Good intentions are not enough: Autistic perspectives on structural ableism within the walls of our classrooms

This publication is included in the Autistic Autism Scholarship Project. At least four authors are autistic; the publication does not identify all autistic authors by name.

Nadwodny, N., VanHook, B., Esham, B., Larsen, L. N., Levinson, S., & Eisenhower, A. (2026). Good intentions are not enough: Autistic perspectives on structural ableism within the walls of our classrooms. Autism, 30(5), 1176-1190. https://doi.org/10.1177/13623613261426691

Publication date: 10 Mar 2026 Added to AutiHub: 18 Oct 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Autistic authors reported by the publication
At least 4

Abstract

This study aimed to examine how structural ableism affects autistic learners by collecting first-person perspectives of current and former autistic students about how their school experiences shaped their ability to self-advocate. In addition, the study aimed to further highlight autistic perspectives by incorporating a community-participatory research design, which consisted of a primarily autistic research team. Participants consisted of 19 autistic adolescents and adults who represented a wide array of intersectional sociodemographic identities. Participants were engaged in a 90-min semi-structured interview to discuss their school experiences. Interviews were analyzed qualitatively and inductively through a critical constructivist approach to grounded theory. Data analysis highlighted many structural barriers to autistic self-advocacy for our participants. These barriers were described within six distinct domains which emerged as themes in our analysis: erasure, conformity, isolation, oppression, hidden expectations, and authority. This qualitative, community-participatory research study exposes the degree to which systems-level ableism exists within US K–12 systems. Specifically, our participants emphasized ableism that went beyond the individual or interpersonal level. We conclude with a series of recommendations on how to combat these manifestations of ableism in schools. Lay summary The goal of this study was to ask current and former autistic students about their school experiences and self-advocacy. Self-advocacy means being able to ask for what you need and to make your own choices. Nineteen autistic students were interviewed about self-advocacy at school. These autistic students told the research team that schools often made it hard for them to self-advocate. They also told the research team that schools were ableist, meaning that they did not respect the rights of disabled people. This study is important because it shows ways in which schools do not support autistic people and recommends ways for schools to treat autistic people better. This study is also important because the research team was mostly autistic. The expertise of autistic researchers on our team helped us create research that highlights autistic people’s voices.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 23 Oct 2026 07:46.

