ECHO Autism Adult Healthcare : former les cliniciens communautaires a fournir des soins de qualite aux adultes autistes

Titre original en anglais : ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults

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Malow, B. A., Mazurek, M., Stobbe, G., Agrawal, M. M., Loftin, R., Caudel, D., Hess, A., Westphal, A., Smith, J., Shouse, J., Cheak‐Zamora, N., & Sohl, K. (2023). ECHO autism adult healthcare: Training community clinicians to provide quality care for autistic adults. Autism Research, 16(8), 1619-1629. https://doi.org/10.1002/aur.2996

Date de publication: 31/07/2023 Ajout dans AutiHub: 09/08/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
12
Auteur·ices de la publication identifié·es comme autistes
1 / 12 (8,3 %)
  1. Beth A. Malow
  2. Micah Mazurek
  3. Gary Stobbe
  4. Mavara M. Agrawal
  1. Rachel Loftin
  2. David Caudel *
  3. Amy Hess
  4. Alexander Westphal
  1. Joshua Smith
  2. Janet Shouse
  3. Nancy Cheak‐Zamora
  4. Kristin Sohl

Résumé

Resume Les adultes autistes presentent d'importants besoins de sante non satisfaits, avec des possibilites d'amelioration tant dans les systemes que chez les praticiens qui servent cette population. Les medecins/praticiens de soins primaires (PCP) constituent un choix naturel pour fournir des soins complets aux adultes autistes, mais manquent souvent d'experience dans la prise en charge de cette population. Cette etude pilote a elabore et teste un modele Extension for Community Healthcare Outcomes (ECHO) Autism adapte de nos travaux precedents, axe specifiquement sur la formation des PCP aux soins conformes aux meilleures pratiques pour les adultes autistes. Le projet a ete directement eclaire par les perspectives et les preferences d'adultes autistes, d'aidants et de PCP. Deux cohortes consecutives de PCP ont participe aux seances ECHO Autism Adult Healthcare. Chaque cohorte s'est reunie pendant 1 h, deux fois par mois durant 6 mois, avec la participation de 37 PCP (n = 20 dans la cohorte 1 et n = 17 dans la cohorte 2). Sur la base des resultats de la premiere cohorte, des ajustements ont ete apportes afin d'affiner la preparation des seances, le programme, la conduite de l'ECHO, les ressources et l'evaluation. Apres leur participation au programme ECHO Autism, l'auto-efficacite et la satisfaction des PCP se sont ameliorees, tandis que le nombre d'obstacles percus n'a pas change. Les connaissances ne se sont pas ameliorees de maniere significative dans la cohorte 1, mais apres les ajustements apportes au modele de formation, les participants de la cohorte 2 ont montre des gains de connaissances significatifs. Bien que l'attention portee aux systemes de soins soit essentielle pour surmonter les obstacles aux soins de sante dans la population autiste, le modele ECHO Autism Adult Healthcare est faisable et semble prometteur pour ameliorer la satisfaction et l'auto-efficacite des PCP dans leur travail avec des adultes autistes.

Abstract Autistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best‐practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1 h twice a month for 6 months, with 37 PCPs (n = 20 in Cohort 1, and n = 17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self‐efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self‐efficacy in working with autistic adults.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
34
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
3 / 34 (8,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
7 / 233 (3,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 7 / 91 (7,7 %). Auteurices cité·es distinct·es identifié·es comme autistes : 5 / 178 (2,8 %).
Occurrences citées rattachées à la base AutiHub
91 / 233 (39,1 %)
Auteurices cité·es distinct·es rattaché·es : 47 / 178 (26,4 %)
Occurrences rattachées, non identifiées comme autistes
84 / 91 (92,3 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 84 / 233 (36,1 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 42 / 47 (89,4 %).
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