Challenges, Strengths, and Joys of Autistic Parents: An Abductive Qualitative Content Analysis of Parent Interviews

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Jones, S. C., Brownlow, C., & Abel, S. (2025). Challenges, Strengths, and Joys of Autistic Parents: An Abductive Qualitative Content Analysis of Parent Interviews. Autism in Adulthood. https://doi.org/10.1177/25739581251385735

Publication date: 7 Oct 2025 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)

Abstract

Background: Research into the experiences of autistic parents is limited, with the majority of existing studies focusing on pregnancy, childbirth, and raising infants. We sought to capture the experiences of autistic parents across the journey from pregnancy to parenting adult children. Methods: We conducted semistructured online interviews with 92 autistic parents across all stages of the parenting journey. Participants were invited to share their reflections on the challenges and strengths of parenting as an autistic person. Data were analyzed using qualitative content analysis, combining deductive and inductive coding. Results: Challenges external to the parent–child relationship were most frequently coded in the categories of “support” and “discrimination/stigma.” Challenges internal to the parent–child relationship were most frequently in the categories of “self-child balance” and “parental well-being.” When exploring parenting strengths, the most frequently coded categories were “empathy and understanding” and “parental joy.” Across all three focus areas, the majority of the most frequently occurring codes arose from the inductive coding and were not represented in the existing literature. Conclusion: The most significant challenges external to the parent–child relationship were lack of access to appropriate supports and provision of inappropriate supports, along with discrimination from professionals and service providers. The most commonly coded internal challenge was feelings of not being good enough or failing as a parent, likely reflecting the negative judgments experienced by many autistic people. Participants reported experiencing great joy in their parenting experience, and evidenced a range of strengths, including egalitarian parenting, open and honest communication, and insight and understanding.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
43
With a DOI
39
Without a DOI, from raw bibliography text
4
15 / 43 (34.9%) cited references include at least one author identified as autistic.
References with data to complete
1 / 43 (2.3%)
References with detected author names
42 / 43 (97.7%)
Without detected author names
1
Without a structured title
1
Without a stable identifier
3
References with raw author names still to review
1
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
217
From DOI or external metadata
217
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
1
106 / 217 (48.8%) names are linked to an author already present in AutiHub. 111 / 217 (51.2%) names are not yet linked.
Names linked to a person identified as autistic
37 / 217 (17.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 37 / 106 (34.9%). Distinct people identified as autistic: 28 / 189 (14.8%).
  1. Ginny Russell , Sal Stapley , Tamsin Newlove‐Delgado , Andrew Salmon , Rhianna White , Fiona Warren et al. (2022). Time trends in autism diagnosis over 20 years: a UK population‐based cohort study . Journal of Child Psychology and Psychiatry, 63(6), 674-682. Wiley.
    Crossref OpenAlex
  2. Marcia Gardner , Patricia D. Suplee , Joan Bloch , Karen Lecks (2016). Exploratory Study of Childbearing Experiences of Women with Asperger Syndrome . Nursing for Women's Health, 20(1), 28-37. Elsevier BV.
    Crossref OpenAlex
  3. Yunhe Huang , Samuel R. C. Arnold , Kitty-Rose Foley , Julian Trollor (2020). Diagnosis of autism in adulthood: A scoping review . Autism, 24(6), 1311-1327. SAGE Publications.
    Crossref OpenAlex
  4. Cath Rogers , Laurence Lepherd , Rahul Ganguly , Sebastian Jacob-Rogers (2017). Perinatal issues for women with high functioning autism spectrum disorder . Women and Birth, 30(2), e89-e95. Elsevier BV.
    Crossref OpenAlex
  5. Juwayriyah M. Nayyar , Alison V. Stapleton , Suzanne Guerin , Cliodhna O'Connor (2025). Exploring Lived Experiences of Receiving a Diagnosis of Autism in Adulthood: A Systematic Review . Autism in Adulthood, 7(1), 1-12. SAGE Publications.
    Crossref OpenAlex
  6. Bomikazi M. Lupindo , Anastasia Maw , Nokuthula Shabalala (2023). Late diagnosis of autism: Exploring experiences of males diagnosed with autism in adulthood . Current Psychology Advance Online Publication, 42(28), 24181-24197. Springer Science and Business Media LLC.
    Crossref OpenAlex
  7. Jane Donovan (2020). Childbirth Experiences of Women With Autism Spectrum Disorder in an Acute Care Setting . Nursing for Women's Health, 24(3), 165-174. Elsevier BV.
    Crossref OpenAlex
  8. Jade Eloise Norris , Rebecca Harvey , Laura Hull (2025). Post-diagnostic support for adults diagnosed with autism in adulthood in the UK: A systematic review with narrative synthesis . Autism, 29(2), 284-309. SAGE Publications.
