Trajectoires de soins de santé chez les hommes et les femmes autistes : existe-t-il des différences selon l’âge au diagnostic et le statut de déficiences intellectuelles ou développementales ?

Titre original en anglais : Male and Female Healthcare Trajectories in Autism: Are There Any Differences Considering Age at Diagnosis and Intellectual or Developmental Disabilities Status?

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Couture, M., Courteau, J., Brodeur, S., Chiu, Y., Courteau, M., Dubé, E., Thomas, N., Lesage, A., Fombonne, É., & Dufour, I. (2025). Male and Female Healthcare Trajectories in Autism: Are There Any Differences Considering Age at Diagnosis and Intellectual or Developmental Disabilities Status? Autism Research, 18(8), 1674-1692. https://doi.org/10.1002/aur.70072

Date de publication: 26/06/2025 Ajout dans AutiHub: 06/08/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI)

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
10
Auteur·ices de la publication identifié·es comme autistes
1 / 10 (10,0 %)
  1. Mélanie Couture
  2. Josiane Courteau
  3. Sébastien Brodeur
  4. Yohann Chiu
  5. Mireille Courteau
  1. E. Dubé
  2. Nina Thomas *
  3. Alain Lesage
  4. Éric Fombonne
  5. Isabelle Dufour

Résumé

RÉSUMÉ L’objectif de cette étude était de comparer les trajectoires de soins de santé (TSS) 2 ans après un premier diagnostic d’autisme selon le sexe, l’âge au diagnostic et le statut de déficiences intellectuelles ou développementales (DID). Il s’agit d’une étude de cohorte rétrospective utilisant des données administratives de santé du Québec, Canada. La cohorte comprenait toutes les personnes ayant reçu un premier diagnostic d’autisme enregistré par un médecin entre avril 2012 et mars 2015. Les TSS ont été stratifiées selon le sexe, la présence de DID et l’âge au diagnostic (jeunes, adultes), puis analysées au moyen d’une analyse de séquences d’états selon les milieux de soins, les prestataires et les motifs de recours. Notre cohorte comprenait 5 289 personnes, dont 76,6 % étaient de sexe masculin et 26,3 % étaient des adultes au moment du diagnostic. Le recours aux soins de santé a légèrement diminué au fil du temps, bien que son intensité ait été plus élevée chez les femmes. Les différences entre les sexes dans les TSS étaient fortement influencées par le statut de DID et l’âge au diagnostic. Bien qu’aucune différence significative entre les sexes n’ait été observée dans les TSS des personnes avec DID ayant reçu un diagnostic d’autisme à l’âge adulte, les profils de troubles psychiatriques ont montré des différences notables entre les hommes et les femmes. Le nombre de jours d’hospitalisation a presque doublé chez les femmes diagnostiquées durant l’enfance par rapport aux hommes, tandis que les hommes avec DID diagnostiqués autistes durant l’enfance et les hommes sans DID diagnostiqués à l’âge adulte ont eu moins de consultations pour maladies physiques. Bien que les problèmes de santé physique et mentale semblent être largement pris en charge dans les soins ambulatoires durant la jeunesse, les taux élevés d’hospitalisation chez les personnes diagnostiquées à l’âge adulte, particulièrement les femmes et les personnes avec DID, soulignent des préoccupations concernant la continuité des soins et les hospitalisations évitables pour ces sous-groupes de patients.

ABSTRACT The aim of this study was to compare the healthcare trajectories (HCTs) 2 years after a first diagnosis of autism according to sex, age at diagnosis, and intellectual or developmental disabilities (IDD) status. This is a retrospective cohort study using health administrative data from Québec, Canada. The cohort included all individuals with a first diagnosis of autism registered by a physician between April 2012 and March 2015. HCTs were stratified by sex, presence of IDD, and age at diagnosis (youth, adult), and analyzed using state sequence analysis across healthcare settings, providers, and reasons for use. Our cohort included 5289 individuals, 76.6% were male, and 26.3% were adults at the time of diagnosis. The healthcare use decreased slightly over time, though intensity was higher in females. Sex differences in HCTs were strongly influenced by IDD status and age at diagnosis. While no significant sex differences were observed in HCTs for individuals with IDD diagnosed with autism in adulthood, the psychiatric condition profiles showed notable differences between males and females. Hospital days nearly doubled for females diagnosed in childhood compared to males, while males with IDD diagnosed with autism in childhood and males without IDD diagnosed in adulthood had fewer physical illness visits. Although physical and mental health challenges appear largely managed in ambulatory care during youth, high hospitalization rates in those diagnosed in adulthood, particularly females and those with IDD, highlight concerns about continuity of care and avoidable hospitalizations for these subgroups of patients.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
80
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
3 / 80 (3,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
6 / 422 (1,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 6 / 98 (6,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 6 / 382 (1,6 %).
