Interventions relatives a l'autisme concues ou adaptees pour la population noire/afro-americaine : une revue systematique

Titre original en anglais : Autism interventions designed or adapted for the Black/African American population: A systematic review

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Davis, A. M., Burks-Abbott, G., Merecias, O., & Swenor, B. K. (2024). Autism interventions designed or adapted for the Black/African American population: A systematic review. Autism, 29(1), 26-40. https://doi.org/10.1177/13623613241259910

Publication date: 23/06/2024 Ajout dans AutiHub: 14/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Amber M Davis
  2. Gyasi Burks-Abbott *
  3. Octaviano Merecias
  4. Bonnie K Swenor

Résumé

Les besoins de la population noire/afro-americaine aux Etats-Unis ont historiquement ete negliges dans la recherche, y compris dans le developpement de therapies et de services visant a soutenir les personnes autistes. L'etendue des interventions visant a soutenir les personnes autistes qui sont concues ou adaptees afin d'etre culturellement adaptees a la population noire americaine n'est pas connue. L'etat de ces interventions abordant systematiquement les facteurs culturels est egalement peu explore. La presente revue systematique a examine les donnees probantes issues de la recherche sur les interventions relatives a l'autisme soit concues, soit adaptees pour les personnes noires aux Etats-Unis. La recherche ne comportait pas de plage de dates specifique, mais a identifie de la litterature a partir de 1999, et la recherche s'est terminee en 2023. Au total, huit etudes ont ete identifiees et examinees : quatre etaient des interventions concues specifiquement pour la population noire autiste, une etait une intervention adaptee, et trois etaient des interventions evaluees aupres d'un echantillon noir autiste. Pour evaluer ces etudes, nous avons utilise la Cultural Adaptation Checklist et avons constate que peu d'interventions relatives a l'autisme sont systematiquement adaptees pour les personnes noires. Les chercheurs sur l'autisme qui ont mobilise la population noire autiste ou leurs familles ont fait preuve de reflexion dans leurs manieres de les mobiliser ; toutefois, aucun cadre universel n'a guide les efforts de developpement ou d'adaptation de ces interventions. Le developpement d'un plus grand nombre d'interventions relatives a l'autisme davantage adaptees sur le plan culturel (c'est-a-dire des interventions adaptees fondees sur des donnees probantes) pour la population noire est prometteur pour des pratiques relatives a l'autisme plus equitables. Resume grand public Les personnes noires/afro-americaines aux Etats-Unis qui ont un diagnostic d'autisme connaissent souvent des inegalites liees aux services, notamment le fait de ne pas avoir le meme acces a des soins de haute qualite pour l'autisme et les troubles associes (par exemple, des interventions comportementales), et sont moins susceptibles de maintenir un engagement durable dans le traitement tout au long de leur vie. Bien que les interventions visant a soutenir les personnes autistes soient generalement concues pour etre universelles, on craint que le fait que ces interventions ne soient pas adaptees a la population noire/afro-americaine puisse reduire leur impact global en raison d'un manque de prise en compte des besoins des enfants noirs ou des familles qui recoivent l'intervention. La presente revue systematique a resume les recherches sur les interventions elaborees pour la communaute noire de l'autisme, y compris les enfants noirs autistes et leurs aidants. Apres une recherche exhaustive et systematique, huit publications evaluees par les pairs ont ete identifiees comme repondant aux criteres d'inclusion de l'etude. La majorite des interventions etaient adaptees aux aidants noirs d'enfants autistes. Les chercheurs sur l'autisme demontrent differentes strategies pour mobiliser les aidants noirs de manieres culturellement adaptees ; toutefois, des recherches supplementaires sur ces interventions sont necessaires afin d'evaluer leur efficacite. En outre, il existe encore peu d'interventions adaptees afin d'etre culturellement adaptees aux personnes autistes noires/afro-americaines. Le cadre de la Cultural Adaptation Checklist est une approche nouvelle susceptible de devenir la norme pour adapter les interventions aux besoins de groupes culturellement divers. L'adaptation culturelle est une dimension importante dans le developpement d'interventions qui produisent des resultats optimaux pour l'eventail de la diversite aux Etats-Unis et constitue une etape importante vers l'atteinte de pratiques de recherche sur l'autisme equitables.

The needs of the Black/African American population in the United States have historically been neglected in research, including in the development of therapies and services to support people with autism. The scope of interventions to support autistic people that are designed or adapted to be culturally responsive to the Black American population is not known. The state of these interventions systematically addressing cultural factors is also underexplored. The present systematic review examined the research evidence of autism interventions either designed or adapted for Black persons in the United States. The search did not have a specific date range but identified literature starting in 1999, and the search ended in 2023. A total of eight studies were identified and reviewed: Four were interventions designed specifically for the Black autistic population, one was an adapted intervention, and three were interventions evaluated with a Black autistic sample. To evaluate these studies, we used the Cultural Adaptation Checklist and found that few autism interventions are systematically adapted for Black individuals. Autism researchers that have engaged the Black autistic population or their families have been thoughtful in ways of engaging; however, there was no universal framework that drove development or adaptation efforts of these interventions. The development of more culturally responsive autism interventions (i.e. adapted evidence-based interventions) for the Black population offers promise for more equitable autism practices. Lay abstract Black/African American people in the United States who have a diagnosis of autism often experience service-related disparities, including not having the same access to high-quality autism and related care (e.g. behavioral interventions), and are less likely to have sustained treatment engagement across their lifespan. While interventions to support autistic people are typically designed to be universal, there is concern that these interventions not being tailored to the Black/African American population could reduce the overall impact due to a lack of responsiveness to the needs of the Black children or families who receive the intervention. The current systematic review summarized research on interventions developed for the Black autism community, including Black children with autism and their caregivers. After a comprehensive, systematic search, eight peer-reviewed publications were identified that met the study’s inclusion criteria. The majority of the interventions were tailored to Black caregivers of children with autism. Autism researchers demonstrate different strategies for engaging Black caregivers in culturally responsive ways; however, more research into these interventions is needed in order to assess their effectiveness. In addition, there are still limited interventions adapted to be culturally responsive to Black/African American autistic people. The Cultural Adaptation Checklist framework is a novel approach with promise to become the standard for adapting interventions to meet the needs of culturally diverse groups. Cultural responsiveness is an important facet in the development of interventions that produce optimal outcomes for the range of diversity in the United States and is an important step to achieving equitable autism research practices.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 19/09/2026 01:01.

Références citées
82
Avec un DOI
75
Sans DOI, à partir du texte brut de la bibliographie
6
2 / 82 (2,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
5 / 82 (6,1 %)
Références avec noms d’auteurices détectés
80 / 82 (97,6 %)
Sans nom d’auteurice détecté
2
Sans titre structuré
5
Sans identifiant stable
6
Références avec noms bruts d’auteurices restant à vérifier
2
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
369
À partir du DOI ou de métadonnées externes
369
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
2
51 / 369 (13,8 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 318 / 369 (86,2 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
2 / 369 (0,5 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 2 / 51 (3,9 %). Personnes distinctes identifiées comme autistes : 2 / 353 (0,6 %).
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