Good intentions are not enough: Autistic perspectives on structural ableism within the walls of our classrooms
This publication is included in the Autistic Autism Scholarship Project. At least four authors are autistic; the publication does not identify all autistic authors by name.
Nadwodny, N., VanHook, B., Esham, B., Larsen, L. N., Levinson, S., & Eisenhower, A. (2026). Good intentions are not enough: Autistic perspectives on structural ableism within the walls of our classrooms. Autism, 30(5), 1176-1190. https://doi.org/10.1177/13623613261426691
This publication is integrated into AutiHub through:
Authors
Abstract
This study aimed to examine how structural ableism affects autistic learners by collecting first-person perspectives of current and former autistic students about how their school experiences shaped their ability to self-advocate. In addition, the study aimed to further highlight autistic perspectives by incorporating a community-participatory research design, which consisted of a primarily autistic research team. Participants consisted of 19 autistic adolescents and adults who represented a wide array of intersectional sociodemographic identities. Participants were engaged in a 90-min semi-structured interview to discuss their school experiences. Interviews were analyzed qualitatively and inductively through a critical constructivist approach to grounded theory. Data analysis highlighted many structural barriers to autistic self-advocacy for our participants. These barriers were described within six distinct domains which emerged as themes in our analysis: erasure, conformity, isolation, oppression, hidden expectations, and authority. This qualitative, community-participatory research study exposes the degree to which systems-level ableism exists within US K–12 systems. Specifically, our participants emphasized ableism that went beyond the individual or interpersonal level. We conclude with a series of recommendations on how to combat these manifestations of ableism in schools. Lay summary The goal of this study was to ask current and former autistic students about their school experiences and self-advocacy. Self-advocacy means being able to ask for what you need and to make your own choices. Nineteen autistic students were interviewed about self-advocacy at school. These autistic students told the research team that schools often made it hard for them to self-advocate. They also told the research team that schools were ableist, meaning that they did not respect the rights of disabled people. This study is important because it shows ways in which schools do not support autistic people and recommends ways for schools to treat autistic people better. This study is also important because the research team was mostly autistic. The expertise of autistic researchers on our team helped us create research that highlights autistic people’s voices.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Cited bibliography overview
These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 23 Oct 2026 07:46.
- With a DOI
- 45
- Without a DOI, from raw bibliography text
- 12
- References with detected author names
- 55 / 57 (96.5%)
- Without detected author names
- 2
- Without a structured title
- 4
- Without a stable identifier
- 12
- References with raw author names still to review
- 2
- References with external metadata lookup issues
- 0
- From DOI or external metadata
- 177
- From validated raw bibliography text
- 0
- Raw names already validated
- 0
- Raw names still to review
- 8
-
Heidi M. Levitt (2015). Interpretation-Driven Guidelines for Designing and Evaluating Grounded Theory Research: A Constructivist-Social Justice Approach . In Psychotherapy Research (pp. 455-483). Springer Vienna.Crossref OpenAlex
-
Alcorn A. M. Fletcher-Watson S. McGeown S. Murray F. Aitken D. Peacock L. J. J. Mandy W. (2022). Learning about neurodiversity at school: A resource pack for primary school teachers and pupils. University of Edinburgh. https://salvesen-research.ed.ac.uk/leansType: OtherCrossref
-
Stanley Stylianos , Vahe Kehyayan (2012). Advocacy: Critical component in a comprehensive mental health system. American Journal of Orthopsychiatry, 82(1), 115-120. American Psychological Association (APA).Crossref OpenAlex
-
Autistic Self Advocacy Network (2021). Welcome to the autistic community . Welcome to the autistic community.Type: OtherCrossref
-
Bonnie Doren , Hyun Ju Kang (2016). Autonomy, Self-Realization, and Self-Advocacy and the School- and Career-Related Adjustment of Adolescent Girls With Disabilities . Career Development and Transition for Exceptional Individuals, 39(3), 132-143. SAGE Publications.Crossref OpenAlex