Occurrences citées rattachées à la base AutiHub
98 / 422 (23,2 %)
Auteurices cité·es distinct·es rattaché·es : 70 / 382 (18,3 %)
Occurrences rattachées, non identifiées comme autistes
92 / 98 (93,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 92 / 422 (21,8 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 64 / 70 (91,4 %).
6 entrées de bibliographie citée n’ont pas pu être entièrement enrichies à partir des métadonnées DOI.
Crossref: introuvable (3) · DataCite: introuvable (3)
  1. Éric Fombonne (2012). Autism in Adult Life . The Canadian Journal of Psychiatry, 57(5), 273-274. SAGE Publications.
    Type: Article DOI: 10.1177/070674371205700501 OpenAlex: https://openalex.org/W145298114
    Crossref OpenAlex OpenCitations
  2. (s. d.). Agence de la Santé Publique du Canada. 2018.“Trouble du Spectre De L'autisme Chez Les Enfants et Les Adolescents au Canada 2018 [Recherche].” https://www.canada.ca/fr/sante‐publique/services/publications/maladies‐et‐affections/trouble‐spectre‐autisme‐enfants‐adolescents‐canada‐2018.html .
    Type: Autre
    Crossref
  3. Fatoumata Binta Diallo , Éric Fombonne , Steve Kisely , Louis Rochette , Helen-Maria Vasiliadis , Alain Vanasse et al. (2018). Prevalence and Correlates of Autism Spectrum Disorders in Quebec . The Canadian Journal of Psychiatry, 63(4), 231-239. SAGE Publications.
    Type: Article DOI: 10.1177/0706743717737031 OpenAlex: https://openalex.org/W2767010687
    Crossref OpenAlex OpenCitations
  4. Clare Harrop , Amanda Gulsrud , Connie Kasari (2015). Does Gender Moderate Core Deficits in ASD? An Investigation into Restricted and Repetitive Behaviors in Girls and Boys with ASD . Journal of Autism and Developmental Disorders, 45(11), 3644-3655. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2511-9 OpenAlex: https://openalex.org/W835093226
    Crossref OpenAlex
  5. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Type: Livre DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917
    Crossref OpenAlex OpenCitations
  6. Vanessa Vogan , Johanna Lake , Ami Tint , Jonathan A. Weiss , Yona Lunsky (2017). Tracking health care service use and the experiences of adults with autism spectrum disorder without intellectual disability: A longitudinal study of service rates, barriers and satisfaction . Disability and Health Journal, 10(2), 264-270. Elsevier BV.
    Type: Article DOI: 10.1016/j.dhjo.2016.11.002 OpenAlex: https://openalex.org/W2551789181
    Crossref OpenAlex OpenCitations
  7. S. Tétreault , Andrew J. Freeman , M. Carrière , P. Beaupré , H. Gascon , P. Marier Deschênes (2014). Understanding the parents of children with special needs: collaboration between health, social and education networks . Child: Care, Health and Development, 40(6), 825-832. Wiley.
    Type: Article DOI: 10.1111/cch.12105 OpenAlex: https://openalex.org/W1919777064
    Crossref OpenAlex OpenCitations
  8. Kenechukwu Anona , Oluwatobi Olaomi , Ebehireme Udegbe , Fidelis Uwumiro , Ebere-Bank Tuaka , Nnenna Okafor et al. (2024). Co-occurrence of bipolar disorder and personality disorders in the United States: Prevalence, suicidality, and the impact of substance abuse . Journal of Affective Disorders, 345, 1-7. Elsevier BV.
    Type: Article DOI: 10.1016/j.jad.2023.10.087 OpenAlex: https://openalex.org/W4387654036
    Crossref OpenAlex OpenCitations
  9. Alan K. Percy (2011). Rett Syndrome . Archives of Neurology, 68(8), 985. American Medical Association (AMA).
    Type: Article DOI: 10.1001/archneurol.2011.149 OpenAlex: https://openalex.org/W1966717823
    Crossref OpenAlex OpenCitations
  10. Robert Balogh , Elizabeth Lin , Kristin Dobranowski , Avra Selick , Andrew S. Wilton , Yona Lunsky (2018). All-Cause, 30-Day Readmissions Among Persons With Intellectual and Developmental Disabilities and Mental Illness . Psychiatric Services, 69(3), 353-357. American Psychiatric Association Publishing.
