Confirming the nature of autistic burnout

Arnold, S. R. C., Higgins, J. M., Weise, J., Desai, A., Pellicano, E., & Trollor, J. N. (2023). Confirming the nature of autistic burnout. Autism, 27(7), 1906-1918. https://doi.org/10.1177/13623613221147410

Publication date: 13 Jan 2023 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
1 / 6 (16.7%)

Abstract

Autistic burnout is an experience commonly described by autistic people (#AutBurnout and #AutisticBurnout on social media). Recently, two definitions of this syndrome have been published. Both describe debilitating exhaustion with onset related to various stressors including masking, though several differences exist, such as the characteristic of interpersonal withdrawal. We sought to explore the content validity of these definitions including duration and frequency criteria, using descriptive statistics, content analysis and reflexive thematic analysis. A co-produced survey of 141 autistic adults with experience of autistic burnout showed strong endorsement of the definition by Higgins et al., where exhaustion and interpersonal withdrawal occur alongside reduced functioning, executive functioning difficulties, and increased manifestation of autistic traits. Duration and frequency criteria were unresolved, with qualitative data highlighting varying (both acute and chronic) experiences. Autistic burnout is frequently misdiagnosed as depression, anxiety, bipolar disorder, borderline personality disorder or other conditions. Work is needed to increase community and clinician awareness, as well as initiatives to improve unaccommodating neurotypical environments. More research and validation are needed in larger samples not restricted to autistic adults who have experienced autistic burnout to determine prevalence and risk factors as well as duration and frequency. Lay abstract Autistic burnout is something autistic people have been talking about for a while (see #AutBurnout and #AutisticBurnout on social media). Recently, researchers published two different definitions of autistic burnout. We wanted to test these definitions. We wanted to confirm the duration and frequency of autistic burnout. That is, how long and how often do people get autistic burnout? We surveyed 141 autistic adults who had autistic burnout. We used descriptive statistics, content analysis and reflexive thematic analysis to analyse the survey responses. Autistic adults strongly agreed with the definition published by Higgins et al. How long and how often people get autistic burnout was not clear. Participants told us they have both short and long episodes. Participants told us that autistic burnout leads to exhaustion. They needed to withdraw from being with other people. They needed to stay away from autism unfriendly places. Many had been misdiagnosed as having depression, anxiety, bipolar disorder, borderline personality disorder or other conditions. We need increased awareness of autistic burnout. Autistic people need more help. More research is needed, we need to have bigger studies to understand autistic burnout.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
30
Total cited references integrated for this publication.
Cited references with an identified autistic author
9 / 30 (30.0%)
Cited author occurrences identified as autistic
14 / 115 (12.2%)
Among occurrences linked to AutiHub author records: 14 / 79 (17.7%). Distinct cited authors identified as autistic: 10 / 94 (10.6%).
Cited author occurrences linked to AutiHub author records
79 / 115 (68.7%)
Distinct linked cited authors: 60 / 94 (63.8%)
Linked cited-author occurrences not identified as autistic
65 / 79 (82.3%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 65 / 115 (56.5%). Distinct linked cited authors not identified as autistic: 50 / 60 (83.3%).
  1. Damian Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  2. Simon Baron-Cohen (1995). Mindblindness . The MIT Press.
    Crossref OpenAlex OpenCitations
  3. Anna Madill , Abbie Jordan , Caroline Shirley (2000). Objectivity and reliability in qualitative analysis: Realist, contextualist and radical constructionist epistemologies . British Journal of Psychology, 91(1), 1-20. Wiley.
    Crossref OpenAlex OpenCitations
  4. Samuel R. C. Arnold , Kitty‐Rose Foley , Ye In Hwang , Amanda L. Richdale , Mirko Uljarević , Lauren P. Lawson et al. (2019). Cohort profile: the Australian Longitudinal Study of Adults with Autism (ALSAA) . BMJ Open, 9(12), e030798. BMJ.
