Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities

Nicolaidis, C., Raymaker, D. M., Katz, M., Oschwald, M., Goe, R., Leotti, S. M., Grantham, L., Plourde, E., Salomon, J., Hughes, R. B., & Powers, L. E. (2015). Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities. Progress in Community Health Partnerships: Research, Education, and Action, 9(2), 141-143. https://doi.org/10.1353/cpr.2015.0040

Publication date: 1 Jun 2015 Added to AutiHub: 6 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
11
Publication authors identified as autistic
1 / 11 (9.1%)

Abstract

The Partnering with People with Developmental Disabilities to Address Violence project is a collaboration between academic researchers and leaders with developmental disabilities at two sites, one in Montana and the other in Portland, Oregon. We used a community-based participatory research approach to study the relationship between health, disability, and interpersonal violence in people with developmental disabilities. In addition to analyzing these relationships in the main study, we also examined how we: Developed, adapted, and pilot tested the survey measures and study materials so that they could be validly used with adults with developmental disabilities; and Worked together to successfully include people with developmental disabilities as equal partners in all parts of the research process. This brief focuses on our measurement adaptation and collaboration aims.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

No cited bibliography is currently integrated for this reference. This does not necessarily mean that no bibliography exists.