    Type: Article DOI: 10.1176/appi.ps.201600534 OpenAlex: https://openalex.org/W2768202714
    Crossref OpenAlex OpenCitations
  12. Lan-Ping Lin , Chiung-Ying Kuan , Shang-Wei Hsu , Tzong-Nan Lee , Chia-Im Lai , Jia-Lin Wu et al. (2013). Outpatient visits and expenditures for children and adolescents diagnosed with autism spectrum disorders and co-occurring intellectual disability: An analysis of the national health insurance claims data . Research in Autism Spectrum Disorders, 7(12), 1625-1630. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2013.09.003 OpenAlex: https://openalex.org/W1984546720
    Crossref OpenAlex OpenCitations
  13. Abhishek Banerjee , Meghan T Miller , Keji Li , Mriganka Sur , Walter E Kaufmann (2019). Towards a better diagnosis and treatment of Rett syndrome: a model synaptic disorder . Brain, 142(2), 239-248. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/brain/awy323 OpenAlex: https://openalex.org/W2910150672
    Crossref OpenAlex OpenCitations
  14. Andrea De Giacomo , Francesco Craig , Giuseppina Palermo , Annamaria Coppola , Mariella Margari , Stella Campanozzi et al. (2021). Differential Diagnosis in Children with Autistic Symptoms and Subthreshold ADOS Total Score: An Observational Study . Neuropsychiatric Disease and Treatment, Volume 17, 2163-2172. Informa UK Limited.
    Type: Article DOI: 10.2147/ndt.s300452 OpenAlex: https://openalex.org/W3180709934
    Crossref OpenAlex OpenCitations
  15. Sander Begeer , David S. Mandell , Bernadette Wijnker-Holmes , Stance Venderbosch , Dorien Rem , Fred Stekelenburg et al. (2013). Sex Differences in the Timing of Identification Among Children and Adults with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 43(5), 1151-1156. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-012-1656-z OpenAlex: https://openalex.org/W1990581042
    Crossref OpenAlex
  16. Laura Foran Lewis (2018). Identifying autism spectrum disorder in undiagnosed adults . The Nurse Practitioner, 43(9), 14-18. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/01.npr.0000544285.02331.2c OpenAlex: https://openalex.org/W2888720213
    Crossref OpenAlex OpenCitations
  17. Susan E. Levy , Ellen Giarelli , Li-Ching Lee , Laura A. Schieve , Russell S. Kirby , Christopher Cunniff et al. (2010). Autism Spectrum Disorder and Co-occurring Developmental, Psychiatric, and Medical Conditions Among Children in Multiple Populations of the United States . Journal of Developmental & Behavioral Pediatrics, 31(4), 267-275. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/dbp.0b013e3181d5d03b OpenAlex: https://openalex.org/W2041196058
    Crossref OpenAlex OpenCitations
  18. Nicole Bobbette , Hélène Ouellette-Kuntz , Joan Tranmer , Rosemary Lysaght , Lee-Anne Ufholz , Catherine Donnelly (2020). Adults with intellectual and developmental disabilities and interprofessional, team-based primary health care: a scoping review . JBI Evidence Synthesis, 18(7), 1470-1514. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.11124/jbisrir-d-19-00200 OpenAlex: https://openalex.org/W3034009847
    Crossref OpenAlex
  19. E. Saure , M. Castrén , K. Mikkola , J. Salmi (2023). Intellectual disabilities moderate sex/gender differences in autism spectrum disorder: a systematic review and meta‐analysis . Journal of Intellectual Disability Research, 67(1), 1-34. Wiley.
    Type: Article DOI: 10.1111/jir.12989 OpenAlex: https://openalex.org/W4310218173
    Crossref OpenAlex OpenCitations
  20. Meng-Chuan Lai , Michael Lombardo , Bonnie Auyeung , Bhismadev Chakrabarti , Simon Baron-Cohen (2015). Sex/Gender Differences and Autism: Setting the Scene for Future Research . Journal of the American Academy of Child & Adolescent Psychiatry, 54(1), 11-24. Elsevier BV.
    Type: Article DOI: 10.1016/j.jaac.2014.10.003 OpenAlex: https://openalex.org/W2069328123
    Crossref OpenAlex OpenCitations
  21. Marian E. J. Breuer , Tim Pelle , Geraline L. Leusink , Christine Linehan , Jenneken Naaldenberg (2024). Synthesis: International perspectives on healthcare for people with intellectual and developmental disabilities . Journal of Policy and Practice in Intellectual Disabilities, 21(2). Wiley.