-
Susan Baglieri , Priya Lalvani (2019). Why Teach About Disability and Ableism in K–12 Education? In Undoing Ableism (pp. 1-12). Routledge.Crossref OpenAlex
-
Emma Rowley , Susie Chandler , Gillian Baird , Emily Simonoff , Andrew Pickles , Tom Loucas et al. (2012). The experience of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement . Research in Autism Spectrum Disorders, 6(3), 1126-1134. Elsevier BV.Crossref OpenAlex
-
Kobie Boshoff , Gerry Redmond , Phillip Slee , Sally Robinson (2025). The perceptions of Autistic school students of their well-being at school: a meta-synthesis . European Journal of Special Needs Education, 40(4), 688-705. Informa UK Limited.Crossref OpenAlex
-
Sarah Parsons (2015). ‘Why are we an ignored group?’ Mainstream educational experiences and current life satisfaction of adults on the autism spectrum from an online survey . International Journal of Inclusive Education, 19(4), 397-421. Informa UK Limited.Crossref OpenAlex
-
Janina Brede , Anna Remington , Lorcan Kenny , Katy Warren , Elizabeth Pellicano (2017). Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school . Autism & Developmental Language Impairments, 2, 1. SAGE Publications.Crossref OpenAlex
-
Christina Nicolaidis , Dora M. Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , W. Cody Boisclair *Autistic author. Learn more… et al. (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates . Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150. Project MUSE.
-
Robyn Brown , Monica Silny , Jordan T. Brown (2021). Ableism in the Academy? A Systematic Review and Meta-Analysis of Experiences of Students with Disabilities in U.S. Higher Education . In Diversity and Inclusion Research (pp. 293-307). Springer International Publishing.Crossref OpenAlex
-
David L. Rennie (2000). Grounded Theory Methodology as Methodical Hermeneutics . Theory & Psychology, 10(4), 481-502. SAGE Publications.Crossref OpenAlex
-
Charmaz K. (2014). Constructing grounded theory . Constructing grounded theory.Type: OtherCrossref
-
Damian E. M. Milton *Autistic author. Learn more… (2014). Autistic expertise: A critical reflection on the production of knowledge in autism studies . Autism, 18(7), 794-802. SAGE Publications.
-
Kathy Charmaz (2017). The Power of Constructivist Grounded Theory for Critical Inquiry . Qualitative Inquiry, 23(1), 34-45. SAGE Publications.Crossref OpenAlex
-
David W. Test , Catherine H. Fowler , Wendy M. Wood , Denise M. Brewer , Steven Eddy (2005). A Conceptual Framework of Self-Advocacy for Students with Disabilities . Remedial and Special Education, 26(1), 43-54. SAGE Publications.Crossref OpenAlex
-
David DeMatthews (2020). Addressing Racism and Ableism in Schools: A DisCrit Leadership Framework for Principals . The Clearing House: A Journal of Educational Strategies, Issues and Ideas, 93(1), 27-34. Informa UK Limited.Crossref OpenAlex
-
Elizabeth Pellicano , Adam Dinsmore , Tony Charman (2014). What should autism research focus upon? Community views and priorities from the United Kingdom . Autism, 18(7), 756-770. SAGE Publications.
-
Janette Dinishak , Nameera Akhtar (2023). Integrating autistic perspectives into autism science: A role for autistic autobiographies . Autism, 27(3), 578-587. SAGE Publications.Crossref OpenAlex
-
Diane Walker , Florence Myrick (2006). Grounded Theory: An Exploration of Process and Procedure . Qualitative Health Research, 16(4), 547-559. SAGE Publications.Crossref OpenAlex
-
Susan A. Pickett , Sita Diehl , Pamela J. Steigman , Joy D. Prater , Anthony Fox , Judith A. Cook (2010). Early outcomes and lessons learned from a study of the Building Recovery of Individual Dreams and Goals through Education and Support (BRIDGES) program in Tennessee. Psychiatric Rehabilitation Journal, 34(2), 96-103. American Psychological Association (APA).Crossref OpenAlex
-
Melanie Feldman , Narmene Hamsho , Jan Blacher , Alice S. Carter , Abbey Eisenhower (2022). Predicting peer acceptance and peer rejection for autistic children . Psychology in the Schools, 59(11), 2159-2182. Wiley.Crossref OpenAlex
-
Eric L. Roberts , Song Ju , Dalun Zhang (2016). Review of Practices That Promote Self-Advocacy for Students With Disabilities . Journal of Disability Policy Studies, 26(4), 209-220. SAGE Publications.Crossref OpenAlex
-
Sue Fletcher-Watson , Jonathan Adams *Autistic author. Learn more… , Kabie Brook *Autistic author. Learn more… , Tony Charman , Laura Crane , James Cusack *Autistic author. Learn more… et al. (2019). Making the future together: Shaping autism research through meaningful participation . Autism, 23(4), 943-953. SAGE Publications.
