Experiences of Autistic Parents, from Conception to Raising Adult Children: A Systematic Review of the Literature

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Jones, S. C., Brownlow, C., & Abel, S. (2024). Experiences of Autistic Parents, from Conception to Raising Adult Children: A Systematic Review of the Literature. Autism in Adulthood, 8(3), 284-304. https://doi.org/10.1089/aut.2024.0181

Journal or book title
Autism in Adulthood
Publisher
SAGE Publications
Volume
8
Issue
3
Pages
284-304
Publication date: 22 Oct 2024 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Sandra C. Jones *
  2. Charlotte Brownlow
  3. Susan Abel

Abstract

Background: The objective of this review was to explore autistic experiences of parenthood, as described by autistic people, from conception to relationships with adult children. In addition, we sought to identify whether particular aspects of parenting and/or particular groups of parents are underrepresented in the already sparse literature on autistic parenting. Methods: We searched 10 key databases for articles that reported data on the perspectives and/or experiences of autistic people (formally diagnosed or self-identifying) at any stage of the parenting journey. Following the initial search, we undertook an iterative process of forward and backward searching until no additional relevant articles were identified. Results: We identified a total of 167 articles and included 44 articles in the review following title and abstract review and full-text review. This consisted of four review articles, 12 articles that reported on quantitative studies, and 28 that reported on qualitative studies, with 28 of the 44 included articles published in the past 3 years. Communication challenges were highlighted across the majority of the studies, particularly in relation to communication with health care and other services in relation to participants’ children. Sensory issues associated with pregnancy, childbirth, and parenting were also common themes. However, studies also identified strengths of autistic parents including empathy with their child(ren), and a high degree of focus and commitment to child and family well-being. The majority of study participants were mothers, White, and parenting babies or young children. Conclusions: A consistent theme across the studies was the external nature of many of the challenges of autistic parenting and the internal nature of many of the strengths. It is perhaps not being an autistic parent that is in itself challenging, but rather the way that autistic parents are (mis)understood and (un)supported by systems designed for neurotypical parents.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 08:05.

Cited references
80
With a DOI
71
Without a DOI, from raw bibliography text
9
20 / 80 (25.0%) cited references include at least one author identified as autistic.
References with data to complete
2 / 80 (2.5%)
References with detected author names
78 / 80 (97.5%)
Without detected author names
2
Without a structured title
1
Without a stable identifier
8
References with raw author names still to review
0
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
305
From DOI or external metadata
305
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
139 / 305 (45.6%) names are linked to an author already present in AutiHub. 166 / 305 (54.4%) names are not yet linked.
Names linked to a person identified as autistic
34 / 305 (11.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 34 / 139 (24.5%). Distinct people identified as autistic: 19 / 249 (7.6%).
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