    Type: Article DOI: 10.1111/jppi.12500 OpenAlex: https://openalex.org/W4392756157
    Crossref OpenAlex OpenCitations
  22. Caroline Croteau , Laurent Mottron , Marc Dorais , Jean-Eric Tarride , Sylvie Perreault (2019). Use, costs, and predictors of psychiatric healthcare services following an autism spectrum diagnosis: Population-based cohort study . Autism, 23(8), 2020-2030. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319840229 OpenAlex: https://openalex.org/W2933207586
    Crossref OpenAlex OpenCitations
  23. Machelle Wilchesky , Robyn M Tamblyn , Allen Huang (2004). Validation of diagnostic codes within medical services claims . Journal of Clinical Epidemiology, 57(2), 131-141. Elsevier BV.
    Type: Article DOI: 10.1016/s0895-4356(03)00246-4 OpenAlex: https://openalex.org/W2073015584
    Crossref OpenAlex
  24. (s. d.). Canadian Paediatric Society. n.d.“Standards of Diagnostic Assessment for Autism Spectrum Disorder”.
    Type: Autre
    Crossref
  25. Machelle Wilchesky , Samy Suissa (2021). The Régie de l’assurance maladie du Québec (RAMQ) Databases . Dans Springer Series on Epidemiology and Public Health (pp. 215-230). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-030-51455-6_18 OpenAlex: https://openalex.org/W3118796853
    Crossref OpenAlex OpenCitations
  26. Laurie Lambert , Claudia Blais , Denis Hamel , Kevin Brown , Stéphane Rinfret , Raymond Cartier et al. (2012). Evaluation of Care and Surveillance of Cardiovascular Disease: Can We Trust Medico-administrative Hospital Data? Canadian Journal of Cardiology, 28(2), 162-168. Elsevier BV.
    Type: Article DOI: 10.1016/j.cjca.2011.10.005 OpenAlex: https://openalex.org/W2091376390
    Crossref OpenAlex OpenCitations
  27. Nancy Cheak‐Zamora , Xuejing Yang , Janet E. Farmer , Mary Clark (2013). Disparities in Transition Planning for Youth With Autism Spectrum Disorder . Pediatrics, 131(3), 447-454. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2012-1572 OpenAlex: https://openalex.org/W2167298162
    Crossref OpenAlex
  28. Ami Tint , Hannah Chung , Meng-Chuan Lai , Robert Balogh , Elizabeth Lin , Anna Durbin et al. (2023). Health conditions and service use of autistic women and men: A retrospective population-based case–control study . Autism, 27(6), 1641-1657. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221144353 OpenAlex: https://openalex.org/W4313424008
    Crossref OpenAlex OpenCitations
  29. Janet R. Cummings , Frances L. Lynch , Kristal C. Rust , Karen J. Coleman , Jeanne M. Madden , Ashli A. Owen-Smith et al. (2016). Health Services Utilization Among Children With and Without Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 46(3), 910-920. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2634-z OpenAlex: https://openalex.org/W2095948752
    Crossref OpenAlex
  30. Collège des médecins et Ordre des psychologues du Québec (2012). Les troubles du spectre de l’autisme—L’évaluation clinique . Les troubles du spectre de l’autisme—L’évaluation clinique.
    Type: Autre
    Crossref
  31. Ji Su Hong , Ross Goodwin , Alyson Fagan (2025). Assessment of Autism in Young Children . Child and Adolescent Psychiatric Clinics of North America, 34(2), 235-255. Elsevier BV.
    Type: Article DOI: 10.1016/j.chc.2024.08.007 OpenAlex: https://openalex.org/W4402974708
    Crossref OpenAlex OpenCitations
  32. Meng-Chuan Lai , Simon Baron-Cohen (2015). Identifying the lost generation of adults with autism spectrum conditions . The Lancet Psychiatry, 2(11), 1013-1027. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(15)00277-1 OpenAlex: https://openalex.org/W2128937542
    Crossref OpenAlex
  33. Jo‐Ann Giandinoto , John Stephenson , Karen‐leigh Edward (2018). General hospital health professionals’ attitudes and perceived dangerousness towards patients with comorbid mental and physical health conditions: Systematic review and meta‐analysis . International Journal of Mental Health Nursing, 27(3), 942-955. Wiley.
    Type: Article DOI: 10.1111/inm.12433 OpenAlex: https://openalex.org/W2781700392
    Crossref OpenAlex OpenCitations
  34. Dilip R. Patel , Maria Demma Cabral , Arlene Ho , Joav Merrick (2020). A clinical primer on intellectual disability . Translational Pediatrics, 9(S1), S23-S35. AME Publishing Company.