-
Jane C. Hood (2007). Orthodoxy vs. Power: The Defining Traits of Grounded Theory . In The SAGE Handbook of Grounded Theory (pp. 151-164). SAGE Publications Ltd.Crossref OpenAlex
-
Kristen Gillespie‐Lynch , Steven Kapp *Autistic author. Learn more… , Patricia J. Brooks , Jonathan Pickens , Ben Schwartzman (2017). Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts . Frontiers in Psychology, 8(1), 438. Frontiers Media SA.
-
Judith A. Holton (2007). The Coding Process and Its Challenges . In The SAGE Handbook of Grounded Theory (pp. 265-289). SAGE Publications Ltd.Crossref OpenAlex
-
Glaser B. (1967). The discovery of grounded theory: Strategies for qualitative research . The discovery of grounded theory: Strategies for qualitative research.Type: OtherCrossref
-
Craig Goodall (2018). ‘I felt closed in and like I couldn’t breathe’: A qualitative study exploring the mainstream educational experiences of autistic young people . Autism & Developmental Language Impairments, 3, 239694151880440. SAGE Publications.Crossref OpenAlex
-
Ross Greene , Jennifer Winkler (2019). Collaborative & Proactive Solutions (CPS): A Review of Research Findings in Families, Schools, and Treatment Facilities . Clinical Child and Family Psychology Review, 22(4), 549-561. Springer Science and Business Media LLC.Crossref OpenAlex
-
Emma Williams , Kate Gleeson , Bridget E Jones (2019). How pupils on the autism spectrum make sense of themselves in the context of their experiences in a mainstream school setting: A qualitative metasynthesis . Autism, 23(1), 8-28. SAGE Publications.Crossref OpenAlex
-
Haspel M. (2020). Autism in the classroom. Teacher self-identified factors impacting success . Journal of the Division on Autism and Developmental Disabilities, 7(1), 44.Type: OtherCrossref
-
Stephanie C. Holmes (2024). Inclusion, autism spectrum, students’ experiences . International Journal of Developmental Disabilities, 70(1), 59-73. Informa UK Limited.Crossref OpenAlex
-
William James Zuber , Colin Webber *Autistic author. Learn more… (2019). Self-advocacy and self-determination of autistic students: a review of the literature . Advances in Autism, 5(2), 107-116. Emerald.
-
Finbar Horgan , Neil Kenny , Paula Flynn (2023). A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools . Autism, 27(2), 526-538. SAGE Publications.Crossref OpenAlex
-
Christina Nicolaidis , Dora M. Raymaker *Autistic author. Learn more… , Steven Kapp *Autistic author. Learn more… , Mel Baggs *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007-2019. SAGE Publications.
-
Connor Tom Keating (2021). Participatory Autism Research: How Consultation Benefits Everyone . Frontiers in Psychology, 12, 713982. Frontiers Media SA.Crossref OpenAlex
-
Kathy Leadbitter , Karen Leneh Buckle *Autistic author. Learn more… , Ceri Ellis , Martijn Dekker *Autistic author. Learn more… (2021). Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice . Frontiers in Psychology, 12(April), 635. Frontiers Media SA.
