‘ It's like calling short people vertically challenged’: Language and terminology preferences among neurodivergent adults in the United Kingdom

Authors

Abstract

Neurodivergent people (e.g., dyslexic people) do not always agree with the terms commonly used by others (e.g., professionals) to describe their neurodivergence. Our mixed methods study aimed to investigate terminology preferences for different categories of developmental neurodivergence (e.g., autism, dyspraxia) among people from those communities. Participants ( n = 902) completed an online survey, ranking the likeability and offensiveness of a range of person-first and identify-first terms for their diagnoses. We invited them to tell us reasons for their preferences via open text response, which we analysed using thematic analysis. Paired samples on identity vs. person first preferences showed identity first language was significantly more likeable, and significantly less offensive for most categories, but not all (stuttering and Tourette syndrome). For the thematic analysis, we developed two key themes, (1) ‘How they talk about us’, which focussed on the inadequacy of existing terminology, and the stigma associated with particular labels, and (2) ‘How we talk about us’, which focussed on viscerality of certain terms, agency to express personal preferences, debates around identity vs. person first terms, and identification with the concept of ‘disability’. Our findings have implications for how neurodivergent people are described, especially by those in professional services.

1. Michael Oliver , Colin Barnes (2012). The New Politics of Disablement . Macmillan Education UK.

   Type: Book DOI: 10.1007/978-0-230-39244-1 OpenAlex: https://openalex.org/W568620922

   Crossref OpenAlex
2. ADHD Foundation. (n.d.). The Neurodiversity Umbrella Project. ADHD Foundation. https://www.adhdfoundation.org.uk/events-and-webinars/neurodiversity-umbrella-project/ .

   Type: Other

   Crossref
3. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.

   Type: Article DOI: 10.1191/1478088706qp063oa OpenAlex: https://openalex.org/W1979290264

   Crossref OpenAlex
4. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.

   Type: Book DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917

   Crossref OpenAlex
5. Kenneth O.St. Louis (1999). Person-first labeling and stuttering . Journal of Fluency Disorders, 24(1), 1-24. Elsevier BV.

   Type: Article DOI: 10.1016/s0094-730x(98)00024-2 OpenAlex: https://openalex.org/W1988353346

   Crossref OpenAlex
6. Erin E Andrews , Kara B Ayers , Joseph A Stramondo , Robyn M Powell (2023). Rethinking systemic ableism: A response to Zagouras, Ellick, and Aulisio . Clinical Ethics, 18(1), 7-12. SAGE Publications.

   Type: Article DOI: 10.1177/14777509221094472 OpenAlex: https://openalex.org/W4224273661

   Crossref OpenAlex
7. Gregor Wolbring (2008). The Politics of Ableism . Development, 51(2), 252-258. Springer Science and Business Media LLC.

   Type: Article DOI: 10.1057/dev.2008.17 OpenAlex: https://openalex.org/W2040577949

   Crossref OpenAlex
8. Erin E. Andrews , Robyn M. Powell , Kara Ayers (2022). The evolution of disability language: Choosing terms to describe disability . Disability and Health Journal, 15(3), 101328. Elsevier BV.

   Type: Article DOI: 10.1016/j.dhjo.2022.101328 OpenAlex: https://openalex.org/W4224217627

   Crossref OpenAlex
9. Shelley Tremain , Department of Philosophy, Florida State University (2001). On the Government of Disability . Social Theory and Practice, 27(4), 617-636. Philosophy Documentation Center.

   Type: Article DOI: 10.5840/soctheorpract200127432 OpenAlex: https://openalex.org/W2063073898

   Crossref OpenAlex
10. Hayley Anthony , Louise McLean , Aspasia Stacey Rabba , Andrea Reupert (2025). What Language Should We Use When Talking About Children With Specific Learning Disorders? A Study Exploring the Preference of Australian Parents, Professionals and Adults Who Have a Specific Learning Disorder . Dyslexia, 31(1), e70000-e70000. Wiley.

    Type: Article DOI: 10.1002/dys.70000 OpenAlex: https://openalex.org/W4407613564

    Crossref OpenAlex
11. Jason Bantjes , Leslie Swartz , Lauren Conchar , Wayne Derman (2015). When they call me cripple: a group of South African adolescents with cerebral palsy attending a special needs school talk about being disabled . Disability & Society, 30(2), 241-254. Informa UK Limited.