    Crossref OpenAlex OpenCitations
  5. Matthew J Hollocks , Jian Wei Lerh , Iliana Magiati , Richard Meiser-Stedman , Traolach Brugha (2019). Anxiety and depression in adults with autism spectrum disorder: a systematic review and meta-analysis . Psychological Medicine, 49(4), 559-572. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  6. Chien-Yu Pan (2010). Effects of water exercise swimming program on aquatic skills and social behaviors in children with autism spectrum disorders . Autism, 14(1), 9-28. SAGE Publications.
    Crossref OpenAlex OpenCitations
  7. Marguerite E. O’Haire (2013). Animal-Assisted Intervention for Autism Spectrum Disorder: A Systematic Literature Review . Journal of Autism and Developmental Disorders, 43(7), 1606-1622. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  8. Simon Baron-Cohen , Sally Wheelwright , Richard Skinner , Joanne Martin , Emma Clubley (2001). The Autism-Spectrum Quotient (AQ): Evidence from Asperger Syndrome/High-Functioning Autism, Males and Females, Scientists and Mathematicians . Journal of Autism and Developmental Disorders, 31(1), 5-17. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  9. Rosa A. Hoekstra , Anna A. E. Vinkhuyzen , Sally Wheelwright , Meike Bartels , Dorret I. Boomsma , Simon Baron-Cohen et al. (2011). The Construction and Validation of an Abridged Version of the Autism-Spectrum Quotient (AQ-Short) . Journal of Autism and Developmental Disorders, 41(5), 589-596. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  10. Mariette Bengtsson (2016). How to plan and perform a qualitative study using content analysis . NursingPlus Open, 2, 8-14. Elsevier BV.
    Crossref OpenAlex OpenCitations
  11. Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2021). Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health . Autism in Adulthood, 3(4), 320-329. SAGE Publications.
    Crossref OpenAlex OpenCitations
  12. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Laura Hull , K. V. Petrides , Carrie Allison , Paula Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  14. David Byrne (2022). A worked example of Braun and Clarke’s approach to reflexive thematic analysis . Quality & Quantity, 56(3), 1391-1412. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  15. Brett Heasman , Alex Gillespie (2018). Perspective-taking is two-sided: Misunderstandings between people with Asperger’s syndrome and their family members . Autism, 22(6), 740-750. SAGE Publications.
    Crossref OpenAlex OpenCitations
  16. Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  17. Katherine Jane Howard (2018). Emergence of a new method: The Grounded Delphi method . Library and Information Research, 42(126), 5-31. University of Alberta Libraries.
    Type: Article DOI: 10.29173/lirg746 OpenAlex: https://openalex.org/W2885691101
    Crossref OpenAlex OpenCitations
  18. (n.d.). Endow J. (2017, March 9). Autistic burnout and aging. Aspects of Autism Translated. http://www.judyendow.com/autism-and-aging/autistic-burnout-and-aging/
    Type: Other
    Crossref
  19. Wenn Lawson *Autistic author. Learn more… (2020). Adaptive Morphing and Coping with Social Threat in Autism: An Autistic Perspective . Journal of Intellectual Disability - Diagnosis and Treatment, 8(3), 519-526. Lifescience Global.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  20. Peter Mitchell , Elizabeth Sheppard , Sarah Cassidy (2021). Autism and the double empathy problem: Implications for development and mental health . British Journal of Developmental Psychology, 39(1), 1-18. Wiley.
    Crossref OpenAlex OpenCitations
  21. Jasmine Phung , Melanie Penner , Clémentine Pirlot , Christie Welch (2021). What I Wish You Knew: Insights on Burnout, Inertia, Meltdown, and Shutdown From Autistic Youth . Frontiers in Psychology, 12, 741421-741421. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  22. Lauren A Weaver , Emelyne Bingham , Kelly Luo , A Pablo Juárez , Julie Lounds Taylor (2021). What do we really mean by “inclusion?”: The importance of terminology when discussing approaches to community engagement . Autism, 25(8), 2149-2151. SAGE Publications.
    Crossref OpenAlex OpenCitations
  23. (n.d.). Rose K. (2018, May 21). An autistic burnout – The autistic advocate. http://www.theautisticadvocate.com/2018/05/an-autistic-burnout.html
    Type: Other
    Crossref