(3), 265-282. Informa UK Limited.

    Type: Article DOI: 10.1080/14779757.2022.2115941 OpenAlex: https://openalex.org/W4294959529

    Crossref OpenAlex
94. Heta Pukki *Autistic author. Learn more… , Jorn Bettin *Autistic author. Learn more… , Avery Grey Outlaw , Joshua Hennessy *Autistic author. Learn more… , Kabie Brook *Autistic author. Learn more… , Martijn Dekker *Autistic author. Learn more… et al. (2022). Autistic Perspectives on the Future of Clinical Autism Research . Autism in Adulthood, 4(2), 93-101. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2022.0017 OpenAlex: https://openalex.org/W4281621411

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex
95. Themistoklis Pantazakos , Gert-Jan Vanaken (2023). Addressing the autism mental health crisis: the potential of phenomenology in neurodiversity-affirming clinical practices . Frontiers in Psychology, 14, 1225152-1225152. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyg.2023.1225152 OpenAlex: https://openalex.org/W4386419062

    Crossref OpenAlex
96. Alana J. McVey , Desiree R. Jones , TC Waisman *Autistic author. Learn more… , Dora M Raymaker *Autistic author. Learn more… , Christina Nicolaidis , Brenna B. Maddox (2023). Mindshift in autism: a call to professionals in research, clinical, and educational settings . Frontiers in Psychiatry, 14, 1251058-1251058. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2023.1251058 OpenAlex: https://openalex.org/W4386326770

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex
97. Rachel Jellett , Rebecca L. Flower (2024). How can psychologists meet the needs of autistic adults? Autism, 28(2), 520-522. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221147346 OpenAlex: https://openalex.org/W4316034790

    Crossref OpenAlex
98. Josephine Shenouda , Emily Barrett , Amy L. Davidow , Kate Sidwell , Cara Lescott , William Halperin et al. (2023). Prevalence and Disparities in the Detection of Autism Without Intellectual Disability . Pediatrics, 151(2). American Academy of Pediatrics (AAP).

    Type: Article DOI: 10.1542/peds.2022-056594 OpenAlex: https://openalex.org/W4318065497

    Crossref OpenAlex
99. Johnk L (2019). “Cripping the Fuck Out:” A Queer Crip Mad Manifesta Against the Medical Industrial Complex . Feral Feminisms, 9(3), 26.

    Type: Other

    Crossref