Recherche qualitative auprès de familles vivant avec un trouble du spectre de l’autisme : recommandations pour la conduite d’entretiens semi-structurés

Titre original en anglais : Qualitative research with families living with autism spectrum disorder: Recommendations for conducting semistructured interviews

Cridland, E. K., Thom-Jones, S., Caputi, P., & Magee, C. (2014). Qualitative research with families living with autism spectrum disorder: Recommendations for conducting semistructured interviews. Journal of Intellectual and Developmental Disability, 40(1), 78-91. https://doi.org/10.3109/13668250.2014.964191

Date de publication: 30/09/2014 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)

Résumé

Dans cet article, les perspectives et expériences d’une équipe de recherche impliquée dans la conduite de recherches qualitatives auprès de familles vivant avec un trouble du spectre de l’autisme sont mises à profit pour fournir des réflexions et des recommandations à toutes les étapes du processus de recherche qualitative. Une attention particulière est accordée aux étapes impliquées dans les entretiens semi-structurés, notamment la préparation du guide d’entretien, le recrutement des participants, l’obtention d’un consentement/d’un assentiment éclairé et volontaire, la conduite d’entretiens efficaces, l’analyse et l’interprétation précises des données, les moyens d’impliquer les participants dans l’analyse des données, la communication efficace des résultats de recherche et la fourniture d’un retour d’information aux participants. En outre, des réflexions et des recommandations sont fournies pour maintenir la santé des chercheurs tout au long du processus de recherche qualitative.

In this paper, the insights and experiences of a research team involved in conducting qualitative research with families living with autism spectrum disorder are drawn upon to provide reflections and recommendations across all stages of the qualitative research process. Particular attention is given to the steps involved in semistructured interviews, specifically, interview guide preparation, participant recruitment, obtaining informed and voluntary consent/assent, conducting effective interviews, accurate analysis and interpretation of data, ways to involve participants in data analysis, effective communication of research findings, and providing feedback to participants. In addition, reflections and recommendations are provided for maintaining researcher health throughout the qualitative research process.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
61
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
2 / 61 (3,3 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
2 / 134 (1,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 2 / 19 (10,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 1 / 121 (0,8 %).
Occurrences citées rattachées à la base AutiHub
19 / 134 (14,2 %)
Auteurices cité·es distinct·es rattaché·es : 12 / 121 (9,9 %)
Occurrences rattachées, non identifiées comme autistes
17 / 19 (89,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 17 / 134 (12,7 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 11 / 12 (91,7 %).
1 entrée de bibliographie citée n’a pas pu être entièrement enrichie à partir des métadonnées DOI.
Crossref: introuvable (1)
  1. Patricia Agre , Bruce Rapkin (2003). Improving Informed Consent: A Comparison of Four Consent Tools . IRB: Ethics and Human Research, 25(6), 1. Wiley.
    Type: Article DOI: 10.2307/3564285 OpenAlex: https://openalex.org/W104817353
    Crossref OpenAlex OpenCitations
  2. Jonathan Potter , Alexa Hepburn (2005). Qualitative interviews in psychology: problems and possibilities . Qualitative Research in Psychology, 2(4), 281-307. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  3. B. Hudnall Stamm (1999). Secondary Traumatic Stress: Self-Care Issues for Clinicians, Researchers, and Educators .
    Type: Livre OpenAlex: https://openalex.org/W579970915
    Crossref OpenAlex
  4. Tony Attwood (2007). The Complete Guide to Asperger’s Syndrome . Jessica Kingsley Publishers.
    Crossref OpenAlex OpenCitations
  5. Fabiënne B. A. Naber , Marian J. Bakermans-Kranenburg , Marinus H. van IJzendoorn , Sophie H. N. Swinkels , Jan K. Buitelaar , Claudine Dietz et al. (2008). Play Behavior and Attachment in Toddlers with Autism . Journal of Autism and Developmental Disorders, 38(5), 857-866. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  6. van den Hoonaard, Will C. (2002). Walking the Tightrope . University of Toronto Press.