Cited references
57
With a DOI
45
Without a DOI, from raw bibliography text
12
9 / 57 (15.8%) cited references include at least one author identified as autistic.
References with data to complete
4 / 57 (7.0%)
References with detected author names
55 / 57 (96.5%)
Without detected author names
2
Without a structured title
4
Without a stable identifier
12
References with raw author names still to review
2
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
177
From DOI or external metadata
177
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
8
112 / 177 (63.3%) names are linked to an author already present in AutiHub. 65 / 177 (36.7%) names are not yet linked.
Names linked to a person identified as autistic
61 / 177 (34.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 61 / 112 (54.5%). Distinct people identified as autistic: 53 / 161 (32.9%).
  1. Heidi M. Levitt (2015). Interpretation-Driven Guidelines for Designing and Evaluating Grounded Theory Research: A Constructivist-Social Justice Approach . In Psychotherapy Research (pp. 455-483). Springer Vienna.
    Crossref OpenAlex
  2. Alcorn A. M. Fletcher-Watson S. McGeown S. Murray F. Aitken D. Peacock L. J. J. Mandy W. (2022). Learning about neurodiversity at school: A resource pack for primary school teachers and pupils. University of Edinburgh. https://salvesen-research.ed.ac.uk/leans
    Type: Other
    Crossref
  3. Stanley Stylianos , Vahe Kehyayan (2012). Advocacy: Critical component in a comprehensive mental health system. American Journal of Orthopsychiatry, 82(1), 115-120. American Psychological Association (APA).
    Crossref OpenAlex
  4. Autistic Self Advocacy Network (2021). Welcome to the autistic community . Welcome to the autistic community.
    Type: Other
    Crossref
  5. Bonnie Doren , Hyun Ju Kang (2016). Autonomy, Self-Realization, and Self-Advocacy and the School- and Career-Related Adjustment of Adolescent Girls With Disabilities . Career Development and Transition for Exceptional Individuals, 39(3), 132-143. SAGE Publications.
    Crossref OpenAlex
  6. Susan Baglieri , Priya Lalvani (2019). Why Teach About Disability and Ableism in K–12 Education? In Undoing Ableism (pp. 1-12). Routledge.
    Type: Book chapter DOI: 10.4324/9781351002868-1 OpenAlex: https://openalex.org/W2976141486
    Crossref OpenAlex
  7. Emma Rowley , Susie Chandler , Gillian Baird , Emily Simonoff , Andrew Pickles , Tom Loucas et al. (2012). The experience of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement . Research in Autism Spectrum Disorders, 6(3), 1126-1134. Elsevier BV.
    Crossref OpenAlex
  8. Kobie Boshoff , Gerry Redmond , Phillip Slee , Sally Robinson (2025). The perceptions of Autistic school students of their well-being at school: a meta-synthesis . European Journal of Special Needs Education, 40(4), 688-705. Informa UK Limited.
    Crossref OpenAlex
  9. Sarah Parsons (2015). ‘Why are we an ignored group?’ Mainstream educational experiences and current life satisfaction of adults on the autism spectrum from an online survey . International Journal of Inclusive Education, 19(4), 397-421. Informa UK Limited.
    Crossref OpenAlex
  10. Janina Brede , Anna Remington , Lorcan Kenny , Katy Warren , Elizabeth Pellicano (2017). Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school . Autism & Developmental Language Impairments, 2, 1. SAGE Publications.
    Crossref OpenAlex
  11. Robyn Brown , Monica Silny , Jordan T. Brown (2021). Ableism in the Academy? A Systematic Review and Meta-Analysis of Experiences of Students with Disabilities in U.S. Higher Education . In Diversity and Inclusion Research (pp. 293-307). Springer International Publishing.
    Crossref OpenAlex
  12. David L. Rennie (2000). Grounded Theory Methodology as Methodical Hermeneutics . Theory & Psychology, 10(4), 481-502. SAGE Publications.
    Crossref OpenAlex
  13. Charmaz K. (2014). Constructing grounded theory . Constructing grounded theory.
    Type: Other
    Crossref
  14. Kathy Charmaz (2017). The Power of Constructivist Grounded Theory for Critical Inquiry . Qualitative Inquiry, 23(1), 34-45. SAGE Publications.
    Crossref OpenAlex
  15. David W. Test , Catherine H. Fowler , Wendy M. Wood , Denise M. Brewer , Steven Eddy (2005). A Conceptual Framework of Self-Advocacy for Students with Disabilities . Remedial and Special Education, 26(1), 43-54. SAGE Publications.
    Crossref OpenAlex
  16. David DeMatthews (2020). Addressing Racism and Ableism in Schools: A DisCrit Leadership Framework for Principals . The Clearing House: A Journal of Educational Strategies, Issues and Ideas, 93(1), 27-34. Informa UK Limited.
    Crossref OpenAlex
  17. Janette Dinishak , Nameera Akhtar (2023). Integrating autistic perspectives into autism science: A role for autistic autobiographies . Autism, 27(3), 578-587. SAGE Publications.
    Crossref OpenAlex
  18. Diane Walker , Florence Myrick (2006). Grounded Theory: An Exploration of Process and Procedure . Qualitative Health Research, 16(4), 547-559. SAGE Publications.
    Crossref OpenAlex
  19. Susan A. Pickett , Sita Diehl , Pamela J. Steigman , Joy D. Prater , Anthony Fox , Judith A. Cook (2010). Early outcomes and lessons learned from a study of the Building Recovery of Individual Dreams and Goals through Education and Support (BRIDGES) program in Tennessee. Psychiatric Rehabilitation Journal, 34(2), 96-103. American Psychological Association (APA).
    Crossref OpenAlex
  20. Melanie Feldman , Narmene Hamsho , Jan Blacher , Alice S. Carter , Abbey Eisenhower (2022). Predicting peer acceptance and peer rejection for autistic children . Psychology in the Schools, 59(11), 2159-2182. Wiley.
    Crossref OpenAlex
  21. Eric L. Roberts , Song Ju , Dalun Zhang (2016). Review of Practices That Promote Self-Advocacy for Students With Disabilities . Journal of Disability Policy Studies, 26(4), 209-220. SAGE Publications.
