ECHO Autism Transition : améliorer les soins de santé pour les adolescents et les jeunes adultes présentant un trouble du spectre de l’autisme

Titre original en anglais : ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Mazurek, M. O., Stobbe, G., Loftin, R., Malow, B. A., Agrawal, M. M., Tapia, M., Hess, A., Farmer, J., Cheak-Zamora, N., Kuhlthau, K., & Sohl, K. (2019). ECHO Autism Transition: Enhancing healthcare for adolescents and young adults with autism spectrum disorder. Autism, 24(3), 633-644. https://doi.org/10.1177/1362361319879616

Date de publication: 03/10/2019 Ajout dans AutiHub: 02/10/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Source OpenAlex

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Auteurs

Auteur·ices des publications
11
Auteur·ices de la publication identifié·es comme autistes
1 / 11 (9,1 %)
  1. Micah O Mazurek
  2. Gary Stobbe
  3. Rachel Loftin
  4. Beth A Malow
  1. Mavara M Agrawal
  2. Mark Tapia *
  3. Amy Hess
  4. Justin Farmer
  1. Nancy Cheak-Zamora
  2. Karen Kuhlthau
  3. Kristin Sohl

Résumé

Les jeunes en période de transition et les jeunes adultes présentant un trouble du spectre de l’autisme ont des besoins de santé complexes, mais le système de santé actuel n’est pas équipé pour répondre adéquatement aux besoins de cette population croissante. Les prestataires de soins primaires manquent de formation et de confiance pour prendre en charge les jeunes et les jeunes adultes présentant un trouble du spectre de l’autisme. La présente étude a élaboré et testé une adaptation du modèle Extension for Community Healthcare Outcomes afin de former et d’encadrer des prestataires de soins primaires (n = 16) aux soins fondés sur les meilleures pratiques pour les jeunes en période de transition et les jeunes adultes présentant un trouble du spectre de l’autisme. Le programme Extension for Community Healthcare Outcomes Autism Transition comprenait 12 séances hebdomadaires d’une heure mettant en relation les prestataires de soins primaires avec une équipe interdisciplinaire d’experts par vidéoconférence multipoint. Les séances comprenaient de brefs enseignements didactiques, un apprentissage fondé sur des cas et une pratique guidée. Des mesures de l’auto-efficacité, des connaissances et de la pratique des prestataires de soins primaires ont été administrées avant et après la formation. Les participants ont montré des améliorations significatives de leur auto-efficacité concernant la prise en charge des jeunes et des jeunes adultes présentant un trouble du spectre de l’autisme et ont rapporté une satisfaction élevée ainsi que des changements dans leur pratique résultant de leur participation. En revanche, aucune amélioration significative des connaissances ou des obstacles perçus n’a été observée. Dans l’ensemble, les résultats indiquent que le modèle est prometteur pour améliorer la confiance et l’intérêt des prestataires de soins primaires à travailler avec les jeunes en période de transition et les jeunes adultes présentant un trouble du spectre de l’autisme. Cependant, des améliorations supplémentaires pourraient être utiles pour renforcer la portée et l’impact sur la pratique.

Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers’ confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 13:58.

Références citées
58
Avec un DOI
54
Sans DOI, à partir du texte brut de la bibliographie
4
4 / 58 (6,9 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
2 / 58 (3,4 %)
Références avec noms d’auteurices détectés
58 / 58 (100,0 %)
Sans nom d’auteurice détecté
0
Sans titre structuré
2
Sans identifiant stable
4
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
278
À partir du DOI ou de métadonnées externes
278
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
85 / 278 (30,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 193 / 278 (69,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
10 / 278 (3,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 10 / 85 (11,8 %). Personnes distinctes identifiées comme autistes : 6 / 228 (2,6 %).
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