    Crossref OpenAlex OpenCitations
  7. Rosaline S. Barbour Ma (2000). The role of qualitative research in broadening the ‘evidence base’ for clinical practice . Journal of Evaluation in Clinical Practice, 6(2), 155-163. Wiley.
    Crossref OpenAlex OpenCitations
  8. Virginia Dickson-Swift , Erica L. James , Sandra Kippen , Pranee Liamputtong (2008). Risk to Researchers in Qualitative Research on Sensitive Topics: Issues and Strategies . Qualitative Health Research, 18(1), 133-144. SAGE Publications.
    Crossref OpenAlex OpenCitations
  9. Philip R. Jones , Jessi K. Wheatley (2008). Education and Training in Mental Retardation and Developmental Disabilities . Encyclopedia of Special Education, 800-800. Wiley.
    OpenAlex
  10. Colin Barnes (1992). Qualitative Research: Valuable or Irrelevant? Disability, Handicap & Society, 7(2), 115-124. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  11. Kay Bradford (2010). Supporting Families Dealing with Autism and Asperger's Disorders . Journal of Family Psychotherapy, 21(2), 149-156. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  12. M. Bayat (2007). Evidence of resilience in families of children with autism . Journal of Intellectual Disability Research, 51(9), 702-714. Wiley.
    Crossref OpenAlex OpenCitations
  13. Angela Dew , Susan Balandin , Gwynnyth Llewellyn (2008). The Psychosocial Impact on Siblings of People with Lifelong Physical Disability: A Review of the Literature . Journal of Developmental and Physical Disabilities, 20(5), 485-507. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  14. (1990). Ordinary families, special children: a systems approach to childhood disability . Choice Reviews Online, 27(05), 27-2778-27-2778. American Library Association.
    OpenAlex
  15. Sven Boelte , Fritz Poustka (2000). Diagnosis of Autism: The Connection between Current and Historical Information . Autism, 4(4), 382-390. SAGE Publications.
    Crossref OpenAlex OpenCitations
  16. Ryan J. Macks , Ronald E. Reeve (2007). The Adjustment of Non-Disabled Siblings of Children with Autism . Journal of Autism and Developmental Disorders, 37(6), 1060-1067. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  17. Éric Fombonne (2003). Epidemiological Surveys of Autism and Other Pervasive Developmental Disorders: An Update . Journal of Autism and Developmental Disorders, 33(4), 365-382. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  18. Svend Brinkmann (2007). The Good Qualitative Researcher . Qualitative Research in Psychology, 4(1-2), 127-144. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  19. Helen M. Taunt , Richard P. Hastings (2002). Positive Impact of Children with Developmental Disabilities on Their Families: A Preliminary Study . Education and Training in Mental Retardation and Developmental Disabilities, 37(4), 410-420. SAGE Publications.
    OpenAlex
  20. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  21. Victor Minichiello , Rosalie Aroni , Terrence Hays (2008). In-depth Interviewing: Principles, Techniques, Analysis .
    Type: Livre OpenAlex: https://openalex.org/W1584610626
    OpenAlex
  22. Bethany Jackson Brewin , Rebecca Renwick , Ann Fudge Schormans (2008). Parental Perspectives of the Quality of Life in School Environments for Children With Asperger Syndrome . Focus on Autism and Other Developmental Disabilities, 23(4), 242-252. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. Kathleen B Rager (2005). Self-Care and the Qualitative Researcher: When Collecting Data Can Break Your Heart . Educational Researcher, 34(4), 23-27. American Educational Research Association (AERA).
    Crossref OpenAlex OpenCitations
  24. Steven Keen , Les Todres (2007). Strategies for Disseminating Qualitative Research Findings: Three Exemplars . Forum: Qualitative Social Research (Freie Universität Berlin), 8(3), 12. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research.