    Crossref OpenAlex
  22. Jane C. Hood (2007). Orthodoxy vs. Power: The Defining Traits of Grounded Theory . In The SAGE Handbook of Grounded Theory (pp. 151-164). SAGE Publications Ltd.
    Crossref OpenAlex
  23. Judith A. Holton (2007). The Coding Process and Its Challenges . In The SAGE Handbook of Grounded Theory (pp. 265-289). SAGE Publications Ltd.
    Crossref OpenAlex
  24. Glaser B. (1967). The discovery of grounded theory: Strategies for qualitative research . The discovery of grounded theory: Strategies for qualitative research.
    Type: Other
    Crossref
  25. Craig Goodall (2018). ‘I felt closed in and like I couldn’t breathe’: A qualitative study exploring the mainstream educational experiences of autistic young people . Autism & Developmental Language Impairments, 3, 239694151880440. SAGE Publications.
    Crossref OpenAlex
  26. Ross Greene , Jennifer Winkler (2019). Collaborative & Proactive Solutions (CPS): A Review of Research Findings in Families, Schools, and Treatment Facilities . Clinical Child and Family Psychology Review, 22(4), 549-561. Springer Science and Business Media LLC.
    Crossref OpenAlex
  27. Emma Williams , Kate Gleeson , Bridget E Jones (2019). How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis . Autism, 23(1), 8-28. SAGE Publications.
    Crossref OpenAlex
  28. Haspel M. (2020). Autism in the classroom. Teacher self-identified factors impacting success . Journal of the Division on Autism and Developmental Disabilities, 7(1), 44.
    Type: Other
    Crossref
  29. Stephanie C. Holmes (2024). Inclusion, autism spectrum, students’ experiences . International Journal of Developmental Disabilities, 70(1), 59-73. Informa UK Limited.
    Crossref OpenAlex
  30. Finbar Horgan , Neil Kenny , Paula Flynn (2023). A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools . Autism, 27(2), 526-538. SAGE Publications.
    Crossref OpenAlex
  31. Connor Tom Keating (2021). Participatory Autism Research: How Consultation Benefits Everyone . Frontiers in Psychology, 12, 713982. Frontiers Media SA.
    Crossref OpenAlex
  32. Heidi M. Levitt (2021). Essentials of critical-constructivist grounded theory research. American Psychological Association.
    Crossref OpenAlex
  33. Carlyn O. Mueller (2021). “I Didn’t Know People With Disabilities Could Grow Up to Be Adults”: Disability History, Curriculum, and Identity in Special Education . Teacher Education and Special Education: The Journal of the Teacher Education Division of the Council for Exceptional Children, 44(3), 189-205. SAGE Publications.
    Crossref OpenAlex
  34. Longhurst N. A. (1994). The self-advocacy movement by people with developmental disabilities: A demographic study and directory of self-advocacy groups in the United States . The self-advocacy movement by people with developmental disabilities: A demographic study and directory of self-advocacy groups in the United States.
    Type: Other
    Crossref
  35. National Council on Disability (2018). National Council on Disability. (2018). IDEA series: The segregation of students with disabilities. IDEA series: The segregation of students with disabilities.
    Type: Other
    Crossref
  36. Siva priya Santhanam , Monica L. Bellon-Harn (2022). Speech-Language Pathologist's Role in Understanding and Promoting Self-Advocacy in Autistic Adults . American Journal of Speech-Language Pathology, 31(2), 649-663. American Speech Language Hearing Association.
    Crossref OpenAlex
  37. David Schena , Rocío Rosales , Emily Rowe (2023). Teaching Self-Advocacy Skills: A Review and Call for Research . J Behav Educ, 32(4), 641. Springer Science and Business Media LLC.
    Crossref OpenAlex
  38. O’Connor A. (2018). An exploration of key issues in the debate between classic and constructivist grounded theory . Grounded Theory Review, 17(01), 90.
    Type: Other
    Crossref
  39. David Rose (2000). Universal Design for Learning . Journal of Special Education Technology, 15(4), 47-51. SAGE Publications.
    Crossref OpenAlex
  40. Oliver-Kerrigan K. (2023). General education teacher perspectives on successfully including students with autism: Focus on high-poverty schools . Teacher Education Quarterly, 50(1), 7.
    Type: Other
    Crossref
  41. Organization for Autism Research. (2012). What’s up with Nick? www.researchautism.org/resources/links/documents/KidsGuide_Accordion.pdf
    Type: Other
    Crossref
  42. Gillian Parekh (2023). Ableism in Education . Routledge.
    Crossref OpenAlex
  43. Jessica Zoe Zanuttini (2023). Capturing the perspectives of students with autism on their educational experiences: A systematic review . International Journal of Educational Research, 117, 102115. Elsevier BV.
    Crossref OpenAlex
  44. James A. Rankin , Grace M. DiGiovanni , Elizabeth S. McKeown , Chandni K. Shah , Edward S. Brodkin (2024). Incorporating self-advocacy and empowerment into small group therapy for adults on the autism spectrum: A pilot study . Research in Autism Spectrum Disorders, 117, 102425. Elsevier BV.
    Crossref OpenAlex
  45. Siva priya Santhanam , Kaitlyn P. Wilson (2024). A Comparison of Autistic and Non-Autistic College Students' Perceived Challenges and Engagement in Self-Advocacy . American Journal of Speech-Language Pathology, 33(3), 1471-1484. American Speech Language Hearing Association.
    Crossref OpenAlex
  46. United Nations (1948). United Nations. (1948). Universal declaration of human rights. Universal declaration of human rights.
    Type: Other
    Crossref
  47. Williams P. (1984). We can speak for ourselves: Self-advocacy by mentally handicapped people / Paul Williams and Bonnie Shoultz . We can speak for ourselves: Self-advocacy by mentally handicapped people / Paul Williams and Bonnie Shoultz.
    Type: Other
    Crossref