Un essai mené dans plusieurs États d'un programme de surveillance précoce de l'autisme au sein de cabinets de médecine générale en Australie

Titre original en anglais : A Multistate Trial of an Early Surveillance Program for Autism Within General Practices in Australia

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Barbaro, J., Masi, A., Gilbert, M., Nair, R., Abdullahi, I., Descallar, J., Dissanayake, C., Eastwood, J., Hasan, I., Jalaludin, B., Karlov, L., Khan, F., Kohlhoff, J., Liaw, S. T., Lingam, R., Mendoza Diaz, A., Ong, N., Tam, C. W. M., Unwin, K.,..., & Eapen, V. (2021). A Multistate Trial of an Early Surveillance Program for Autism Within General Practices in Australia. Frontiers in Pediatrics, 9, 640359-640359. https://doi.org/10.3389/fped.2021.640359

Date de publication: 23/04/2021 Ajout dans AutiHub: 07/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
21
Auteur·ices de la publication identifié·es comme autistes
1 / 21 (4,8 %)
  1. Josephine Barbaro *
  2. Anne Masi
  3. Melissa Gilbert
  4. Radhika Nair
  5. Ifrah Abdullahi
  6. Joseph Descallar
  7. Cheryl Dissanayake
  1. John Eastwood
  2. Iqbal Hasan
  3. Bin Jalaludin
  4. Lisa Karlov
  5. Feroza Khan
  6. Jane Kohlhoff
  7. S. T. Liaw
  1. Raghu Lingam
  2. Antonio Mendoza Diaz
  3. Natalie Ong
  4. Chun Wah Michael Tam
  5. Katy Unwin
  6. Sue Woolfenden
  7. Valsamma Eapen

Résumé

Contexte : La détection précoce de troubles du développement tels que l'autisme est essentielle pour garantir que les enfants puissent accéder à des soutiens, services et interventions appropriés, opportuns et fondés sur des données probantes. Les enfants qui présentent des troubles du développement non détectés au début de leur vie sont plus susceptibles de développer ultérieurement des problèmes de santé, de développement, d'apprentissage et de comportement, lesquels peuvent à leur tour avoir un effet cumulatif tout au long de la vie. Méthodes : Le présent protocole décrit un essai contrôlé randomisé en grappes, multisite, comparant une filière de surveillance développementale de l'autisme aux soins habituels, en utilisant des consultations opportunistes auprès de médecins généralistes (GP). Les unités de randomisation sont des cliniques de médecine générale réparties dans deux États australiens, la Nouvelle-Galles du Sud et le Victoria, avec trente cliniques dans chaque État, chacune visant à recruter environ quarante enfants âgés d'environ 18 à 24 mois, pour un total d'environ 2 400 participants. Les enfants seront randomisés dans deux grappes, à savoir une filière de surveillance de l'autisme (ASP) ou une surveillance habituelle (SaU). Le processus de dépistage dans le bras ASP comprend des dépistages primaires et secondaires des préoccupations développementales liées à l'autisme, en utilisant à la fois les signalements et les observations des parents et des GP. Les enfants des deux bras qui présentent des signes de préoccupations développementales liées à l'autisme se verront proposer une évaluation développementale complète par l'équipe de recherche à l'âge de 24 mois afin de déterminer l'efficacité de la surveillance développementale pour identifier avec succès les enfants autistes. Enregistrement de l'essai : L'essai est enregistré auprès de l'ANZCTR (ACTRN12619001200178) et la communication des résultats de l'essai suivra les recommandations de la déclaration CONSORT.

Background: The early detection of developmental conditions such as autism is vital to ensure children can access appropriate and timely evidence-based supports, services, and interventions. Children who have undetected developmental conditions early in life are more likely to develop later health, developmental, learning, and behavioral issues, which in turn can have a cumulative effect over the life course. Methods: The current protocol describes a multi-site, cluster randomized control trial comparing a developmental surveillance pathway for autism to usual care, using opportunistic visits to general practitioners (GPs). Units of randomization are GP clinics across two Australian states (New South Wales and Victoria), with thirty clinics within each state, each of which will aim to recruit approximately forty children aged between ~18- and 24-months, for a total of ~2,400 participants. Children will be randomized to two clusters; namely, an autism surveillance pathway (ASP) or surveillance as usual (SaU). The screening process for the ASP arm involves primary and secondary screenings for developmental concerns for autism, using both parent and GP reports and observations. Children in both arms who show signs of developmental concerns for autism will be offered a full developmental assessment by the research team at 24 months of age to determine the efficacy of developmental surveillance in successfully identifying children with autism. Trial Registration: The trial is registered with ANZCTR (ACTRN12619001200178) and reporting of the trial results will be according to recommendations in the CONSORT Statement.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 17:55.

Références citées
83
Avec un DOI
55
Sans DOI, à partir du texte brut de la bibliographie
26
7 / 83 (8,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
13 / 83 (15,7 %)
Références avec noms d’auteurices détectés
71 / 83 (85,5 %)
Sans nom d’auteurice détecté
12
Sans titre structuré
8
Sans identifiant stable
24
Références avec noms bruts d’auteurices restant à vérifier
1
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
494
À partir du DOI ou de métadonnées externes
494
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
1
134 / 494 (27,1 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 360 / 494 (72,9 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
7 / 494 (1,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 7 / 134 (5,2 %). Personnes distinctes identifiées comme autistes : 1 / 353 (0,3 %).
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