    Type: Article DOI: 10.21037/tp.2020.02.02 OpenAlex: https://openalex.org/W3006158900
    Crossref OpenAlex OpenCitations
  35. Katherine McKenzie , Meagan Milton , Glenys Smith , Hélène Ouellette-Kuntz (2016). Systematic Review of the Prevalence and Incidence of Intellectual Disabilities: Current Trends and Issues . Current Developmental Disorders Reports, 3(2), 104-115. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-016-0085-7 OpenAlex: https://openalex.org/W2342279687
    Crossref OpenAlex
  36. Francesca Happé , Hassan Mansour , Pippa Barrett , Tony Brown , Patricia Abbott , Rebecca A. Charlton (2016). Demographic and Cognitive Profile of Individuals Seeking a Diagnosis of Autism Spectrum Disorder in Adulthood . Journal of Autism and Developmental Disorders, 46(11), 3469-3480. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-016-2886-2 OpenAlex: https://openalex.org/W2508880362
    Crossref OpenAlex
  37. Yotam Dizitzer , Gal Meiri , Hagit Flusser , Analya Michaelovski , Ilan Dinstein , Idan Menashe (2020). Comorbidity and health services' usage in children with autism spectrum disorder: a nested case–control study . Epidemiology and Psychiatric Sciences, 29, e95-e95. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s2045796020000050 OpenAlex: https://openalex.org/W3004043824
    Crossref OpenAlex OpenCitations
  38. Rachel Loomes , Laura Hull , Will Mandy (2017). What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis . Journal of the American Academy of Child & Adolescent Psychiatry, 56(6), 466-474. Elsevier BV.
    Type: Article DOI: 10.1016/j.jaac.2017.03.013 OpenAlex: https://openalex.org/W2604697269
    Crossref OpenAlex OpenCitations
  40. A. Vanasse , Mireille Courteau , J.-F. Ethier (2018). The ‘6W’ multidimensional model of care trajectories for patients with chronic ambulatory care sensitive conditions and hospital readmissions . Public Health, 157, 53-61. Elsevier BV.
    Type: Article DOI: 10.1016/j.puhe.2018.01.007 OpenAlex: https://openalex.org/W2789807391
    Crossref OpenAlex OpenCitations
  41. Jonathan K. Y. Lai , Jonathan A. Weiss (2017). Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder . Autism Research, 10(8), 1436-1447. Wiley.
    Type: Article DOI: 10.1002/aur.1786 OpenAlex: https://openalex.org/W2605185899
    Crossref OpenAlex OpenCitations
  42. Isabelle Dufour , Isabelle Vedel , Josiane Courteau , Amélie Quesnel-Vallée (2023). Trajectories of care of community-dwelling people living with dementia: a multidimensional state sequence analysis . BMC Geriatrics, 23(1), 250-250. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12877-023-03926-x OpenAlex: https://openalex.org/W4367185111
    Crossref OpenAlex
  43. Ami Tint , Jonathan A. Weiss , Yona Lunsky (2017). Identifying the clinical needs and patterns of health service use of adolescent girls and women with autism spectrum disorder . Autism Research, 10(9), 1558-1566. Wiley.
    Type: Article DOI: 10.1002/aur.1806 OpenAlex: https://openalex.org/W2611773869
    Crossref OpenAlex OpenCitations
  44. Yunhe Huang , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2020). Diagnosis of autism in adulthood: A scoping review . Autism, 24(6), 1311-1327. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320903128 OpenAlex: https://openalex.org/W3008810253
    Crossref OpenAlex OpenCitations
  45. Jonathan A. Weiss , Barry Isaacs , Heidi Diepstra , Andrew S. Wilton , Hilary K. Brown , Caitlin McGarry et al. (2018). Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 48(1), 36-44. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3292-0 OpenAlex: https://openalex.org/W2754086730
    Crossref OpenAlex
  46. Éric Fombonne , Heather MacFarlane , Alexandra C. Salem (2021). Epidemiological surveys of ASD: advances and remaining challenges . Journal of Autism and Developmental Disorders, 51(12), 4271-4290. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05005-9 OpenAlex: https://openalex.org/W3153746339
    Crossref OpenAlex
