‘Nothing About Us, Without Us’: Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia

This publication is included in the Autistic Autism Scholarship Project. four authors of this publication are identified as autistic in the project.

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Grove, R., Clapham, H., Moodie, T., Gurrin, S., & Hall, G. (2024). ‘Nothing About Us, Without Us’: Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia. Journal of Autism and Developmental Disorders, 55(7), 2522-2538. https://doi.org/10.1007/s10803-024-06330-5

Publication date: 6 May 2024 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
5
Publication authors identified as autistic
4 / 5 (80.0%)
  1. Rachel Grove
  2. Hayley Clapham *
  3. Tess Moodie *
  4. Sarah Gurrin *
  5. Gabrielle Hall *

Abstract

Autistic girls, women and gender diverse people have specific needs that are underrepresented in research. Research priorities are often established by funding bodies, researchers, parents, carers and health professionals and may not meet the needs of the diverse Autistic community. This co-produced project aimed to identify what research would benefit the lives of Autistic girls, women and gender diverse people in Australia. We interviewed 47 Autistic girls, women and gender diverse people aged seven and above and obtained feedback from an additional 411 Autistic people through an online survey. Autistic young people identified six key research priorities including (1) better understanding and support at school, (2) understanding our experiences, strengths and challenges, (3) autism specific mental health support, (4) Autistic friendships and relationships, (5) experiences of gender diversity and (6) accommodations to make life easier for us. Eight key research priority areas were identified by Autistic adults including (1) understanding and supporting specific needs in adulthood, (2) experiences of trauma, abuse and sexual violence, (3) supporting mental health and wellbeing, (4) addressing barriers in healthcare, (5) understanding and supporting physical health needs, (6) addressing barriers in education and the workplace, (7) understanding the role of society, embracing neurodiversity and the importance of Autistic identity and (8) co-designing research and supports with Autistic people. We provide a discussion around the importance of focusing on these research priority areas in future autism research in Australia.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
52
With a DOI
37
Without a DOI, from raw bibliography text
15
12 / 52 (23.1%) cited references include at least one author identified as autistic.
References with data to complete
15 / 52 (28.8%)
References with detected author names
37 / 52 (71.2%)
Without detected author names
15
Without a structured title
15
Without a stable identifier
15
References with raw author names still to review
15
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
164
From DOI or external metadata
164
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
45
105 / 164 (64.0%) names are linked to an author already present in AutiHub. 59 / 164 (36.0%) names are not yet linked.
Names linked to a person identified as autistic
25 / 164 (15.2%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 25 / 105 (23.8%). Distinct people identified as autistic: 19 / 142 (13.4%).
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