    Type: Article DOI: 10.1080/09687599.2014.997352 OpenAlex: https://openalex.org/W2107542632

    Crossref OpenAlex
12. Asasumasu K. (2016). PSA from the actual coiner of “neurodivergent”. Lost in My Mind TARDIS. https://sherlocksflataffect.tumblr.com/post/121295972384/psa-from-the-actual-coiner-of-neurodivergent .

    Type: Other

    Crossref
13. Steven K. Kapp *Autistic author. Learn more… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).

    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426

    AutiHub · Autistic Scholars Crossref OpenAlex
14. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.

    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071

    Crossref OpenAlex
15. Monique Botha *Autistic author. Learn more… Academic, activist, or advocate? Angry, entangled, and emerging: A critical reflection on autism knowledge production . Frontiers in Psychology, 12, 4196.

    Type: Other

    Crossref
16. Michael Oliver (1996). The Social Model in Context . In Understanding Disability (pp. 30-42). Macmillan Education UK.

    Type: Book chapter DOI: 10.1007/978-1-349-24269-6_4 OpenAlex: https://openalex.org/W2431251178

    Crossref OpenAlex
17. Monique Botha *Autistic author. Learn more… (2025). Critical realism, community psychology, and the curious case of autism: A philosophy and practice of science with social justice in mind . Journal of Community Psychology, 53(1), e22764-e22764. Wiley.

    Type: Article DOI: 10.1002/jcop.22764 OpenAlex: https://openalex.org/W4200432465

    AutiHub · Autistic Scholars Crossref OpenAlex
18. Anne McGuire (2016). War on Autism . University of Michigan Press.

    Type: Book DOI: 10.3998/mpub.7784427 OpenAlex: https://openalex.org/W2467244311

    Crossref OpenAlex
19. Monique Botha *Autistic author. Learn more… Autistic agency: Acknowledging room for resistance and dissent in the face of trauma and normativity in autism research . Interdisciplinary Autism Research Festival.

    Type: Other

    Crossref
20. Herwig Czech (2018). Hans Asperger, National Socialism, and “race hygiene” in Nazi-era Vienna . Molecular Autism, 9(1), 29-29. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13229-018-0208-6 OpenAlex: https://openalex.org/W2801876565

    Crossref OpenAlex
21. Monique Botha *Autistic author. Learn more… , Eilidh Cage (2022). Autism research is in crisis: A mixed method study of researcher’s constructions of autistic people and autism research. Front. Psychol., 13.

    Type: Other DOI: 10.3389/fpsyg.2022f.1050897 OpenAlex: https://openalex.org/W4309855376 Crossref: not found DataCite: not found

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex
22. Shain Neumeier , Ly Xīnzhèn M. Zhǎngsūn Brown *Autistic author. Learn more… (2020). Torture in the Name of Treatment: The Mission to Stop the Shocks in the Age of Deinstitutionalization . In Autistic Community and the Neurodiversity Movement: Stories From the Frontline (pp. 195-210). Springer Singapore.

    Type: Book chapter DOI: 10.1007/978-981-13-8437-0_14 OpenAlex: https://openalex.org/W2989267096

    AutiHub · Autistic Scholars Crossref OpenAlex
23. Monique Botha *Autistic author. Learn more… , Robert Chapman *Autistic author. Learn more… , Morénike Giwa Onaiwu *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , Abs S. Ashley *Autistic author. Learn more… , Nick Walker *Autistic author. Learn more… (2024). The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory . Autism, 28(6), 1591-1594. SAGE Publications.

    Type: Article DOI: 10.1177/13623613241237871 OpenAlex: https://openalex.org/W4392704062

    AutiHub · Autistic Scholars Crossref OpenAlex
24. Simon M. Bury , Rachel Jellett , Jennifer R. Spoor , Darren Hedley (2023). “It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 53(2), 677-687. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04425-3 OpenAlex: https://openalex.org/W3007056653

    Crossref OpenAlex
25. Monique Botha *Autistic author. Learn more… , Bridget Dibb , David M. Frost (2022). "Autism is me": an investigation of how autistic individuals make sense of autism and stigma . Disability & Society, 37(3), 427-453. Informa UK Limited.

    Type: Article DOI: 10.1080/09687599.2020.1822782 OpenAlex: https://openalex.org/W3092648145

    AutiHub · Autistic Scholars Crossref OpenAlex
26. Elizabeth Pellicano (2020). Commentary: Broadening the research remit of participatory methods in autism science – a commentary on Happé and Frith (2020) . Journal of Child Psychology and Psychiatry, 61(3), 233-235. Wiley.