  47. Vasiliki Kentrou , Danielle MJ de Veld , Kawita JK Mataw , Sander Begeer (2019). Delayed autism spectrum disorder recognition in children and adolescents previously diagnosed with attention-deficit/hyperactivity disorder . Autism, 23(4), 1065-1072. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318785171 OpenAlex: https://openalex.org/W2893641655
    Crossref OpenAlex OpenCitations
  48. Carli Friedman , Carine M. Luxama (2025). Mental and Behavioral Health, and Crisis Services for People with Intellectual and Developmental Disabilities in Medicaid Home- and Community-Based Services . Journal of Autism and Developmental Disorders, 55(9), 3179-3192. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-024-06441-z OpenAlex: https://openalex.org/W4400264868
    Crossref OpenAlex
  49. Laura Fusar-Poli , Natascia Brondino , Pierluigi Politi , Eugenio Aguglia (2022). Missed diagnoses and misdiagnoses of adults with autism spectrum disorder . European Archives of Psychiatry and Clinical Neuroscience, 272(2), 187-198. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s00406-020-01189-w OpenAlex: https://openalex.org/W3083547431
    Crossref OpenAlex
  50. Catherine Lord , Traolach Brugha , Tony Charman , James Cusack * , Guillaume Dumas , Thomas Frazier et al. (2020). Autism spectrum disorder . Nature Reviews Disease Primers, 6(1), 1. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41572-019-0138-4 OpenAlex: https://openalex.org/W2769544142
    AutiHub · Chercheur·euses autistes Crossref OpenAlex
  51. Laura Fusar-Poli , Alessia Ciancio , Alberto Gabbiadini , Valeria Meo , Federica Patania , Alessandro Rodolico et al. (2020). Self-Reported Autistic Traits Using the AQ: A Comparison between Individuals with ASD, Psychosis, and Non-Clinical Controls . Brain Sciences, 10(5), 291. MDPI AG.
    Type: Article DOI: 10.3390/brainsci10050291 OpenAlex: https://openalex.org/W3024139008
    Crossref OpenAlex OpenCitations
  52. Camilla Gesi , Giovanni Migliarese , Sara Torriero , Martina Capellazzi , Anna Caterina Omboni , Giancarlo Cerveri et al. (2021). Gender Differences in Misdiagnosis and Delayed Diagnosis among Adults with Autism Spectrum Disorder with No Language or Intellectual Disability . Brain Sciences, 11(7), 912. MDPI AG.
    Type: Article DOI: 10.3390/brainsci11070912 OpenAlex: https://openalex.org/W3179002399
    Crossref OpenAlex OpenCitations
  53. (s. d.). Gabadinho A. G. Ritschard M. Studer andN. Müller. 2010.“Mining Sequence Data in R With the TraMineR Package: A User's Guide.” http://mephisto.unige.ch/pub/TraMineR/doc/TraMineR‐Users‐Guide.pdf .
    Type: Autre
    Crossref
  54. Ann C. Genovese , Merlin G. Butler (2025). Systematic Review: Fragile X Syndrome Across the Lifespan with a Focus on Genetics, Neurodevelopmental, Behavioral and Psychiatric Associations . Genes, 16(2), 149. MDPI AG.
    Type: Article DOI: 10.3390/genes16020149 OpenAlex: https://openalex.org/W4406844008
    Crossref OpenAlex OpenCitations
  55. Lingxue Yang , Pierre Morizet-Mahoudeaux , Anne Guénand , Assia Mouloudi (2018). A Design Framework for Instrumenting Analytic Provenance for Problem-Solving Tasks . Dans Advances in Intelligent Systems and Computing (pp. 633-643). Springer Singapore.
    Type: Chapitre de livre DOI: 10.1007/978-981-10-8612-0_66 OpenAlex: https://openalex.org/W2791753912
    OpenAlex
  56. Jessica E. Rast , Paul Shattuck , Anne M. Roux , Kristy A. Anderson , Alice A. Kuo (2018). The Medical Home and Health Care Transition for Youth With Autism . Pediatrics, 141(Supplement_4), S328-S334. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300j OpenAlex: https://openalex.org/W2796049128
    Crossref OpenAlex
  57. Tamara E. Rosen , Carla A. Mazefsky , Roma A. Vasa , Matthew D Lerner (2018). Co-occurring psychiatric conditions in autism spectrum disorder . International Review of Psychiatry, 30(1), 40-61. Informa UK Limited.
    Type: Article DOI: 10.1080/09540261.2018.1450229 OpenAlex: https://openalex.org/W2801913374
    Crossref OpenAlex OpenCitations
  58. Brittany N. Hand , Judith S. Miller , Whitney Guthrie , Eron Y Friedlaender (2021). Healthcare utilization among children with early autism diagnoses, children with other developmental delays and a comparison group . Journal of Comparative Effectiveness Research, 10(11), 917-926. Becaris Publishing Limited.
