Recherche qualitative auprès de familles vivant avec un trouble du spectre de l’autisme : recommandations pour la conduite d’entretiens semi-structurés

Titre original en anglais : Qualitative research with families living with autism spectrum disorder: Recommendations for conducting semistructured interviews

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Cridland, E. K., Jones, S. C., Caputi, P., & Magee, C. (2014). Qualitative research with families living with autism spectrum disorder: Recommendations for conducting semistructured interviews. Journal of Intellectual and Developmental Disability, 40(1), 78-91. https://doi.org/10.3109/13668250.2014.964191

Date de publication: 30/09/2014 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Elizabeth K. Cridland
  2. Sandra C. Jones *
  3. Peter Caputi
  4. Chris Magee

Résumé

Dans cet article, les perspectives et expériences d’une équipe de recherche impliquée dans la conduite de recherches qualitatives auprès de familles vivant avec un trouble du spectre de l’autisme sont mises à profit pour fournir des réflexions et des recommandations à toutes les étapes du processus de recherche qualitative. Une attention particulière est accordée aux étapes impliquées dans les entretiens semi-structurés, notamment la préparation du guide d’entretien, le recrutement des participants, l’obtention d’un consentement/d’un assentiment éclairé et volontaire, la conduite d’entretiens efficaces, l’analyse et l’interprétation précises des données, les moyens d’impliquer les participants dans l’analyse des données, la communication efficace des résultats de recherche et la fourniture d’un retour d’information aux participants. En outre, des réflexions et des recommandations sont fournies pour maintenir la santé des chercheurs tout au long du processus de recherche qualitative.

In this paper, the insights and experiences of a research team involved in conducting qualitative research with families living with autism spectrum disorder are drawn upon to provide reflections and recommendations across all stages of the qualitative research process. Particular attention is given to the steps involved in semistructured interviews, specifically, interview guide preparation, participant recruitment, obtaining informed and voluntary consent/assent, conducting effective interviews, accurate analysis and interpretation of data, ways to involve participants in data analysis, effective communication of research findings, and providing feedback to participants. In addition, reflections and recommendations are provided for maintaining researcher health throughout the qualitative research process.

Bibliographie citée par cette référence

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Références citées
61
Avec un DOI
54
Sans DOI, à partir du texte brut de la bibliographie
6
3 / 61 (4,9 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
3 / 61 (4,9 %)
Références avec noms d’auteurices détectés
60 / 61 (98,4 %)
Sans nom d’auteurice détecté
1
Sans titre structuré
2
Sans identifiant stable
4
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
1
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Noms d’auteurices détectés dans la bibliographie citée
134
À partir du DOI ou de métadonnées externes
134
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
22 / 134 (16,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 112 / 134 (83,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
3 / 134 (2,2 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 3 / 22 (13,6 %). Personnes distinctes identifiées comme autistes : 2 / 121 (1,7 %).
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