    Type: Article DOI: 10.1111/jcpp.13212 OpenAlex: https://openalex.org/W3007890588

    AutiHub · Documentation center Crossref OpenAlex
27. Monique Botha *Autistic author. Learn more… , Jacqueline Hanlon , Gemma Williams *Autistic author. Learn more… (2020). Does language matter? Identity-first versus person-first language use in autism research: A response to Vivanti . Center for Open Science.

    Type: Preprint DOI: 10.31219/osf.io/75n83 OpenAlex: https://openalex.org/W4240339336

    Crossref OpenAlex
28. Rosalind Cooper , Kate Cooper , Ailsa Russell , Laura G. E. Smith (2021). “I’m Proud to be a Little Bit Different”: The Effects of Autistic Individuals’ Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem . Journal of Autism and Developmental Disorders, 51(2), 704-714. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04575-4 OpenAlex: https://openalex.org/W3036418460

    Crossref OpenAlex
29. Bottema-Beutel K. (2020). Avoiding ableist language: Suggestions for autism researchers . Autism in Adulthood.

    Type: Other

    Crossref
30. Francesca Peruzzo (2020). I am not disabled: . In Ableism in Academia (pp. 31-50). UCL Press.

    Type: Book chapter DOI: 10.2307/j.ctv13xprjr.8 OpenAlex: https://openalex.org/W3090930955

    Crossref OpenAlex
31. Braun V. (2020). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 21(1), 1.

    Type: Other

    Crossref
32. Anna Stenning *Autistic author. Learn more… , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… (2021). Neurodiversity studies: mapping out possibilities of a new critical paradigm . Disability & Society, 36(9), 1532-1537. Informa UK Limited.

    Type: Article DOI: 10.1080/09687599.2021.1919503 OpenAlex: https://openalex.org/W3176865518

    AutiHub · Autistic Scholars Crossref OpenAlex
33. Bridget L. (2023). Weighing in: Academic writers on neurodiversity . International Journal of Disability and Social Justice, 3(3), 72.

    Type: Other

    Crossref
34. British Dyslexia Association. (n.d.). Neurodiversity and Co-occurring difficulties. Bdadyslexia. https://www.bdadyslexia.org.uk/dyslexia/neurodiversity-and-co-occurring-differences/what-is-neurodiversity .

    Type: Other

    Crossref
35. Aaron R Dallman , Kathryn L Williams , Lauren Villa (2022). Neurodiversity-Affirming Practices are a Moral Imperative for Occupational Therapy . The Open Journal of Occupational Therapy, 10(2), 1-9. Western Michigan University - DIGITAL COMMONS.

    Type: Article DOI: 10.15453/2168-6408.1937 OpenAlex: https://openalex.org/W4224101145

    Crossref OpenAlex
36. Brown N. (2020). Ableism in academia: Theorising experiences of disabilities and chronic illnesses in higher education . Ableism in academia: Theorising experiences of disabilities and chronic illnesses in higher education, 164.

    Type: Other

    Crossref
37. Riley Buijsman , Sander Begeer , Anke Scheeren (2023). ‘Autistic person’ or ‘person with autism’? Person-first language preference in Dutch adults with autism and parents . Autism, 27(3), 788-795. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221117914 OpenAlex: https://openalex.org/W4291165536

    Crossref OpenAlex
38. (n.d.). CAPTAP. (2023 September 19). How to Talk about Autistic Ways of Being. https://captapnetwork.wordpress.com/2023/09/19/how-to-talk/ .

    Type: Other

    Crossref
39. Carr-Fanning K. (2020). The right to dignity or disorder? The Case for Attention Deficit Hyperactivity Diversity. Studies in Arts and Humanities, 6(1), 14.

    Type: Other

    Crossref
40. Miranda Fricker (2007). Testimonial Injustice . In Epistemic Injustice (pp. 9-29). Oxford University PressOxford.

    Type: Book chapter DOI: 10.1093/acprof:oso/9780198237907.003.0002 OpenAlex: https://openalex.org/W4252729086

    Crossref OpenAlex
41. Robert Chapman *Autistic author. Learn more… , Monique Botha *Autistic author. Learn more… (2023). Neurodivergence‐informed therapy . Developmental Medicine & Child Neurology, 65(3), 310-317. Wiley.