    Type: Article DOI: 10.2217/cer-2021-0056 OpenAlex: https://openalex.org/W3163960532
    Crossref OpenAlex
  59. Catherine Lord , Mayada Elsabbagh , Gillian Baird , Jeremy Veenstra‐VanderWeele (2018). Autism spectrum disorder . The Lancet, 392(10146), 508-520. Elsevier BV.
    Type: Article DOI: 10.1016/s0140-6736(18)31129-2 OpenAlex: https://openalex.org/W2886989735
    Crossref OpenAlex
  60. Jinan Zeidan , Éric Fombonne , Julie Scorah , Alaa T. Ibrahim , Maureen S. Durkin , Shekhar Saxena et al. (2022). Global prevalence of autism: A systematic review update . Autism Research, 15(5), 778-790. Wiley.
    Type: Article DOI: 10.1002/aur.2696 OpenAlex: https://openalex.org/W4214849391
    Crossref OpenAlex OpenCitations
  61. Matthew J. Maenner , Kelly A. Shaw , Amanda V. Bakian , Deborah A. Bilder , Maureen S. Durkin , Amy Esler et al. (2021). Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years — Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018 . MMWR. Surveillance Summaries, 70(11), 1-16. Centers for Disease Control MMWR Office.
    Type: Article DOI: 10.15585/mmwr.ss7011a1 OpenAlex: https://openalex.org/W3216151710
    Crossref OpenAlex OpenCitations
  62. Rikinkumar S. Patel , Geetha Manikkara , Amit Chopra (2019). Bipolar Disorder and Comorbid Borderline Personality Disorder: Patient Characteristics and Outcomes in US Hospitals . Medicina, 55(1), 13. MDPI AG.
    Type: Article DOI: 10.3390/medicina55010013 OpenAlex: https://openalex.org/W2909209961
    Crossref OpenAlex OpenCitations
  63. Mary M Stephens , Allison R Casola , Emma T Cooper , Olivia Rea , Karin Roseman (2024). Development and implementation of a continuing care program for patients with intellectual and developmental disabilities in family medicine . Family Practice, 41(3), 378-381. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/fampra/cmad075 OpenAlex: https://openalex.org/W4386356808
    Crossref OpenAlex OpenCitations
  64. Caroline Kassee , Stephanie Babinski , Ami Tint , Yona Lunsky , Hilary K. Brown , Stephanie H. Ameis et al. (2020). Physical health of autistic girls and women: a scoping review . Molecular Autism, 11(1), 84-84. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-020-00380-z OpenAlex: https://openalex.org/W3094995723
    Crossref OpenAlex
  65. Lindsay Olson , Somer Bishop , Audrey Thurm (2024). Differential Diagnosis of Autism and Other Neurodevelopmental Disorders . Pediatric Clinics of North America, 71(2), 157-177. Elsevier BV.
    Type: Article DOI: 10.1016/j.pcl.2023.12.004 OpenAlex: https://openalex.org/W4390599441
    Crossref OpenAlex OpenCitations
  66. Carol Swetlik , Sarah E. Earp , Kathleen N. Franco (2019). Adults with autism spectrum disorder: Updated considerations for healthcare providers . Cleveland Clinic Journal of Medicine, 86(8), 543-553. Cleveland Clinic Journal of Medicine.
    Type: Article DOI: 10.3949/ccjm.86a.18100 OpenAlex: https://openalex.org/W2966653339
    Crossref OpenAlex OpenCitations
  67. Jessica A Brian , Lonnie Zwaigenbaum , Angie Ip (2019). Standards of diagnostic assessment for autism spectrum disorder . Paediatrics & Child Health, 24(7), 444-451. Oxford University Press (OUP).
    Type: Article DOI: 10.1093/pch/pxz117 OpenAlex: https://openalex.org/W2981885351
    OpenAlex
  68. Mélina Rivard , Marjorie Morin , Corinne Rochefort , Diane Morin , Catherine Mello (2023). Barriers and facilitators to accessibility, continuity, validity, flexibility, and provider-family relationship along the diagnostic pathway in developmental disabilities . Research in Developmental Disabilities, 139, 104570. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2023.104570 OpenAlex: https://openalex.org/W4383505845
    Crossref OpenAlex OpenCitations
  69. Marlene Briciet Lauritsen (2013). Autism spectrum disorders . European Child & Adolescent Psychiatry, 22(S1), 37-42. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s00787-012-0359-5 OpenAlex: https://openalex.org/W4232290063
    Crossref OpenAlex
  70. Alain Vanasse , Josiane Courteau , Mireille Courteau , Mike Benigeri , Yohann Chiu , Isabelle Dufour et al. (2020). Healthcare utilization after a first hospitalization for COPD: a new approach of State Sequence Analysis based on the '6W' multidimensional model of care trajectories . BMC Health Services Research, 20(1), 177-177. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s12913-020-5030-0 OpenAlex: https://openalex.org/W3009126328
    Crossref OpenAlex
  71. Mélanie Perroux , Lily Lessard , Caroline Larue , Arnaud Duhoux , Damien Contandriopoulos (2019). Des soins primaires intégrés ou les univers parallèles de la santé mentale et physique . Canadian Journal of Community Mental Health, 38(4), 77-92. Canadian Periodical for Community Studies.