    Type: Article DOI: 10.17169/fqs-8.3.285 OpenAlex: https://openalex.org/W1923437596 Crossref: introuvable
    OpenAlex
  25. Hedda Meadan , Julia B. Stoner , Maureen E. Angell (2010). Review of Literature Related to the Social, Emotional, and Behavioral Adjustment of Siblings of Individuals with Autism Spectrum Disorder . Journal of Developmental and Physical Disabilities, 22(1), 83-100. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Tali Heiman , Ornit Berger (2008). Parents of children with Asperger syndrome or with learning disabilities: Family environment and social support . Research in Developmental Disabilities, 29(4), 289-300. Elsevier BV.
    Crossref OpenAlex OpenCitations
  27. Suzanne Carrington , Lorraine Graham (2001). Perceptions of School by Two Teenage Boys with Asperger Syndrome and their Mothers: A Qualitative Study . Autism, 5(1), 37-48. SAGE Publications.
    Crossref OpenCitations
  28. Mieke Meirsschaut , Herbert Roeyers , Petra Warreyn (2011). The social interactive behaviour of young children with autism spectrum disorder and their mothers . Autism, 15(1), 43-64. SAGE Publications.
    Crossref OpenAlex OpenCitations
  29. Erin Duchan , Dilip R. Patel (2012). Epidemiology of Autism Spectrum Disorders . Pediatric Clinics of North America, 59(1), 27-43. Elsevier BV.
    Crossref OpenAlex OpenCitations
  30. Alison Cocks (2008). Researching the Lives of Disabled Children . Qualitative Social Work, 7(2), 163-180. SAGE Publications.
    Crossref OpenAlex OpenCitations
  31. Kari Krogh , Peter Lindsay (1999). Including people with disabilities in research: implications for the field of augmentative and alternative communication . Augmentative and Alternative Communication, 15(4), 222-233. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  32. Michael A. Petalas , Richard P. Hastings , Susie Nash , Alan Dowey , Deirdre Reilly (2009). “I Like That He Always Shows Who He Is”: The perceptions and experiences of siblings with a brother with autism spectrum disorder . International Journal of Disability, Development and Education, 56(4), 381-399. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  33. G. A. King , Lonnie Zwaigenbaum , S. King , D. Baxter , P. Rosenbaum , A. Bates (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome . Child: Care, Health and Development, 32(3), 353-369. Wiley.
    Crossref OpenAlex OpenCitations
  34. Kate Davis , Susana Gavidia-Payne (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities . Journal of Intellectual & Developmental Disability, 34(2), 153-162. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  35. Kari Killen (1998). Secondary traumatic stress. Self care issues for clinicians, researchers, and educators . Child Abuse & Neglect, 22(3), 236-237. Elsevier BV.
    OpenAlex
  36. Christine Deruelle , Cecilie Rondan , Bruno Gepner , Joël Fagot (2006). Processing of compound visual stimuli by children with autism and Asperger syndrome . International Journal of Psychology, 41(2), 97-106. Wiley.
    Crossref OpenAlex OpenCitations
  37. Brenda Smith Myles , Richard L. Simpson (1997). Asperger Syndrome: A Guide for Educators and Parents .
    Type: Livre OpenAlex: https://openalex.org/W1999068725
    Crossref OpenAlex
  38. Faye Mishna , Beverley J. Antle , Cheryl Regehr (2004). Tapping the Perspectives of Children . Qualitative Social Work, 3(4), 449-468. SAGE Publications.
    Crossref OpenAlex OpenCitations
  39. Katerina Mascha , Jill Boucher (2006). Preliminary Investigation of a Qualitative Method of Examining Siblings' Experiences of Living with a Child with ASD . The British Journal of Development Disabilities, 52(102), 19-28. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  40. Virginia Dickson-Swift , Erica L. James , Sandra Kippen , Pranee Liamputtong (2007). Doing sensitive research: what challenges do qualitative researchers face? Qualitative Research, 7(3), 327-353. SAGE Publications.
