Close Relationships Despite the Challenges: Sibling Relationships and Autism

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Trew, S. (2024). Close Relationships Despite the Challenges: Sibling Relationships and Autism. Journal of Autism and Developmental Disorders, 55(9), 2989-3001. https://doi.org/10.1007/s10803-024-06412-4

Publication date: 10 Jun 2024 Added to AutiHub: 16 Sep 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)

Abstract

Abstract This study explores the experiences of siblings of autistic adolescents within families. Without the novel insights generated from engaging with siblings of autistic adolescents within a qualitative framework, it can be challenging to develop strategies for practicing effectively with this group or structuring interventions with these families. Using a social constructivist approach and qualitative participatory methodology, the exploratory study was conducted using in-depth interviews with ten non-autistic siblings, analyzed via a thematic analysis method. The results reveal a common feeling of uncertainty and apprehension in the relationships, leading siblings to physical and emotional detachment from their autistic brothers or sisters. The research emphasizes the caregiving roles predominantly taken up by sisters, especially when the autistic sibling is a brother with intellectual disability. These roles exert substantial demands, with unclear boundaries suggesting potential role confusion. The findings have important implications for family practice, necessitating the need to address role conflict and promote role clarity. They also underscore the gendered nature of caregiving, advocating for support to sister-siblings in these roles. This study revealed the complexities of sibling relationships in families with a member who is an autistic adolescent sibling. The study suggests interventions that promote open family dialogues for a balanced approach to family roles, providing valuable guidance to practitioners to enhance siblings and family well-being.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 19 Sep 2026 01:01.

Cited references
128
With a DOI
101
Without a DOI, from raw bibliography text
23
5 / 128 (3.9%) cited references include at least one author identified as autistic.
References with data to complete
13 / 128 (10.2%)
References with detected author names
118 / 128 (92.2%)
Without detected author names
10
Without a structured title
13
Without a stable identifier
20
References with raw author names still to review
10
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
366
From DOI or external metadata
366
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
16
45 / 366 (12.3%) names are linked to an author already present in AutiHub. 321 / 366 (87.7%) names are not yet linked.
Names linked to a person identified as autistic
5 / 366 (1.4%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 5 / 45 (11.1%). Distinct people identified as autistic: 3 / 337 (0.9%).
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