    Type: Article DOI: 10.1111/dmcn.15384 OpenAlex: https://openalex.org/W4295008953

    AutiHub · Autistic Scholars Crossref OpenAlex
42. Anna Cook (2024). Conceptualisations of neurodiversity and barriers to inclusive pedagogy in schools: A perspective article . Journal of Research in Special Educational Needs, 24(3), 627-636. Wiley.

    Type: Article DOI: 10.1111/1471-3802.12656 OpenAlex: https://openalex.org/W4392646133

    Crossref OpenAlex
43. Amanda Taboas , Karla Doepke , Corinne Zimmerman (2023). Preferences for identity-first versus person-first language in a US sample of autism stakeholders . Autism, 27(2), 565-570. SAGE Publications.

    Type: Article DOI: 10.1177/13623613221130845 OpenAlex: https://openalex.org/W4306157884

    Crossref OpenAlex
44. Alison Singer , Amy Lutz , Jill Escher , Alycia Halladay (2023). A full semantic toolbox is essential for autism research and practice to thrive . Autism Research, 16(3), 497-501. Wiley.

    Type: Article DOI: 10.1002/aur.2876 OpenAlex: https://openalex.org/W4311202441

    Crossref OpenAlex
45. Jacky (Manidoomakwakwe) Ellis (2023). Imagining Neurodivergent Futures from the Belly of the Identity Machine: Neurodiversity, Biosociality, and Strategic Essentialism . Autism in Adulthood, 5(3), 225-235. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0075 OpenAlex: https://openalex.org/W4313462048

    Crossref OpenAlex
46. Connor Tom Keating , Lydia Hickman , Joan Leung , Ruth Monk *Autistic author. Learn more… , Alicia Montgomery , Hannah Heath et al. (2023). Autism‐related language preferences of English ‐speaking individuals across the globe: A mixed methods investigation . Autism Research, 16(2), 406-428. Wiley.

    Type: Article DOI: 10.1002/aur.2864 OpenAlex: https://openalex.org/W4311669372

    AutiHub · Autistic Scholars Crossref OpenAlex
47. Jaime Flowers , Jillian Dawes , Daniel McCleary , Hunter Marzolf (2023). Words matter: Language preferences in a sample of autistic adults . Neurodiversity, 1. SAGE Publications.

    Type: Article DOI: 10.1177/27546330231216548 OpenAlex: https://openalex.org/W4389052076

    Crossref OpenAlex
48. Heini M Natri *Autistic author. Learn more… , Oluwatobi Abubakare *Autistic author. Learn more… , Kassiane Asasumasu *Autistic author. Learn more… , Abha Basargekar , Flavien Beaud , Monique Botha *Autistic author. Learn more… et al. (2023). Anti‐ableist language is fully compatible with high‐quality autism research: Response to S inger et al. (2023) . Autism Research, 16(4), 673-676. Wiley.

    Type: Article DOI: 10.1002/aur.2928 OpenAlex: https://openalex.org/W4366776611

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex
49. Aimee Grant *Autistic author. Learn more… , Jennifer Leigh , Monique Botha *Autistic author. Learn more… , Stephen J. Macdonald , Kathryn Williams *Autistic author. Learn more… , Gemma Williams *Autistic author. Learn more… et al. (2025). ‘A Lovely Safe Umbrella to Describe Yourself With’ or ‘Meaningless’: An Online Survey of UK-Based Neurodivergent Adults’ Views of Neurodiversity-Related Terminology . Neurodiversity, 3. SAGE Publications.

    Type: Article DOI: 10.1177/27546330251390590 OpenAlex: https://openalex.org/W4416096031

    AutiHub · Autistic Scholars Crossref OpenAlex
50. Hall S. (1997). The spectacle of the other . Representation: Cultural Representations and Signifying Practices, 7, 223.

    Type: Other

    Crossref
51. Edmund J.S. Sonuga-Barke , Susie Chandler , Steve Lukito , Myrofora Kakoulidou , Graham Moore , Niki Cooper et al. (2024). Participatory translational science of neurodivergence: model for attention-deficit/hyperactivity disorder and autism research . The British Journal of Psychiatry, 224(4), 127-131. Royal College of Psychiatrists.

    Type: Article DOI: 10.1192/bjp.2023.151 OpenAlex: https://openalex.org/W4391882013

    Crossref OpenAlex
52. Han E. (2023). Development of stigma-related support for autistic adults: Insights from the autism community . Autism, 136236132211435.