    Crossref OpenAlex OpenCitations
  41. Sue Dockett , Johanna Einarsdottir , Bob Perry (2009). researching with children: ethical tensions . Journal of Early Childhood Research, 7(3), 283-298. SAGE Publications.
    Crossref OpenAlex OpenCitations
  42. Éric Fombonne (2002). Epidemiological trends in rates of autism . Molecular Psychiatry, 7(S2), S4-S6. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  43. Michael Sachse , Sabine Schlitt , Daniela Hainz , Angela Ciaramidaro , Shella Schirman , Henrik Walter et al. (2013). Executive and Visuo-motor Function in Adolescents and Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 43(5), 1222-1235. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  44. Richard P. Hastings (2002). CIT0024 Education and Training in Mental Retardation and Developmental Disabilities, 37, 410.
    Type: Autre
    Crossref
  45. Kenneth I. Pakenham , Christina Samios , Kate Sofronoff (2005). Adjustment in mothers of children with Asperger syndrome . Autism, 9(2), 191-212. SAGE Publications.
    Crossref OpenAlex OpenCitations
  46. Keen S. (2007). CIT0027 Forum: Qualitative Social Research, 8(3).
    Type: Autre
    Crossref
  47. Victoria Lavis (2010). Multiple Researcher Identities: Highlighting Tensions and Implications for Ethical Practice in Qualitative Interviewing . Qualitative Research in Psychology, 7(4), 316-331. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  48. Sally Powis (2008). The Complete Guide to Asperger's Syndrome . Emerald.
    OpenAlex
  49. Sam B. Morgan (1988). The autistic child and family functioning: A developmental-family systems perspective . Journal of Autism and Developmental Disorders, 18(2), 263-280. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  50. Margarete Sandelowski (1995). Qualitative analysis: What it is and how to begin . Research in Nursing & Health, 18(4), 371-375. Wiley.
    Crossref OpenAlex OpenCitations
  51. Amanda Mossman Steiner (2011). A Strength-Based Approach to Parent Education for Children With Autism . Journal of Positive Behavior Interventions, 13(3), 178-190. SAGE Publications.
    Crossref OpenAlex OpenCitations
  52. Kathleen B. Rager (2005). Compassion Stress and the Qualitative Researcher . Qualitative Health Research, 15(3), 423-430. SAGE Publications.
    Crossref OpenAlex OpenCitations
  53. Minichiello V. (1995). In-depth interviewing: Principles, techniques, analysis . In-depth interviewing: Principles, techniques, analysis.
    Type: Autre
    Crossref
  54. Marion O’Brien (2007). Ambiguous Loss in Families of Children With Autism Spectrum Disorders* . Family Relations, 56(2), 135-146. Wiley.
    Crossref OpenAlex OpenCitations
  55. Marjorie Solomon , Meghan Miller , Sandra L. Taylor , Stephen P. Hinshaw , Cameron S. Carter (2012). Autism Symptoms and Internalizing Psychopathology in Girls and Boys with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 42(1), 48-59. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  56. Seligman M (2007). Ordinary families, special children: A systems approach to childhood disability . Ordinary Families, Special Children: A Systems Approach to Childhood Disability.
    Type: Autre
    Crossref
  57. Karen McKenzie (2007). The Complete Guide to Asperger’s Syndrome . Learning Disability Practice, 10(2), 26-27. RCN Publishing Ltd..
    OpenAlex
  58. Brenda L. Moore (2015). In-Depth Interviewing . Dans Routledge Handbook of Research Methods in Military Studies. Routledge.
    Type: Chapitre de livre DOI: 10.4324/9780203093801.ch11 OpenAlex: https://openalex.org/W2395047117
    OpenAlex
  59. Cristina Etzold-Frometa (2014). Ordinary Families, Special Children: A Systems Approach to Childhood Disability . International Journal of Early Childhood Special Education, 5(8645). Institute for Advanced Studies.
    OpenAlex