Une exploration qualitative d’un programme d’auto-compassion spécifique à l’autisme : l’ASPAA

Titre original en anglais : A qualitative exploration of an autism-specific self-compassion program: The ASPAA

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Edwards, C., Gibbs, V., Love, A. M., Brown, L., & Cai, R. Y. (2024). A qualitative exploration of an autism-specific self-compassion program: The ASPAA. Autism, 28(6), 1419-1430. https://doi.org/10.1177/13623613241234097

Date de publication: 21/02/2024 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Chris Edwards *
  2. Vicki Gibbs
  3. Abigail M.A. Love
  4. Lydia Brown
  5. Ru Ying Cai

Résumé

Alors que les problèmes de santé mentale, associés à des soutiens inadéquats, ont été décrits comme atteignant des proportions de crise chez les personnes autistes, il existe un besoin urgent de systèmes de soutien accessibles et efficaces. Bien que l’auto-compassion ait montré divers bénéfices dans la population générale, son application pour soutenir les personnes autistes demeure limitée. Cette étude a examiné les expériences de 39 adultes autistes ayant participé à un programme en ligne d’auto-compassion spécifique à l’autisme. Le programme comprenait une série de cinq modules intégrant de la psychoéducation, de la méditation et des exercices d’autoréflexion, réalisés sur une période de 5 semaines. Des données qualitatives ont été recueillies au moyen de bilans hebdomadaires et d’une enquête post-programme, qui ont fait l’objet d’une analyse thématique menée à travers le prisme d’un chercheur autiste, aboutissant à quatre thèmes clés : l’impact positif de l’auto-compassion, les difficultés rencontrées pendant le programme, la reconnaissance de l’auto-compassion comme un parcours, et la valeur des adaptations du programme. Ces résultats éclairent les expériences d’adultes autistes participant à des interventions d’auto-compassion, en mettant en évidence à la fois les bénéfices et les obstacles qu’ils ont rencontrés. L’étude souligne l’importance de développer des interventions adaptées qui prennent en compte les besoins et perspectives uniques des personnes autistes afin de favoriser de meilleurs résultats en matière de santé mentale et de promouvoir l’inclusion. Résumé grand public Les personnes autistes ont souvent du mal à trouver le soutien adéquat pour leur santé mentale. Nous souhaitions changer cela en essayant une nouvelle approche pour aider les adultes autistes concernant leurs émotions et leur bien-être. Nous nous sommes concentrés sur ce que l’on appelle l’« auto-compassion », qui consiste à être bienveillant et compréhensif envers soi-même. Cette approche a bien fonctionné pour de nombreuses personnes, mais nous ne savions pas si elle fonctionnerait pour les personnes autistes. Nous avons invité 39 adultes autistes à participer à un programme en ligne qui leur enseignait l’auto-compassion. Le programme a duré 5 semaines et comprenait des matériels éducatifs, des exercices de méditation et des activités d’autoréflexion. Nous avons demandé aux participants un retour chaque semaine et à la fin du programme. À partir de leurs réponses, nous avons découvert quatre éléments importants. Premièrement, l’auto-compassion a eu un important impact positif sur le bien-être des adultes autistes. Deuxièmement, ils ont rencontré certaines difficultés pendant le programme. Troisièmement, ils considéraient l’auto-compassion comme un parcours qui demande du temps et de la pratique. Enfin, ils ont décrit combien ils appréciaient les changements visant à aider les personnes autistes à participer au programme. Nos résultats montrent que l’auto-compassion peut réellement aider les adultes autistes. Nous avons appris quels bénéfices ils ont ressentis et quelles difficultés ils ont rencontrées. Plus important encore, nous avons constaté qu’un soutien personnalisé est crucial pour les personnes autistes. En créant des programmes qui prennent en compte leurs besoins spécifiques, nous pouvons améliorer leur santé mentale et rendre leur vie meilleure.

As mental health concerns coupled with inadequate supports have been described as reaching crisis proportions in autistic people, there is a pressing need for accessible and effective support systems. While self-compassion has shown various benefits in the general population, its application in supporting autistic individuals remains limited. This study investigated the experiences of 39 autistic adults who participated in an autism-specific online self-compassion program. The program included a series of five modules which incorporated psychoeducation, meditation, and self-reflective exercises that were completed over a 5-week period. Qualitative data was collected through weekly check-ins and a post-program survey, which underwent thematic analysis through the lens of an autistic researcher resulting in four key themes: the positive impact of self-compassion, challenges faced during the program, recognizing self-compassion as a journey, and the value of program adaptations. These findings shed light on the experiences of autistic adults engaging with self-compassion interventions, highlighting both the benefits and barriers they encountered. The study underscores the importance of developing tailored interventions that consider the unique needs and perspectives of autistic individuals to promote improved mental health outcomes and foster inclusivity. Lay abstract Autistic people often struggle to find the right support for their mental health. We wanted to change that by trying a new approach to help autistic adults with their emotions and well-being. We focused on something called “self-compassion,” which is a way of being kind and understanding toward ourselves. This approach has worked well for many people, but we didn’t know if it would work for autistic individuals. We invited 39 autistic adults to join an online program that taught them about self-compassion. The program lasted 5 weeks and included educational materials, meditation exercises, and self-reflection activities. We asked the participants for feedback each week and at the end of the program. From their responses, we discovered four important things. First, self-compassion had a big positive impact on the well-being of autistic adults. Second, they faced some challenges during the program. Third, they saw self-compassion as a journey that takes time and practice. Finally, they described how they valued changes to help autistic people engage with the program. Our findings show that self-compassion can really help autistic adults. We learned about the benefits they experienced and the difficulties they faced. Most importantly, we found that personalized support is crucial for autistic individuals. By creating programs that consider their specific needs, we can improve their mental health and make their lives better.

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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
66
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
6 / 66 (9,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
8 / 285 (2,8 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 8 / 106 (7,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 8 / 259 (3,1 %).
Occurrences citées rattachées à la base AutiHub
106 / 285 (37,2 %)
Auteurices cité·es distinct·es rattaché·es : 83 / 259 (32,0 %)
Occurrences rattachées, non identifiées comme autistes
98 / 106 (92,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 98 / 285 (34,4 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 75 / 83 (90,4 %).
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