    Type: Other

    Crossref
53. Harding S. (1991). Whose science? Whose knowledge?: Thinking from women’s lives. https://books.google.co.uk/books?hl=en&lr=&id=eSmPEH7-u2°C&oi=fnd&pg=PR7&dq=Harding+S.+Whose+Science+Whose+Knowledge%3F+Thinking+from+women%E2%80%99s+lives.+Ithaca+MY:+Cornell+University+Press%3B+1991.&ots=YeB0CSUczY&sig=cw_OwCnkhy7nOoBq6C16D5RSRa0 .

    Type: Other

    Crossref
54. Nathan Keates , Farradeh Martin , Krysia Emily Waldock *Autistic author. Learn more… (2025). Autistic People’s Perspectives on Functioning Labels and Associated Reasons, and Community Connectedness . Journal of Autism and Developmental Disorders, 55(4), 1318-1328. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-024-06316-3 OpenAlex: https://openalex.org/W4392984872

    AutiHub · Autistic Scholars Crossref OpenAlex
55. Shae Wissell , Judith Hudson , Rebecca L. Flower , William Goh (2025). ‘I hate calling it a disability’: Exploring how labels impact adults with dyslexia through an intersectional lens . Neurodiversity, 3. SAGE Publications.

    Type: Article DOI: 10.1177/27546330241308540 OpenAlex: https://openalex.org/W4406226006

    Crossref OpenAlex
56. Paul Stenner , Amy Pearson *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , C. L. Watson , Ronit Pressler , Gemma Williams *Autistic author. Learn more… et al. (2025). Using Q Methodology, a Group of Neurodivergent Neurodiversity Researchers Ask: What is the Neurodiversity Movement and what should it do? Neurodiversity, 3. SAGE Publications.

    Type: Article DOI: 10.1177/27546330251329625 OpenAlex: https://openalex.org/W4410556286

    AutiHub · Autistic Scholars Crossref OpenAlex
57. Yong-Hwee Nah , Hillary Ler-Lee Lim (2025). Preferences for Identity-First Versus Person-First Language in a Sample of University Students with Special Educational Needs (SEN) in Singapore . Journal of Autism and Developmental Disorders. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-025-06902-z OpenAlex: https://openalex.org/W4411036974

    Crossref OpenAlex
58. Elaine McGreevy , Alexis Quinn *Autistic author. Learn more… , Roslyn Law , Monique Botha *Autistic author. Learn more… , Mairi Evans , Kieran Rose *Autistic author. Learn more… et al. (2026). An Experience Sensitive Approach to Care With and for Autistic Children and Young People in Clinical Services . Journal of Humanistic Psychology, 66(1), 107-133. SAGE Publications.

    Type: Article DOI: 10.1177/00221678241232442 OpenAlex: https://openalex.org/W4392849144

    AutiHub · Autistic Scholars Crossref
59. Pearson A. (2021). Rehumanising the study of humans. Interdisciplinary Autism Research Festival.

    Type: Other

    Crossref
60. Pearson A (2023). Autistic masking: Understanding identity management and the role of stigma . Autistic Masking: Understanding Identity Management and the Role of Stigma.

    Type: Other

    Crossref
61. Proctor R. N. (1995). The destruction of ‘lives not worth living’ . Deviant Bodies, 170.

    Type: Other

    Crossref
62. Rose K. (2024). What is Neurodiversity? The Autistic Advocate. https://theautisticadvocate.com/what-is-neurodiversity-new/ .

    Type: Other

    Crossref
63. Rose K. Vivian S. (2020). Regarding the use of Dehumanising Rhetoric. https://theautisticadvocate.com/2020/02/regarding-the-use-of-dehumanising-rhetoric/ .

    Type: Other

    Crossref
64. Walker N. (2021). Neuroqueer Heresies . Neuroqueer Heresies.

    Type: Other

    Crossref
65. Williams G. (2024). Understanding Others in a Neurodiverse World: A Radical Perspective on Communication and Shared Meaning . Understanding others in a neurodiverse world: A radical perspective on communication and shared meaning.

    Type: Other

    Crossref
66. Wise S. J. (2023). We’re All Neurodiverse: How to Build a Neurodiversity-Affirming Future and Challenge Neuronormativity . We’re All Neurodiverse: How to Build a Neurodiversity-Affirming Future and Challenge Neuronormativity.

    Type: Other

    Crossref
67. Zisk A. H. (2022). How to talk about AAC and AAC users (according to them) . Assistive Ware.

    Type: Other

    Crossref