    Crossref OpenAlex
  9. Maria Luisa Scattoni , Martina Micai , Antonio Ciaramella , Tommaso Salvitti , Francesca Fulceri , Laura Maria Fatta et al. (2021). Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study . Journal of Autism and Developmental Disorders, 51(11), 4129-4146. Springer Science and Business Media LLC.
    Crossref OpenAlex
  10. Amber-Sophie Dugdale , Andrew R. Thompson , Alexandra Leedham , Nigel Beail , Megan Freeth (2021). Intense connection and love: The experiences of autistic mothers . Autism, 25(7), 1973-1984. SAGE Publications.
    Crossref OpenAlex
  11. Rebecca Winnard , Mark Roy , Hannah Butler-Coyne (2022). Motherhood: Female Perspectives and Experiences of Being a Parent with ASC . Journal of Autism and Developmental Disorders, 52(5), 2314-2324. Springer Science and Business Media LLC.
    Crossref OpenAlex
  12. Moyna Catherine Talcer , Orla Duffy , Katy Pedlow (2023). A Qualitative Exploration into the Sensory Experiences of Autistic Mothers . Journal of Autism and Developmental Disorders, 53(2), 834-849. Springer Science and Business Media LLC.
    Crossref OpenAlex
  13. Brownlow T-JS (2024). S. Experiences of autistic parents, from conception to raising adult children: A systematic review of the literature . Autism Adulthood.
    Type: Other
    Crossref
  14. Elise Marriott , James Stacey , Olivia Mary Hewitt , Nienke E. Verkuijl (2022). Parenting an Autistic Child: Experiences of Parents with Significant Autistic Traits . Journal of Autism and Developmental Disorders, 52(7), 3182-3193. Springer Science and Business Media LLC.
    Crossref OpenAlex
  15. Laura Foran Lewis , Hannah Schirling , Emma Beaudoin , Hannah Scheibner , Alexa Cestrone (2021). Exploring the Birth Stories of Women on the Autism Spectrum . Journal of Obstetric, Gynecologic & Neonatal Nursing, 50(6), 679-690. Elsevier BV.
    Crossref OpenAlex
  16. Simone Smit , Jeremy Hopper (2023). Love, Joy, and a Lens of Childhood Trauma: Exploring Factors That Impact the Mental Health and Well-Being of Autistic Parents via Iterative Phenomenological Analysis . Autism in Adulthood, 5(1), 63-75. SAGE Publications.
    Crossref OpenAlex
  17. Jane C. Wilson , Bri Andrassy (2022). Breastfeeding Experiences of Autistic Women . MCN: The American Journal of Maternal/Child Nursing, 47(1), 19-24. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex
  18. Charlotte Grahame , Andrew R. Thompson , Megan Freeth (2026). “A Wild and Inaccessible Place”: The Lived Experiences of Autistic Pregnancy and Birth . Autism in Adulthood, 8(3), 457-467. SAGE Publications.
    Crossref OpenAlex
  19. Penelope Trunk , Boin Choi , Meredith L. Rowe , Boin Choi , Meredith L. Rowe , Meredith L. Rowe (2026). Surveying Autistic Mothers About Their Parenting Practices Related to Children’s Early Language Development . Autism in Adulthood, 8(3), 527-534. SAGE Publications.
    Crossref OpenAlex
  20. Iddo Tavory , Stefan Timmermans (2019). Abductive Analysis and Grounded Theory . In The SAGE Handbook of Current Developments in Grounded Theory (pp. 532-546). SAGE Publications Ltd.
    Crossref OpenAlex
  21. Danielle Magaldi , Matthew Berler (2018). Semi-structured Interviews . In Encyclopedia of Personality and Individual Differences (pp. 1-6). Springer International Publishing.
    Crossref OpenAlex
  22. Se Kwang Hwang , Phil Heslop (2023). Autistic Parents’ Personal Experiences of Parenting and Support: Messages from an Online Focus Group . The British Journal of Social Work, 53(1), 276-295. Oxford University Press (OUP).
    Crossref OpenAlex
  23. Emma Gowen , Rachel Taylor , Thomas Bleazard , Anat Greenstein , Peter Baimbridge *Autistic author. Learn more… , Daniel Poole (2019). Guidelines for conducting research studies with the autism community . Autism Policy Pract., 2(1), 29.
    Type: Article OpenAlex: https://openalex.org/W2987130266
    Crossref
  24. (n.d.). 26. Lumivero. NVivo (Version 14). 2023.
    Type: Other
    Crossref
  25. Merlijn van Hulst , E. Lianne Visser (2025). Abductive analysis in qualitative research . Public Administration Review, 85(2), 567-580. Wiley.
    Crossref OpenAlex
  26. Benedetta Demartini , Veronica Nisticò , Serena Limonta , Vincenza Tarantino , Giulia Stefanelli , Federica Calistro et al. (2024). Long-term Memory of Sensory Experiences from the First Pregnancy, its Peri-partum and Post-partum in Women with Autism Spectrum Disorders without Intellectual Disabilities: A Retrospective Study . Journal of Autism and Developmental Disorders, 54(12), 4709-4718. Springer Science and Business Media LLC.
    Crossref OpenAlex
  27. Murphy S (2021). The pros and cons of being an autistic parent . Good Autism Practice, 22(1), 87.
    Type: Other
    Crossref
  28. Maryse Pagnier , Mona Moualla (2026). The Autistic Parenting Journey: A Systematic Review of Qualitative Evidence and Thematic Meta-Synthesis . Autism in Adulthood, 8(4), 571-592. SAGE Publications.
    Crossref OpenAlex