    Type: Article DOI: 10.7870/cjcmh-2019-020 OpenAlex: https://openalex.org/W3023087468
    Crossref OpenAlex
  72. Dianne C. Miner , Sarah H. Ailey , Roy A. Thompson , Allison Squires , Amyela Adarlo , Holly Brown (2024). “We have met the enemy and it is us”: Healthcare professionals as the barrier to health equity for people with intellectual and developmental disability . Research in Nursing & Health, 47(3), 269-273. Wiley.
    Type: Article DOI: 10.1002/nur.22376 OpenAlex: https://openalex.org/W4392238678
    Crossref OpenAlex OpenCitations
  73. Dangour, Alan D , Garnett, Tara , Lock, Karen , Chalabi, Zaid , Roberts, Ian , Butler, Ainslie et al. (2008). Home visits: a strategy to improve newborn survival - Authors' reply . Americanae (AECID Library).
    Type: Article DOI: 10.1016/s0140 OpenAlex: https://openalex.org/W3120106258 Crossref: introuvable DataCite: introuvable
    OpenAlex
  74. Nicole E. Rosen , Catherine Lord , Fred R. Volkmar (2021). The Diagnosis of Autism: From Kanner to DSM-III to DSM-5 and Beyond . Journal of Autism and Developmental Disorders, 51(12), 4253-4270. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-04904-1 OpenAlex: https://openalex.org/W3130188805
    Crossref OpenAlex
  75. Mélina Rivard , Catherine Mello , Shaneha Patel , Marjorie Morin , Diane Morin (2025). A Window into the Use of Post-diagnostic Services for Autism and Parents’ Perspective on the Quality of Early Childhood Services Trajectory in a Canadian Province . Journal of Autism and Developmental Disorders, 55(3), 955-968. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-024-06265-x OpenAlex: https://openalex.org/W4391898930
    Crossref OpenAlex
  76. Alain Vanasse , Josiane Courteau , Mireille Courteau , Marc-André Roy , Emmanuel Stip , Marie-Josée Fleury et al. (2022). Multidimensional analysis of adult patients’ care trajectories before a first diagnosis of schizophrenia . Schizophrenia, 8(1), 52-52. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1038/s41537-022-00256-6 OpenAlex: https://openalex.org/W4280541860
    Crossref OpenAlex
  77. Kathryn Shady , Shannon Phillips , Susan Newman (2024). Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review . Review Journal of Autism and Developmental Disorders, 11(1), 39-51. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40489-022-00324-8 OpenAlex: https://openalex.org/W4282041096
    Crossref OpenAlex
  78. Kajawo, S , Molosi, M.W , Noubiap, J.J , Erkrikpo, U , Kengne, A.K , Okpechi, G.I (2015). Incidence of major complications after percutaneous native renal biopsies in adults from low-income to middle income countries: a protocol for systematic review and meta-analysis . The Research Repository @ WVU (West Virginia University).
    Type: Article DOI: 10.1136/bmjopen OpenAlex: https://openalex.org/W4288364210 Crossref: introuvable DataCite: introuvable
    OpenAlex
  79. Hans-Christoph Steinhausen , Martin Dalgaard Villumsen , René Klinkby Støving , Niels Bilenberg (2025). Complete Spectrum of Physical Comorbidities with Autism Spectrum Disorder in a Nationwide Cohort . Journal of Autism and Developmental Disorders, 55(11), 3851-3859. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-024-06476-2 OpenAlex: https://openalex.org/W4401049528
    Crossref OpenAlex
  80. L?pez Seijas, Carmen Sandra , Rodr?guez Noguera, Mar?a Victoria , Balseiro Mazaira, Elisabet , Flores Cantera, Estela Mar?a , Moreira Mart?nez, M?nica.Minoshka , Uzal Fern?ndez, Cristina (2015). Eating disorders in male adolescents: a case presentation of anorexia nervosa . cIRcle (University of British Columbia).
    Type: Article DOI: 10.1007/s00787 OpenAlex: https://openalex.org/W6959377667 Crossref: introuvable DataCite: introuvable
    OpenAlex