-
Heidi M. Levitt (2021). Essentials of critical-constructivist grounded theory research. American Psychological Association.Crossref OpenAlex
-
Carlyn O. Mueller (2021). “I Didn’t Know People With Disabilities Could Grow Up to Be Adults”: Disability History, Curriculum, and Identity in Special Education . Teacher Education and Special Education: The Journal of the Teacher Education Division of the Council for Exceptional Children, 44(3), 189-205. SAGE Publications.Crossref OpenAlex
-
Longhurst N. A. (1994). The self-advocacy movement by people with developmental disabilities: A demographic study and directory of self-advocacy groups in the United States . The self-advocacy movement by people with developmental disabilities: A demographic study and directory of self-advocacy groups in the United States.Type: OtherCrossref
-
National Council on Disability (2018). National Council on Disability. (2018). IDEA series: The segregation of students with disabilities. IDEA series: The segregation of students with disabilities.Type: OtherCrossref
-
Alexandra Newson *Autistic author. Learn more… , Sarah Quinn , Rhonda N. T. Nese (2024). Examining the utilization of participatory research with autistic youth in mainstream/public schools: a scoping review . Frontiers in Education, 8. Frontiers Media SA.
-
Siva priya Santhanam , Monica L. Bellon-Harn (2022). Speech-Language Pathologist's Role in Understanding and Promoting Self-Advocacy in Autistic Adults . American Journal of Speech-Language Pathology, 31(2), 649-663. American Speech Language Hearing Association.Crossref OpenAlex
-
David Schena , Rocío Rosales , Emily Rowe (2023). Teaching Self-Advocacy Skills: A Review and Call for Research . J Behav Educ, 32(4), 641. Springer Science and Business Media LLC.Crossref OpenAlex
-
O’Connor A. (2018). An exploration of key issues in the debate between classic and constructivist grounded theory . Grounded Theory Review, 17(01), 90.Type: OtherCrossref
-
David Rose (2000). Universal Design for Learning . Journal of Special Education Technology, 15(4), 47-51. SAGE Publications.Crossref OpenAlex
-
Oliver-Kerrigan K. (2023). General education teacher perspectives on successfully including students with autism: Focus on high-poverty schools . Teacher Education Quarterly, 50(1), 7.Type: OtherCrossref
-
Heta-Kaarina Pukki *Autistic author. Learn more… , Jorn Bettin *Autistic author. Learn more… , Avery Grey Outlaw *Autistic author. Learn more… , Joshua Hennessy *Autistic author. Learn more… , Kabie Brook *Autistic author. Learn more… , Martijn Dekker *Autistic author. Learn more… et al. (2022). Autistic Perspectives on the Future of Clinical Autism Research . Autism in Adulthood, 4(2), 93-101. SAGE Publications.
-
Organization for Autism Research. (2012). What’s up with Nick? www.researchautism.org/resources/links/documents/KidsGuide_Accordion.pdfType: OtherCrossref
-
Gillian Parekh (2023). Ableism in Education . Routledge.Crossref OpenAlex
-
Jessica Zoe Zanuttini (2023). Capturing the perspectives of students with autism on their educational experiences: A systematic review . International Journal of Educational Research, 117, 102115. Elsevier BV.Crossref OpenAlex
-
James A. Rankin , Grace M. DiGiovanni , Elizabeth S. McKeown , Chandni K. Shah , Edward S. Brodkin (2024). Incorporating self-advocacy and empowerment into small group therapy for adults on the autism spectrum: A pilot study . Research in Autism Spectrum Disorders, 117, 102425. Elsevier BV.Crossref OpenAlex
-
Siva priya Santhanam , Kaitlyn P. Wilson (2024). A Comparison of Autistic and Non-Autistic College Students' Perceived Challenges and Engagement in Self-Advocacy . American Journal of Speech-Language Pathology, 33(3), 1471-1484. American Speech Language Hearing Association.Crossref OpenAlex
-
United Nations (1948). United Nations. (1948). Universal declaration of human rights. Universal declaration of human rights.Type: OtherCrossref
-
Williams P. (1984). We can speak for ourselves: Self-advocacy by mentally handicapped people / Paul Williams and Bonnie Shoultz . We can speak for ourselves: Self-advocacy by mentally handicapped people / Paul Williams and Bonnie Shoultz.Type: OtherCrossref